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Survivors who have used only alternative treatments

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Comments

  • gutsy
    gutsy Member Posts: 26
    edited June 2011

    Patzee9 I would love to see all the scientific studies with  large samples of women with Invasive BC who only chose alternative treatments and have done really well.

    I have heard enough real-life stories of women going the alternative route and dying. My gp has had several women in her practice who went the alternative route and are no longer here. Sure, each their own 

  • impositive
    impositive Member Posts: 102
    edited June 2011

    1Athena1, I totally agree.  I am in that same place.  I had surgery and have tried to make lifestyle changes that I know have made a difference.  I too had some pretty bad sleep habits, diet...awful, exercise lacking and no vitamin D (serum was at 14).  It is now at 119 so I have laid off the oral vitamin D.  I am concentrating on iodine, diet, supplements, the summer sun which I haven't done in years, as I slathered on the sunscreen on at my dermatologist's insistence. 

    I have to disagree with others here though.  My problem is that everything I am doing is because I have educated myself.  This is where our treatment options are lacking!  I should've been given all this info by my doctors.  Instead, I was given the 3 options and nothing else.  I realized that a lumpectomy was my best first step but the other 2 options weren't going to fix why I got cancer in the first place.  I was being offered the same treatment protocol as a stage IV.  That just didn't make sense. 

    Doctors aren't to blame here.  It's the system as a whole.  When drug companies are allowed to fund our doctor's educations, sit on the boards of our government agencies, such large "profits are being made by our "NoN-profits",  those with new and innovative ideas that have shown some success get shunned because there are no profits in their methods, we have a system that is totally warped and needs radical transformation.  To compare it to the Holocaust may be going too far to some but we have a serious problem that needs much attention.  I dont understand how  some can be so accepting of these practices and see nothing wrong here.

    I do believe diet, etc. can go a long way, especially as 1Athena1 stated, in early stage women.  It has been shown that broccoli, carrots, garlic, etc. all have anti-cancer properties.  Why aren't our doctors told to educate their patients regarding this.  No it may not cure but we should be learning prevention.  It should be protocol in every physicians office.  Why isn't it?  Society as a whole has been conditioned that there is a "pill" for everything and we shouldn't have to take responsibility for ourselves and why we are sick.  I just want to shout WAKE UP!!  As much as we would all like them to be, drugs are not the answer to our woes!

    I am not anti-chemo.  Chemo, rads and surgery have their place and may be your tools of choice and that's completely acceptable...as long as we are told we have choices.  I wasn't.  I was told by my docs and on these boards that these are my onlyoptions and if I didn't choose to accept them, there wasn't much hope for me.  That's just not the truth.  When I tried to discuss alternatives studies with my doctors, I was completely shut down because they were ignorant of those studies.  This was just not acceptable to me.  Again, not their faults.  They are only taught that it's this drug for that ailment and that drug for this ailment and oh, btw, here's a drug to counteract the side effects. 

    Sensationalism?....Maybe but sometimes we have to go to extremes to get people to take notice and band together to make changes. 

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Bravo Impositive for the most sound, balanced and sensible post. I,ll try to ignore the annoying hysterical outbursts.

  • TonLee
    TonLee Member Posts: 1,589
    edited June 2011

    I'm treated at a military facility.  The Drs don't get a dime more than their regular pay no matter how many patients they see or courses of chemo they prescribe.  And yet I am having the same regimen as the civilians on this board.

    I know some of the Drs on my team personally, outside the Dr patient relationship, and they are honorable caring men.  They're not infallible, but if they believed chemo/rads caused more harm than good, they wouldn't order it.  Period.  And nothing would persuade them otherwise. 

    My BS refused to take my healthy breast.  He said "First, do no harm."  And taking a breast that was healthy (I'm BRAC negative) in his opinion was maiming, scarring, and doing harm.

    I could have went to another BS sure (he gave me the name of one), but he made sense to me ... and I'm glad it worked out the way it did.  (Though I didn't agree with him on everything...lol)

    I don't think women are victims.  I'm not.

    And that woman power rah rah crap drives me nutty. I'm raising two sons, am married to a fabulous man, and with the exception of one person (who has no power) can't think of a single man who believes women are second class citizens, victims, or prey.

    In fact, I think the way men (especially fathers and husbands) are portrayed in our culture is shameful.  The bumbling, less intelligent, almost retarded intellect portrayed on tv sitcoms, commercials, and media makes me throw up a little bit in my mouth.

    I don't know any men like that.  And I'm not raising my boys to be men like that.

    Generally, imo if women are oppressed in our society....it's not from men. 

    It's from other women.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 263
    edited June 2011

    I knew two women who died from highly aggressive breast cancers who both had the BRCA mutation.  If they had the prophylactic mastectomies they would almost surely still be here today.  I do think mastectomies are over used, and many women would do fine with just lumpectomies, but I feel very differently about the prophylactic mastectomies.  These are awful, and will one day seem draconian, but they save lives.  Many women who choose them watched mothers and sisters and other relatives die from breast cancer and are very glad to have an option to avoid that fate.

  • elmcity69
    elmcity69 Member Posts: 320
    edited June 2011

    Wow, what did you say about me, Luan?" Post removed by the Community." Interesting.

  • elmcity69
    elmcity69 Member Posts: 320
    edited June 2011

    @patzee: yes, women are undergoing preventive mastectomies when they discover they have the BRCA gene. Research this gene and you'll discover why.

  • [Deleted User]
    [Deleted User] Member Posts: 1,017
    edited August 2012

    delete

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    We all know who removes posts and OPs, puppets' advantage




    I was responding to your earlier post accusing, finger pointing and name calling as usual

  • PattyS
    PattyS Member Posts: 194
    edited June 2011

    Lynn...I agree.  The post directed to Elmcity was a smack-down. Totally uncalled for. I also, am not seeing any annoying, hysterical outbursts being posted? What I have read here are smart, caring and knowledgeable women stating their opinion in a respectful manner.

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    "Get rid of any sweat pants you might have, they're ugly and will make you feel frumpy."

    Oh, Luan,

    I am so busted. You're right about that. Just getting out of the sweatpants makes me feel better. Thank you for passing along the insight. I have a drawer full of sweats. Also hoodies. I look like a walking human gym sock. Cool 

    What else do people wear? What makes you feel good when you wear it?

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    Oh my so now I need to get rid of my sweatpants. Actually makes sense they do make me feel frumpy, but so comfortable. So what should I exercise in?

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    My niece says I should get "yoga pants." What are yoga pants?  I googled them and they look just like sweats or pajamas. I don't like those track suits elderly people wear. What's a woman to do?

    Edited to add: nothing against elderly people-- those track suits look good on Betty White!

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Molly, don,t know if u really want me to get into it LoooooL, coz i,ll certainly get deleted for that :((



    Kira, in the nude on your bouncer with real loud music !!! ;)

  • elmcity69
    elmcity69 Member Posts: 320
    edited June 2011

    Luan, I feel sorry for you. I'm surprised I do, because I don't tolerate bad behavior, especially on the part of adults. But what you said  must have been awful, according to the emails I have received - and if you are capable of saying something like that to a fellow BC survivor, then you must feel awful about yourself and your life most of the time

    . I do wish you well, and hope you can refrain from attacking me. If not, then it is your problem.

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    Pass on the blessings...what goes around comes around. Bless you.

    http://www.youtube.com/watch?v=6BkT6-CDIjw

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    First, i don,t believe one minute u did not see the post as you were busy attacking me on another thread at the same time. I said that you have a personal vendetta against me and i,m getting tired of this. i don,t report posts but i will report the two on the previous page where you call out fellow bc sisters. I feel very sorry for you, you have all my pity, because you are projecting your own misery onto me. I,m a very positive person and i think that a few posters here at BCO can attest to that. Edited to add you have the honour of being the first i put on ignore. So no point discussing further. Awwwwww!



    My post said essentially that being a conventional radical, you must be mesmerized by the alt threads...

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011
    Luan, My what a pritty picture that would be.Laughing
  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Kira, you mean that will be...just make sure u lock the doors first Lol

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    And close the curtains.Embarassed

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    Kira and Luan,

    That's no fun! Laughing

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011
    I'll never forget the time my FIL came over unexpectedly and we were in the pool, well you can guess what we were doing. I have never been so embarrassed in all my life.Embarassed
  • lago
    lago Member Posts: 11,653
    edited June 2011

    What factors increase a woman's risk of breast cancer?

    Breast density-Women who have a high percentage of dense breast tissue have a higher risk of breast cancer than women of similar age who have little or no dense tissue in their breasts. Some of this increase may reflect the "masking" effect of fibroglandular tissue on the ability to detect tumors on mammograms . Source National Cancer Institue

    -----------------------------------------------------------------------

    Dense breast tissue hikes risk of cancer
    Strong predictor ‘ignored to an absolutely unbelievable degree'  

    Cancer turns up five times more often in women with extremely dense breasts than in those with the most fatty tissue, a study shows, signaling the importance of a risk factor rarely discussed with patients.  Source MSNBC article 

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    That happened to me too with a neighbor popping over while we were in the pool. He was mortified. We just grabbed robes and offered him a soda. Then he chilled. We had to create "the normal."

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011
    Well it's a Little more when it's the father in law, but that's just what we did. Told him go into the house and wait for us.He never popped over without calling first after that.Smile
  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Girls, should we start a new thread about our most embarrassing moments...closed curtain access only :)

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    If I had known it was that easy to keep my in-laws from dropping by unannounced I would have become a nudist years ago.

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    One of the joys of living in Florida. People just love to come and visit.Tongue out

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    You girls really crack me up. Hey Molly, have you checked the cute nudist yet, we,re passing him around, Susan, behind the curtains (Hey girl!), can connect you..., you too Kira, maybe bouncing lessons, hum...?

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011
    Hay I will have to use the company computer. Mine is to old can't run any pictures on it. I think I will just have to kick the hubby out, and check him out.Smile