March 2011 chemo-lounge
Comments
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Lily - a tinsel tree is fine- Christmas is meant to be tacky, I have a blow up father Christmas in the corner, tinsel wound round the pergola outside and silver beads all round the pool fence - and I don't care how cheesy it all is I love it.
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I love it too. Have a silver sparkly branch in front window with crystal and Swarovski snowflake ornaments on it. Real tree in family room, nutcracker collection displayed in kitchen, dining room in full decor, and my husband puts up the dickens village.
Kids, who don't live here now, have trees in their room that I still put up.0 -
I love to put up tons of Christmas stuff too. We have three trees and lights in about every room.
fluff: we have a Dickens Village, too, that my DH puts up every year. The cats like to curl up on the cotton batting 'snow' which makes my DH crazy!
penny: I just got my 'lotus dragon tattoo' sleeve from lymphadivas. I love it, and I look so tough
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Omg, my husband would stroke out if anyone messed with it, lol. My mom started giving them to me years ago. I love it, but I really wish I had the 50s one. It is so cute and fun.
I drive him crazy if I walk in to see it, and he has a road that just stops, or a bridge that doesn't go over anything. Or a house that has no access to anything. Lol, yes I am a little type A.0 -
Thinking about you today Lily - hoping for the best results ever
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Sorry to say the results were not good. I am really disappointed-I kind of knew that feeling fabulous was too good to be true. I just came from getting my tx. The report says all mets have increased in size and activity level. New mets in the lungs in the sub-pleural liing. The liver has a 2 cm met back in it-it was clean on the Sept scan.
I have only been off the Taxotere for 6 weeks-it looks as though targeted drugs are just not enough to hold me stable. I failed last year on just herceptin so it is pretty much the same thing. For now we are going to add the Taxotere back in at 75% of what I was getting-trying to see if we can fight cancer and have some quality of life. I told him I was more than willing to do the full dose but he thinks a lowered dose might be just as effective. Mean while I am hoping the FDA gets TDM1 approved soon.
It wasn't unexpected-I have just had this creepy negative feeling in my head-the body feels so good and normal I don't know how to act sometimes. I had just gotten stubble over most of my head-now it will fall out=again.
Here's the good thing-my sister told me to quit buying hats because everybody was getting me them for Christmas as gag gifts. They have a secret contest to see who can come up with the ugliest one. Kind of like the bad Christmas sweater thing. My bald head freezes outside so I have been hitting the craft show circuit buying up knitted hats of all kinds. So everybody can get a good laugh-and I will need the hats for quite a time to come. Can't wait to see what they have come up with. I hadn't told them I was getting scanned. they think it is in jan sometime so I will keep this to myself for a while. I will start the Tax in early Jan. Maybe by then I will look up how to post pictures and I wil do a montage of the ugliest hats in Ohio!!
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Lily, I am really sorry to hear this. What a blow. It sounds like taxotere has been good to you, so I hope it can continue doing its magic. I am thinking of you and hoping all the best for you. What a difficult ride this has been for you.
I look forward to seeing some ugly hats. Bad news and you are still making me laugh.
You are a delightful spirit, lady.0 -
Lilly, so sorry to hear the bad news, but hope the re-introduction of taxotere will do its job. I thought my wig felt like a hat last year! Lol
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lily, I am sorry to learn of your news, friend. You are such a trooper. You are often in my prayers. I so wish there were more I/we could do for you. Always here for you, tho.
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Lily - I am so sorry. I keep you in my prayers all the time. I just hope that you can continue with treatments and in time new treatment options will become available. I know taxotere is no fun....but I am thankful there is something that has been helping you. Hugs dear BC sister......
Oh and I love the ugly hat idea:) We do want to see pictures!
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Ugh. Lilylady, you had said you've never had two good scans in a row. I was hoping this would be a happy surprise... I guess we should be glad that Taxotere works despite the cruddy SEs. Love the ugly hat contest. I'll keep you in my prayers. You're tough and you will kick cancer's ass. Sending a big hug to you.
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So sorry to hear your results - damn it seems so unfair that it has to be Taxotere that works. We do expect to get the hat pictures. I have a particularly bad one that looks like a tea cosy with beads hanging off it, if yours are not bad enough I could send it! You are amazing - hang in there, there are breakthroughs all the time.
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Thanks for all your kind words of encouragement-the most disturbing part of the visit was when he started talking about "Quality of Life" issues. For me that means more of an endgame and I am far from that. He wants to add the chemo back in at a low rate-I told him while I am in such good shape lets hit it hard and then after the next scan if it's improved then maybe back it off a little. I would rather feel crappy in Jan/Feb than when Spring gets here. He also talked about ordering a brain MRI. I sent him an e-mail detailing my thoughts -he has to get this approved by ins of course so he may as well apply for the big amount.
I never complain about chemo side effects to him so it makes me nervous that he has gotten this idea he needs to back down on dosing. Also bothers me that the latest greatest drug for us Her2 doesn't seem to be too effective with out the chemo. There have been at least 3 other ladies who have moved on to something else since starting this-and it was only approved in June.
I am Ok with this whole thing-I am still not sick at all from the cancer-it has only ever been chemo that cauases problems. Many or maybe most Stage IVs have real issues with pain, fluid build-ups, heart things ect. I have none of that-so there's always somebody else who is worse off.
My brother gets scannned Friday-can you add a prayer that his comes out good. It will be his first since starting chemo.
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Prayers and positive energy coming your way. Interesting that the new drug only works well with chemo. Didn't they fast track the approval for that?
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Lily, I am sorry you didn't get better news. I am always thinking of you too. Don't read anything into the QOL comment, I know doctors say the same thing for all chronic diseases. I think it's genius to hit it hard now and back off in the spring. And can't wait to hear about the hats. Thoughts and prayers for both you and your brother.
Fluff, where are you with the vaccine study? I decided to do it after all. Jan 7 I get the first tx either vaccine or placebo. Is this the same trial you're doing? It's AE37 trial?
Merry Christmas and Happy New Year to all!0 -
Kay...I completed the core program in September. Now I will just go back every six months for a couple years. I am in an ae37 trial. There are a couple of them I think. This one is mine.
http://www.cancernetwork.com/conference-reports/asco2012/breast-cancer/content/article/10165/20819970 -
Happy Christmas friends - I wish you all a lovely year in 2013 with time shared with your loved ones and lots of new memories to be made
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Lily-I am so sorry you did not get better news on your scan results! I am saying so many curse words in my head for you! It is just not fair.
It is New Year's Eve, ladies. I will be thinking of each and every one of you, wishing for a happy and better year than the last! Enjoy the festivities, everyone!
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Happy new year to all of you! I hope everyone had a wonderful Christmas.
Wishing for all the best in 2013!!0 -
is there a eap of tdm 1 near you?
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Happy New Year! May 2013 bring much needed answers and solutions to turn this disease into one that is a treatable chronic issue and not life threatening.
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Raising my glass to your toast, fluffqueen! Happy 2013, may it be good to all of us!
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. Cheers and Happy, Healthy New Year to all my chemo buddies! Wishing you all the best in 2013.0
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Happy New Year-and many more to come for all of us!
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That is a great toast! I am raising my glass to that for sure! Happy New Year to my dear lounge friends! May we all look good, feel good and most of all live disease free for years to come. Hugs!!
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HAPPY NEW YEAR LADIES...may we all have a blessed 2013 and many more years to come!!!
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Fluff -- Fantastic photo!
Happy 2013 -- God bless us everyone!!
Lilylady - Has the hat event happened yet? If so, give us an update! Have you told your family your scan update yet? Hope you're weathering the Taxotere as well as can be expected. Sending you a hug.
Kay - we will have lunch again someday soon!
For the jukebox - Beautiful Day by U2...............
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Diagnosis 2 years ago today - and still here, alive and kicking and enjoying life to the max.
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Depending on how you look at it, the surgical biopsy that removed the tumor with clear margins and identified the pathology was January 28. BMX was Feb. 28. I am almost there.
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Congrats on two years, Penny. It seems, at once, ages ago and just yesterday that we were going through all of this. Here's to many happy, healthy years!
And congratulations in advance to you, fluff!0
