After Radiation
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Well ladies my ride seems to never end these days. My dad was put in the hospital yesterday and he is not doing well at all. I thought we had lost him today but he is finally resting. I came home to get some sleep unless my mom calls. All my brothers came home and we have all been with mom at the hospital most of the day. Mom choose no ventalitor so it is just a matter of time.
Gina that was a funny comment about buccee's but seriously we could met up in New Braunfels maybe have lunch in Gruene.
SAnda I need to print your words of encourgment and read them over and over. The last couple of weeks with my Dad has really been hard on me and now this tumor and I know that this is the end for my Dad it is just a matter of time.
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Sherry c I am so sorry to hear what you are going through.And sorry about your dad.Just take one day at a time.Hugs for you
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Sandeonherown
I called my RO and told her about the pain around my rib area.She said she would send me for an x-ray.I went Wednesday for the x-ray.I didn't hear back from her so I called on Friday.The girl at the desk checked and said came back, okay........that was good so I guess in time it will be better.Just have to wear soft bras and camisole like shapers ,I guess.Never did here from the RO.Maybe she will call Monday,who knows
I am glad I have you ladies with all your knowledge about these things.Have a great Sunday Ladies
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I had a cough & tightness in my chest last week plus I was very fatigued, had a low-grade fever & slept a lot - missed 2 days of work cause I just couldn't get moving. I called to see my RO & was told he was out the rest of the week so I asked to see anyone available in the "group". From my own web searching plus searching on the forums, I was wondering if I had "radiation pneumonia" especially since my blood ox was down to 91 at my last check-up. It was down to 87 when the nurse checked it Friday. My approach to the RO must have really ticked him off - in no uncertain terms I was informed the radiation had NOT damaged my lungs at all - he said it might be heart problems related to my weight, age, or SE from all the pills I am taking. He ignored my answers to his repeated questions "was I coughing, did my chest hurt, was I running a fever" - guess he was waiting for me to answer differently or was just bound & determined I was lying - I don't know. At least he did send me for a lung x-ray & I will see my own PCP Wednesday for those results - for sure, no way will I be seeing that RO again.... I was left feeling OLD, FAT, DUMB, HYSTERICAL, A WHINER, AND A WASTE OF SPACE TAKING UP HIS PRECIOUS TIME - all of which is true but I'm still feeling crappy & am really looking forward to the results of the x-ray....
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mostlymom - I hate it when ROs deny there are SEs from rads. My BS ordered a bone & CT scan for some other issues and lung damage was found on the scans - this is from rads. I was sent to a lung specialist who confirmed it. After all that, my RO did get around to admitting that everyone will have some lung damage after rads and a little is expected. I wanted to slap the moron stupid for lying to me.
Sherry - OMG! You so despertately need to catch a break - you have my number if you need to talk. (((HUGS)))
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ok, So yesterday I noticed that both breasts were very sore, like before you start your period or when your first pregnant sore. I had a hysterectomy in 2000 so neither is the case. Has anyone else had this? And last night was just awful, my chest, breast and back are unbelievably sore, the only place I can find relief is in the recliner with the heating pad on my back. When does this shit end! I am scheduled to return to work at a full schedule tomorrow, I don't know if that is going to work.
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stormy I think it is a longer road that any one of us could have imagined. I cried yesterday from the pain....partly because I hurt and i think partly because I just can't believe I'm still hurting.....I finished chemo in Feb 2011 and have this allergic reaction now to heat??? I had surgery in March 2011 and have a seroma that fills up the whole in my boob quiet nicely....haha a very sarcastic haha, but seromas don't belong in the boob....and I finished rads in June 2011 and my ribs are sore to touch, my underarm hurts, and please don't touch me in my clavicle area....
Anyway, don't get me wrong, I'm so grateful I had treatment options, and because I was TN and had a large tumor I had all chemo first so I had time to think about options, and in all fairness I was given quite a bit of side effect possibilities by my MO, RO, they did a good job....Thank goodness I was in the frame of mind of get the cancer out, fry it, cut it, whatever you have to do....and maybe that's why side effects come later, cause really who would choose this?
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Mostlymom, it is documented (and I hate people who say that, I wish I could find the study) that "mid aged" women are taken the least seriously by doctors in all specialties. I would have hoped that it would be different for BC treatment, but after my experiences and my reading here it seems as though the claim has been validated. I have gotten in the habit of researching my issues, printing articles, etc. before going to appointment! I told my BS that I deeply regretted my liberal arts degrees because I didn't know how much medical knowledge I would need to take care of myself! Really, sometimes I feel like I go to a car wash that makes me do the work. Oh, I guess that was a rant, sorry.
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Well well well if this is not the biggest bunch of shit i have heard in a while....
Im sooo sorry for all my sistas who were doing well only a few days ago.
this b/c sure does suk!!!!!!
Pain,EARTHQUAKES,problems with burns etc.Im sooo sick of all of this.
FIND A FUCKIN CURE ALREADY.END OF RANT.
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Sherry...I'm so sorry about your dad...saying a prayer for all of you.0
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Sherry - My dad had end stage diabetes and finally couldn't tolerate the dialysis anymore so we (my mom) decided to stop. It took about a week. I was glad I was there. (((hugs))). It's such a hard thing.0
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(((((((((((((((((((((((SHERRY)))))))))))))))))))))))))))))))
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Mostly mom- so hard to know if it is radiation related, the flu, some random infection...but you have the right to ask..and you have the right to demand....adiation can cause ung damage...my RO said that part ofmy lung would definitely be radiated...i had asked about my heart befor eradiation and he said no..they were not going near the heart...but everything is connected hmm? hard to know...but you have the right to question it. So sorry you ar efeeling poorly
Walley- good for you for asking....I promise you it will start to feel better ...but it did feel worse first, truth be known...my ribs were tender...especially where the wire goes (well...didn't go for 8 months) under my armpit..which makes sense....we are cut into..things are removed and our body has to heal and adust....under the arm was th eworst because there is more feeling there and because we move our arms a lot...i couldn't understand why i was sore on both sides but everything is connected...that is one reallllllly big muscle connecting everything....wear soft camisoles..put your pretty bras in the back of the drawer and forget about them for awhile..you will get into them again later...graduate from soft camisoles to soft sports bras (warners had a nice one wihout any seams anywhere...did NOT hurt on days i wanted or needed a bit more support...it will be all right
Sherry- yep...print them my friend...you ARE strong...you may not be feeling that way...I know I too am overwhelmed right now but you HAVE survived...you had had a crappy crappy year my dear....but you are still standing...haul out the box of kleenex and let 'em flow...your dad has also had a hard year and has fought as hard as he can fight. Those of us who have experiences ill parents understand and those who haven't can certainly imagine so remember you have lots of support here in this part of your life too hm? hugs Sherry.
Grannydukes....sending you a hug...or providing wyou with a huge pillow to punch...whichever you need more
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Sherry, It is so difficult to lose your father. It is one of the worst losses that life throws at us. I am so sorry that you are going through this now. Sending hugs and prayers to you.
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My dad passed away in 1980 but I can still feel his presence & I can feel him holding my hand clear as day even 31 years later. My mom lived 19 more years waiting to meet with him again & passed peacefully in 1999. Not so peacefully for me as I felt guilty for 2 years before forgiving myself for not letting her die at home as she wanted - I just couldn't take the pressure of watching her suffer & made her go to the hospital. I guess I needed those additional 2 weeks to let her go. It's so sad to lose your parents but the love they gave us lives on in us and our children.
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((((((((((((((((((((((((((Sherry)))))))))))))))))))))))) thinkin of you....prayin for you and your family....
Its not the same here without you...please know how much we miss and love you.
If you get a minute can you give us an update.You know how I worry about all my sistas.
Please everyone lets have a group HUGGGGGGGGGGGGGGGG.
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Sherry, thinking of you and praying for you and your family. Wish I could be there for you too.
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Gina--has anyone heard from Sherry?
Wish we could all get there to give her a huggggggggggggg.
Im worried!
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Granny~someone posted on her facebook offering condolences.....
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OH no......poor thing.she has been throu soooo much.im gonna check fb now.
Thanks Gina.
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Gina I just posted on her fb that we are all prayin for her and that she should stay stronI sent her a PM
Diagnosis: 4/15/2010, DCIS, 4cm, Stage II, Grade 2, 1/6 nodes, ER+/PR-, HER2-0 -
Sherry, I'm so sorry for the loss of your Dad. I will keep you and your family in our prayers. You know we all love you here and pray for peace for you.
Huge ((((((((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
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Well, today was my last day of radiation! I am so excited to be joining my friends from the Sept Rads 2011..........we have graduated. Looking forward to keep in touch with this next phase and meeting new women who have been here awhile.
My sympathy to Sherry, even though I don't know you yet, I am sorry to hear of your father.
I see my MO next week to discuss Tamoxifen...
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Congrats tamcathtech! Welcome to our little group! You will love it! Come often, ask questions and feel free to vent when you need too!
{{{{{{{{{Sherry}}}}}}}} prayers for you and your family right now...
Granny---miss you and hope you are having a blast!
Tori
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Welcome Tamcath----dont forget to drink plenty of water and rest when you feel like it.your body just had a real beating and it needs healing.Rest and sleep is healing.AND dont forget to keep creaming...If you have any questions no matter how silly you think it is ask away.We heard it all AND if we dont have the answer we will get it for you...OUR sHERRY USUALLY DOES LOTS OF RESEARCH FOR US.Please say a prayer for her as we will all pray for you to have a quick recovery.Welcome and YAY that you finished RADS.
Tori honey---im finally home.dont know for how long but im home now.
huggggggggggs everyone K
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Thank you so much for your support. My Dad passed this morning. He had been very aggitated over the last couple of days. But last night became very peaceful and had a good night. I woke up early and got up and got dressed and went to the hospital on my way to work. When I walked in I could tell it was getting real close. One of my brothers had stayed the night and after the nurse came in I called my other brother who works at the wellness center at the hospital and told him to get over there and called my mom who finally went home to get some rest. We were all there when he passed and it was very peaceful. All my other brothers came as soon as they could. I am very blessed with the family that I have. No one fusses or fights and there is lots of love. We all helped mom take care of what she needed to do and two of my brothers are staying with her tonight. I called my MO first things this morning to let them know about my dad as we have the same doctor and he wants to see me first thing in the morning. So I guess I'll see what he wants to do about my new tumor. Don't know if he is going to want more test before biopsy or just go straight to biopsy. Makes me nervous that he wanted to see me so quickly. I am very spirtual and know that I have Jesus on my side so I have actually been pretty calm through all of this. Had my crying spells with my brothers but that is a good thing. We have also laughed alot today sharing all of our old stories and memories of Dad and growing up. I am the only girl with 7 brothers so they always say I was spoiled and got away with alot more. haha but I was my daddy's little girl. Thanks for all your love and support.
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Wow..........looks like the Rads beat us all up...............crazy thing is mine came well after.........during Rads I was fine.................My ribcage hurts too........just yesterday, for no reason I started to get an acheness in my right rib cage in the back........not the front......eventually it went away...............this shit comes and goes..............and yes my RO did tell me they would be hitting a portion of the very bottom of my right lung.............I also have the cough, so ...........someone, anyone, try to tell me Rads doesn't f--k you up. ..............
Like I said..................what doesn't kill you, will make you stronger..................
funny story..........I use that expression all the time.................my 21 year old grandson, went and tatooed it on his left arm, and said "I did this for you Nan".......................I thought ....grrrreeeeat, now I'll get blamed for his tattoo........................
Condolences to Sherry, and prayers and hugs for all the lousy shit that is going on with our After Radiation gals.......................hugs.
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Sherry, I am so sorry for your loss. Your father was sounded like a wonderful man while he was on earth and I believe he will continue to look after you in heaven. Of course, it hurts so much right now. You and your family are in my prayers.
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Sherry - Sorry to hear about your dad. ( (((hugs))))0
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sherry c
My prayers are with you and your family ((((((( Hugs))))))
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