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After Radiation

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Comments

  • stage1
    stage1 Member Posts: 285

    Pamars, just another thing they didn't tell usYellthat doesn't sound healthy, the sweat glands not working.

    ChevyLove that pic of the nailsKiss  I found some nail polish online that is natural and no harmful ingredients, might order some and let you know how it works, but sounded like a lot of extra prep, like buffing before using and the remover was also a special formula.  Check your polish on www.ewg.org

    jo1955I have always approached things like it's a science project.  I don't know, and no one knows why we get this horrible disease, but I can give up what I think might be irritants to a weaker immune system.  I think as we get older, we can't tolerate what we once could.  So, I have decided to not use any parabens in my products, not eat soy, lose the weight I need to, and if all that really won't make a difference in the amount of years I live, at least I might feel better while I am here.  That way, cancer has not won, it has made me a better person. WinningSurprised

    Sandee  I'll let you know if I find a decent nail enamel and remover that might be a better choice. I hate peeling polish off, feels like the whole nail is coming offYell

  • jo1955
    jo1955 Member Posts: 7,545
    panmars - Welcome - what a great group of ladies you have found - so much information and support to be found here.  I can't answer your question as I had not noticed my sweat glands not working on my radiated side - like stage1 said, just one more thing the RO did not tell us about.  I'm sure someone will chime in and give you an answer.
  • sagina
    sagina Member Posts: 849

    Medi-port removal in the surgeon's office....why is this making me nervous? After everything we go through sometimes the little things seem like a lot?

  • Sherryc
    Sherryc Member Posts: 4,503

    panmars I notice that I don't sweat under my arm any longer as well as no hair growth but only on 1/2 of my underarm where the radiation was.  I called the RO nurse to ask her if there is a certain time that I will know if any of this comes back or is it shut down for good.  She said there is not time frame.  She said it may be permant or it could come back to working 10 years from now.  So they don't really know. And the more I read about long term SE is they don't know because many of us are younger now and getting treatment and are living longer.  Use to be you got cancer when you were older did treatment and then you ended up dying of something other than cancer.  Now they know younger women have a high chance of reocurrance and they are just finding out of the the long term SE's.

    I am changing what I use as well.  I am using up all my old stuff but trying to replace my creams and make-up with healthier versions.  I have not checked into it but the company Butter London is suppose to be healthy nail product line.  None of the bad chemicals.

  • juliet62
    juliet62 Member Posts: 3,246

    well i'm trying to loose weight and live healthier but i'm not going mad trying to avoid everything that might cause ca, as i work in a hospital that would be impossible!

  • FireKracker
    FireKracker Member Posts: 5,858

    hey sistas.another alert.i was doin some research on the causes of cancer.ha.aside from what we all know here is one i never heard...CHEVY ALERT-----prolonged use of black or dark brown perm.or semi perm. hair dyes...now when did they figure that one out.it was on the ACS thread along with the other usual no nos.sooooo you see my dear sista this thread is not only about after rads....yeah you finished rads a while ago but did you know about the nail polish?hair dyes?sweat glands? i think you still belong here.

    speaking of sweat glands.I do sweat BUT the smell is gone.sounds gross but i only use deoderant (Toms of Maine) under the good arm....and also most of the hair is gone under the rads arm....I use Emu oil under the rads arm along with the entire breast.

    I too made lots of changes in my products....lots...BUT Im not takin any meds.just did the rads.sooo in my mind i had to do something besides change my diet.....

    another hot hot day.....stay cool everyone.....and drink drink drink...hugggggs K 

  • juliet62
    juliet62 Member Posts: 3,246

    well granny, used nail polish and makeup about 5 times in the last 30 years, don't dye my hair, so i  don't think that contributed to mine!

  • FireKracker
    FireKracker Member Posts: 5,858
    i have lots of the risk factors...lookin back knowing what i know now is scary...i always blamed it on the prempro that i took for over a decade....now that im doin research the pic.changed...dense breasts,large breasts,did not breastfeed,hair dye,all that crap with parabins,lived on sugar...gosh the list goes on and on....guess im lucky i made it this far...oh i forot im 70 and maybe 2-3 mammos in this lifetime.ha....one more biggie smoked for over 50 yrs.not a lot and never when i was pregnant but still smoked...still do but only 2 a day....i better not complain ever again.....my sista CHEVY is gonna have a party with this confession!!!!!!
  • juliet62
    juliet62 Member Posts: 3,246

    well if you don't tell her i won't!  have a wonderful day granny

  • Chevyboy
    Chevyboy Member Posts: 10,258

    Oh man, I just HATE when I write so many intelligent things, and then lose it before I post it! Wink

    And oh JO!  Honey, us girls don't sweat, we "glow!"  Ha, ha!.... I think if we lose the ability to "sweat" that is a good thing, right? 

    Now Princess Kantalope!  Not only did I color my hair, (still do)....I also used artificial sweeteners, smoked for only 8 years..... Took the pill for God only knows how long, and then Estrogen until I turned 100.... And did my nails ever since I was born.... And Oh, I even used to perm my hair!   But since I waited until I was 72 to get cancer, I consider myself so fortunate!!!

    I mean honestly....This didn't happen when I was raising my kids, or Grand-kids...so life is good!

    Little Juliet!  honey, don't pay any attention to Kantalope....See, since I am older than her, I don't....Ha, ha!   I can't make her behave anyway....  I just try to calm her down....because I love her......

    Kantalope!  You STILL smoke?  Why?  If you smoke around that little red-head, I am going to come out there, & give you time out.   You will stay in your room, & only get fed milk toast!  If you really wanted to quit, you could.  I did.  Only because it was killing me.... And I knew it. 

    I was reading another thread....It was about any injury to your breast....even a past injury, could set the stage for cancer to develop in that breast, in the future!   Something to do with damage to the cells or ducts, and as they change, cannot repair themselves, and cancer could develop.  So even THIS is something else to look back on and think about....

    Okay....gotta run & clean the bathroom!  Bought some new plush little rugs, so that means I have to CLEAN!!!  Have a special day gals! xoxoxoxo

  • jo1955
    jo1955 Member Posts: 7,545

    Chevy - I know "girls" glow - guys "sweat".  I wasn't the one who brought the subject up in the first place.  Listen, I dyed my hair for many years, did my nails and still wear makeup.  I buy whatever strikes my fancy at the time and don't pay attention to what it is made of.  I too estrogen pills for years since I had fibroid tumors and uncontrollable bleeding.  Then went on Prempro for 2 years after my GYN put me through menopause.  That is all water under the bridge and life moves on.  One big thing I did do was quit smoking after 40 years.  Yes, you read that right - I am on day 6 of being smoke free and I can already feel a big difference.  I should go over to the bonfire and throw in all the years of smoking - I am really starting over.

  • Sherryc
    Sherryc Member Posts: 4,503

    Woohoo for quiting smoking.  I am proud of you girl and yes throw it in the bondfire

  • Chevyboy
    Chevyboy Member Posts: 10,258

    Jo!  Congratulations!!!!!!  How very proud you must be!  Really hard, isn't it?  But you will feel better everyday..... Just wondered, why or what made you finally quit?  

    I don't pay attention as to what is in the creams/lotions I use either....  Hey, did you notice how everyone else that smokes really smells funny?  I mean your body goes through a major change, and  soon, you will feel even better!  All I can say is CONGRATULATIONS! Great job!!!

    Maybe we can get Kantalope to quit...I mean altogether....  I know it's only 2 a day, but all of those poisons are still going in your body.... Oh man, she is so high maintenance!  Wink 

  • jo1955
    jo1955 Member Posts: 7,545

    Chevy - I don't have the foggiest idea what made me quit - the reason really doesn't matter - the fact is I did and I have to tell you it was not all that hard. Hubby is starting to really piss me off though - he is still smoking and in the house.  He won't take it outside - says it is his house too and it is stupid hot out there.  As long as he confines it to the kitchen I guess I can live with it.

  • sagina
    sagina Member Posts: 849

    my new facebook post! Enjoy!

    medi port is out - it went like this - needle prick x 10, burning lidicane, rub rub rub, cut, tug, tug, tug, PULL, tug, tug, tug, pressure, bleeding, pressure, stiches x 5, steri strips, 4x4 banage, okay all done, get up slowly you might be dizzy....you know I thinK I just had a mini c-section - c for clavicle that is! Icing it down now, and getting some rest

  • jo1955
    jo1955 Member Posts: 7,545

    Gina - Good for you getting the port out.  Hope you get better soon.  Doing a happy dance.

  • sagina
    sagina Member Posts: 849

    Thank you Jo~

  • jo1955
    jo1955 Member Posts: 7,545

    You are so welcome Gina.  Sending very gentle hugs your way.

  • Chevyboy
    Chevyboy Member Posts: 10,258
    Gina....you rock!  You made it sound like a simple procedure, but I know it wasn't!  Good girl!  I'm with Jo..... group hug here! ((((((( Gina))))))
  • juliet62
    juliet62 Member Posts: 3,246

    well done jo on quitting smoking ,

  • jo1955
    jo1955 Member Posts: 7,545

    Thanks Juliet - I can honestly say that quitting smoking was much easier than dealing with BC - go figure.

    Did some one say Gina needed a group hug?  Well, let's see if we can take care of that.

                      

  • juliet62
    juliet62 Member Posts: 3,246

    definitely, hugs gina

  • pejkug3
    pejkug3 Member Posts: 277

    Aw, Gina!  Sounds so *pleasant*.  :::groan:::

    I never had a port so that post didn't freak me out.  *smile*

  • Sherryc
    Sherryc Member Posts: 4,503

    Gina congrats on getting the port out.  I know you are happy about that and you made it sound so simple. NOT.  hope you don't have any after pain

  • sagina
    sagina Member Posts: 849

    Thank you all for the hugs! I was a little stressed over it since they knocked me out to put it in and the removal was in office with the nurse practitioner.  It was just strange feeling the tugging...but the surgeon had a procedure room all ready for this!

    He checked my scars and scar tissue and agreed with the RO that my stabbing pains are rads effects - at least we are all on the same page.  Can't wait to see my MO in August, she gives me such comfort all the time.

    Jo - congrats on the cigs!  My dad was a smoker all his life till a major car crash, he was on a vent for three months - we got to see what comes out of the lungs....I thought the container on the IV pole was blood - it was tar....so big big congrats on that!

  • torigirl
    torigirl Member Posts: 748

    Gina-congrats on getting the port out!  Do a "gentle" happy dance for now...then "get down" later girl!  :)  

    Congrats to you Jo for quitting smoking!  I always wanted to learn to smoke...could never get the "inhaling" part down....  :)  My maternal and paternal grandmas smoked for years...both lived to be in their late 90's...hmpf

    This heat is doing a number on me too...I"m sweating in places I didn't think I could...or would!  :)  I really want to use the "naughty" deodorant because it works so well...but I'm sticking with what I should use....PLEASE EXCUSE MY SMELLINESS THOUGH...YOU CAN PROLLY SMELL ME, HUH?  :)

    Anyways...hope everyone is just dandy!

    Hugs and high fives!

    Tori 

  • gmafoley
    gmafoley Member Posts: 5,978

    Jo congrats on quiting...as my dad was on his death bed (cancer), he asked for his last cigarette.. It was so horrible!!! He never did stop and died when he was 53 years old..

    Gina I'm glad your port removal went well... you deserve a rest right now..

    Gals, I'm a little down tonight.. can't stop crying... i go in for my 2 week post rads check.. I am still one big open blister but it is healing... Breast and underarm still feels like it is ripping apart and my sternum has started hurting... Next tuesday, I go see my MO to discuss AI's I think - but I have this horrible feeling that something is wrong with my other breast... I don't know... the lumps and bumps I have felt for years (fibrocystic) now feel different somehow... Is the MO the one to ask to recheck it before we do anything else??? I hate that feeling that something bad is about to happen...  How do I get myself out of this feeling?

  • jo1955
    jo1955 Member Posts: 7,545

    GMA - I am so sorry to hear you are having such a hard time.  I would address all my concerns with my MO asap.  Until you get some definitive answers - try to relax and breathe.  Doesn't help to get yourself worked up over what hopefully is nothing.  This disease is the gift that keeps on giving and I keep trying to find the return line.  Please let us know what you find out.  Sending (((HUGS)))

  • stage1
    stage1 Member Posts: 285

    Gina,you are brave and I too, am happy for you, You got thru with courage and bravery.  I would be asking for drugs! 

    Gma, sorry you are crying tonight, please cheer up and think about what is good in life!  Like all your friends you have on this site, and your family and ....At least you have a follow up, they let me go and good riddensSurprised...I left there thinking no one cares, had to call in when I started blistering and peeling...good God... I am glad I am done!  But, thinking of you, remember we all have to cry, we have reason, just get it done then do something fun. 

    jo, I wish your husband would not smoke inside, both my hubby and I smoked, but have quit after many years.  It is a different world here in Ca, it is rare to see someone smoking anymore, it is like really odd, and god forbid, inside the house.  Second hand smoke is dangerous for you.  oh, u know all that.

  • Sherryc
    Sherryc Member Posts: 4,503

    gmafoley if you are seeing your RO first you may want to ask.  My RO always did breast exams on me.  If not I would def ask your MO about what you are feeling