ER-, PR-, Her2+ Roll call
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Hi Karen7 and all
I am ER-/PR- and HER2+ Mets to lungs - Stage 1V, Dx May 2011, 16 weeks of Abraxane, Herceptin, triple dose every 3 weeks, ongoing. Scans - September 26th 2011 show NED! So for me Abraxane and Herceptin are both wonder drugs, as I don't know if it was just one of them, or both combined that got me into remission. I will have more scans in 6 weeks, hopefully it will show NED still! So keep positive, if it worked for me, it can work for you too!
Dawn
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Yep, that's me! Diagnosed at 40 years old, with two children both under the age of 10.
A lump has been found under the skin, in the same area the original tumour was found! I havnt yet finished my 12 months of Herceptin and they have put the coming 3 on hold, pending the outcome of surgery this week.
I am scared and angry and confused.
I gained weight with Herceptin and would happliy gain another 10kgs if it meant I could magically remove this lump.
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You give me hope. Thank you xo
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Dear all
Yesterday we got my mom's test results from her yearly checkup and EVERYTHING IS NORMAL AND FINE. I'm so happy. I hope everyone in this board will experience the same. Hugs to all.
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My mother is in this kind of group. I didn't know how many + of her Her2 has, is Her2+ the same as Cerb? What is the difference between Cerb+ Cerb++ and Cerb +++? My mother did surgery two weeks ago, she is ready for chemo now, which kind of Chemo she should take?
Herceptin is too expensive, we have to use it or not? we have to sell our house to use Herceptin. I am sure Mom won't happy about that. She used said there is nothing can let her sell her house. I don't know what I should do now.
By the way, is it good if Mom cut off her ovary. She is 55, ER-,PR-.
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I don't know her stage and grade too. I will ask the doctor later. Guys,my mother will be alright or not? Will she fully recover from this disease?Doctors wil never say that.
Even now I can't believe she has cancer, she drive me to the country side two days before her surgery, we collect wild flower for our house there, the next day we went to a newly build amusement park together, and that day was raining, I want her use the umberalla. But she refused and walk in the rain all the time. We all thought there is a normal tissur inside her breast, when the doctor told us she has IDC, I was totally shocked.
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Hello Ladies-
I have been religiously reading these discussion boards and have decided to officially join the "club." I had a rt. MX on Oct. 26, then began chemo on Nov. 21. (TCH X 6 every 3 weeks, with Herceptin for 1 year) So far my side effects have been minimal - mainly headaches and stomach cramps - so I consider myself very fortunate.
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Another one joining your group. I am newly diagnosed. Having BMX on December 15th and then starting chemo. I am 37 have a 4 year old girl and a 16m old boy who will make me want to rid this horrible disease. I am more scared than I have ever been my entire life so thank you all for you inspiriation.
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Momof2 and OnetoughCookie,
If you are taking the TCH treatment you may want to check out the Taxotere,Carboplatin& Herceptin thread. Those women are a wealth of knowledge.
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Nazumi, You should write down your questions, and talk to the doctor. I believe they can help you. If your mother's cancer is ER- I believe she will not need to remove her ovaries. I had mine removed so that I would not be at risk for BC, and I ended up with ER- BC. Herceptin stops or slows down the cancer growth by interupting the proteins on the cancer cells. I believe it is the best break-through in cancer since 1988, and has saved many lives. Where do you live? Do you have any resouces you can use to find funding?
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Dear Nazumi
Last year when my mother was DX with IDC I was very horrified. I thought that I never see my mother like before again. But It was all gone. The time will pass and you will get used to it. All I can tell you is be with her all this time and it can help her get out of this easily. My mother is sooooo fine and she lives her life like before her diagnosis. So I can reassure you to wait for good days in near future. About Herceptin, I did a lot of research and they say that Herceptin is a miracle drug and all who were treated with this drug have less chance to have recurrences. Her2 or Cerb2+ BC grows so fast and Herceptin cut the protein that causes this fast growth and somewhere I read that Herceptin cut the chance of recurrence to 85%. So if I were you I surely provide this drug. But also there were sisters who didn't have it but they are fine too. Good luck with you and your mom. Believe me it all ends you should just keep faith in God to help you in this way.
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Thank you so much. Southamptonmom and Nevo84.
The doctor said my mother's Cerb is only 1+, he said in this kind of case we don't have to use herceptin. Herceptin works better in Cerb2+ or 3+. He also said that Cerb+ cancer grow slower than ++ or +++. I am a litter relaxed. I live in a developing country, Herceptin is really expensive for us. I don't think I can find any funds except sell our house. The doctor suggest us use Epirubicin plus Docetaxel. I hope that will work.
My mother just did PICC insert. She said it really hurt - -. I have to prepare every meal for her every day, Any suggestions? The doctor said she can eat anything she want, but mother said she has no appetite at all. What should I do？I should prepare some good food, right?
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Hi, everyone:
My original dx was etage 3c years 2006. After all the treatments, I went back to work and enjoyed happy time with my family and friends, medicine free for several good years.
March 2011, I felt a small lump on my neck but it is too tiny that ct can't pick up. My onc did a biopsy for me. And yes, it came back. More than 30 weeks' chemo infusion, but there's more to go. One small nodule on my lung was disappear after chemo when they compare my PET/CT. Fortunately, so far 3 PET/CT results are good. I still feel confident that I can have more happy time to enjoy in the future and treatments free. So, keep fighting no matter what the statistics number is and having good time with my kids, husband,parents and friends. Yes, that's what I am going to do.0 -
Lydraimom, I am so sorry. Cancer sucks. You are right, keep fighting!
Nazumi, Feed your mother whatever she likes to eat during the chemo treatments. I could only eat carbohydrates: bread, crackers, pretzels, potatoes. Once she is through treatment, she will get her appetite back. This is a difficult time for you. Take a deep breath, and hold your mother's hand. I found that to be the best medicine for me. Be careful with the PICC line. Keep it clean and dry, and make sure that anyone who gives her medicine cleans their hands first, and then they need to clean the PICC hub with an antiseptic before putting medicine in it. Hugs to you, you are a sweet daughter.
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Dear Nazumi
Give your mother fresh fruit, vegetables and also fresh juices like pamagranate and carrote. Broccoli is very good for her either. My mother didn't have much appetite during her 4 courses of AC but after that she gain her appetite back. Give her whatever she wants but also red meat to increase her White Blood Cells. Try not to give her sugar because it fastened the Cancerous Cells growth. Good luck with you and your mom during her tratment. Big Hugs to you.
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Fresh fruit, vegetables are not good for many people undergoing chemotherapy. I understand that some people do eat them during treatment, but you really run the risk of getting deathly ill from fresh fruits and vegetables. My cancer hospital said that even if you wash, peel, and eat them, it is not good if you are neutropenic. She can catch up on all the good nutrients when she is off of chemo. Please check with your doctor.
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Hello everyone. I was diagnosed in June and am waiting for my final TCH treatment. Am looking forward to the support that everyone has given each other. I have Her2+ with negative receptors. Looking at RADs next and Herceptin until next August.
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I too have been through it all in the last 1 1/2 years. I have read that her2 pos. horm. neg. at one time was the worst bc to have and out of all her2 only 7 % is just her2 only. I thank god dearly for giving us gals a life saver. I really don't think there is enough info. about just how good it is for us early stagers but if it does better for us than the stage 3 and 4 gal we will be around for a very long time!!! I asked my onc. just how long she thought that I may have had these nasty cancer cells growing and she told me only 4 to 6 months before I felt the 3 lumps. My bc was a little strange to all the Drs I saw because I didn't have 1 solid mass, I had 3 kind of like a chain ooo each 1cm plus an area of 5 cm specked with cancer cells. I think part of this is because of the crazy her2 grade 3 cells. I am so glad to be putting all of this behind me and moving forward. One more great story to share a gal 28 y/o on the thread where I started Aug.10 chemo was stage IV and early this summer she was declared by her onc. to be NED and she is her2 : ) Also agood her2 movie to watch is Living Proof I ordered it online....great movie about how herceptin came about and what the Dr.Dennis Slamon had to go through to get it approved. We all need to thank this man because of him we all get to live a long healthy life!!! (((((HUGS)))))) to all
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Hi ladies, thats all the more reason for us HER2+ gals to get behind HerceptinT DM-1 there is some interesting and informative information arising from the advancements with Herceptin ! if its true what I am reading ! there was a rally in Bostin a few days ago to get T DM-1 unblocked from the rocky political beginnings of the new stage of Herceptin, I hope its true ! I cant do much from here in Australia, but eagar to find out ! has anyone read this yet?
Also some interesting stats from all angles of BC coming out from San Antonio lately and more to come I hope, Merry Christmas to all and Take Care over the silly season
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Dec 15 will be my 1 year out from last Herception. I am using that as my official 1 year date.
Just had my 4th every 3 month follow up's with oncologist. So far so good. I now move to every 6 month appts.
Keep fighting everyone!
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I am a little confused about eat fruit or not. What is neutropanic?I will ask the doctor. After the Chemo，how many days we still have to stay in the hospital? The weather is getting colder and I guess the snow will block the road soon.
Is my mother's cancer more like a triple negetive cancer? She has Cerb2+ but EGFR-. Is that means Her2-? Maybe I put her into the wrong group.
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Nazumi, I believe she is her2neu+. Neutropenic is what happens when the chemotherapy reduces the number of WBCs and infection fighting cells (granulocytes). When they are extrememly low, your body cannot fight infection. That means, stay away from anyone who is sick, do not eat any raw vegetables/fruit/fish, wash, peel, and cook any root vegetable. In this article, it explains:
http://www.livestrong.com/article/356481-neutropenic-diet/
Your mom will feel better and can resume her healthy fruit/vegetable diet once she is done with chemo. Talk to your doctor about it.
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BUMP
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I had problems during chemo - I would become severely neutropenic and have to be hospitalized....it was like clockwork. I was taking Neupogen shots, but they wouldn't kick in fast enough. I was told simply "NO RAW FOOD" - fruits and veggies are fine as long as they are thoroughly washed and cooked....easier done with veggies I know, but consider applesauce and other stewed fruit. Even baby food or canned fruit but Southamptonmom is right - get her through chemo and then focus on getting her back to better eating patterns.
I remember my onc telling me, if all you can manage today is cookies, then that is what you eat today.
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Hi all! I guess I'm in your club!
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Hi ya all, minnky1225 sorry you had to join us, but there's lots of knowledge and great ladies here to cyber support you.
southamptonmom the neutrophil article you up-loaded was really interesting thanks, seems I have been doing all the wrong thing with my eating habits ! cant give up my soft boiled egg, sushi, raw-nuts and dairy ! Mmm. no-wonder I have been an infected-mess. ***contented-peaceful new-year to all***
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Ok, this is me. 38 years when I was diagnosed. Now 39. I'm married to a wonderful man. We have two beautiful girls aged 11 and 7. We live on the west coast of Norway. I got my second FEC100 yesterday. The girls came with us to the hospital and got to follow the nurse to pick up my medicine. It was good to bring them and let them see there is nothing spooky or scary about it. Afterwards we had a family lunch. Rest of the evening I was on then sofa feeling awful... Feeling much better today. Right now im waiting for my husband to come home, and we are going to cut off my hair... Been loosing a lot the last two days and is has to come of now. I'm trying to live my life as normal as possible. I won't let this cancer sh** take over my life...
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Your last sentence says it all. Do NOT let it take over your life. Glad you are feeling better today. Cutting the hair is a hard day, but once it is done, it is done and you can move past that part. Good luck to you.
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I am also her2+ and er - pr -. I had my 10 round of taxol.herceptin yesterday, with 2 more to go. MX scheduled for February and then chemo and rads. My cancer has responeded exceedling well according to my MO to the current protocol. I am thrilled.
Rava, do not let it take over, htere will be moments or maybe days and that is OK. But breathe, lean into the discomfort and then move on.
Best to all
Nel
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I finished a year of Herceptin in july 08 after lumpectomy, TCH, 30 rads. I am NED since surgery. I had weight gain and could not take off the pounds. I finally decided to have RNY and am losing some of the extra weight. I am ER-/PR-/H2neu+++
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