Survivors who have used only alternative treatments
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I was knock-out, so did not report nothing "just saying", "buddy"
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Reported for giving the reason I reported a post. So next time I won't say why. Easy-peasy..
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wow, my post critizing Patzee for mentioning Blue's miscarriage was reported. seriously? i laughed out loud at that.
i would love to know why - come out, come out, wherever you are. when i report posts, i advise everyone. i'm not going to stop calling out bad behavior because someone has an itchy finger.
susank8: you're out of line with those passive aggressive statements to angel about "making your body more acidic" and posting a smiley face. juvenile at best, creepy at worst. why note someone's acidic level? because some folks think it's tied to cancer? if so: you should be ashamed.
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elmcity
seriously-this is way out of hand
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Chamomile tea highly recommended !!!!
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Chamomile tea....mmmm...
People with itchy reporting finger need to chill.
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Does anyone know how many times your post has to be reported before it is removed by community? Once it is removed, there is obviously a ban on the member does that vary or is always the same length of time? I'm really hoping that they make it so that the same person can't report a post over and over and over and over again.
I am really disturbed by the idea that the community can ban a member without any moderator involvment. Or am I misunderstanding this process? Is there a place that explains all of this?
I'm not a believer in reporting unless it is spam. I am an adult. I can hit ignore if I want. I've been offended and hurt, but I move on.
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Popping in here to join the fray, but just for a minute.
The posts that are being reported are not just in this thread. Here's a post of mine from the Just Diagnosed forum that was reported last week after I dared to post - just one time - about some of the same issues that have been discussed here:
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Actually, any amount of DCIS is still Tis and is still Stage 0. The classification of tumors by size only applies to invasive tumors.
Sommer, your diagnosis line indicates that you are Stage IIIC and had positive nodes. Assuming that's correct, then it means that while you may have had some DCIS, you also had invasive cancer. DCIS and invasive cancer are often found together; when that happens, it's the invasive cancer that determines the staging - the DCIS will be mentioned in the pathology report but it won't be relevant for staging. So your TMN staging would reference the invasive tumor (a T2 tumor, it appears) and not the DCIS.
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Fortunately my post wasn't reported enough times to be deleted but seriously, how did it violate the rules? How was it not civil enough in tone?
I bring this up only to make the point that it's not just questionable posts that are being reported. The Report this Post button continues to be abused. Posts are being reported simply because someone has a grudge against someone else or disagrees with something they said. I don't see how this will stop until the names of those who report posts are listed publicly.
I'm going back to my cave. I come to this board to try to offer help and support to newbies. I do a lot less of that these days because I just don't have the time or energy to deal with the garbage. What I've found too often is that even when you are simply trying to offer support to newbies, you might inadvertently cross the wrong person (which is how I got involved with this whole mess in the first place). And then you run the risk of being insulted, being criticized and having your posts reported and deleted. It's not worth it.
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Ok..I'm tn..had 8 dd chemo, bunch of rads, surgery..whatever...but now...NOW..I am looking for ways to build my body back up...and sooth my soul from the horrifics of a cancer diagnosis....i know there are ways to do this from reading on here; however...I work full time, have 2 kids, DH etc..I try to eat right, run or walk 2-3 miles per day.
My question is..how DO I find the time to do the yoga, pilates, etc, ect...can someone help me? I'm serious about this...along with getting 8 hours of sleep per night..which I know we need..how do I find the time without stressing out????? Help me..I don't want to be a crazy person running from one thing to another....
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Hi Titan.....
It's a case of putting a stake in the ground and doing those things you MUST do. Congrats on the eating right and exercise.
This is serious because really about a complete recovery, and going on to new and great things in your life.
In your shoes, I would figure out what I needed and present it to the family. Then delegate a lot of the stuff and not sweat the rest. What about something new, exciting, and different this summer?
Start with the sleep. The rest will come so much easier if you are rested. - Claire
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Titan, as hard as it sounds, u need to put yourself first. i don,t know either how you do it. i,m a single mom and sure glad i wasn,t diagnosed when my son was growing. is there any way that you could work part time? U say u take care of husband ?? your family needs to understand you absolutely need to take time out and while you do that they need to take care of themselves and carry the load. Rest is crucial to recovery and u need to get spoiled
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Titan, you mention that you already run/walk 2-3 miles daily. That's awesome! If you want to incorporate yoga or Pilates into your routine, why not dedicate one of those days to one of these alternative forms of exercise? Start in small increments and see what mix works best for you? It sounds like you already carve out the time ... it's just a matter of how you choose to use it.
When I got married 20+ years ago, I told my husband that my sleep, nutrition and exercise were non-negotiable. For the most part, he's been very understanding. After my diagnosis, I redoubled my efforts and my family understands that for me, it's extremely serious that I meet my goals.
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Titan, I love sharing these tips, I have learned so much here. This is what I am doing currently:
Shiva Rea or Rodney Yee yoga, 20 minute matrixes off their DVDs. I find that I can squeeze it in early morning, or late evening before bed.
Limit TV. Easier said than done, yesterday was two movies (well, it was Saturday).
Take more walks. Up and down stairs, to the doctor's office--this in addition to trying to walk with the hubby at least a mile or more a day.
Dump refined sugar. This is SO HARD FOR ME. Every day is a battle. I use Truvia instead of cane sugar when I remember, and I try to limit sweets to once a week.
Mix it up at the gym. I despise routine. Makes me crazy. So, I try to get to the gym 4x a week for 45 minutes a go and every day is different: swimming, weights, ellyptical (sp??)
Eat from local farmers markets when possible. It's crazy expensive. So, we eat less. Literally.
Keep coffee to a dull roar. For me, that's one instead of five cups a day
Put my supplements in a vitamin holder so I take them with my Tamoxifen. I want simplicity, and the studies seem to show that a lot don't work and can be dangerous. I'm on fish oil, D, and magnesium for constipation from Tamox. I sometimes throw in a multi for good measure, but I eat pretty well.
Maintain a vegetarian lifestyle. I still get 50 grams of protein a day. These high-protein diets that saved me during chemo are actually proving to be very bad for bone density.
See a naturopath when I can. I go to a woman a few times a year who tests my adrenals and things like that. She is so great.
Have sex and sleep more. Tamox = lower sex drive, but I'm always so happy when I push myself to keep at it. Sleep is elusive sometimes, but there are days when I get 10 hours!
Limit alcohol, but enjoy. I still have drinks with friends. It is the spice of my life to have drinks out occasionally, I'm not giving that up.
I use Livestrong. Love it. It doesn't help me lose weight, (I am trying to lose about 4 lbs) but it does help with the nutrition guidelines.
That's about it for now, but I agree. I realize these things are non-negotiable. I can complain about time and all that junk, but if I want to stay cancer-free, I need to keep my weight down, limit stress, and take care of myself.
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LtotheK or anybody,
I'm looking for an excercise DVD for general mobility and to build strength. I have some yoga and ChiQong videos but they are not enough.
Thanks so much for any advice you can offer.
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Hi Susan
and Titan,I got my rebounder at Canadian Tire, it's not a spiffy one, but it does the job. I paid approx. $100 You need dancing music, for me the only one that works is electronic music with its beat. But, one could easily rebound while watching their favourite show. Basically, I stretch and dance on it. Bouncing is tough, but I get it in a bit, as if I was jumping a rope, but it sure gets your temperature up there. On the Natural Girls thread, we're having this very interesting conversation on how to elevate one's temperature. I read one woman, very smart, who gets on her rebounder a few times a day, as opposed to a longer stretch. It works wonders for the lymph. I'm sure Susan can connect us with the cutie talking about rebounding, have not made my way there yet, Susan
http://www.busywomensfitness.com/rebounder.html
http://www.qibounding.com/i_am_healed_from_cancer.html
http://owen.curezone.com/healing/lymphrebounding.html
Warning: talking about rebounding will bring out the people who say it is bad for lymphedema, touchy subject at best......
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I have never heard of rebounding, can someone tell me what it is?
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Luann I think you are referring to me about lymphedema and I never said, nor will I say, it is bad for lymphedema. I think rebounding is great exercise and I am a huge believer in exercise as probably THE most effective alternative/complimentary practice for women who have had breast cancer. The most important thing about exercise is choosing something you enjoy so you will stick with it. If you like rebounding, thats a great choice. I'm a runner, and that works for me.
As for lymphedema, raising your core temperature can be a trigger for some women. I have very mild lymphedema and I cannot run without wearing a compression sleeve and glove. If you have any aching or swelling in your affected arm (the aching can be a better early warning sign because the swelling can be subtle at first) stop rebounding -- or any other exercise -- and consult a lymphedema therapist. You will be able to continue once you get the appropriate advice. Also, if you've had the full axillary dissection and therefore are at increased risk for lymphedema, its not a bad idea to consult a lymphedema therapist before you begin an exercise program.
And rebound on.
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Hi Kira, I'm sure you've seen them before:
Here are the testimonies of BCO women who rebound:
http://community.breastcancer.org/forum/79/topic/767032?page=1
http://community.breastcancer.org/forum/64/topic/767114?page=1
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Member, my account is back and I just wanted to say how ridiculous it is that any of your posts should have been reported. It really shows how out of hand this situation is.
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A tip I learned from somebody here is going on a "news fast." That means skipping that all important line-up of catastrophes that gobble time and get depressing. I tried this fast and it's amazing how cheering it is for your state of mine and how much time either TV or online news sites can gobble up.
At the risk of stepping on toes, it's clear there are certain people on BCO are addicted to these boards and post all day long, committed to the drama of the day. That's a lot of sedentary behavior, sitting at a computer or watching a smart phone.
The addiction to the drama is also an unproductive mental/emotional investment. Can people fast from drama too? Stay tuned.
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Thanks Luan, So it's a trampoline I remember they were popular a few years back.
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Thanks Athena (and Yazmin) but I don't take it personally. I think its important not to escalate.
Yes, everyone step away from your computers and go move your bodies! Thats what I'm going to do right now.
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Athena, out of respect to everyone on this thread, the conversation you insist on carrying should be taken where it belongs.
Rules for reporting posts: http://community.breastcancer.org/forum/90/topic/769512?page=2#idx_42
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(catching my breath after laughing)
Member: I'm trying to decide between weights and cardio for my exercise today. I belong to a great club, but just getting there is a 20 minute walk in this heat.
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In my use, this is far and away the best exercise DVD I've ever used: http://www.amazon.com/Classical-Pilates-Technique-Complete-Intermediate/dp/B000069YWP/ref=sr_1_1?ie=UTF8&qid=1308496598&sr=8-1
It is classic pilates. You can modify any of the arm poses, of which there aren't many, to limit issues with LE.
Regarding aching and LE, it is my understanding that post-surgery pain isn't necessarily tied to LE. I use a sleeve for flying, and I find that yoga, even modifed, will cause some aching. I attribute that to my SNB and lumpectomy scars, which changed the nerve pathways in my arm.
I wonder if I should be wearing a sleeve with any exercise. The issue for me is, I've got one of those weird gauntlets not a glove. If I were to use this with yoga, it would not provide the compression needed (would stretch it out). I've also heard that wearing a compression garment without the gauntlet is dangerous.
Can you win? Sheesh. Anyway, thoughts welcomed.
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Luan, Thanks for the picture of it. I just ordered one from Walmart, should be here in a few days. Then I just have to use it, if O don't it just gathers dust and it does no good.
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Happy rebounding Kira, you'll love it ! put it in a spot where it's in the way LoL
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Susan, "Inspired" !!!!!!
cellular exercise .........the birds are singing....Now, Carola wants to share too
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I want to try zumba...has anyone tried it?
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