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Survivors who have used only alternative treatments

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  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    hi athena,

    you are right, its IDC Stage 2B -- the DCIS DX was done prior to the mastectomy, the pathology report after operation indicates that she have IDC stage 2B with HEr2+++ overexpression.

    She is currently taking an I3C supplement --and has thrown her 3 months supply of Tamoxifen. Still the National Cancer Centre of Singapore calls us every now and then to check if we are really refusing the Chemo/Radiation Treatment plan.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011
  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    information for staging based on the pathology report after mastectomy

    IDC Grade 3

    30mm tumuor

    3 out of 25 lymph nodes postive for mestastic carcinoma

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    I also agree that WOM and my mother should have different treatment plans, but she can also take the same non-invasive diagnostic tests for her to know the real cause of her cancer and also research ways how to address it and improver her chances or even just give her a more comfortable "cancer" life.. I agree that there is no cure, but one can live (and even die) with cancer in a dignified manner. 

  • heidihill
    heidihill Member Posts: 1,858
    edited March 2011

    Wow! Kudos to your nanay, nanay! I'm only down 3 kilos and that's taken me three years. I pray you and your mom have a looooong time together.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    digger,

    i like blunt people much better than back fighters.. we are all in the same fight. we just use different weapons..

    here is a blog of a Korean woman who was about 40 years old when she died of cancer, she had all the works and firmly believed that it could heal her or at least buy her some time. I respected her decision and her courage and her respect for conventional medicine.. but its just that not the way we wanted to fight..

    http://shinscancerblog.blogspot.com

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    LtotheK,

    eating organic vegetables I agree is NOT THE CURE. but it strengthens the immune system and helps clear your bodies with toxicity. It does not feed your cancer cells the way meat do (Cancer Cells feed on protein).

    However, you cannot deduce that its part of the overall treatment plan. You may have eaten a lot of good things but you were probably exposed to environmental toxins like DIOXIN which imitates estrogen and is known as a cause of cancer (just an example). Based on my nanay's , diagnostic tests, she have too much Arsenic in her body, which is also known as a carcinogenic agent.. add to these other factors such being exposed to these agents at a time when you are most vulnerable, such as adolescne, pregnancy or at a time when you are in extreme stress.. add in sleeping patterns and other triggers. Cancer is not caused by just one mitigating circumstances but a combination of many which you were exposed to a vulnerable time..

  • 1Athena1
    1Athena1 Member Posts: 672
    edited March 2011

    Thanks, nanay - good luck to her.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    lago,

    hope my above posts cleared your confusion. sorry, my last post before today was last year, I think about the time when we first went to a doctor (thats why I wrote DCIS).. I was confused on how to edit "Diagnosis", "profile", "signature" in this site.. so I just wrote what came to mind.. and obviously it did not make sense.

     I have checked her medical reports, and hope that I have reflected it accurately in my posts.

    If any other clarification, I could probably respond to it tomorrow. Its 10:18pm my time.. gotta sleep now ..

  • lago
    lago Member Posts: 11,653
    edited March 2011
    nanay no problem. All cleared up.
  • 1Athena1
    1Athena1 Member Posts: 672
    edited March 2011

    I second lago - none of us is close to having the answers. Let's repect others' choices. Those might just save their lives, even as ours could save ours.

  • mackers67
    mackers67 Member Posts: 16
    edited March 2011

    I am a bit confused.



    Hormone sensitive cancer ie too many/out of control hormones, will any amount of organic foods exercise etc reduce their production by the amount needed?? True you will help create an environment that is not conducive to the continued growth of cancer, but that won't control or kill hormones or the her2+ or will it?!?!



    Xxx



  • TonLee
    TonLee Member Posts: 1,589
    edited March 2011

    Athena,

    You gave your hunch...now I'm going to give mine.  Wink

    (I write fiction, am working on an idea for a short story that I want to flesh out here .. so it's bent in that direction, but done on the fly.)

    CANCER NEXT STEP IN EVOLUTION.

    March 28, 2011

    Anthropologists at We Are So Smart University (WASSU) discover the next step in human evolution. 

    Cancer cells, dubbed unwittingly for decades "immortal cells" due to a refusal to die, transition human biology from mortal to immortal.

    Dr. Ben Gay of WASSU uncovered the true potential of these immortal cells last week after the culmination of a phase three clinical trial involving 5000 breast cancer patients worldwide over the last five years.

    All 5000 patients were randomized into three arms:  no treatment, treatment with diet, and treatment with the Arctic Healing Theory.

    The Arctic Healing Theory, introduced by microbiologist Dr. Frigid North twenty years ago when his own wife, Polar North, was diagnosed with stage four breast cancer, is considered alternative medicine at best, a deadly hoax at worst.  It suggests consuming water from a glacier millions of years old will "turn cancer off" in the post-industrial human body.

    Dr. Ben Gay in conjunction with WASSU initiated the trial after a thorough examination of Polar North five years ago.  While the examination proved the Arctic Healing Theory did not work as originally hypothesized, (turning off cancer cells), the examination produced a question of evolutionary proportions.

    It revealed every cell in Polar North's body changed at a molecular level.  Changed to such a degree, the cells cannot be destroyed.  She does not age.  She does not become ill.  The cyclical nature of cell regeneration no longer applies in her case.

    More than any natural disaster, plague, or famine, could cancer, the dreaded disease so many fear, be in fact some sort of evolutionary transition?

    Dr. Ben Gay believes so.  "Mrs. North has not aged or been sick since the immortal cells took over nearly twenty years ago.  It appears to have nothing to do with arctic water.  As if on some sort of evolutionary deadline, women from all three arms are experiencing the same evolution as Mrs. North.  Not only that, but a few are reproducing, and the offspring are born with the same immortal cell structure.  Truly amazing.  Homosapiens will never be the same."

    Tomorrow, an article written by, Reverend End of the World, and why this evolution is happening now.

    Tongue out

    (A girl can dream.)

  • lago
    lago Member Posts: 11,653
    edited March 2011

    mackers hormone sensitive cancer doesn't mean your hormone levels were out of control. It just means that there are hormone receptors on the cancer cells. With these receptors hormones that are naturally in our bodies stimulates the growth. link  

  • mackers67
    mackers67 Member Posts: 16
    edited March 2011



    Lago



    Tnx for your reply, I thought it was because of too much ER+ in your body ie. Menstural cycles early, babies late, the pill etc...???



    Xx

  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited March 2011

    I think I read somewhere that "Mammograms are a waste of time".....Well, not in my case....A Mammogram found my "little" breast cancer, long before I could have "felt" it!  Sure the news scared me to death, but we took care of it! 

    I thank God for Mammograms....I also thought I was too old for a Mammogram, OR breast cancer....  Not so....I'm just thankful we found it before it grew any larger, or even spread.   Even though I'm now 73,  I'll handle anything that comes along....Good luck gals....

    Just don't forget, that Mammograms can find cancer long before we can feel a lump.

  • 1Athena1
    1Athena1 Member Posts: 672
    edited March 2011
    Very interesting, TonLee. Wink
  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    tonlee and athena,,I really hope that the mutation  of these cells is indeed part of an imutable plan (gone awry) to make us ageless human being, but it is not :)

    I hope one day we can say we are the mutant ninja girls (cancer fighting girl mutants) and tell the world-- look we did not find a cure, but rather our bodies mutated to something else so we can live with the cancer instead of dying because of it..

    just hope that everyone finds this really funny..

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    hi chevyboy,

    there is another less invasive diagnostic test than mammograms, if mammograms can detect your "little breast cancer" - thermography can detect if your cells  have just started becoming abnormal (even before it starts to become a cancer cell).

    Its less invasive, as it does not have to expose your body/breast to radiation, and your breast need not be "manipulated"...

    glad that mammogram helped you detect an early stage cancer.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    mackers

    Estrogen Receptors (ER) are special proteins that the hormone ESTROGEN binds to. its like a glue that surrounds the cancer cell, to which estrogen sticks itself too---and ESTROGEN helps cancer to grow.

    in conventional medicine, there are several ways to stop the cancer cells from feeding from ESTROGEN

    1.) suppress the supply of ESTROGEN - by removing the OVARIES (usually prescribed to pre-menopausal women)

    2.) prescribe Tamoxifen-- which inhibits the binding of estrogen to the receptors, by coating the receptors (its like coating the glue-- so that the glue does not work anymore)

    in integrated medicine

    1.) an endocrinologist, will advice that you go for a diagnostic test -- Hormone profile-- to know which type of Hormone you are overproducing

    and then prescribes something to help balance the ratio of your hormones (in the same way that we take probiotics to balance the ratio of good/bad bacteria in our bodies).. or prescribe something so that the excess hormone (if it is estrogen) be excreted from your body.

    what does diet have to do with this?

    meat (chicken, beef, pork) are usually fed with growth hormones, which happened to be Estrogen. If you eat meat, you are adding more estrogen into your body, therefore the more estrogen needs to either blocked by Tamoxifen or need to be excreted from your body (overtaxing yourself)..

    if you eat organic veggies/fruits -- less garbage in -- less garbage out.. makes for an efficient mechanism isn't it?

    SO VEGgIES/FRUIT is not a cure--  but it faciliates garbage disposal...

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    again, am not imposing my will on anyone, just providing a perspective on the other side of the coin. people who chose alternative/integrated approach are not completely clueless and are being duped by quacks. We study and do our own research. We respect conventional doctors too-- and go to them for less invasive diagnostic tests that are done by registered practictioners such as our Endocrinologist. Some of these doctors may or may not support conventional medicine, but still they will leave the decision making to the patient. 

    In terms of ER+ my mother also refused Tamoxifen-- and we opted for the I3C/DIM supplement prescribed by her Endocrinologist to help balance her hormone ratio and also excrete the excess estrogen. And yes, she does not eat meat to lessen the estrogen load.

    Since our food sources (even if it is organic) are also compromised, I do not believe that food can be our ONLY MEDICINE-- as it was designed by God. We live in a fallen world, what was supposed to be an ideal source of nourishment and healing for us (plant based food) is now compromised by pollution (even the organic variety are not 100% safe)-- therefore we still need the wisdom of doctors to help us remove toxins and excess hormones from our bodies.

    Between organic/non-organic veggies/fruits, of course I will choose organice-- as it has lesser risk of containing contaminants.. and yes, we can always just hope for the best.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    All of us whether diagnosed with cancer or not, will die anyway in one way or another. It does not matter whether you used conventional or alternative. One day, we could find a cure for cancer, but we could have been killed by a freak accident by then. What is important is you valued the life that was given to you, protected it in the best way you know how and what feels right for you, without degrading a person, a culture, a nation or someone else's individual decision.

    Being part of a BC family is already stressful as it is.

  • Chevyboy
    Chevyboy Member Posts: 10,258
    edited March 2011

    Hi Nanay...!  You mentioned "Thermography"....what is that, and is it a standard test/procedure?  I had also heard that Mammograms use very little radiation..... Does our insurance cover this?  I honestly have not heard of this before..... I'll google this, but would like to know if you have more information.....Thanks! Laughing

    I mean, it would be nice if we could have this "test??" every year, instead of a Mammogram.

  • mackers67
    mackers67 Member Posts: 16
    edited March 2011

    Nanay



    Thanks for the info I only eat organic have carrot apple and Ginger juice everyday, which really helps my energy levels..



    I am stage 4 (from the start) my breast was very diseased I had to have chemo so they could try and operate. The chemo was a success and I was able to have my mx.



    I am 90% Er+ and 90% Pr+ also Her +. One question that drives me mad and no can answer is; what impact does the Pr+ have on the situation, the consultant says it's a good thing to be Pr+ and not just because of treatment options?? Do you know through your research.

    Tnx again xxxx

  • wornoutmom
    wornoutmom Member Posts: 75
    edited March 2011

    Nanay I am so very happy that your mother is doing well Laughing!  She sounds like my mom who has Leukemia.  She looks younger than ever and physically feels better on so many levels than she has ever had in her life.  

     If just find it amazing how when any person is successful with an alternative approach they are not congratulated but picked apart to see some flaw.  LIke forget nanay's whole story but point out her flaw in reporting her BC stage which if you read was her mother's so my first guess was it was a simple mistake.  My mom was one part of a study and 11 years later she is the only one alive and the only one who did not do the standard chemo/rad and bone marrow transplant.  She doesn't not get aksed what she did but gets called a fluke etc.  If someone dies after 5 years on the standard treatment the ysay it was all due to the treatment and that it was 5 years she wouldn't have had.  No one jumps in and say you know maybe the side effects of the treatment lost a year for her or that maybe she would have lived the 5 years regardless but spent a year suffering.  There is just such a double standard.  

    Bottom line you mom is not just doing well but sounds to be thriving so she should be proud to be a survivor!!!!!!  Good for her and any woman who is surviving no matter what method you you Smile 

     I also would like to say I do not use  youtube for my informational research. I used it to make a point and most of the data I dig into many would not be able to read due to the medical/legal terms.  It takes a dictionary to get through on page...lol  The funniest part are there are many vidoes praising stardard treatments but somehow I am sure those would not just be see as youtube reasearch.

      

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 263
    edited March 2011

    I don't think anyone here was criticizing her about the stage, they were just confused.  This wasn't anything like an attack, folks just wanted to understand.  Its an important piece of information.

  • LtotheK
    LtotheK Member Posts: 487
    edited March 2011

    When I post, as I imagine many folks here do, I reply not only for the original poster, but also for the legions of women who will come here in the future to do their research in their own treatments.

    I understand people have made decisions, but the age factor was not handled as specifically as it needed to be in relation to this post.

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited March 2011

    Well, I'm glad your mammogram worked.  I have been getting them for 30 years and have had two cancers, which the mammograms missed!!  I found them myself. So it is so important that you check your breasts every month. I have heard mammograns miss 15 percent of cancers.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    to chevyboy,

    Thermography is not a conventional diagnostic test. You could probably classify it as either integrative or alternative diagnostic depending on whether you use it along with conventional diagnostic tests or not.

    There is no radiation involved in thermography so yes you can have it done probably even twice a year.

    Here is my mother's thermography report so you can compare a breast with abnormal cells and with normal cells (take note: that if you have been diagnosed with breast cancer already thermography test is probably too late-- this is for your daughters, nieces, sisters who run the risk of BC as it may run in the family)

    http://nanaymiriam.wordpress.com/2010/03/28/breast-thermography-screening-instead-of-mammogram

    Since it is not classified under conventional diagnostic test-- its not covered by insurance. This is the reason why alternative/integrative is not the cheaper "alternative", its alternative because it poses lesser risk than conventional methods.

  • [Deleted User]
    [Deleted User] Member Posts: 244
    edited March 2011

    mackers

    if you are both ER+ and PR+ that means the your cancer cells feed on both estrogen and progesterone to grow.

    I forgot to mention that another way of treating ER+ is to apply progesterone cream (non-conventional treatment) to balance the ratio of estrogen and progesterone.

    Am not sure though if you can use progesterone cream if you are both ER+ and PR+. Just happened that my mother is ER+ but PR-

    please see an endocrinologist-- get tested and review your hormonal profile with him, he could probably explain this to you in a better way..

    am just sharing my mother's diagnosis and her treatment plan-- I would not want you to follow the same course just because I said it works for her.. our bodies are incredibly unique, one size does not fit all.