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March 2011 chemo-lounge

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Comments

  • supersally
    supersally Member Posts: 158

    BlueCowgirl - I laughed out loud!  Thank you for my first laugh of the day.

    Penny - Your mom is a trip, good advice although perhaps not given quite the way she could have.  I laughed about your bloodwork and liver function comments.  I wondered that too.  I'm now drinking water in the quantities I used to drink white wine, well slight exaggeration maybe.

    Lilylady - it sounds like the NUT made you laugh a little, so that was valuable.  I must have issues with men as I am right breast. 

    TimerDog - you do look great and I'm so happy that you feel attractive.  Who knows, maybe you'll go short short again. 

    Kymn - sorry no shedding yet, probably just around the corner for you and won't be as traumatic or dramatic for you since you took things into your own hands and shaved it already.  Plus think of the time you saved doing your hair this week!

    My hair is going to start shedding SOON.  It's coming out 2-3 strands at a time now, both on my head and "down there".  My scalp doesn't hurt anymore, it's just itchy.  I'm kind of afraid to wash it.  I thought I was fine with losing it, but I find I'm getting pretty weird about it.  As of now, no one who looks at me knows I am in treatment, so I find it's kind of my little secret, which is somehow comforting.  I had a great night's sleep last night, thank goodness.  I feel like a new woman thanks to Ambien CR.  The miracle of modern medicine continues.

    My song of the day is from Bob Marley, "Three Little Birds"

    Don't worry, about a thing, cuz every little thing gonna be alright, singing don't worry abuot a thing, cuz every little thing gonna be alright

    Rise up this morning, smiled with the rising sun, three little birds just by my door step, singing sweet songs of melodies pure and true, saying this is my message to you-ooh-ooh

  • mdg
    mdg Member Posts: 1,468

    Happy Saturday girls!  I am hanging out and tonight am hosting my family''s poker night (yes, we Italians love to gamble and eat tons of food).  I am being good though..I am doing a panini bar for dinner so everyone can make there own..I cooked up tons of veggies for veggy panini's to offer something healthy.  This will be the first time I have seen most of my extended family since starting chemo so I am glad they can see I am OK - especially my little nephew (age 7) who told his parents "I don't want to talk about this" when they told him I had cancer.  I just want to hug him and smile and prove to him I am OK.  He was so scared for me......breaks my heart!  I hope all you wonderful gals have a great weekend and feel great too!  I just pulled out a quarter and am heading to the juke box...hmmmmm too many good choices.  I think I want to hear something fun like Livin' La Vida Loca by Ricky Martin.  You have to dance to something like that.....right?   

    Adangel: Glad the bloodwork came back good!  It makes you feel good that parts of you are still healthy and strong.  I hope you did get to enjoy your weekend. 

    BlueCowgirl:  Yes the hair is stressful but I am using the cold caps so I should keep mine so when it sheds it really freaks me out.  I am glad to report that I still have a full head of hair after starting chemo on 3/2.  I am half way done....I hope it stays this way.  I love the idea of the crazy wigs!  How fun!  I bought some bandanas for the days where I can't wash and it just looks nasty. I haven't figured out how to wear them yet. I did get a really cute hat too on bad hair days.  Because of cold caps I can't wash and style like normal.  No hairdryer...except on cool as long as you are not shedding.  It's not my normal style, but it's hair.  I am also LOL at the adoption of twins.  Heck I will adopt as many as you want if it cures my BC!  The funny thing is we have one of our own but I did want to adopt.  Now with BC I am sure it won't be an option for us anyway...but since my BC was in the R breast I guess I should somehow become friends with the ex husband of years ago and I will be cured?  You know the man that screwed me over and ruined my life for a while....who knew I could just do that and skip chemo????  NUTS!  Oh and the mastectomy blog thing.....boy, I am so glad I got a BLMX now!  Are you sure you haven't been sneaking more drinks from the bar????  Sounds fishy to me....ha!

    PaSmithx2:  I hope next time around you have less of a hangover.  I was better the second time around..hardly any hangover.  I took Claritin and Aleve and that worked for me....no bad days really.  I hope you get some rest and feel better. 

    Kymn:  I hope you and DH had a great date night! How fun!  I hope it makes up for last weekend.  Enjoy the wine!!!  I have given it up for lent (and during chemo). 

    Min:  I love the song!  SOOOO glad the tests were normal.  WHat a relief.  You had us all worried.  I am toasting right now "to Min's good news...cheers!"  Everyone hold your glass high on that one!  I hope the buzz is bearable...... hugs!

    Supersally:  Love Here Comes The Sun!  Great tune...classic and always puts you in a good mood.  As far as the sleeping, Ambien did not help me at all.  I switched to xanax.  It does not make you tired, but it helps relax you so you can shut down the brain.  I sleep well all night on it.  Ask your doc for something else if ambien is not working.  YOu need to rest girl!  We too are watching BB this weekend! 

    Dizzy:  I hope your visit to the chair was kind and sending "no hangover" vibes your way!

    Timerdog:  I am simply amazed by you!  Your attitude towards the hair is simply awesome!! I just don't think I could do it....I feel guilty complaining about hair issues on here (since I am doing cold caps to keep mine) when all of you ladies have buzzed it off or lost it.  You are all simply amazing! 

    LilyLady:  LMAO!  Too funny.  All I want to know is did you "watch the video" and are you enlightened now?  I want to know what was on the video......just curious.  I also want you to know that I apparently have "man" issues too as it was my R breast.  I do have an ex husband from years ago that caused me misery...maybe it's his fault???  That seems like a good person to blame this on...an ex!  I know it's not from my current hubby...he's a keeper (most of the time). 

    Charlottesmom: I am so glad to hear you had no side effects.....that's amazing!  Good for you!

    Penny:  LOL at your mom's comment.  What is with the mom's saying this stuff...don't know if you remember or not but last time my mom was over she told stories of how all of her cousins were dying of cancer right in front of me...she had no idea why I was annoyed and left the room.  She is coming over tonight....I hope I have nothing to report tomorrow!  LOL!  Sometimes they just don't get it....Oh and I actually know what vegemite is!  I googled it a few months ago when my sister's boyfriend got a job transfer to Australia.  We wanted to know what it was.  It does sound gross to us Americans....

    ChrissyW:  I too got a little heartburn the day of chemo and day after.  I popped a prilosec and no problems.  My doc said it was fine.  I keep it on hand for each round.  Ask your doc next time.  It's available over the counter. 

    Jules59:  what did the doc say about the bumps?  Is it still bothering you?  Give us an update.....hope it is gone!

  • supersally
    supersally Member Posts: 158

    Jules - forgot to put this, I saw a cradle cap treatment on saffron rouge.  I don't know if that might help or not.  I thought about getting it to help soothe the itchy sore scalp as hair is falling out.

    Maria - I was already taking Xanax - 2 of my .5 mg.  I sleep ok with it, not great.  Ambien worked though.  I felt refreshed and not "hungover", which is good.  I think we crossed over each other when we posted this morning.  Sounds like a great party!  It will be good for you to see your family.  My MIL did something similar - talking about some lady she knew who had a BLMX but they "cut her down to the bone, she didn't have any breasts".  I thought how is this convo helping me???  My therapist reminded me of when I took dinner over to the in-laws when her sister died and she said the casserole I sent was "interesting", not thank you, but that it was interesting.  Even if you don't like food that someone else brings you, you just say thanks, right?  Even if you throw it out and don't eat it?  That's what I'd do!  So she brought us dinner week before last and I didn't like it, so my therapist asked if I told my MIL it was interesting.  Ha, ha, ha!  We are having brunch with them tomorrow, so hopefully I have nothing to report, too! Tongue out

  • mdg
    mdg Member Posts: 1,468

    Supersally:  "interesting" is code word for "strange", "wierd", "bad" or "I don't like it" really.   My friend and I joke about using the word interesting....needless to say I make sure to never use it when I am talking to her about something!  Sorry the ambien is not working....let me think about what else I have in my drug collection...hmmm, have you tried Ativan?  (sad, but yes I have a whole drug arsonal and I am the gal that never took motrin for a headache before BC).  Ativan can also cause drowsiness.  For me it helped me fall asleep but I felt like I was in a state of half awake/half asleep on it at night. I never work up feeling rested although I know others that swear by it.  Just an idea if you have not tried it. 

  • charlottesmama
    charlottesmama Member Posts: 36

    Hey ladies. I woke up this morning with my fingers and toes burning like crazy. I had worn new boots yesterday so figured that was why my toes hurt, butI I hadn't done an unusual amount of walking. So what about the fingers? It's really weird since my last AC was 3/24 and have never felt this before. I do feel the mild lower bcak ache I get from the Neulasta, so I know that's working. Such a mystery. Any ideas?

  • mdg
    mdg Member Posts: 1,468

    I know the numbness/burning can be side effects of some chemos...neuropathy I guess.  I don't know if it happens with your chemo but know it happens on mine (taxotere) so I ice fingers and toes during chemo to prevent chemo from getting into fingers/toes.  So far (after 2 rounds) I have had no issues.  Anyone else on AC that can answer Charlotte's question?  Also on the first round of chemo and neulasta I got body aches and bone pain (awful!!!) and the second round I took other's advice and took claritin and aleve and I had NO pain at all!  I don't know how this works really but I have read it over and over again on the chat boards so I tried it (I was not a believer before because I know how claritin works...nothing to do with bone pain stuff so I did not try it the first time thinking it was nuts) and I am a believer!  Just an idea.....

  • Jules59
    Jules59 Member Posts: 148

    Supersally, thanks, I'll look into the cradle cap remedy. I plan to call the NP at my doctor's office Monday if I'm not any better.

    BlueCowgirl, thanks for making me laughLaughing

  • jenn_h
    jenn_h Member Posts: 21

    Oh some good laughs today! I am thinking OMG! My BC is bilateral so I guess my good idea about building a cute little cottage in my backyard with nice carpet and a clean bathroom (as I have all boys here) is a great idea now since it's ALL THEIR FAULTS!!

    I got a scrip for prilosec bc my dr. said that the decadron (dexamethadone...sp?) is hard on tummy so he wants me to take when I am taking 10 of them night before my Taxol! He said to use as needed for the heartburn too....

    Sore throat and trouble swallowing have been a little worse w each treatment. I think the better I hydrate myself the easier I have been able to swallow...posicles have been nice and i bought some mouth refresher halls drops too...

    Those who haven't shaved it off yet and those complaining of the itch and soreness...it gets much better. I have been a baldy for about a month now I guess and I can rub the top of my head now!

    I have no sleeping meds, but when I am having trouble i take tylenol pm...didn't want any more prescriptions!

  • Huskerkkc
    Huskerkkc Member Posts: 471

    Hi ladies, gonna try to post this for the third time...kept losing it for some reason! I survived chemo #2 yesterday, other than the length of the day, 8:00 am-5:00 pm. Had my sister along for this trip; she is 13 months younger and we had a good day together. Not too often it is just the two of us-usually both our families and parents are there when we are together.

    Started out with blood draw, not from port, but they needed to get results right away to be sure I was okay with WBC, etc. I was-yay! One down from last week but still within normal limits. Then went to get port cleared from the blockage that developed last week at blood draw attempt. Stuff can go in (pre-meds, chemo, saline, etc) but blood didn't come out. I had a fibrin sheath, which is small tissue (found in blood clots) that covered the port, like a flap that lets stuff in but but not out. They gave a clot-buster drug and then had to do some cute acrobatics to break it up: arms over head, lean to the side, flop arms over lap hanging loosely to floor...that finally did it (about 5 minutes from start to finish) Yay!

    Then saw nurse and clinical trial nurse for med and symptoms updates. Nurse thinks I am losing too much weight-6 lbs from 2 weeks ago, 17 total since canser diagnosis, but they didnt' know that) but I have it to lose and between 2 bouts of diahrrhea, bone pain, loss/change of appetite, it is not surprising to me. I am not trying to lose it, but it is one benefit of this whole ordeal. Doctor was not concerned, but they did have to refigure chemo dosage, since that is based on body mass. Will give me steroids for next 3 days for bone pain (didn't get that last time), plus glutamine powder for neuropathy ($67 for a canister at GNC!) so am really hoping that will help.

    Doctor was a little better this time. He liked my new haircut (gonna see a wig next time!), said I looked more relaxed and less anxious, made sure my sister was getting mammograms because she is now more at risk (she gets them every year and scheduled for regular mammo on Monday), asked about my mom who had knee replacement surgery last Thursday, gave both my sister and me a hug...so feeling a little better about him. For now.

    Finally got the pre-meds started around 11:30 (Amend, Decadron, Pepcid, and Benedryl) Benedryl put me out for about 20 minutes, then chemo started finally at 12:30. first round is Cytoxan (1 hr), second is Taxol (3 hours). Did a little shopping after, but was really too tired to do much.

    Feeling good today, but won't get Neulasta shot until Sunday morning which potentially moves SE's back a day, but if the extra meds help, I'll be thrilled. Also took Claritin and Aleve today (and next two days). I took claritin last time with Motrin/Tylenol alternating, but didn't help. Or maybe it did and would have been worse without Claritin? But Tylenol has never done much for me, so maybe the Aleve will. Also have hydrocodone at the ready. Can't believe how many drugs I am taking. Have never been much for meds, beyond an antibiotic now and then. Now have the giant reminder pill box and write every dosage down because with chemo brain I can't remember like I used to-sigh.

    Scalp was sore this morning in the shower when shampooing, not just tingling. Then I looked down and there was a handful of hair in the drain, looked like a baby mouse was drowning. So today is the day. Yesterday I had already called my stylist friend from church, so she is coming in about 30 minutes. Cried and yelled in the shower, (husband and son both gone or I'm afraid they would have come running in!) and then got out and am ready to do this. Can you play Aretha Franklin's "I Got a New Attitude," Maria? Can't remember if that was on the playlist, but it will be a good song for me to hear and probably others too!

    Supersally, two years ago I painted my kitchen yellow (which I love with black and red accents) and my sunroom just off the kitchen a bright tangerine/orange color! Love it! No curtains for the west/southern exposure and plants do great, and look great against the bright color. People walking by have commented how they love the color they see from the street. My SIL came over shortly after I painted it, and said, "Well, this is an interesting color!" And I said, "I know, I just love it!" and that was the end of her comments on my color choice. On the hair note, you are probably just 1-2 days away from full shedding. Join me, and get it done this weekend. I am still stressed/distresed about it, but it's coming off at my decision, not when it's a last minute thing. I didn't want to see clumps on the pillow and all over the house. My daughter says I will now be a blonde GI Jane. I've seen others make that comment too. She was tough and you and I will be too.

    It's 72 degrees here today, after 40's and rainy/cloudy all week, so am feeling like the sun is shining just for me.Think I'm gonna add Three Little Birds and Blue Skies (Willy Nelson) to my itunes list today. My oldest daughter (25) has already made me 4 Fun, Positive, Motivational CD's to play during chemo and down days. May start one of my own from all your suggestions for the jukebox. Plus it will drown out the baseball game that is on TV that I have no desire to watch, even if it is the Yankees!

    Seize the day, girls. I'll check in later and see how everyone is doing.

    Kristy (Huskerkkc)

  • lilylady
    lilylady Member Posts: 478

    Husker-maybe your dead mouse is really the one my pets dropped on my bed that took off running last week. I haven't found the little bugger yet...

    MDG-there you go you exercise nut-husker actually might be starting a new craze--

       Chemo-robics!! Guaranteed to bust a clot and reduce your waistline--all while killing your cancer cells. Maybe we can start a franchise-or  would that go under spa treatment? Hard to keep track we have so many depts in the lounge now.

       Maybe someone more computer savvy could figure out how to keep a list of our music somewhere? I have to keep popping back thru all the posts because I wanted to put them all together under a category in my I-pod. A good part of them are totally new to me.

      Since I have now diagnosed all you people via left breast/right breast I cannot leave you hanging without treatment. I will be forced to watch the NUT lady video to find out how to cure all of you. It will fill in that 3am and I can't sleep time period that is usually devoted to infomercials for hair products that I have no use for any longer. Out of my deep love for all of you I am willing to make the sacrifice.

  • Kay_G
    Kay_G Member Posts: 1,914

    LilyLady, you have made me laugh again.  Can't wait to hear what I have to do.  I am also on the right breast, so I guess I have the DH to blame for this.  I'll get him in his sleep tonight.  LMAO

    My bil owns a nutrition store and called me today to ask if there's anything I need from it.  He is definitely into the supplements and things, but told me he really didn't know what I should take.  Is anyone taking any supplements or anything.  I don't think the onc. wants me to take anything while I'm on chemo.  I think I've heard a few people mention glutamine.

    Take care.  See you all later.  How about playing I Will Survive by Gloria Gaynor. 

  • Huskerkkc
    Huskerkkc Member Posts: 471

    Kay, I just started taking glutamine today at oncologist's advice, to help with neuropathy from Taxol. That's the tingling/numbess SE. He has not approved anything else, except for a multi-vitamin. Asked about Vitamin D, calcium, etc. He said no. But I know other doctors  have different views and other gals are taking things based on their own research. Just letting you know what I am doing, based on own doctor's recommendation/

    Kristy (aka Huskerkkc)

  • jenn_h
    jenn_h Member Posts: 21

    I don't put much stock in all that natural holistic stuff...I'm more about the chocolate to kill cancer cells diet...

  • Mauimama
    Mauimama Member Posts: 16

    Huskerkkc:

    I've posted only a few times, but sadly, haven't been as "social" on here as you and many others!  I gotta get with it!!   I was reading your post about having recently gone bald and I'm also at that mangy dog look tonight.....oddly enough, I'm really ready for it to all come out because the little hairs that fall down my neck drive me crazy, cause they itch and I'm always trying to find them!  Anyway, I was wondering do you -- or anyone else on here that's ahead of me on the bald look -- know of any cream or anything recommended/safe to put on the scalp?  My scalp is tender in several places and itchy (that'll probably stop once all the hair comes out???), but I don't know if I've ever read anywhere in any of the threads about any kind of cream or anything healthy/nutritional/safe to put on our scalps once we're bald?   If you have any recommendations or used anything that worked good for you, I'd really love to hear what it is.  I can also ask my onc but I already know I'll get a MUCH FASTER response here!   Anyway -- any tips, ideas, suggestions would be appreciated.  

    Thanks a bunch and I hope all the women in the lounge enjoyed a relaxing weekend!

    Aloha!!

  • corkyandme
    corkyandme Member Posts: 1

    Pick up one of the lint brushes that are sold for cleaning clothes. I found that by running this all over my head, not only did it pick up the hairs that were ready to fall, but actually helped with the itch. This does go away after all the hair is out. Hang in there!

  • BlueCowgirl
    BlueCowgirl Member Posts: 132

    Who else can't sleep? I am adding Corinne Bailey-Ray "Put Your Records On" to the playlist, as well as Indigo Girls' "Closer to Fine". 

    "Maybe sometimes, we've got it wrong but it's all right, the more things seem to change, the more they stay the same, don't you hesitate. Girl, put your records on, tell me your favorite song, you go ahead, let your hair down. Sapphire and faded jeans, I hope you get your dreams, just go ahead let your hair down. You're going to find yourself somewhere, somehow."

    So does anyone else get the crazy "Snap, Crackle, Pop" in their bones from the Neulasta? Not just pain/aches, but loud extreme popping, totally bizarre. I must say it is far less painful this time around now that my doc has said "Please take more narcotics", but still annoying/disturbing. I feel like the Tin Man from the Wiz of Oz... 

  • Jules59
    Jules59 Member Posts: 148

    Well, I found out from one of the ladies on the "help me get through treatment" board that the blisters on my scalp are folliculitis, a SE of the taxotere(sp?).  Swell.  My scalp hurts and itches.  I guess I'll have to call Mon. morn. and get a prescription.

  • Huskerkkc
    Huskerkkc Member Posts: 471

    sorry Jules, I'm just 12 hours-post cutting hair. I am not yet totally bald, just the very short military GI Jane look. So haven't had experience with scalp issues yet. Just feels prickly. But I agrees that is worth a call to office. Do you have to wait until Monday? Mine has a 24/hr on-call triage nurse that will call an onc anytime. It may get you relief a little quicker, especially if they recommend some OTC. Let us know what you find out, others may soon be in same situation.

     Blue, I am also awake...since 4:30. Steroids I think and the very urgent need to pee both at 4:30 and 5:15. So am drinking decaf green tea and took an ativan to see if that can earn me a few more hours. Have to go to hospital between 9:00-10:00 to get Neulasta shot. Dont wanna miss that fun poke on a Sunday morning! Put your Records On is a fine choice for this time of morning. I'm hearing the birds chirp already. Better not keep me awake now! '

    How about Paul McCartney's "Blackbird" for these late nights?

    Blackbird singing in the dead of night
    Take these broken wings and learn to fly
    All your life
    You were only waiting for this moment to arise

    Black bird singing in the dead of night
    Take these sunken eyes and learn to see
    all your life
    you were only waiting for this moment to be free

    Blackbird fly, Blackbird fly
    Into the light of the dark black night.

    Blackbird fly, Blackbird fly
    Into the light of the dark black night.

    Blackbird singing in the dead of night
    Take these broken wings and learn to fly
    All your life
    You were only waiting for this moment to arise,
    You were only waiting for this moment to arise,
    You were only waiting for this moment to arise

  • cellomomof5
    cellomomof5 Member Posts: 49

    I've been using Eucerin calming cream - it felt nice during the worst of the itchy/falling out stage.  It's what I use on my daughter's eczema, so I figure if it is gentle enough for a small child, it won't cause problems on my scalp!

  • BlueCowgirl
    BlueCowgirl Member Posts: 132

    Jules, yes, call today! No need to suffer til Monday! I found that out the hard way too...got a good tongue lashing from nurses...call now and hope you feel better soon!

  • djls
    djls Member Posts: 21

    Well, ladies, it is official.  My hair is coming out in bunches now.  My husband has been tugging on my hair every morning, usually with my response being, "Ow!"  This time he forgot and so I decided to tug on my hair.....and it came out.  Oops!

    Frankly, I'm ready to get rid of my hair.  I want to get this stage over with and move forward!  

    The first head scarf that I ordered came in the mail yesterday...yea!  It's really pretty too and will go with all my clothes.  

    In the meantime, I'm going to get one more church day out of my hair and then probably shave it off.  DH thinks I should wait until tomrrow.  I don't feel like shedding all over the house.  I have birds and my cockatiel is moulting and leaving feathers all over the place.  No sense in two of us leaving stuff all over!

  • Jules59
    Jules59 Member Posts: 148

    Hmmm...I called the doctor's number yesterday, and got a recording that said if it wasn't a medical emergency to hang up and call back Monday.  I guess I got a little intimidated.  Maybe this is a medical emergency.  I guess they would think so if their scalp was covered with little blisters.

  • christine47
    christine47 Member Posts: 846

    Jules59,

    I read about your possible foliculitis yesterday.  I am also doing TAC, no experience with this myself.  I will tell you I work in a medical office, I think you should call today!  Why wait another 24 hours?  I am sure the onc has someone on call, call the emergency number, the doctor on call will call you back, explain your situation, they maybe able to call in cream/antibiotic and get you started on something today, or at least give you advice.  Some offices even use triage nurses to return and screen calls on the weekend.  Don't feel bad, this is what they get paid for.

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Jules, you don't have to be on fire for it to be an emergency!  You definitely have cause to speak to someone who will relay your issues to the doctor, who then should be able to call in a perscription for you.  Whenever I get a bit intimidated, I tell myself all the money they're making off of me, and they're getting paid for the interruption! 

    Hope you've managed to get thru to the doctor by now. 

  • divinemrsm
    divinemrsm Member Posts: 6,614

    It's also typical for a woman to downplay her medical issue.  But if this were your spouse, child or mother dealing with the blisters, you'd be hollerin' on the phone saying "help!  make this right!"  so please do the same for yourself.

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Plus I think the doctor would rather treat it before it sooner rather than later when it might require even more attention.

  • jenn_h
    jenn_h Member Posts: 21

    My cancer center doesn't have any weekend hours, if something happens I only have the ER as an option, however with my insurance (Highmark, Blue Cross) there is a Blues on call number...when I have medical questions they can often give me advice...

    Mauimama...when my head was really itchy after first shaving I actually put a little facial cream on the dry spots, I figured if it was sensitive enough for my face it would be ok and no need to worry about greasy hair...it gave me some relief, but really it was just a matter of time, took about 2 weeks before I could really even touch my head it was so sensitive. I use baby shampoo on it now and I had also read about using a gentle exfoliating wash for it as a possibility...

  • BlueCowgirl
    BlueCowgirl Member Posts: 132

    So today is the day my hair decided to start coming all out too. I already had it shaved to about 1/16'" and it's not too itchy, just all coming out. I still find it so surreal that we are taking a drug that makes our hair fall out 15-20 days later. Bizarre, eh? I am thinking in 20 years or so, this chemo thing will seem so primitive...

  • Kymn
    Kymn Member Posts: 887

    Oh my some funny stuff to catch up on this morning with this thread, I always knew it was my dh that gave me this damn cancer now I can prove it to him...lmao...love that well thank goodness I dont have any problems with my darling children what a relief they can stayLaughing.

    not up to much today except laundry,laundry and then oh more laundry fun times hey lol. treatment number 2 this thursday so want to be all caught up before my 4 couch days .

    Hope you all have a wonderful sunday, I have to go shovel the walk now 8 inches last night sigh.

    Hugs kymn

  • mdg
    mdg Member Posts: 1,468

    Hey gals!  It's Sunday afternoon.  I am sitting here watching "Eat, Pray, Love" with Julia Roberts.  She just taught her Italian language tutor an American word...she held up a bottle of wine and said "therapist". LOL!  I love that part....so while we are in the lounge we all get free theapy too hu?  I have seen this movie twice now...this is the third time.  She is eating a huge plate of pasta and now I am starving.......Lord I will have to turn this movie off or I will be eating all afternoon!  She just got done have a napoleon before this scene too!  So I hope all of you gals have had a good weekend and have felt well!   

    Jules:  I hope you called and got something.  It sounds so uncomfortable....I hope you are getting relief. 

    JennH:  A few days after chemo I have a hard time swallowing too.  It feels like the food (or my vitamins especially) get stuck in my esophagus.  I have found if I drink more water it helps.  My sis is a chemo infusion nurse and I asked her about this and she said the chemo drys things out and encouraged even more water.  It seems to help though....  I think chocolate can be a cure too!

    Lilylady:  If I put any form of exercise in the lounge no one would ever come back!  Exercise and lounges don't go together...although I will encourage you all to get up and move to the good songs on our juke box to burn calories!  The spa however I would welcome in the lounge but now that it looks like none of us should have massages...it seems unfair to have a spa there.  I also need you to post again with the treatment I need from the "nut lady video".  I am anxiously waiting your post with my treatment plan and as you know us BC patients hate waiting!  I need my cure right now please!  You are totally a "true friend" since you are willing to watch the nut video for all of us at 3am.  What a good friend you are...a true keeper!

    Kay:  I have been seeing a holistic MD for over a year now (before BC) and was on some things due to my body being low on some stuff.  I take multi vitamins, vitamin D, magnesium, B complex and now iron (since it was low on my last blood draw from the chemo).  I use to also take some other things but my med onc made me stop for now.  I am also really focusing on diet from the information in the Anti Cancer book......this book is very helpful. 

    Mauimama:  Glad you stopped back in!  I hope you are feeling better!

    Bluecowgirl:  Yes...I have snap, krackle and pop too!  I thought I was imagining it the first round of chemo.  It lasted a few days and was really loud!  Lord when I climbed the stairs at night I thought I was going to wake up my son!  It went away and came back on the second round after neulasta.  It seems gone again now.....thought it was just me.  Now I a know I am not imagining things.....

    Djls:  how did the buzz go?  Are you OK??? HUgs.

    Kymn:  I too have a man related BC.  I like the idea of blaming on my good for nothing ex husband.  My current hubby is too sweet.....Now I want to find a photo of the ex and throw darts at it!  Good luck this week on your next round.