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Survivors who have used only alternative treatments

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Comments

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011

    I'm dealing with a few ailments and am always looking for info that might help.  I must admit PD is my first concern as it does affect my QOL.

  • lago
    lago Member Posts: 11,653
    edited June 2011

    What's PD stand for?

  • Bren-2007
    Bren-2007 Member Posts: 842
    edited June 2011

    Lago .. Parkinson's Disease.  Blue  recently had DBS (deep brain stimulation) to treat the symptoms of the disease.

  • 1Athena1
    1Athena1 Member Posts: 672
    edited June 2011

    It almost feels as though we need a key here. You know, as though it were an atlas. The blue line is for rivers, the black one is for country boundaries, etc... So that people will understand what they are looking at. This one would make Karl Rove very proud indeed because it is a complex blurring of the truth while claiming to be the opposite. And this thread, is, strictly speaking, WOMs, but belongs to everyone.

    I cannot seem to get the following book title out of my head. I haven't read it, but I love the title and it keeps coming back, like a song in my head:

    Lies and the Lying Liars who Tell Them

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    I find one thing very interesting is how many of us had other health issues before the diagnosis of BC. I would love to know if there is any research being done to see if all these autoimmune diseases and BC are somehow connected.

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011

    hehehe Athena.  Never would have guessed it!

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011
    I believe they are Kira.  I belong to another forum (PD) and a lot of evidence points to auto-immune.
  • lago
    lago Member Posts: 11,653
    edited June 2011

    wow blue, sorry about the PD.

    Other than some IBS that is under control and not all that unusual for a middle aged woman,  low D diagnosis 6 months prior and a little rosacea I'm perfectly healthy. Even when my onc gave me my sheet with her recommendations on top is said my general health was "excellent".

    But I did have a lot of stressful jobs the last 5 years. I do think that is a big factor in all this. No more working for assholes or at least I need to limit my contact with them. Tongue out

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011
    Here are some of the results when I typed in autoimmune.
  • 1Athena1
    1Athena1 Member Posts: 672
    edited June 2011

    My comorbidity is associated with a slew of apparently unrelated disorders, including cancer and heart disease and MS. It goes to show how little we know of the body - or the environment (by enviroment here I am thinking of physical surroundings AND life circumstances AND lifestyle).

  • crazy4carrots
    crazy4carrots Member Posts: 624
    edited June 2011

    lago -- I so agree with you regarding stress -- it causes the production of the hormone cortisol, which is linked to the development of cancer.  I had a great deal of stress during my last years before retiring.  I suspect wayward genes that have yet to be discovered, but, likely aided and abetted by the cortisol overload.

    As for the relationship between cancer and autoimmune disease -- there is a definite and distinct cross-over between the two fields in the scientific world.

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Some people need serious help with their paranoia. Susan is one of the kindest soul (soul is what transpires here, isn,t) and she suffers from a very serious debilitating disease (sorry Susan, don,t mean to put u in the spotlight). She lives in the province next to mine, has lived in my city and.has even recommended a family doctor to me.



    Patzee lives in a totally different time zone for those trying to emulate Shirlock, and is very endearing, she is just like a child and both mean no harm. Your posts are extremely aggravating and stressful to the rest of us who suffer from breast cancer

  • [Deleted User]
    [Deleted User] Member Posts: 1,017
    edited August 2012

    delete

  • 1Athena1
    1Athena1 Member Posts: 672
    edited June 2011

    May God help us.

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    And who exactly are you talking to CS ?

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011

    Linda, stress is also a factor in PD.  It's like we are stuck in "Fight or Flight" mode.  I think we are seeing a lot more "disease" in younger people because we live in a stressed out society not to mention the environmental toxins and the polluted "air waves", which comprise cell phones, etc.  I'm off for now.

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    YOUR POSTS ARE EXTREMELY AGGRAVATING AND STRESSFUL TO THE REST OF US WHO SUFFER FROM BREAST CANCER

  • bluedahlia
    bluedahlia Member Posts: 302
    edited June 2011

    Well don't read them!

  • mollyann
    mollyann Member Posts: 148
    edited June 2011

    .

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    blue I agree with you so much disease is caused by stress. As I see it the stress runs our bodies down, which allows the disease to take root. Add to that chemicals we come into contact with on a daily basis. I work in an environment that has mold everywhere. I know many of my fellow teachers have many breathing problems. It worries me what the future holds for the kids spending so  many years in that school while there lungs are developing.

  • AnnNYC
    AnnNYC Member Posts: 236
    edited June 2011

    I'm a little surprised at the sense of "ownership" of this thread expressed by people who are not the original poster, and most of whom signed up with BCO after WornOutMom did.

    Mollyann, I'm seriously a little confused by your intent -- a page or two ago you said, "the concept of OP has been lost all over BCO" -- and now you say "who really cares who anybody is?"

    When I say "OP" I mean the person, the original poster -- not the post itself.  And yes, I do care who the original poster is.  As I think nearly all of us here do -- we take someone's word for who they are, what they are going through, and extend ourselves on that basis. 

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    AnnNYC, I think WOM has been off BCO for a while. When I pulled up her info her last log in was some time in May. That's not saying she isn't here under another name. I would hope by now she has made her decision. Her original post was back in Feb.

  • lago
    lago Member Posts: 11,653
    edited June 2011

    WOM made her decision a while ago.

  • crazy4carrots
    crazy4carrots Member Posts: 624
    edited June 2011

    Luan -- You said a couple of pages back that you wished your posts could be private.  Someone told you how to do that.  Now you say that you're aggravated and upset by posts from others -- posts that talk about stress as an abettor of cancer and other illnesses.

    What exactly are you looking for from this website?  It seems that you are quick to criticize any post with which you disagree, and yet you criticize others for doing the same thing.

    This site wasn't created for you alone. 

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Molly, I understand too well.  Whoever is naive enough to believe that Big Pharma has not deviously colonized BCO.  It is obvious right from the get go.  Only alternative threads get harassed, challenged, disrupted, disrespected, insulted, bullied. Their mission is to disrupt, create havoc, play mind games so that people don't gather and share the information they have.  Anyone who does not conform is shut up, deleted, mistreated, harrassed. 

    They then brandish their "want to be impressive" stats and challenge poor women who are merely trying to survive this disease with no pity, no compassion, no empathy at all.  We all saw how low they can get in the Bursinsky movie, stealing patents, for God's sake.

    We, 100,000 of us (apart from the reps), represent an enormously gigantic consumer group of very very expensive chemo drugs (my Neupogen shots cost a total of $7,000 +), more drugs to address the SEs, drugs for a lifetime!   We are targeted.  BigPharma has a MAJOR vested interest in BCO women, just as doctors are targeted as low or high prescribers.

    It was very obvious to me when the personal vendetta began right upon my starting the "Guinea pigs, are we?" thread.  No reps has shown up there, that would blow their cover.  They then took it personally and came out of the woodworks when they deleted my OP on the "Bullies" thread, we saw the results of that one.

    Big Pharma has NO BUSINESS interfering on BCO.org

  • crazy4carrots
    crazy4carrots Member Posts: 624
    edited June 2011

    Quel surprise!  My post was just reported!

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Lindasa, post like CS who has not answered my question

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited June 2011

    Susan, where do I find this info ?  Don't tell me I have been wasting ALL MY PRECIOUS TIME !  Please !

  • kira1234
    kira1234 Member Posts: 754
    edited June 2011

    How do I figure out who the sponsors are?

  • Enjoyful
    Enjoyful Member Posts: 278
    edited June 2011

    "Only alternative threads get harassed, challenged, disrupted, disrespected, insulted, bullied."

    I have to disagree with you there, Luan.  I've been a BCO member a lot longer than you have so I've seen more.  The bullies range far and wide and are not limited to the alternative threads.

    As far as I know, there's no Big Pharma presence on the boards.  I took conventional treatment, disagree with a totally alternative approach and will happily argue the point with you if that's what you want.  That does not make me Big Pharma.

    I'm glad you reached a treatment decision that comforts you. 

    Best to you,

    E