Survivors who have used only alternative treatments
Comments
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I don't know why Athena's thread was deleted. I was in the middle of reading it, then it was gone.
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Agreed WR. Athena, what did you say?
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i think rosemary posted this a bit back: but the question remains: ARE THERE ANY LONGTIME SURVIVORS WHO HAVE USED ALTERNATIVE TREATMENTS ONLY?!
sorry for the shouting (lol).
as someone else posted, i am also worried about WOM (original poster) - it's been a while, although maybe she's just trying to stay out of the chaos. if you're out there, WOM, i hope you're well.
janyce
ps: blue is not a bully, but patzee's PM was completely crazy. referencing a prior miscarriage to that stranger via PM? um, crazy and rude.
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Thanks for the info Patzee.
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Patzee, Thanks for all the links. It's interesting I went to my health store today for the first time since BC, and several of these links were places she suggested to me.
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Hey All,
The type of discussion on this thread is non-supportive, occurring with increasing frequency and does not help the members of the BCO community. Please pause and think before posting your reply and remain respectful of other members. When you do not want to receive PMs or comments from another member you are urged to use the ignore member button.
Thank You
Debbie and the Mods
.
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Oh my! What a learning experience this has been.
Going back to the initial question, my response is: it would not matter even if someone with WOM's initial diagnosis came forward. Not even if she had used only alternative methods of treatment.
It would mean that she had fallen within the 30% or so who would have been helped by surgery alone. Or, in other words, that she was extremely lucky.
It would not mean this was a wise course of action to take.
What you don't want is to be among those who could have been helped by standard of care treatment, yet who chose not to take that road. These are the women I feel so sorry for.
Because they were DUPED by all the ignorant nonsense out there. Just so sad.
Some of them even responded to this thread. Patzee said it made her sick to read this. But that is what can happen if high risk women do not get heavy-duty treatment.
Chemo and radiation are not fun, but hardly the end of the world either. You do recover. I am now at the point where, fit as I was going into treatment, I am now more fit than any time in my adult life.
And I am about to take my career to places I only imagined before.
This is what we need to be telling other women with a "high risk" diagnosis: that life can be great at the other end.
The other is to tell them to walk off a cliff in the hope that it is only a two-foot drop. I will take my chances with evidence-based medicine.
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Claire you are so right. I know my BC was a very early stage, but there is no way I would not do at least surgery and radiation. Without at least those two things to me, I would have been just waiting for death. Even with that early BC my choice was to do the chemo as well. Now that I am done with active treatment except for Femara I want to learn about the alternatives to incorporate them into my life style.
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patzee, It's interesting about beliefs I come from a mixed family I guess you could say my mom was a Methodist, and my dad was a christian scientist, so I guess you could say I've seen it both ways. My grandmother was a "Dr. of the christian scientist faith" and as such she truly believed anything wrong with our bodies was a result of some kind of sin in our bodies. I guess that explains so much of my second guessing myself in this whole thing. I'm happy for you that you can feel so secure in the decisions you are making. I just wish I was so sure of my choices.
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Debbie and the mods, I haven't posted before on this thread, but what should readers do when we see outright spam? Remembering back to my days on usenet and how how harmful such information can be to discussion I plan to report it.
In an earlier message a member wrote: "Now, back to why I am on these boards:" followed by "Call us for referral."
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WOM made her decision and moved forward with it. (We connected though PMs). I don't know how she is doing but I do believe she had all the information on both sides. I do hope her treatment is going well.0
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Kathy044, I might be wrong but I think the call us is with the Burzynski's Clinic. I know that group has been discussed recently on some different boards. I have no idea if she is connected to them or not, but I kinda doubt it.0
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In your post about alternative approaches patzee, what it says about BC is something most people can agree on, regarding prevention and avoiding recurrence. I think the discussion here is about treatment of actual BC, like surgery, radiation and chemo.
I for one are undergoing chemo at the moment. At the same time I am attending a clinic for alternative medicine, and for cancer based on some of the same philosophy as David Servan-Schreiber who wrote the book "Anticancer".
Both the book and the clinic I am attending is very specific on the importance of taking the conventional treatment, and that currently nothing can replace that. But they also believe in tuning your lifestyle to support the treatment, reduce SE, and to reduce risk of recurrence.
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Claire: Your post is inspiring. Glad to hear you are doing so well after going through chemotherapy.
patzee9: I am confused by your posting. It says "call us for a referral". Who is "us"?
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KIra, thanks, you are partly right, I see the whole message was copied word for word without attribution from another organization webpage, (not Burzynski's clinic but a BCO competitor funded by donations), so though not spam, the post is in violation of BCO's terms of service.0
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Patzee; As the cancer already has been able to grow and even spread to some lymphs, my body obviously have some problems in defeating it. And as it has gone this far some extreme actions are required. I will do everything I can to rebuild my immune system over the next years, using knowledge from the alternative medicine as well as research on lifestyle impact on cancer prevention.
I believe that the body has a huge ability to heal, but there are limitations, and actually to die from a being ill is also natural sometimes, and this part of nature I would like to avoid for now.
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delete
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Patzee - you said you at least got the tumour out. But I recall you saying you had dirty margins, so you didn't get all of it out - please at least do something about that. Contrary to you thinking we are all bullies we do care you know.
Sue
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Caerus-Sunflowers -- I'm sure Athena would answer you if she could, but I believe the number of her posts "reported by the community" has rendered her unable to post.
Hope it's temporary. 0 -
I really think we should not remove each other's posts and should be very careful about reporting. My thought is that the moderators should be more active in monitoring threads and removing posts that really cross the line, and take the power away from the rest of us. I've been on other contentious boards that function well that way. I also think we should hold off on reacting to what we perceive as bullying or name calling. So what if someone says something about us on the internet? It really, truly won't hurt us in our real lives and we should grow thicker skins and walk away.
Direct threats are something else altogether and I will report those, including threats to publicize private posts and things like that. Along that line, it is absolutely absurd to think anything thats been posted here is actionable, in civil or criminal court, or that there is any basis for or ability to subpoena IP addresses. Thats just not true and not going to happen.
I realize that there are folks here who will be argumentative no matter what but if you bring yourself to walk away and not engage, this will die down. It takes two (or three of 15) to argue.
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Member_of_the_club:
What surprises me is that all these flame outs seem to unravel in the same way with the same people. If I were a Moderator, I would design/write a piece of software that would notify me when a thread was getting a high level of "hits". These high activity levels nearly always signify the latest "urinating contest". I would also design something else into the software and that would be the capability to watch known troublemakers especially those who venture out of their lairs - another sure sign of a "urinating contest" in the making.
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MOC I agree. This reporting seems to get out of control. Leaving it up to the community is like making everyone a monitor. Not everyone can be that objective. Problem is that's all they have right now. This is a forum that we don't pay for. All non profit. Without funds it's difficult to correct issues. I don't know if the monitors are paid but my guess is no.
Maybe the issue is the number of community members reporting a post needs to be higher before it gets removed. It's easy to get a 5 members. Not so easy to get 10 members.
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My M.O., unless it's really egregious: try to ignore and wait for the conversation to come back around to a civil, educational/supportive environment.
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Susan, FYI, the mods did not delete Athena's posts, the posters on this thread did by clicking 'report this post'. I saw what she posted and it violated no BCO rule and was in no way mean or defaming.
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"To talk much and arrive nowhere
is the same
as climbing a tree to catch a fish"
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SusanK8: You might care if it happened to you. We care because it happened to someone that it should not have and now she is unable to post. Why are you being so rude and name calling?
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SusanK8
You are pretty wound up about telling people not to get wound up. What's the story?
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nhc - agree wholeheartedly
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SusanK8: Athena can't post something new and interesting, because on This thread, her post was removed by the "community", hence it being discussed here. You can ignore this thread if you don't like the facts of that.
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