Survivors who have used only alternative treatments
Comments
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Actually, neither am I. Camomile tea works better than prozac.
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Patzee........ROFLMAO at you! Who brought hockey into this thread....YOU DID! Gotta answer when you're TRYING to take a shot at me.
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Patzee~
The thread got off subject when you started making nasty comments about a Cold Cap User.
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If it's not histrionics it's manipulation. I am trying to think of one Axis II disorder, but more than one comes to mind...
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honest to God, I think we should all ignore Patzee and her comments. Completely ridiculous - baiting, rude, etc. Luan is another one to be ignored.
Yes, it's blunt, but really, as I remind my children (13 and 10, and frankly, they are more mature than some of the women on this thread): if you can't speak nicely, stay to yourself.
janyce
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@ Athena: i am cracking up over the Axis II comment! (I'm an LCSW, and figuring out Axis II diagnoses is always fun.)
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I said it was fun. I will now edit to say "confounding."
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Patzee9
You wrote: There is more bickering on here than on the Real Housewives. Misery loves company. Seems to me you are the one wanting to bicker. I peruse this website almost daily. This is a wonderful site for information and the ladies on here are full of great advice from their own personal experiences. I very rarely post, but after seeing quite a few of your replies to the ladies on this thread and several other ones I felt the need to tell you how I perceive your posts. I think we all should treat each other with respect and courtesy because we all are here due to the same circumstance. With that being said, thank you to all the wonderful ladies on this site for sharing and caring.
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Janyce - she's supposed to be 61 but sounds like she never grew up. She seems to get some perverted sense of satisfaction from getting a rise out of us.
Sue
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I can understand why some of you who had positive nodes would not want to consider this to be metastatic disease and therefore feel the need to argue against the word "metastasis", or some form thereof, being used to describe nodal disease. Yes, the word metastasis tends to be used primarily in conjunction with more advanced stages of disease to distant organs. However, when someone has cancer which has spread to the lymph node(s), this by definition is local metastasis. Any spread of cancer outside of the tissue of origin is metastasis.
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@ marie: trust me, you do not know what we node positive gals want or feel regarding it. just trust me on that.bit condescending, your post.
blah blah blah on definitions - we got the memo early on. quibbling doesn't change a darn thing, whether one has no nodes or 31.
janyce
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Susan....high five! LOL!
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I actually don't mind a bit of a flame up on Fridays - gets me through the work day faster as well as amusing me 0
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MarieKelly,
Just to be clear, do you think we node-positive gals should tell people we have metastatic breast cancer? And put mets in our sig lines?0 -
mmmm.......love popcorn with lots of butter!
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just to clarify, the rapture happened on May 21st. I'm writing you from heaven and there's no good coffee up here. crap.
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and node positive is just not metastatic disease. period.
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I never got raptured. Guess I'll have to wait it out with the zombies.
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Am I to believe, the only survivor posting who has only used alternative treatments is Patzee9? Patzee9, could you please tell us what treatments or lifestyle changes you did use and are still using? Do you see oncologists at all, do you use a NP? I'm very interested in the approach you have chosen.
Christine0 -
Christine, just wait around for awhile. There are lots of women on this "Alternatives" forum who would love to discuss alternative treatments with you.
This thread, for instance, was started 4 months ago and already has 62 pages of posts. These past few pages have been crazy, but I'm sure if you scan the rest of the thread, you'll find something useful.
In the meantime, I think everyone is hoping the storm passes.
otter
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Commenting on an issue that came up a few pages back, some posters were saying that oncs earn money from giving chemo and that's a conflict of interest. But....surgeons earn most of their money from performing surgeries. Dentists earn most of their money from caring for teeth. Is it also a conflict of interest when one of those docs recommends surgery? Or tooth care? Docs earn their living by treating health problems. And oncs treat cancer. And one of the best treatments we have for cancer these days is chemotherapy. So oncs earn part of their living from chemo. What's the problem with that?
Also, it's important to note that there are international standards for treating breast cancer. Anyone can plug their stats into the flow chart and see what the recommended treatment protocol is. It shouldn't be any individual onc's opinion.0 -
Beeb: I was wondering about that also. There are a lot of costs associated with administering the chemotherapy, and I guess the onc charges to cover all of it. Don't know what their net profit would be.
Christine: This thread does go off subject quite a bit. I remember early on there was a big discussion about AIDS . . . .but it's always interesting.
I would like to see your questions answered. That person said in an earlier post she was directed to an oncologist only once. This makes me wonder . . . do many alternative people not even go to oncologists? I can't imagine having an aggressive disease like this, and not seeing an oncologist.
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Patzee - the person that send you the pm mentions "your thread" - I wasn't aware that this was your thread exclusively - you didn't even start it.0
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Patzee, your profile says you joined BCO on May 6th, about 41 or 42 days ago, or 7 weeks. So it's a little odd to hear you say anyone has "been a bully here for a while."
I have known Bluedahlia for 4 years -- and she's not a bully. Period. She just calls it like she sees it. You know, you could always put the people you don't care for on "ignore."
BTW, this thread was started by a woman with a specific diagnosis, and I believe she was asking for input from survivors with a diagnosis similar to hers -- Stage 3 and HER2+. The experiences of "survivors who have used only alternative treatments" but who are earlier stage, and most importantly, HER2-negative, are not particularly relevant to this thread either.
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Patzee, your claims and position do not pass the smell test.
You claim you are trying to talk about alternative cancer treatments. A sports team is a cancer treatment? Or the end of the world dates?
You are only fooling one person, and absolutely no one else.
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The question still stands. Is there anyone out there who is Satge III and HER2 +who has only used alternative treatment? If there is she has missed this thread or her posts are buried somewhere in the last 62 pages because I have not see anyone with those stats post on this thread.
If there are no posts from someone with those stats, I see a few possibilities. Noone with those stats posts on bco, they have all missed this thread or their choice of treatment failed for them.
I do not have the answer. I have tried to stay out of this discussion because I am only Stage I and have nothing to offer the OP because of that and my choice of treatment but I am curious as to why nobody with those stats has posted.
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Rosemary-b, of course there aren't because that would be a seriously dangerous decision. Sorry, but that's the fact. I even did a little combing over in alternative, seems like most of the holistic practitioners are stage 1 and 2.
PLUS, the survivor is YOUNG. The whole thing broke my heart.
I also think it's really sad when women attack each other. And breast cancer survivors, to boot.
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Rosemary, Interestingly, earlier in this thread we kept asking that (different people at different times). Why no one comes forward is anyone's speculation. I can imagine that if that person exists they would not post on BCO. This is a very pro-protocol treatment board. And that person probably does exist. I am sure there are BC patients who will not even do surgery, just as there are Christian scientists who will sooner die than agree to a transfusion.
The OP said that she got some PMs from people but I can't recall if these people were actually BC patients with her profile. But things got very testy here at the mere mention of non-chemo options specifically. And so it became a thread about chemo efficacy and, to a lesser extent, Herceptin. I found the OPs posts incredibly moving and intelligent. She strikes me as a thoughtful person and a courageous one.
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