Survivors who have used only alternative treatments
Comments
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I'm dealing with a few ailments and am always looking for info that might help. I must admit PD is my first concern as it does affect my QOL.
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What's PD stand for?
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Lago .. Parkinson's Disease. Blue recently had DBS (deep brain stimulation) to treat the symptoms of the disease.
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It almost feels as though we need a key here. You know, as though it were an atlas. The blue line is for rivers, the black one is for country boundaries, etc... So that people will understand what they are looking at. This one would make Karl Rove very proud indeed because it is a complex blurring of the truth while claiming to be the opposite. And this thread, is, strictly speaking, WOMs, but belongs to everyone.
I cannot seem to get the following book title out of my head. I haven't read it, but I love the title and it keeps coming back, like a song in my head:
Lies and the Lying Liars who Tell Them
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I find one thing very interesting is how many of us had other health issues before the diagnosis of BC. I would love to know if there is any research being done to see if all these autoimmune diseases and BC are somehow connected.
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hehehe Athena. Never would have guessed it!
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I believe they are Kira. I belong to another forum (PD) and a lot of evidence points to auto-immune.0
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wow blue, sorry about the PD.
Other than some IBS that is under control and not all that unusual for a middle aged woman, low D diagnosis 6 months prior and a little rosacea I'm perfectly healthy. Even when my onc gave me my sheet with her recommendations on top is said my general health was "excellent".
But I did have a lot of stressful jobs the last 5 years. I do think that is a big factor in all this. No more working for assholes or at least I need to limit my contact with them.
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Here are some of the results when I typed in autoimmune.0
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My comorbidity is associated with a slew of apparently unrelated disorders, including cancer and heart disease and MS. It goes to show how little we know of the body - or the environment (by enviroment here I am thinking of physical surroundings AND life circumstances AND lifestyle).
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lago -- I so agree with you regarding stress -- it causes the production of the hormone cortisol, which is linked to the development of cancer. I had a great deal of stress during my last years before retiring. I suspect wayward genes that have yet to be discovered, but, likely aided and abetted by the cortisol overload.
As for the relationship between cancer and autoimmune disease -- there is a definite and distinct cross-over between the two fields in the scientific world.
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Some people need serious help with their paranoia. Susan is one of the kindest soul (soul is what transpires here, isn,t) and she suffers from a very serious debilitating disease (sorry Susan, don,t mean to put u in the spotlight). She lives in the province next to mine, has lived in my city and.has even recommended a family doctor to me.
Patzee lives in a totally different time zone for those trying to emulate Shirlock, and is very endearing, she is just like a child and both mean no harm. Your posts are extremely aggravating and stressful to the rest of us who suffer from breast cancer0 -
delete
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May God help us.
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And who exactly are you talking to CS ?
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Linda, stress is also a factor in PD. It's like we are stuck in "Fight or Flight" mode. I think we are seeing a lot more "disease" in younger people because we live in a stressed out society not to mention the environmental toxins and the polluted "air waves", which comprise cell phones, etc. I'm off for now.
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YOUR POSTS ARE EXTREMELY AGGRAVATING AND STRESSFUL TO THE REST OF US WHO SUFFER FROM BREAST CANCER
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Well don't read them!
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.
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blue I agree with you so much disease is caused by stress. As I see it the stress runs our bodies down, which allows the disease to take root. Add to that chemicals we come into contact with on a daily basis. I work in an environment that has mold everywhere. I know many of my fellow teachers have many breathing problems. It worries me what the future holds for the kids spending so many years in that school while there lungs are developing.
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I'm a little surprised at the sense of "ownership" of this thread expressed by people who are not the original poster, and most of whom signed up with BCO after WornOutMom did.
Mollyann, I'm seriously a little confused by your intent -- a page or two ago you said, "the concept of OP has been lost all over BCO" -- and now you say "who really cares who anybody is?"
When I say "OP" I mean the person, the original poster -- not the post itself. And yes, I do care who the original poster is. As I think nearly all of us here do -- we take someone's word for who they are, what they are going through, and extend ourselves on that basis.
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AnnNYC, I think WOM has been off BCO for a while. When I pulled up her info her last log in was some time in May. That's not saying she isn't here under another name. I would hope by now she has made her decision. Her original post was back in Feb.
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WOM made her decision a while ago.
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Luan -- You said a couple of pages back that you wished your posts could be private. Someone told you how to do that. Now you say that you're aggravated and upset by posts from others -- posts that talk about stress as an abettor of cancer and other illnesses.
What exactly are you looking for from this website? It seems that you are quick to criticize any post with which you disagree, and yet you criticize others for doing the same thing.
This site wasn't created for you alone.
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Molly, I understand too well. Whoever is naive enough to believe that Big Pharma has not deviously colonized BCO. It is obvious right from the get go. Only alternative threads get harassed, challenged, disrupted, disrespected, insulted, bullied. Their mission is to disrupt, create havoc, play mind games so that people don't gather and share the information they have. Anyone who does not conform is shut up, deleted, mistreated, harrassed.
They then brandish their "want to be impressive" stats and challenge poor women who are merely trying to survive this disease with no pity, no compassion, no empathy at all. We all saw how low they can get in the Bursinsky movie, stealing patents, for God's sake.
We, 100,000 of us (apart from the reps), represent an enormously gigantic consumer group of very very expensive chemo drugs (my Neupogen shots cost a total of $7,000 +), more drugs to address the SEs, drugs for a lifetime! We are targeted. BigPharma has a MAJOR vested interest in BCO women, just as doctors are targeted as low or high prescribers.
It was very obvious to me when the personal vendetta began right upon my starting the "Guinea pigs, are we?" thread. No reps has shown up there, that would blow their cover. They then took it personally and came out of the woodworks when they deleted my OP on the "Bullies" thread, we saw the results of that one.
Big Pharma has NO BUSINESS interfering on BCO.org
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Quel surprise! My post was just reported!
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Lindasa, post like CS who has not answered my question
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Susan, where do I find this info ? Don't tell me I have been wasting ALL MY PRECIOUS TIME ! Please !
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How do I figure out who the sponsors are?
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"Only alternative threads get harassed, challenged, disrupted, disrespected, insulted, bullied."
I have to disagree with you there, Luan. I've been a BCO member a lot longer than you have so I've seen more. The bullies range far and wide and are not limited to the alternative threads.
As far as I know, there's no Big Pharma presence on the boards. I took conventional treatment, disagree with a totally alternative approach and will happily argue the point with you if that's what you want. That does not make me Big Pharma.
I'm glad you reached a treatment decision that comforts you.
Best to you,
E
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