Survivors who have used only alternative treatments
Comments
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The coast is clear here too. Jimmy Buffett is singing Margaritaville. I'm ready!
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Actually it's been a really good day today. Hubby is finally feeling better, paid the last car payment so it's ours
, and bought a new grill for a late fathers day gift. 0 -
Oh Margaritaville I will have one to go thank you.
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Isn't it wonderful when things go right? Hubby feeling better, car payments bye-bye, new grill for cooking adventures? I'm so happy for you 0
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Yes it is but the poor man thinks I've totally gone off my rocker laughing like I am. Little does he know what we've been talking about.
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Now, now girls u,re changing the subject....ole, ole marguaritas around the barbecue, and we bounce in unisson waiting for the cute nudist while hubs went out fetching some wine in the all paid for new automobile, top down. Put on your hats !
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One thing I'm pleased to have learned about on these boards is "overall survival" vs. "disease free survival". But, correct me if I'm wrong: even if a drug shows now overall survival, the road is littered statistically with those who succombed to the disease. You can't look at these numbers and say, "oh, that drug only gives me four months advantage overall". That is totally incorrect thinking. The point is to survive the disease--and this is where the science is inexact. No oncologist would suggest otherwise.
I guess I'm still befuddled how anyone could debate the efficacy of Herceptin.
I also think it's not right to suggest that by educating ourselves about alternative treatments, we can come up with the way to eschew allopathic avenues. There just are no sure-fires in this game in either camp. Lots of great leads and thoughts, but nothing that screams: "come this way, and you'll never need chemo again."
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Shoot, you won't believe this but one of my freakin inlaws is at the freakin door. Too late to get naked. And I'll probably have to feed him. I have to go. Jeez just when Luan was going to send over the entertainment.
seeya later!
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Oh bummer!!!!!
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lago--Those are interesting articles. Only calcifications were seen on my mammo, and even the MRI didn't show the idc tumor. I had the lumpectomy assuming it was DCIS with a microinvasion (that's what the biopsy said). We were quite surprised to find the 3.5 cm tumor, and 3 positive nodes! I had the mx then because of dirty margins. Sometimes I wish I had the other breast removed too, because I always wonder what's lurking in there, but mostly I'm ok with the mx. I'm one that doesn't like to remove more than necessary.
I've found that most surgeons don't like removing a "healthy" breast. They will do it if that is what the patient wants, but don't recommend it. My surgeon and onc knew I was having a hard time with the decision, and whether to reconstruct or not, so they both suggested I have the mx and make the decision later for recon. That was the best thing they could have told me, because the decisions were just to hard at that point!
I do agree that doctors don't know enough about supplements and other 'natural' things a person can do to help fight the cancer. Every oncologist should have to learn about this stuff too, so he can help us do our best to fight the cancer and get healthy to reduce the chances of it coming back.
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As someone of part-Jewish extraction, I take huge offense to this:
It is no coincidence that women who receive chemotherapy visually resemble the women of the Nazi concentration camps. They become emaciated through dangerous losses of muscle mass and bone mass. They lose their hair, vomit their food and suffer the devastating effects of massive nutrient loss.
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I get a little effusive sometimes, but thank you, Orange1, for teaching me more about this disease today! Thank you to so many of you.
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LtotheK, It is an awful thing to compare chemo that way. My sister-in-law is Jewish, and if she were to see that I can't even repeat what she would say.
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Some of the posts on here belong on Facebook - childish to say the least.
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So do some threads in their entirety, i must say
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Yes - that one about 'alternate/holistic only' is an excellent example.
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It's very obvious it was all in fun. If you go back and read the whole thing it was really about feeling comfortable with our bodies, just done in a light hearted way. I know for me one of the hardest parts has been coming to turms with how I look, and feeling ok with it. It takes time.
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It's not good to have sex in the water, infection, etc. Surprised that some wouldn't know that.
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bluedahlia, it's our private pool. We know how clean it is we take care of it, and other than the family no one uses it. By the way one needs to be careful of any pool or hot tub ect. for infections nothing to do with sex.
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We certainly don,t have to justify to ANYONE what we want to say. Some waste their precious time getting offended while others just go picking fights. What a miserable life :S
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I don,t like the idea that some people read my posts, wish forums were more private
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Lago: That's an interesting article. I wonder how one can find out whether or not they have dense breasts? I had a clear mammogram just before I was diagnosed.
Kira1234: It is nice to have your own pool and hot tub, I know. We enjoy ours a lot. Funny story.
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Kira, it's still not a good idea.
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TMarinaI had dense breasts. Initially I wanted to do the BMX but my BS said he would support what ever I wanted to do but didn't not feel the need to remove healthy tissue. He wanted to wait till we got the results of my BRCA test (negative) and the MRI on both breast. There were 4 suspicous spots on the "good" breast but only one he was concerned about. He said I would have to do yearly biopsies if I kept that breast and at that point recommended the bilateral. There was a small amount of LCIS (usually not spotted on Mammo).
Lynn You radiologist should be able to tell you if you had/have dense tissue.
Comparing chemo to the Holocaust is offensive. My polish grandmother's family (except for her and my great grandmother) were murdered in the concentration camps. I really don't see the connection at all.
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I am careful using the hot tub now because of LE. I also know I was told to stay out of the water till I was completely healed. Not sure why I need to be careful now. To be honest I have no interest since taking Femara, but that's another issue.
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Patzee9 I don't understand your response and picture??
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Luan - if you went to Facebook, only your little "friends" could read your posts. I sure wish I didn't have to read them.
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Didel - no one understands Patzee0
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I am so sorry Kira. One area where I feel extremely fortunate is that I am physically relatively untouched by this whole experience. Of course, I look like I ran into the Slasher with my left breast, but that can't be seen under an ordinary bra.
Having said this, I went through a period when my hair was growing out where I felt I was wearing my father's head of hair. While it beat "no hair", it wasn't a look I wanted either.
Finally, about 2 months ago, my hair grew in to the point where I actually could see the start of final hair style I have in my mind....a just above the shoulders bob. My hairline has filled in, so no patches there either.
The rest of my body is fit and toned, and looks just fine other than my swollen ankle and purple toes. (Bicycle wipeout.)
I don't have lymphedema, so can only imagine. But wanted to point out the HAIR part too.
One other thing is that skincare and flattering makeup do wonders. And haircolor. Important for our morale.
The "sweats" discussion made me smile. I don't wear them all that often, and when I do wear sweats, it's usually my cashmere ones I slide into after skiing and a hot bath. Just so heavenly then.
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Well, i try not to look in the mirror too often coz i sure look like some escaped prisoner who's been through the Apocalypse. Like to call my scars, battle scars, but the losing hair part is repulsive to say the least. Really hate to think what it did to my insides :{
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