After Radiation
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granny ,i'm glad i'm not the only one that found those happy birthday ads strange! skin almost back to normal-well normal for me, now if only i could get rid of the skin breakout from the tamox! good news its almost tuesday
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juliet I have had the skin breakouts with the tamox as well. Gee I feel like a teenager again. Had to bo buy some acne medication.
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funny enough just came back from walmart after buying antiacne face wash! now if only i had the energy of a teenager!
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granny, we are good! I do understand what you meant. We just don't agree and that's what makes the world go round. I for one was not the least offended with Ricky Martin or anyone singing Happy Birthday on TV in regards to cancer survivors. Couldn't care less if he makes 10 million from it. I look at it as he is bringing awareness to the cause because he is a high profile person, with friends and associates with big money to contribute to something that may bring good news to my sub type of BC and all cancers. So, you and I differ in that way too. It's all good. But I'll never think it is OK to send someone who has or is battling cancer an email that says cancer is a strange cell and once you have it you'll never be rid of it. If I thought that was true, I'd never fight and I NEED to fight this Triple Negative mess!!!!! It's OK for all of us to see it differently.
Today I am a 1 year Breast Cancer survivor. My surgery was a year ago today. My Oncologist says to start your survivor-ship from the day of your surgery and when the cancerous tumor was removed. He also said with Triple Negative my high risk time is between year 2 and 3. So, today I celebrate being a 1 year survivor and living through all the treatment phases to encourage others. All of you just having or are finishing radiation, hang in there. YOU CAN DO THIS, because we all have our arms around you holding you up and moving you along. (((((HUGS)))))
Hugs,
Juanita
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Congratulations Jwatrlily on your 1 year anniversary! I hope you have many more!!0
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Congrats Juaniata on your 1 year anniversary! I wish you, and really all of us, many more years of NED!!!
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congrats Juanita on your 1yr cancerversary
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Great news Juanita - Btw- I think acne and wrinkles are one of God's cruel little jokes! I'm 51 and still break out once in a while!
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Great news Juanita....Happy 1 yr.I wish you many many more years of Ned.In fact NED FOREVER.
My first surgery was last April,the next was May and the final and best on was Sept.I dont wanna celebrate any of them....see how different we are....
I love Ricky Martin but I hated the idea of him singing that song....all I thought about was he was gonna make $$$$$ of us and where does alll that $$$$$$ go.In the drug co.pocket.just how much goes for research????oh dont let me start.anyway thats why they make chocolate and vanella.
doin the happy dance for you.Huggggggggggggs K
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Juanita - Congrats on your one year cancerversary.
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congratulations juanita
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Congrats on your 1 year anniversary Juanita! {{{HUGS}}}
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Congrats on your anniversary!
So, now that radiaton is over.... what are we? I don't know what to say to people when they ask. Am I a survivior? I don't feel like one yet. Am I cured? Don't feel that either. Am I in remission? That means it's coming back. Honestly, I still feel like a breast cancer patient. No hair, half a burned breast, and still feel like burying my head in my hands and crying sometimes. I'm confused
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Mammalou: My ONC said all those feelings are normal and you will get through it... I almost hit him when he said that.... instead I just started crying more... I am told we, at this point, are survivors... we still are healing but have made it through the worst.... I am in counseling to try to sort out all these feelings... it is really helping me sort things out..
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Thanks granny. It helps to know I'm not alone or crazy. Especially when everyone thinks I should be celebrating
Just don't feel like celebrating for some reason. 0 -
mammalou - What you are feeling is normal and you are not alone. I am almost at my one year cancerversary and I am still not sure what days I am - survivor or what - still having mixed emotions about all this. Somehow we do get through this and at some point begin the process of moving forward and back to some semblance of our previous lives. We just have to be patient and if we need to, just take things one day at a time.
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mammalou it is normal what you are feeling, for me the better I have felt physically the better I have felt mentally. I ended up with permanant nerve damage and was in alot of pain for quit a while and thought I was going crazy. but once I got the pain under control and my body started feeling good again I now feel like my old self. Just have pains every now and then but because it is not constant I can deal with it much better.
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Mammalou----We are the survivors.sure we dont feel it YET but that is what we are...We did it,We made it,We fought like mad dogs to get where we are today........And im sure the fight will always be in the back of our minds........ALL THAT MATTERS NOW IS WE DID IT!!!!!!!.YAY for all of us...goin to hell and back was no fun at all.We cried a lot BUT WE DID IT.....thats what after RADS are.....My wish for all my sistas is NED forever along with pain free days.huggggggggs K0
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Almost 5 months for me since surgery ..............honestly........I felt better before then i do now..........oh I'm not talking about the horrible news, the waiting for answers, and all that other shit..........just the surgery, Rads, and all that crap........................while that was going on I felt fine............now almost 2 months after Rads I feel like someone beat the shit out of me.................I tire easily.........boob is still swollen, arm is partically numb, of course I have LE, and someone wants to sing "happty birthday" to me...............
Here we have a commercial for one of the hospitals..............it shows a Dr.looking at an ultrasound, and the voice says............"the last words you want to hear"....."this could be cancer", and then they stop...............advertise for the hospital, and they someone says ..........."or it could be nothing"............the woman is standing smiling, and so is the Dr...............I thought "bullshit"..............I can show you a website with several thousand women who were not told "its nolthing"........................oh well, guess I'm just having a bad day today........................and as far as "happy birthday" songs go.................do we really know......how many more Happy Birthdays's will be sung to us..............screw the birthday crap..........you want to do something """FIND A FRIGGIN CURE".........oK, WHERES THE VODKA..........................
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Ducky I finished rads the end of Jan and really just in the last month or so have I really felt like my old self. My boob stayed swollen, had a very full feeling about it plus it hurt from the nerve damage. The swelling is finally starting to go down but I'm not sure it will ever completely go down. So hang in there it will get better.
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Ducky, You made me laugh
, as far as the birthday ad, if those singers gave ALL their pay to cancer research, then I can be behind whatever they think up. I don't think anyone knows what we go thru, unless they experience BC. The writers of such ads should be BC survivors.Most of my SE's are gone, except minor issues, like my boob being sore and full of scar tissue, I itch all over my chest and abdomen, but my worst SE is living everyday, wondering how I can reduce recurrence. I can't get it out of my head. I go to sleep every night thinking about it, whenever I cook a meal or eat out, I think about it, I take a shower, I think about it. Shit....this is my life, BC Survivor.
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I'm not quite yet in the "After Radiation" category yet, but I agree with stage1. I hate that I feel like I will be looking over my shoulder for the rest of my life.
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stage 1 - With time and much more healing, those thoughts are less and less. They will never go away completely. As the doctor appts and tests get further apart, we being to pick up the pieces of our lives and move on. Those thoughts do not overwhelm you or control you. I am almost a year out from surgery and I find I don't dwell on this stuff as much as I used to. With the love and support of all the ladies here, I am able to go back to doing the things I did before this "bump" in the road.
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Just going to chime in here about life after treatment. I, too, don't know how to feel or how to respond when people ask me if I'm cured, in remission, etc.. I have simply been stating that I'm done with treatments and that it's nice to return to normalcy.
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Tomorrow is a year and two months since surgery. I finished rads in September. My breast is still dense but the nerve damage pain is mild for me. The Surgeon says the pain may not go but the density should fade over the next year or two. Still itches. I know I've had it easier than a lot of you but it is still a reminder, a trigger of the fear and depression. We will all have that concern in our hearts--will it come back? I just know I will do what I can to keep it away and do my best to enjoy each day as it comes.
When I was a teen, my father endured constant pain for several years that was probably as bad as any of us have had. He taught me that now matter how miserable you are or how much pain you are in if you look you will find joy in every day. That is what I try to do.
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tsundermann - My respond to those questions is that I am done with treatment and am doing fine and that I am back.
Chabba - I have permanent nerve damage from rads and have to be on medication for the rest of my life for it. Mine was too much to tolerate without some kind of relief. Glad your is on the mild side.
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Ladies...............your all so wonderful..............Not that I want someone in this "cancer boat" with me, but it is so comforting to know that when your really down about this whole ugly disease, you can find someone to lift you up right here.......................Its just all so depressing sometimes........guess its just one of those days ................again.......................
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Here I am again ladies.........................Feeling a little better.........Its 2:09 EST, and I am going to get ready to go to my daughter's for my grandson's birthday................I called him this morning to say Happy Birthday, and before I could even get it out, he said "how are you feeling Nan"..............I said "no how are you feeling, now that your 13"......................he said "I'll let you know better when you tell me how your feeling".............................I said "I'm good"............his answer was................."if your good, then I'm great, cause you are what matters"...............Why can't the whole world be filled with boys like him.........................wouldn't that be wonderful................so I'm off, along with my "sour cream pound cake".........his request..........................have a good evening ladies.....................not sure if I'll get back on..........headed to the shore tomorrow with my daughter, and my 13 year old, and his sister 10...............we won't be back till Tuesday night.................summer is almost over......hugs to you all.
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ducky - What a sweet child. Don't you wish the world was filled with more people like him? That has got to make you feel really proud.
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Im sorry i missed Ducky on those advertisements.As i said before even most of those drs are actors who get paid to do this bullshit ads on TV...They will never find a cure or even a vacine if all the $$$ stay in the wrong pockets.
I went to the onco on mon and the bs yesterday.both told me my swollen boob will remain like that KANTALOPE. and the pain from the last surgery (3) could also remain forever too.Thank you very much.
I read on one of the sistas posts that having early stage cancer is like beating the mafia,you are always waiting for the other shoe to drop.it went something like that.but it speaks a thousand words. Yeah you put it on the back burner as time goes by but its still on that back burner.For me anyway.
im goin away too.be back tues.have a wedding upstate NY and goin for the weekend.Play nice while im gone.lol.huggggs and God bless K
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