TRIPLE POSITIVE GROUP
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A bubble bath sounds great but when we remodeled the bathroom we took out the tub and put in a large shower, lol, hindsight. I've told the DH that when this is over I'd like to add a spa like bathroom in the basement with a jetted tub! I got the rolling eyes. I did shower today, sitting on the floor of the shower cause I couldn't stand up.
Thanks everyone for your support it means so much! At the very least I am asking for a dose reduction next round.
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Aw Debiann, the thought of you sitting on the floor of your shower is so sad. My final chemo is Friday. I can't wait to get it over even though I've just started feeling halfway normal in the last few days. Knowing it's the last time (I pray) helps me have the courage to face it.
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he better quit with the rolling eyes and get the rolling wheelbarrow, and get on with the spa &getting you happy n off the floor of the shower! altho i did that myself too, cause he couldnt hear me cry there. i did a couple times through all this, and i hadn't cried in years, was supremely sad at times, but just not tears for me.
we shall celebrate friday for you efcjax! done with that life saving med!
Ashla, you look beautimous, and absolutely radiant! you must be doing something very right.
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ashla, you look great! and it is so awesome that you found new passion!
efcjax, yay for last tx on Friday!
debiann, I am sorry you are struggling so much with this. It was either #3 or #4 that was the worst for me. DH was really worried about me. The last one was not really any easier, but I think just knowing it was the last one made it mentally more tolerable.
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debiann as you can see we always have one that throws us for a loop. Mine was my 2nd. I had mad diarrhea after the 1st one, nausea & vomiting, headache and everything else. So they cut my dose of Taxotere for the 2nd I expected better. Well i ended up hospitalized with renal failure. Not to mention i was in the hospital when my hair started coming out. After that the tx were better! LOL. They also cut my Carbo for the 3rd. So that's why. LOL
You will get through it though.
Much love
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hi all
Just checking in, hope everyone is doing well!
Debiann. I went in to my last MO appointment before my last chemo determined to throw in the towel. I was so sick and tired and i felt so DONE. My MO begged me to do the last one and promised me it was worth it. - i had pCR to chemo
3 years for me this month! Cant believe it. To the newbies, life really does go on. To my dear friends on this thread from the beginning - thank you for all the support. I coudnt have gotten through those dark days without you all
Hugs to all
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Ashla, you are so pretty! And such a wonderful presence on this board!
Debiann, just one more to go. Believe in yourself, you'll make it. I barely survived one of your treatments and ended up with 12 weekly taxols. I agree, you have no belief that you will make it, but I did. Looking back, I think I was ready to jump off a cliff by treatment 12. I was so tired. I couldn't stop crapping my pants, my poor washing machine gave up the ghost, I had not a single red blood cell, the weekly injection of steroids had made me into a moon-faced fatso. I was going through this during an Indiana Winter and walking out to my car every Friday afternoon for chemo, too weak to walk and so tired I thought I would die.
Today, many, many months later, walking around with my Fitbit, seeing how many steps I take and moving my groove thing if it is not enough. Hair, happy, still really sleepy--which isn't good, lots of thoughts about what I want to do with my life, but happy.
Get through that last one. You'll make it. It is so funny, at my last chemo my nurse navigator stopped by with a giant bag of M&M's with a bow and I remember thinking they looked yucky. Two weeks later I scarfed them down. We want a final chemo pic of you!!
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Debiann I feel so bad for u---I know I'm not here a lot but I do read about everyone all the time. Well anyway u'r almost there--This is just a sucky disease but somehow u manage to get thru chemo and on to surgery and I assume u'll be done with chemo after, but I don't know all of this. But if u'r done just know u will feel better everyone has a different timeline and SE's but u get there- some of the ladies here went thru horror, I remember, and they're doing good now, Oh jeez I should take that out but I'm not trying to scare u, I just mean as I always say there are no rules but somehow we find our way
Ashla u look wonderful and Painting now? Wow impressive.
I just answer phones at home in my sarcastic way and email my boss in my sarcastic way and do my filing in the computing under my rules---He can not tell me I've made any mistakes, he should just correct them himself--I really wonder why he doesn't fire me. I had a customer today that needed his toilet fixed and he said he took off the top and it didn't look right==I reminded him they don't usually use ballcocks anymore--cuz I love that word, cuz I could say it as a kid, anyway that he was used to seeing a ballcock--and of course I used that word with my email as often as I could.
Now Mods that's a real part of the toilet--so.... it's OK
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Hi group! I skipped through 6 pages, so I hope everyone is fine. What an eventful two weeks! DD came home for the big wedding proposal my some had planned. Huge affair. I met her in Chicago, where we went to see a Brigadoon that a high school friend of hers was in. Next morning, the friend, Laura and I met another hs friend for lunch. Then it was hoe,ward bound. Through it all she did not feel great. Got progressively worse. On engagement day, she was pretty puny but determined to do everything. She is a bit of a hypochondriac and drama queen, so I kind of blew it off. At the restaurant, post proposal. She looked bad. Felt her forehead and she was burning up, and that was after taking aspirin and Advil all day, got her home and into bed. Temp was 102.7. At 5:00 a.m., it edged over 103, with meds.
My NP friend, her doc, said go to the emergency room. Severe headache, neck pain. I should add she came home with a bunch of bug bites. So, off we go. They are concerned about the bug bite component, so run the gamut of tests including spinal tap, to rule out meninginitis and encephalitis.,ultimately all clear, except her white count is really low, and platelets are a little low. I immediately think leukemia, but doc says that is really remote. Everything screams infection or virus. We come home. Temp starts to improve, but headache when sitting or standing is severe. At 48 hours, back we go for a blood patch. Headache is cured, but she has severe back pain. In the middle of the night,she wakes me up with a terrible headache. Canst lay down, sit, stand, etc. back to the ER. Rates the pain a 9/10. In purse can't get the IV into her. She is needle phobic. Not fun. Nurse gives up. Laura heads to bathroom holding her head saying she can't bend to throw up, can't stand, can't sit. Finally throws up...crying, etc.
We go out to the room to see Mike, the IV whisperer , who has turned down the lights, has an ultrasound machine, and is talking to her in soft soothing tones. Finds the vein in two seconds. Mission accomplished.
More tests, cat scan, etc. nothing really shows. ER doc thinks it is all related to the unknown virus or all the testing stressed her to the point she has a migraine (which she is not prone to get). Treats her with migraine meds. Things get reasonable better except back still hurts, and now her ear has weird resonating noises (she had ruptured eardrum in Thailand a year ago). Things seem to be improving. I'm exhausted. I was having my master bath overhUled in the middle of all this.
She is packing to head back to NYC. No resolution to the ear, but we will address that later. Back is still pretty painful. Neurologist ordered MRI, said there was a little arthritis ther. Sent her to PT. She had no pain before all of this. I can't he but think,something didn't happen when they positioned her for the spinal taps, etc. she said it hurts really low in her tailbone. PT says she has rotated sacrum. Really, I find it hard to believe this isn't all connected.
So, she leaves tomorrow, and we are drinking a LOT of wine while she packs tonight . And we are excited about the wedding. Here are some pick of the proposal! It was an epic day that we are so glad was. Huge family and friend event!
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fluff - sorry to hear about your DD - hope things resolve soon! I know you are worried about her! The proposal looks sweet - so cute! And what a beautiful couple!
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wow fluff, what a crazy couple of weeks you have had! I hope everything resolves for your daughter's health. The engagement pics looks lovely!
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fluff - wow! Very stressful indeed! The pics are wonderful, though. I hope she feels better soon!
Rozem - congrats on 3 years! It's such a great feeling!
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Ashla you look great as always.
Fluff what an ordeal with DD.
Goutlaw you're doing weight-loss surgery?! When?
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good morning all!
Bloodwork today and round 3/6 taxol tomorrow. I am starting to feel more aches but do not need painkillers yet. Sometimes I feel like a rubber band is wrapped around my thighs or upper back. Joints are achy. Tummy seems to be doing ok. It seems that if I take colace the day of treatment and for a few days beyond things keep moving. Having said that I think that I've developed a small hemorrhoid excellent!
Another thing that I noticed after round 2 is that my tongue started to feel a bit tingly and taste buds are at 70%. I also get hot more frequently at night
And then there's fatigue. I feel that it is increasing but keep trying to get my butt into the gym. Today will be an off day as I went yesterday
I continue to work on my fundraisers. Today I will meet with rep from the credit valley hospital where I am being treated. So excited!
Best of all football is here!!! Woo hoo!!! I'll be done chemo before the first regular season game!! Yahoo!!!!
Have a good day all!!
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Good Morning everyone,
Love the proposal pics! My son is working his way towards planning a proposal and its fun to see what special ideas these boys come up with. The daughter thing is scary, I can't stand not knowing exactly what is wrong.
And I especially love the painting picture, in a former life I was an artist. I painted all the time until I got too busy with the family business and then I just stopped. I didn't find the time to paint because I was raising my kids and running the business. Stupid me! I could have found time but I have a different perspective now. So I gotta do something about that!
I have a question, I knew NOTHING about breast cancer, or any kind of cancer for that matter before my diagnosis. I had no node involvement, so I have been under the assumption(yes, I know what that word means) that if my nodes were clear then the cancer couldn't be anywhere else. In other words, that in order for breast cancer to spread it would have to go through my lymph nodes to get anywhere else. But that's not true is it? I am noticing people on this site who are stage 4 with mets to liver etc with 0 nodes. Which I realize this is why my dr has me going through chemo but I kinda thought that what he meant was, we were doing chemo in case it had traveled through my nodes but it wasn't showing up on the tests.
Am I making sense? My question is does Breast Cancer have to travel through your nodes in order to turn up somewhere else in your body?
My dog has been bitten by a snake this morning! and we were robbed over the weekend! Its rained for a solid week but I feel remarkably hopeful this morning!!! Have another cup of coffee!
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agent99 - wow on the trouble coming in bunches! Hope things calm down for you and that the dog is ok! Yay for coffee! You are correct - lymph nodes are not the only way cancer cells can travel to distant places in the body and set up shop. Did you have LVI noted on your pathology? Cells can travel through tissue, or the vascular system as well as the lymphatic system, and frankly I think not that much is known about the significance of LVI or exactly how cells bypass the lymph nodes and get to other places - also the possibility of travel through the lymphatic system without stopping to form a mass.
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Yes, I am realizing in between managing side effects, when I have a coherent thought that this disease is more complex than I thought. I really wish that the public (meaning us before we were diagnosed) were told more about this disease in depth. All I heard before I was diagnosed was "get your mammogram" and "early detection saves lives" which both are true but it is so much more complicated than that.
My husband is at the vet with the dog and I am hoping that it will all be ok. Because if it isn't I will lose any composure I have left!
Before cancer the break in would have driven me and my husband insane, but all things considered, we are just taking it in stride, its kinda funny because our attitude has been...."well of course, we were robbed!" and the dog has been bitten by a snake and we had a hurricane in June this year and someone stole our tractor(different random crime) and have you heard I have cancer?!!!!!! YIKES sense of humor is mandatory in our family now!!
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agent99 - glad you are maintaining a sense of humor - it is necessary to get through all this stuff! Fingers crossed for the doggy!
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Wow fluff....
Your family seems to have had one of the best and worst days of your life in the same day!
Your daughter is just lovely and the photos are beautiful!
Hope she is on the way to full recovery !
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debiann - I was ready to be done after 5 too and the SEs I had were fewer than most. The family had to give me the " just one more" pep talk.
Ahla - Great picture, love the hair. Mine is coming in white and straight so farefcjax- yay for the last tx
Fluff - Hope the DD feels better. The engagement pictures are wonderful
Rozem - Congrats on the 3 years
Agent 99 - Wow what a week. Hope things get better.
If I missed anyone, I hope you have a great week.
Herceptin for me Friday.
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Agent99
You would think our " normal" chaotic, Stressful daily lives would just ease up a bit as we stagger through breast cancer treatment.... But it doesn't happen.
Ditto Special K... A sense of humor is priceless throughout this process!
I will remind you regularly to consider going back to your art:)
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Camillegal
Did not know you are working! Think that's great!
Hope you are feeling well:)
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Thx all for your kind comments re my pic!
Was hoping to encourage the girls in the throes but.... As usual... You've all inspired me:)
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debiann - you can do it!! One foot in front of the other - one day at a time
Ashla - Great picture!! - I also want to see some artwork!! Do you find that you have the urge to paint breasts?
efcjax- woo hoo congrats on last treatment!!
Fluff - wow time with your DD - hope she is better and fantastic pics!!
Agent 99 - omg - what a time you have had. But you are right - we have to have a sense of humor to get through this .
Camillegal - lol on your workday.
5 weeks PFC for me - I think I might have a little fuzz coming in on my head. Had bloodwork with my GP to check out my A1C, Vit d etc. Good news my A1C was 5.6 - that is a non-diabetic A1C so even through chemo I managed to keep good control. My Vit D was low - 25 - so he said he wants me to take 5000 IU a day. Bad news - my liver enzymes continue to climb - was not expecting them to be normal but at least wanted to see that they were coming down if only a little bit. See my MO next tuesday before my herceptin and will see what he thinks. Still have alot of stomach issues and my muscles still burn after very little activity. I do get a headache and feel slightly flu-ish everyday at some point during the day- which I assume is the herceptin - but it is not really bothersome.
Hope everyone else is well!!
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linda - I felt a difference after six weeks, but not before. It was a rather sudden improvement too - kind of surprised me. My labs did not normalize until about six months out from last chemo, so don't be dismayed by that.
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thanks SpecialK - they are just getting so high that they scare me - My GP told me Monday to be patient LOL. - I felt better after I left his office then I start thinking about them again and I get myself all in a knot. It is really the only thing out of whack on my bloodwork- except HGB and RBC still a little low - so I should be happy - it is just that the liver enzymes - esp my alk phos - are going the wrong way and not by just a bit. I just need to stop thinking about them. I am not taking ANYTHING else at all now and if they continue to rise I am afraid that it is the herceptin - and that scares me.
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Debiann, you're almost done. Only ONE more to go!! You can do it!! (I hope this little pep talk helps).
Fluff, the pictures are great. Congrats on your daughters engagement. Boo on her getting so sick. Hopefully she gets better soon.
Agent99, good grief, girl. You need a break!
FBN, you are halfway done! Hooray!!
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Hey everybody, the doggie is gonna be fine!! lots of meds and shots but she will be fine! Labs are tough! and the young man who broke in our house confessed to the whole thing, the kid is on drugs. And the sun is SHINING finally!!!!
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agent99 - yay!!!
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Agent 99, great news about the dog!
I sincerely want to thank everyone for your support during my rough days. Because of you I was finally starting to hear a little voice in my head saying "you can do this!" Then out of the blue I broke down while trying to eat dinner, crying to the DH "I feel like I'm in prison with two choices; eat the most awful tasting gruel or starve to death." This was no reflection on his cooking, everything tastes bad. This is the first round to make me cry, so the score is chemo 1/debi 5, I'm still winning.
I've lost 10 lbs. this round, I remember when I would have considered that a win. I've been thinking about the food I miss most, surprisingly its bread. Bread has tasted bad since round 1. When the taste buds return to normal the first thing I want Is a big loaf of french bread, followed by a brownie, lol.
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