March 2011 chemo-lounge
Comments
-
I'm sorry, Penny. That sounds like a really crappy way to spend the day. I hope they get it worked out so that it doesn't happen again.
0 -
Jules: YOu can be bitchy any time....we get it. I will just send you a shot of tequila down the bar to take the edge off! Ha! That is on me! I am trying to avoid neulasta issues myself. Keep your fingers crossed. If it doesn't work I will need you to return the favor and buy me a strong drink!
Cellomom: LMAO! Too funny! I think you should have someone get a tatto in the family to make the whole thing complete. YOu made my morning! Glad you had a handle on the nausea. Sorry about the hair.....hugs!
Penny: I don't even know what to say. That's crap! I am buying you a big, fruffy, strawberry frozen margarita with two umbrellas in it! That's horrible! I am so sorry this happend. What kind of doc put the port in? I had a interventional radiologist do mine. Are they suggesting against continuing with the veins? I don't remember, but how many more treatments do you have? I only have a total of 4 treatments but they suggested a port because the taxotere is suppose to be hard on the veins. I didn't want a port but my doc wanted me to. Let us know what you do. So sorry you are going through this. Hugs! YOu can moan any time sister....we are here for ya!
0 -
Morning ladies, not having a very positive day so far, had a fight with DH last night. We were supposed to have a night together if you know what I mean and he blew me off to go hang out with one of his friends .Didnt come home till 3 in the morning, I am feeling so hurt we havient had "a night" since my first chemo and I cut my hair. He is always reassuring me that he still thinks I am beautiful but well actions speak louder than words you know. Anyhow I really needed to vent this cause I am feeling so unattractive right now and hurt but dont want to share with anyone I know in the real world. I'm not good at sharing my feelings normally but its just so easy with you girls. Does anyone else have these worrries that DH will pull away?
0 -
I agree that we should all feel free to moan when we need to, regardless of our reasons! I'm in Chemo chair at the moment. So far so good...
0 -
Hi all- I had my second chemo (A/C) yesterday, and it went much better. I popped a compazine in the parking lot on the way out and have been trying to keep ahead of the nausea. I will not be afraid to keep on the meds this time.
cellomomof5: we're on the same schedule, and my hair was coming out in bigger clumps in the shower this morning. Pretty gross to see the towel covered in hair...I see clippers in my very near future.
mgaines: I will be on the dose-dense taxol after A/C. I have never investigated which was better or more effective. Please post if you learn anything else.
cat123: I am opting for the radiation after chemo. I had left MX, am having A/C+T chemo and then 5 weeks of rads. Everytime I asked why so aggresssive, they would reply "that node was really big." Palpable nodes are not good, as you all know.
pennycookson: so sorry for the hassle. I am always amazed when everythig goes RIGHT at the hospital. I did not have a port placed, but my veins are holding up well. I hope they fix this for you.
mdg: man, you're good at keeping up with everyone!
Here's hoping the hangovers aren't so bad this weekend. Keep up that hydration!
0 -
Kymn - sorry to hear about your evening. Read a book "cancer for two" which was very good. He had a chapter entitled "a word about sex during chemo" and the chapter was brief. It said "Ha!". My dp and I haven't fooled around in the month since chemo started. I definitely want to but it's been a rough period of time... I will be interested in what others say. Hang in there. I hope tonight is a great night for you!
0 -
I had my second round of AC yesterday. Seems like the headache and being tired hit sooner than last time. Went for the shot this morning. Expect to spend the weekend in bed again like last time. Feeling better knowing a little bit of what to expect from last time. Hair from my head started coming out today. I am sure we will shave it this weekend. I am glad I have a few cute hats to wear. I have a wig but I am still not sure about it.
Lilylady-I've been thinking about you since I read your post. Please stay positive and come here and talk as much as you need to. We are all here to listen and to support you!
0 -
Happy Friday my gals...today I am feeling OK. I worked out for 45 min and decided to lay low the rest of today (I have been busy every day this week!). My biggest issue is I have been starving ALL DAY! Lord! I finished steroids yesterday so I don't know why I am so hungry. I was like that last time too. I just got done devouring a huge bowl of popcorn (made with healthy olive oil) which was not probably the best thing to eat but it is the only thing that sounded good. Oh I hope my stomach doesn't hate me later......now I am scared! I have had probably large glasses of water already and it's only 1pm. I am trying to flush that crap out of my body! We will see how tomorrow goes...that's when the hangover hit last time.
Kymn: I am so sorry about your fight with DH. I don't know how the men handle this. They don't know what to do with emotions, feelings and fears. My hubby doesn't say much about how he feels about all of this. It's so hard to talk to them. I did check out a book from the cancer center on BC for partners and he read it. I never read it at all but appreciated that he did. I figured it was better not to know what it said so that if he didn't do things the way the book said I would not be disappointed. I have the opposite problem with my hubby about sex...mine is obesessed with my new TE's and the newly arrived brazilian down below. Needless to say I have not been much in the mood but we have been intimate a few times but after the condom failure last weekend I have been freaked. Nothing like paging the doc on a Friday evening to explain that one and then have them page your gynocologist to discuss it too...When we went to the dr for my chemo and met with her Wed she was talking about it and said how great it was that we were having a normal sex life through this an it's good for me. My dear hubby has been echoing that since Wed - you know how "good it is for me". Good lord he was saying it again last night......All I could say was "really? Do I look like I want sex right now? I am not over the condom incident yet - you are still in the dog house for that one". I am so sorry you are having to go through this. Can you try to talk to him? How did he act today? Do you think he would read a book on going through BC with a partner? Some couples choose counseling together during this because it is so much to take in. I do hope since it's Friday and the weekend is here you two can have some time to talk and that you will feel better. HUGS! I know how lonely this must make you feel. We all feel insecure about how we look due to all the crap. I actually cried the first time we had sex post surgery because I felt so gross.....I am slowly getting over it but it's hard. I did read a thread somewhere on here that was talking about how to get your mojo back....I don't know what area it was in (did anyone else read it? know where it is?). I think we all feel insecure about our spouses not feeling the same way about us after all this...heck I don't know what to feel about myself on my own anymore. The thread did help give me hope. Search around...I will too and see if I can find it. I wish I could buy you a real, fun drink and have it with you right now! Maybe a watermelon shooter? Hugs!
Silia: You go girl...rock that chemo chair today! I hope for NO hangovers.......just for you!
MaxineO: I am trying...Do you know how many times I have to scroll up and down and read the messages over and over again to keep up with all the lounge lizards? Good thing I am off work on STD...this takes time but it is oh so fun chatting with you wonderful gals! I do feel like we are in the lounge sometimes!
Colodisneylover: Glad you have number 2 down and finished. THat's a way to end the week! I hope NO hangovers. I am 2 days ahead of you and no hangover yet. Last time it started on Saturday....crossing fingers. Hang in there!
I wish all of you a hangover free weekend!
0 -
Penny, I had port problems yesterday too, but mine was trying to do bloodwork. They could flush it (required before draw), but not pull any blood out. Nurse one tries (this is at my local hospital-trying to save a 60 mile round trip if I can)-nothing. Tries again with a longer tubing. Nothing. Gets 2nd nurse. Nothing. They say they haven't had that happen before. Don't know what to think. I ask if I can get blood drawn the old fashioned way (veins?) Well, sure if I want to. Really? Do I look like I want to be here at 7:00 am having y'all poke around? So we head to lab and my "new BFF" is at the station. She is the only one that ever can get a stick first try no bruising with me. I haven't let anyone draw my blood but her for the last 3 years or so (except surgeries and they sucked!) I start crying, she says don't worry and procedes to get it first time. Geez. Turns out I probably have a fibren (sp?) sheath, some sort of membrane or tissue my body has produced to "protect" it from the port. A little medication next time wll break that up. Not uncommon.
Kymn, sorry to hear about your husband. My husband and I have had issues too, mostly me cuz I just don't feel like it. He is very supportive 99% of the time, but says I am mean to him sometimes (I probably am) and sometimes he treats me like I'm an idiot, which really pisses me off. One comment was "You're having problems right now". That's not exactly what he meant, but he has trouble saying things tactfully. And normally I would laugh and say "Oh really. I have a problem?" and he'd rephrase. But me bursting into tears doesn't help the matter any and then he really doesn't know what to say and apologies are difficult. And I am unforgiving. sometimes. I feel sorry for the husbands, bless 'em. They have as tough a job as we do. And they don't have the support system most of us do and have to be strong and try to keep us from falling apart. But they don't get off the hook. Might be time for a little heart to heart and maybe even a session or two with a counselor. I'm going next week for me (cancer center has a therapist that I like) but am thinking about one with me and my husband and maybe one for my son (neither of which will want to do it, but we'll see)
0 -
yeah It was just plain ol selfishness on his part, I wanted to, we had planned this, but he blew me off. I am so angry right now. No he wouldnt read a book or go to a counellor he is way to stubborn and proud. I am just having an all around shitty day ( can I say that?) and I know its going to be a shitty night. His band is playing tonight in a bar and trying to suck up he said oh I made us reservations for dinner before really well how about the fact that our 14 year old has a dance tonight and of course he didnt make arrangements for our 8 year old to have a sitter DUH. Guess I am alone again tonight
0 -
Kymn: I am so sorry. Yes, they are selfish at times and sometimes it is quite often. Personally I think it has something to do with "the balls" (ok I am probably going to offend some people...sorry but I am getting chemo fog brain right now...it's kind of like having a few cocktails in the bar..you just say what you think). I have always felt that any common sense a man has hangs out down there...that is what the appendage is really for. Men just don't get it....they can be so useless at times. I just want to yell at him for you Kymn! Ugh! I wish I knew what to say to make you feel better....Yes, you can say you are having a shitty day ANY TIME! You are entitled! I hope it gets better.
0 -
Can I join you all for a drink? I'll take a nice cold beer in a frosted mug. I'm doing 4AC followed by 4 taxol, had my first treatment 3/16. Getting back in that damn chair again on 3/30.
Michelle, I love your friend Anne's story above. And Kymn, so sorry, men can suck sometimes.
0 -
LilyLady, my heart breaks for you. I'm so sorry to hear what you are going through. Please know that we are all here for you. I love what one lady posted, no one can take away hope. Keep on fighting the fight.
Penny, thank you for sharing the quote from Lord of the Rings. It's inspirational. Ugh and that stinks about the port, because port placement is no fun either. Did you say they are going to re-insert it?
Karen, you cracked me up with the story of you and your daughter going into your son's room, priceless.
Kymn, I hope you have a better weekend. I wish I had some words of wisdom to give you. Just know that it will get better. You are a beautiful lady and I'm sure your husband knows it.
Hi Bluecowgirl, I'll have a dirty martini while you have your beer.
Today is day 8 post chemo and I feel like myself again. Woo-hoo. The only thing that is off are my taste buds. That sucks, but at least I'm not sick to my stomach. Oh yeah one more thing, I have started shedding. I'll wait a few more days or maybe a week before I go for the buzz cut.
To the rest of the lounge, happy Friday and wishing you all a happy weekend.
hugs to you all, min
0 -
Lillylady: Very funny about the mice, i am literaly scared to death of them, once their was one in our trailer and my cat was chasing it ,it went under the bed and I climbed on the dresser until my husband caught it, he still laughs todAY, My prayers are still with you, have hope please they have gotten so far with technology now as we all know. Please keep us updated as they all say we are one bif happy family. I am having a rough time trying to stay out of crowds wit my blood count so low. After being stuck in for 2 weeks with se. I would love to get out before #4 on Monday, but thats the way the ball rolls. Keep us updated everyone and be well.0
-
Hi ladies,
I wish everyone a great weekend!
It helps immensely to read everyone's stories and words of wisdom:) I couldn't find it in me to post anything yesterday because I was so down. I think most of my SEs are heavily affected by my mentality. The illness the past few days may be because I had a bad anxiety attack which is compounded by my "friend" arriving a week early
Or it could just be the chemo lol it's so hard to tell which symptoms are depression/anxiety and which are induced by chemo (for me) But I'm happpy to say my energy levels are pretty normal now. Besides some odd achy/ spasm feeling in my lower back. I was extremely pissed at my body for not getting better sooner. I was up and running the next day after my kids' birth and was running around a week after my BMX so I thought I could work through this.Lily: I'm thinking of you and sending prayers, I hope you have a good time with your friends this weekend.
Mdg: Yeah on being 50% done!! It wows me how you can run around like that all week
I'm praying you get to keep your hair!! It's day 8 for me and I swear my leg, underarms and eyebrows are growing even faster and thicker lol I was so looking forward to losing them. My scalp feels hot/itchy but so far nothing is coming out. Although I do have thick hair. Penny: OMG, that's horrible! Sorry you had to go through that! I'm receiving treatment at MSKCC and they have a treatment 3 mins from my apt. I went on Sat. and the nurse had to poke me twice for an IV, and I was :-O. I was going to change my treatment to there from the breast center but not now. I can't imagine.
Kymn: I'm sorry your husband
Ugh, men, sometimes you just want to knock them sidewaysMaxine, Colo, Silia: Yeah, #2 done and gone!
Min: that's awesome!! Our #2 is coming up soon:) I can't wait for July or August
Welcome BlueCowGirl!
Enjoy your weekend everyone!
Kim
0 -
Thanks for all your kind comments - mdg I have 6 doses of Taxol and very poor veins which is why they want to have another go at doing the port. They will only do them under general anasthaetic here, and I hate going under but thats probably what I'll end up doing. -
Halfway there mdg - brilliant
Still - day 2 and I feel OK and went for a walk this morning. Hope everyone is having a positive weekend. Welcome BlueCowGirl
Kymn - sat in the chemo room and watched a lady with her husband, he spent most of the time ignoring her even when she was talking to him, then she offered to get up and make him a cup oftea which he refused quite rudely - some men really don't get it, I would have smacked him or told him to leave. I don't think yours is like that,its just a thoughtlessness thing. They do need time on their own but I really don't think they understand how vulnerable we are.
Mine has been amazingly good but in a strange way I think he likes the role - I have always been the dominant one and I am not sure he has always felt needed. Now he really feels like I depend on him. I guess we will all take time to adjust our relationships to this.Hope it works out for you.
My son just came round - saw the shaved head and said I look like someone from the prison colony in the Alien movie. - Its either that or the hungarian peasant look with the scarf.
We are all one step closer to beating this.
0 -
Kym hang in there, they are just men! I think my DH says he is here to support me and help me but only if the routine doesnt change, still expects me to do all the cooking and cleaning, and always feeling like going out with friends. surround yourself with good friends and your precious children! And of course us ladies! He may be just as scared as you, and thats how he needs to handle it.
Went in for echo yesterday and the doc had to poke me three times to get a vein, I told him he needed to learn how to access my port. Then they had a new machine and the tech had questions, so she asked if I minded if the the salesman for the machine could come in and help her. If you have had your echo you know that you are totally exposed on top. What the heck....hopefully made his day! ha ha
0 -
Kym, I think carberry has it right. Just men. Hard to believe they can act like that. I do think they are all much more selfish by nature. I am sure he is scared, but what can you do, I know you are as well. Hang in there, we'll all get through this. Lillylady, thinking of you. Hope you're having a good day.
Sorry to hear about all the port problems. I just had one put in last Friday and everything went well with it on Monday. I had no idea so many problems could come up with it. Yet another thing to worry about I guess.
I guess no one will be sitting in the chair on the weekend. Hope everyone's hangovers are light. Have a great weekend and enjoy this beautiful weather we're having.
0 -
Good morning all, thanks for your words of wisdom on MEN. I guess it could be worse and he could be like that husband Penny described what a douche!! Yeah at least DH isnt that bad but god wish they could just get it for once. I guess in all reality the real fear is that he will find someone else you know. deep down I think well he didnt sign up for this either and there are plenty of women out there who have hair, no illness, no kids, all the energy and freedom to do what ever he wants. I am afraid reality will end up being too much for him. Maybe I am not giving him enough credit but it always seems like i am the one who has to comprimise and he always just continues doing whatever the hell he wants. Why is it so hard for Men to but us first why are there needs always first. We are always told to take time out for ourselves do something just for us but when are men are constantly doing that for themselves where on earth do we find the time to do it for us???? AARRGGGGG. Ok going to have a coffee and try and turn my mood around. Hope your all having a good weekend and your DH's are doing someting wonderful for you all right now lol Send thoughts this way maybe they will break through my DH thick scull lol
0 -
Kymn: I have been thinking about you....I just wanted you to know. I hope things turn around for you. Sliding some Bailey's down the bar for you to put in your coffee....(smile).
0 -
Kymn - Hang in there. I have to believe your dh is smart enough to know what he's got! I'm wishing that you'll be feeling better about things very soon. You so deserve that. Isn't it awesome to have this community support?!
My update is that I was dealing with chemo constipation, sorry to say. Think I've gott through it, thank God, but not fun at all.
IMPORTANT NOTE FOR THOSE ON AC TREATMENT WHO HAVE BEEN HAVING HEADACHES: That's my current treatment and an onc nurse told me that if I have the Cytoxan portion delivered slower, some say the have less headache problems (sinus or otherwise). So for my second treatment yesterday they lengthened the drip from 30 mins. to an hour and I am definitely experiencing less head problems. Very psyched and wanted to pass it along in case of help to anyone here.
Welcome to our newcomers. I don't do a great job of naming names the way many others do but I enjoy all the comments and sharing that we do...
0 -
Kym, your mood about men is certainly understandable. I hope what I write here comes across as kind and loving, as that is how I mean it to be. Maybe there's other women out there, but let me tell you, at some point ALL women have issues that a man is going to have to deal with! There are no women out there that are "better" than you! If I were you, I would do my best to stop worrying that your hubby wants someone with no baggage. Sooner or later, ALL women have baggage! (Men, too, but that's another subject).
It's been years ago, but my hubby and I had some issues, and I found the changes had to come from me. And that does not mean I became a doormat! Sort of the opposite, I had to start to stand up for my needs and accept that he, as one person, was not going to be able to meet all of my emotional needs. It is a learning process.
I do know that men like to be needed. But they don't want "needy" women. I think there's a difference. I hate to sound like I'm asking you to cater to him, but the times he does treat you right, or does something nice, even something small, saying things like, what would I do without you? in a nice, positive way,makes them feel that they are needed.
As for intimate moments, it is nice to be able to plan, but sometimes the right moment presents itself without much planning.
Hoping for good things for you and keeping you in my prayers!
0 -
I'm baaaaack! I have my BGPs (big girl panties) pulled up to my diseased boobs and nothing is going to yank them down again. I have gotten some great PMs on how to fight the insurance bastards-when the most serious medical incident in you life has been bad poison ivy reactions you haven't got the experience or wisdom to tackle the big guys. Apparently having your ins co decide you aren't worth the money isn't all that uncommon. I have some ammunition and that will be Job 1 on Monday.
I have spent the day with my buddies laughing and eating and yakking-about just about everything but cancer. God that felt good. Day 3 post chemo and all I have is a little heartburn-Yay me-finally getting a break-but being very mindful that doesn't mean the next round will be the same.
I plan on sofa surfing and catching up on all the posts tonight. Thankk goodness the phone has slowed down. I have finally convinced my parents if I don't amswer please don't send 1 of my siblings to check on me or call the neighbor to see if my lights are still on. They are never going to forgive me for hiding this til the day before port install... and no way are they ever hearing about this other crap.
Thank you my friends and I am sorry if I worried you. looking forward to catching up with all your stories tonight-going to take some notes-that has to be how MDG and Kym are doing it-I can't remember and have to keep looking back and then forget what i wanted to write.
Kym-I have read your posts and the replies and they are so poignant. I am widowed for many years so I don't have the same issues as most of you but Kym I know, just from your writing that you are just as beautiful on the inside as you are on the outside. Remember I said you looked like a poster girl...you have that classic beauty that can carry off any kind of look. It might be hard to feel attractive sometimes right now but unfortunately it is the price of treatment. Wether you are doing the russian peasant woman, Lady GaGa, biker chic, commando or depression era factory worker it's all about the attitude. Keep your head up pretty lady!! And if all else fails we can get belly button piercings to either distract them or gross them out
0 -
lilylady, I received your PM and plan to write back when I have more time. Just wanted to say, I cracked up at the "depression era factory worker" comment. That would be me if I wore just scarves (I don't). I've worn a bright pink knit cap and folded a black scarf with white polka dots and used it as a decorative band around the cap...very biker chick. I'm a wig-wearer in public, but at home I often wear just a light weight cap, sort of like a toboggan but in cotton since we're heading into spring. Have several colors and some reverse for more color options. I definitely look like MOMS MABLEY when I wear them, if any of you remember her! lol, but in the privacy of my own home around DH and DS, I am comfortable with that.
However, yesterday in the mail I received my free hat from "Gaila Hats" and oh my gosh, it is my favorite to wear. Lightweight and beautiful and did I mention free? Now this hat sort of makes me look like Aunt Jemima, but I LOvE it and love the look and feel of the hat. In case anyone is interested, any chemo patient can get a free one thru their website.
0 -
Hi all - day 3 and not too bad.
carberry - I am sure you did make the salesman's day - there is no modesty left with this stuff is there.kay-from-philly - glad your port went well, most people's seem to. The chemo nurse said mine was the worse she'd had, the line actually breaches the vein further down - goes out and in again, but I'm over it now. Glad your weather is lovely, we have had around 35 deg C for 8 weeks now and no rain - its lovely for the beach but my garden is dying a bit.
Kymn - lilylady is right, you are gorgeous - a friend sent me a comment that said - "Your face shows your soul - it will always be beautiful" the same goes for you. DivineMrs M your comments re men are so right. I have probably always been too independent and a few "that was such a help to me sweetheart' can do wonders. Having said that a friend of mine read an article which suggest we train them like seals. Apparently when they do something bad you just ignore them and make out your having great fun without them, then if they do something good you pay them attention - pretty much like a two year old. (but not very politically correct for a husband I guess).
Look at this one on utube its so right:
http://www.youtube.com/watch?v=6EElqrgk4N0 or search for man flulilylady - so great you had a good day - cancer free days are really important. We are much luckier here in Aus, the insurance thing does not drive our treatment, It'sall about what the doctor decides for you. You pay the gap between the scheduled fee and the actual fee for the service but it is not too bad and no-one is checking what the insurance company will allow.
DivineMrsM - your hats sound great, but maybe too hot for Aus, as is the wig - I go without anything at home and am going to book a lady to come and do henna flowers on my head next weekend.
Have a great weekend everyone and lots of love from down under
0 -
Hi Im Vicki!! I just finished chemo n now doing rads!! You will all do fine!! Its not fun!! I worked full time through chemo, It wasnt easy, but now waiting for new hair!! It will be over before you know!! Be strong n POOF!! It will be the past!! Be strong, N good luck!! If I can do it you can!! Half way through rads!! Keep waiting for new hair!! coming slow!! LOL Sincerely Vicki
0 -
Thank you Vicki for the words of inspiration and encouragement.
Lilylady, very nice to hear back from you. You sound good. Just know we are all here for you. I hope you have a good evening and enjoy your Sunday,
many hugs,
min
0 -
Good evening ladies, wow where to start you all given such wonderful advice and support ,I am so lucky to have all of you. first off I will start by saying that I sat down with DH and had a heart to heart told him how vulnerable I was exactly what I needed why his actions were hurting me and let him vent how he was feeling. I will just say that we were in the bedroom for about 2 hours and about 45 min was talking
. so back on track for nowMDG I forgot to respond earlier about the balls comment lol not out of line I think you hit the nail on the head lol so to speak. thank you for the baileys it was delicious .
Welcome bluecowgirl so sorry I didnt acknowledg on your fist your pop in here I was in a bit of a selfish rant . So nice to have you with us come and have a drink anytime and as you can see you can vent here about pretty much anything
Mig I am doing the buzz this sunday too I think I keep chickening out but its going to get to the point soon where I dont have a choice anymore
dizzy I know just a good kick to wake them up once in awhile is not a bad idea at all lol can you imagine the look on their faces if we just walked up kicked them and then walked away saying nothing lol
Penny thank you so much for the nice compliments I love the idea of the flower Henna on your head would you be able to or want to post of picture of that I would love to see it.I am glad you are feeling good so far am praying those nasty SE stay far far away.
Carberry I think you are right about men not liking their routine to change . I have to admit in that regard my DH has really helped out while I was down and out during chemo hangover week, I didnt have to do any cooking and he even did 3 loads of laundry I didnt even know he knew where the washing machine was lol. Guess I complained a bit too much huh which takes me to
The Divine Mrs M you are so right and I did not take any of your advice the wrong way. I do need to make sure I acknowledge all the positives. I guess I do take some things for granted too. I was just so hurt because we really had a great sex life I know maybe TMI but we did or we do and going 9 days without was just so unheard of I of course took it as he wasnt attracted to me anymore but after our talk I see I am just over reacting dont get me wrong he can still be a selfish SOB but he is my SOB and I love him and I am in a learning process again you are right wow you are one smart lady, he cant fullfill all my needs and I cant expect him to. Thank you .
Lily lady I am soooo glad you are back we were all so worried about you. I have matching Big Girl Panties on seee mine are pink leapord.So happy you had such a wonderful day with your friends it feels so good to laugh and not have any canser talk doesnt it.Also glad your SE are few I sure hope that stays
Silia yes it is so wonderful to have this board for support I think we are the luckiest women around funny hey
with out what we are going through we wouldnt have each other so I am feeling blessed to have you all.Kay from Philly yes I believe you are right and he is scared and knows that he is expected to be my rock, it must be a hard position to be in I have to remind myself of that . Hope you are having a great evening.
Vicki thanks for your words of encouragment. ITs great to hear from someone further down the road than us.
Mig Hi hope you too are having a good weekend
Ok I am off to spend time with DH and Kids
Love to you all
thanks you all again so much
Kymn
0 -
Good morning my dear girlfriends...it is Sunday morning - you know the day where the "hangovers" can be the worst. I am happy to report that I have had really no chemo hangover this time around - even on Sunday morning! I am so glad. I did have a "bad hair" day yesterday. As you know I am doing the cold caps to save my hair and yesterday I had a lot of shedding. I was so bummed....stood in front of the mirror in tears...scared it won't work. I did not lose clumps or anything but it just seemed like there was so much shedding - definately WAY more than normal. I guess it must still be working somewhat as I started chemo on 3/2 and have not had any shedding until the past few days. I am just trying to talk myself into being positive over this....my hair (not styled normal as there are styling/washing restrictions with cold caps) does not look like my pre chemo hair, but I still have a full head of hair even if it thins. I know I should not be complaining as all of you have actually lost hair....I am just freaking out because it is a big effort to try to keep the hair and it is hard to do the process and I just hope it works.
BlueCowgirl: Welcome to the lounge! I added you to the roll call at the top. Sliding a cold beer down the bar to ya! This is the BEST group of ladies you could hang with....really! Glad you found us.
Min: So glad you were feeling good for the weekend! No hangover any more! I hope you did something fun!
Lorenar: I think you mentioned you have #4 tomorrow...good luck! I hope you feel OK.
Dizzy: so glad you are feeling better. It's hard because we just want to bounce back like other things we have bounced back from in our lives and with this there is zero control! It stinks! I can tell you that I just did round #2 this past week and between taking aleve and claritin I have felt 10x better than I did during my first round. Talk to your doctor about the side effects you experinced and see what they will let you take for the next round. My doc didn't let me take much the first time around but did this past time...it made a world of difference to me! As far as the hair....bad hair day up top yesterday but the hair on the brows, lashes, legs, underarms has stopped growing. I decided to start the Latisse yesterday for lashes and brows....my lashes look thinner and brows are not bad but I can see thinning so I figured if I start now maybe it would stimulate growth before anything really starts to fall out.
Penny: when do you get the port fixed? I hope it goes smooth....so unfair! Boo! Glad you were feeling better on Friday. It does feel good to be half way done.....can't wait to say I am all done! LOL at the alien movie or hungarian peasant comments. I like the babushka idea...tie it underneath the chin. That's another option....no one has mentioned that yet!
Carberry: hate the multiple pokes...not fair. I hope they figure out what they are doing! Oh and was the salesman cute? I sell surgical stuff for a living and I can tell you there are a lot of cute medical sales reps! (don't tell my hubby I said that.....).
Kay: Yes...they are all just men. I told you gals...it's all about the "balls" with them. No common sense up top...only down there where it does no good anyway. My girlfriends and I have this discussion all the time. The best is when I am venting to a friend about the hubby and she just says "it's all about the balls..." We just laugh...somehow it makes us feel better to joke about it this way.
Silia: I totally got the constipation last time around. This time my doc lets me take Senakot in the morning and then stool softeners in the evening. So far this has worked great....no issues. Talk to your doc so you can prevent it for the next round. It was so much better this time for me - thank God!
Divine: Your comments to Kymn are so true. Very well said..we should all keep this in mind!
Lily: I am LOL at the big girl panties and picturing them pulled up over your foobs! You made my morning. I am so glad you are back. You have all of us here with ya girl...we are behind you. I am glad you got some ideas on the insurance thing...fight them! Glad too that you are not hungover...I too have been taking some Prilosec. It helped me day 2 when I had some heartburn. I think we should all get belly button piercings....why not? Isn't that the kind of crazy things the gals do after hanging in the lounge for a while??
Vlady: Thanks for popping in with encouragement. YOu can come and hang with us anytime. Glad you are done!
Kymn: It's all about the balls....LOL! I am so glad you talked to DH. I hope that he can see a little of what you feel and make some adjustments. I know that no matter how much we tell them what we need they continue to find ways to let us down a little. They are not perfect, but I hope at least continue to try. If there is effort we have to acknowledge that sometimes. I hope things go better this week.
So, am I the only one with a husband OK with the bigger foobs under construction and the brazilian? He's all happy about it. I am not complaining but sometimes I am just not in the mood....he's into the foobs big time. I guess because I am now 410 cc's and before I was barely an A+ or small B. Lord...when I get the real one's he will never leave me alone! It's like a kid at Christmas or something.....never expected this.....I was more worried he would be grossed out. I just don't feel so sexy these days.......Gee, I wonder why? LOL!
0 -
Maria-This is the first I saw about the Latisse-I really wouldn't mind keeping my lashes and brows. Did your onc give you a prescription for that? I would be interested in the details on that. I read your blog yesterday so I knew you were stressing about the hair-all the work is going to be worth it. Sure you are losing some but in your heart you knew a little was going to fall out didn't you? You ARE going to keep your hair. You are past the Day 21 thing and aredoinggreat with your second treatment-the stars are all in alignment for you.
Penny-I am sure they will get that port fixed-very unfair to have to go thru it twice. I picked my treatment center because of the BS associated with it. She is listed top 50 in the US and I have a very wierd tumour so i wanted someone who had been around. Funny thing is a VERY young resident installed my port-she must have done OK they used it 3 times last week. Still shocked over the size of the incision.
Hope everyone has a great Sunday-the sun is shining in Ohio but it is very cold so I will enjoy it from the inside
0
