TRIPLE POSITIVE GROUP
Comments
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agent99, wow! That's a lot on your plate! I hope the dog will be fine. And keep that sense if humor - it's lifesaving! Really a laugh can help so much.
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Bren I got shingles 2 months PFC. 5 weeks! Valtrex did shit for me. Shingles are mean. When it starts to dry up you thing Yay it's healing… but that's when the real discomfort starts. So sorry you have this. My PCP wants me to get the vaccine because you can get it again. I just turned 50 when I got shingles. I am not waiting till 60. I think I'll pay the $200 or so.
The vaccine isn't a miracle. You can still get shingles but supposedly it won't be as bad.
Football {{{♥ ♥ ♥ }}}
Thanks Rozem BTW I don't worry about recurrence. That's my onc's job.
debiann even if you didn't have BC your life changes all the time. You will never be what your were yesterday. I means you are alive. That's a good think.
OneTexasDay usually you start counting NED after surgery to remove it.
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Lago - I thought once you had shingles you could not get the vaccine. I got shingles in my mid forties and was told I could not get the vaccine. I guess I will ask.
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fbn. Love the smile!
Kathec I'm sorry you bumped up to osteoporosis. That sucks. I have my Dexa scheduled for November. I'm afraid to see what it is. My last one was after my chemo and I was just this side of that right now. But now 2 years later, afters 2 years on Arimidex we'll see. I also love the Be more Dog! Except for the slobber. Maybe not that. LOL
Debiann, I hope you find something you can eat and taste. And I am glad your dog is doing better.
Linda glad to hear you managed to keep your A1C so low. Mine is 6.9. But since it was 7.0 before BC I'm ok with it. Still controled. My kidney numbers are still low so I know you watch your liver numbers as hard as I watch my kidney ones! LOL. Funny what we get to be experts in after BC.
Ashla, you and I started about the same time. I agree. Take it a bit at a time and reassess.
Onetexasday, what Ashla said, clock starts after the tumor was removed. That's what my MO said. So 2 1/2 years for me. 3 in December.
Ecdjax glad you are finished with tx! Yay!
Cami, I am glad you checked in. You must be busy back at work.
Lago and Rozem, yep. I have to agree. Most people think we are all better after tx. For me, it took Months before I felt better. I think it was a full year before I was strong enough to realize it. I had to have another magnesium infusion as well. More than 2 years PFC. LOL
If I missed anyone I am sorry.
Much love to all.
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Bren. Sorry you got shingles. I am thinking about the vaccine I turn 60 next month. I was gonna pay it myself earlier but I wanted my sx done. And, I just graduated to a cane for my knee. No more walker. And I can drive. But i am not ready to go running around yet. I drove to get my meds and I couldn't believe how tired I got just from that little outing. Guess it's the slow and steady routine! Gonna get back to the Y for my arthritis aqua class!
Lago, I didn't know you could get the shot after an outbreak either. Nice to know.
Much love.
P'S last post to catch up. LOL
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PCP has done a lot of research into shingles and said to wait 2 years then there will be more info on if I should get the vaccine before 60. Why 2 years, I don't know. Also, I didn't know you could get shingle more than once, but I guess you can. I was talking to my brother, who is in his mid 50's, and he has had it twice already. So far the Valtex is giving me a wicked headache so I hope it helps. I am supposed to take it for a week.
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BCO Quote of the Day
"BTW I don't worry about recurrence. That's my onc's job.".......Lago
I love this!!!!! Lago, you are awesome!!
I am telling my onc this next time I see him and taking this off MY shoulders!
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Valtex is typically taken for 1 week. I took it for 2. My PCP said it was no miracle drug but hopefully it will work. Sadly for me it didn't. I was on it for 2 weeks. When I got shingles I read the people who were most likely to get it again were those who had shingles the first time for more than 4 weeks. I was 5 weeks.
geewhiz yes that's what you pay your onc to do. Glad it makes you smile.
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How are you feeling today Bren? Thinking about you with those awful shingles. My friend and my father both had them and I know they can be painful. When my friend had them, she rigged up a halter that could hold an ice pack tightly to the area. She said ice really helped.
I have finally come back to life after 4 horrid days. Again, thanks everyone for your positive thoughts. I got a call from my principal today telling me that I will be switching rooms and surprisingly that phone call really re-energized me. I like the room I'm moving to AND now I have something else to think about besides bc and se.
For those of you who have had a dose reduction, does it really help alleviate the se? I've done the full dose all five rounds, needing a break this last one.
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i did not get a dose reduction, although i complained mightly about SE's.... i hope they do give you a reduction, you really don't want lingering effects. i am so sorry, debianne, that you are having a rough spell. it IS a hard thing to do...i am glad you are almost done.
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Well Lago, your quote has really hit home. I went to yoga last night that my onc teaches two nights a week. I missed last week while my daughter was home. One person came out and said no class that he still wasn't back. Turned out that while on vacation last week, he had to come home early as he was really sick. Saw a gastroenterologist.
Then the Cancer Center social worker saw us and came out and said we all needed to pray, that he would not be back for some time, and that she could not say what was wrong yet. Said they were meeting with his wife this morning to be advised of what they were allowed to say. I asked if he couldn't make that decision himself, and she said not at this time.
Oh my gosh, everyone is reeling. The whole cancer center is upside down as they love him and he is the medical director. I still don't know what is wrong, but am feeling like my lifeline has been cut. I mentioned that I had an appointment in October and hoped he would be feeling better and she said he will not be back then. Crushing blow. I get teary eyed even now just thinking about it. I don't want to see another doctor. I never saw anyone else but him, other than one time when I was on chemo and he was on vacay, the doc breezed through and just did a two minute check.
Now that I am three years out, I can't imagine that anyone else will have the same sort of caring and followup concern that he did. I am so sad for him and his family. He is around 57, with two grown kids and a freshman in hs daughter.
Lago-I missed some pages. What is your new gig? Congrats!
Momma-I took tamox for three years until a pap smear showed endometrial cells which aren't supposed to be there. So, I have been on Arimidex for three months now. I had really bad joint pain with tamoxifen and it went away after a few months. HORRENDOUS hot flashes. Those are actually a little better on Arimidex. Not as frequesnt. On tamoxifen, I had them nearly every fifteen -thirty minutes. Now it is generally a bad one every couple hours, and milder ones in between. Im planning to go back on Cymbalta to see if it will help with current joint pain from the AI, hot flashes, and just calm me down in general.
Bren-I got the shingles and pneumonia vaccine right before starting chemo. Had shingles 24 hours later, lol. They threw me on the abx and it went away quickly, so I think it was a mild reaction, but for about four days, it was terrible. I paid for it out of pocket also.
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As an adult, i have never had flu shots or vaccines of any type, and i have never gotten sick since i was a child, with anything. well except for a slight case of cancer.
OH NO FLUFF. That is just terrible. Awful. I hope for your sake and the people that love him, that what ever it is, he does recover, even if he doesn't come back to work. it sounds really really bad. I am so so sorry. especially, we cannot afford to lose any Magnificent Oncologists. i so want him to get better for all of you...
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Fluff, that is awful. We care about our MOS a lot. No wonder you're upset. I'll add you both to my prayers. Hoping for a good outcome for him.
I take pneumonia and flu shots. So far haven't had the flu since I've taken them. No pneumonia either. That's why I want the shingles shot. My DBIL had it and it was not good. My DFIL now passed, had a severe case before they had the new drugs. He lost the use of his left arm due to the nerve damage it caused. So do what they say to treat it. There's a reason to at least try the drugs.
Much love
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Debiann, I've had two reductions because of side effects. I think it was round 3 the first time, then the last time (round 5). My MO told me about the first one, but the nurse told me about the last one. Funny, the MO didn't mention she was lowering the dose the last time, but I wasn't complaining. The original reason was the bad reaction I was having with my hands. Now look at my fingers (looks like they've been soaking in water) and my nails (afraid I might lose some). Nurse told me last week to put nail hardener on, which I did. I think the reason she reduced the last dose was because of the thrush and stomach issues. I so can't wait to ge this last one over tomorrow, even though I know I still have to go through the SEs ONE MORE TIME!
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Fluff - so sorry - will keep your MO in my prayers and you also - it is so hard to develop trust in your MO through all the stuff they do to us and then to have to start over would be horrible. I hope he makes a full recovery and you only miss one appt with him but it sounds so serious.
My doses were reduced twice - once for neuropathy that was very bad the first treatment and then to try to see if a reduction stabilized my liver enzymes - which it didn't.
Just saw this article - not related to BC but related to VIt D and Alzheimers. More reason to make sure we are getting our D checked and taking supplements if needed.
https://www.yahoo.com/health/clear-link-found-between-vitamin-d-deficiency-and-94074543072.html
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Fluff, I'll be praying for your MO. I know how important it is to trust your Dr. I'm so glad I finally found a new one that I like. That's interesting about the joint pain. I thought it was AIs that had those SEs. I may consider O/S + AI instead of Tamoxifen. So much to think about.
So now I have to worry about getting shingles too!?! I haven't had any problems with my nails but I don't think that is a big SE on AC. I currently use a nail strengthner because my nails have grown like crazy the last few months. I'm trying to keep them strong. One of the nurses at the new office suggested dark nail polish when I start Taxol. She said some people have said it works.
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Debiann, I am not too bad today. I went to work, wore a lose top and no bra. The worst spots are the ones on my spine. Took a Neurontin as soon as I got home.
I am Valtrex for a week, like lago said.
I had a reduction twice, once it was the carbo because of a reaction, and the other was the taxotere because of the neuropathy in my hands. It did seem to help with the neuropathy, but didn't seem to make a difference in the other crappy SE's.
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Sorry fluff to hear about your onc. Thanks about the gig. Graphic designer at a huge law firm in the marketing department. So far great folks to work with.
Shingles shot is a live virus. You can actually get shingles from the vaccine.
efcjax your nails are lifting for sure. All of mine did including my toes. Only lost toenails though. This is not as common as the other SE. Try your best not to stress your fingers. Pressing down is not good. The less stress the better. Mine got pretty gross.
Mommato3 nail issues like this are not as common and seem to happen with the Taxanes.
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fluff - keeping good thoughts for your MO and for you.
Bren - sorry about the shingles - ugh!
Momma - I painted my nails dark for infusion day so light could not penetrate, next day removed that polish and started with clear hardener. Put on a coat a day for seven days, then removed it and started over. I lost one nail that was injured prior to chemo but the rest looked great. No lines, ridges, peeling, or discolored areas. I also iced during the taxane for all six infusions.
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I'm having a weird nail issue that's actually a positive and wondering if chemo is responsible. For the past 40 years I've had a very deformed, thick pinky toe nail (horse stomped on it & broke the toe). Suddenly its a full normal nail. It's beautiful! My luck it will probably fall off, lol.
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I haven't had shingle, but my DH had them a couple of years ago. Apparently if you've had chicken pox then you are more at risk for shingles. While he had shingles, I had to sleep in a different bed and not use any towels etc that he used. The shingles have live chicken pox virus in them, and as I've never had chicken pox I could have caught it from his shingles.
So - be aware that you could pass on chicken pox to others while having shingles. It's not nice.
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Nail issues were always a problem for me, still are after all this time. Mine turned black on the lower half of my nails and I lost most of my oe nails which I thought was good cuz they were ugly, bt most of them grew back sideways, kind of funny when u look at them. I lost 2 finger ails not long ago and growing back weird now so nails to me are just a mess. Y et I still wear crazy nailpolish and chalk my hair to match what I'm wearing, why not.
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Trisha-Anne I was still doing Herceptin when I got shingles. They put me in the "time out" room all by myself so I wouldn't infect the others doing chemo. If the shingles are all dried up you will no longer infect. It's a form of Herpes. Works the same way as a cold sore.
Ha ha Camillegal
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Yes Lago - chicken pox and shingles are both herpes viruses, and both painful. I really feel for everyone that gets them, but getting them while still on treatment is really double not fair!
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I've read that if you got chicken pox after the age of 10 that you were most likely to get shingles. Does that hold true for you who got shingles? Just curious.
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Moon-I sure hope not. I had chicken pox as a child and again when I was 29. So much for statistics... Hoping to avoid shingles, cannot receive the vaccine until after the age of 50. Gives me so much to look forward to next month....colonoscopy and shingles vaccine...a real party!
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moon I was so young when I got chicken pox I don't even remember. If I got them at age 10 I would have remembered. Mine was due to chemo messing with my immune system. Remember, no nuelasta once chemo ended then 2 months later, shingles. BTW both my parents have had shingles as elderly people. Also I know my maternal grandfather, also when he was elderly.
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Just wondering. 3 of my 4 kids got them 2x. Once when they were nursing but a very light case. IE: 4 or 5 pox. They then got them older again with a normal case. Except for DD2. She got such a bad case. O my. It was all over her. You couldn't put a pencil width between the pox. Poor kid. LOL she got it in time for her 8th Bday. Herpes sucks too!
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