INSOMNIACS place to talk in the wee hours
Comments
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Have you seen a pain management doc? The ones I've seen have been wonderful
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Nettie.... Is it Arthritis? Is that what they have told you? I mean if I still had pain, even after taking those meds, I would go back somewhere and insist on a complete work-up and have them tell you exactly what is wrong.... You have to do something "different" if what you are doing is not working...
Can you take what Susan said? I mean have you tried it? Maybe one medication will work different on you.... Just don't accept what is happening to you, without trying all options.... You can't go along always hurting...
Maybe even what Spookie said? I mean ANYTHING is worth a try... If your Doc's aren't helping, they either aren't listening, or not following through with you, and trying to get to the bottom of it.
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Nettie - agreed if what you are doing is not working you gotta try something else. Chronic pain SUCKS! It control your whole life. I know from experience. Although I am still fighting this damn pain I keep trying new things. Sonething has got to work. Maybe a psin specialist ( I think someone already mentioned this ) could help. I thought pain mgmt dr just gave out pain med but not so. I see an interventionalist radiologist. Keep trying. Bummer you can't take pain med. right now that's what gets me thru the day.
Chevy you are beautiful. So you get this idea of what someone looks like in your head but it's fun to actually see a pic. Since you talk about your age , I pictured you to look a lot , lot older. But you are beautiful. Look like a young hottie. You go Chevy !!!
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The last pain doc nailed my fibro. They can order tests do some procedures for pain, have a large arsenal for pain. Wonderful Specalists !!!!
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UN
FREAKING
BELIEVABLE!!!!
Just wrote a huuuuuuge long post, hit something somewhere, and poof!!!! It was beamed up, never to be seen again!!!
Will be back when I have time to write it in a Microsoft Office doc, and can copy and past.
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Nettie, my hubby, Now I don't know what u call this thing, but he had tendinitis in elbow, and he got this band sort of thing with a hard ball sort of thing on it. And u put the Velcro band thingy on the tendinitis spot with the ball thingy at , I think the biggest point of pain....and it worked. Now if you can figure out what I just said......u can get one of these things...I think like at a drug store. We couldn't believe it worked. We have an inversion table that helps our upper backs....and hubby also has/had hip sciatica stuff. Just got through with steroid shots to lower back area, and he is about 80% better. It was sooooo sad watching him when he finally went to sleep. Even though he would, at some point, fall asleep, the side of his body that hurt would twitch and jump and be all crazy, it never would relax. I bet that is happening to you to. If you don't fall asleep, your body is going to hurt more the next day...and if you fall asleep, and your body doesn't rest, you are still going to feel lousy the next day.
Hope you can eventually get to the bottom of it....I think sometimes we need to crawl Into the doctors office for them to start listening.......good luck...and go get that thingy...lol
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Susan great idea, it is a tennis elbow strap. It pushes the tendon, muscle ? I have worn one for 20 years while hitting the tennis ball. They are very easy to find. Walgreens, Walmart, big Five.
Also Nettie, if your sciatica is hurting, lay on the floor and gently bring your knees to your chest. Get online and they have great stretches for sciatica pain.
I had mine pinched years ago, takes time to heal but stretching really helps.
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Just had to post this.... Our youngest on the Rainbow River near Orlando! Her SHIRT says "sassy".... Ha, ha!
And her "big Sister! She was the "boat captain" and the leader of the pack! Ha!
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Wow, I took a few pictures this weekend and wanted to share with all of you
Thanks for clarifying the mask on horses, I was wondering about that I saw a few and did have not idea what was it for. The one I saw looked like fabric no way they could see through I just could not stop to take pictures and on my way back they where not longer there.
Lol
Look at this bird. Can you see his nest up on the wall? Lol
Looking at me like saying, don't you get close to my babies hahahhaha
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Oh Chevy u'r girls have the bravery u do--Wow did u teach them--wonderful pic.
And another bunch of pics--u girls are great.
Oh Nettie u poor thing I can't believe these Doc, are not helping u more--Now if u'r talking to u'r Onc. that's a big difference xuz if they don't think it's cancer it does not concern them like u think it would beside they don't really know much about other stuff. U have to see the right type of specialist. Have u gone to u'r primary and talked about this, it is so tiring to be in pain, it knocks u out. The only painmeds I can tolerate are tylonal #4 with codeine they are not as strong as the others but they help. U have to get help ASAP from some type of Dr. There are so many reasons to have all these pains and it doesn't have to be cancer--but from all u'r body has been thru. We just want u to feel better. All the girls have good ideas and find out if u can see another type of Doc. maybe it will help. Have u had a bone density and all those other bones things. I hope someone gets to the bottom of this cuz u know how u feel.
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oh Nettie, sending you hugs. Hopping you all get some sleep tonight. I didn't take any pills last night and had a brutal one. I LL try not to take any again tonight some how I just want my body to stop the insomnia and get normal again
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Hello!!
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ha ha ha Holly lol
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Nettie please try all the suggestions here and spookie's pain specialist idea that works with fibromyalgia. With the aromatase inhibitors they put me over the top with pain. But control started when I met my new PCP in Dec 2009. She put me on Savella which is in the same family drug group as Cymbalta. Valium for particular muscle spasms. Ativan for sleep. An Fentanyl for pain. Oxycodone for breakthrough. In one week I was a different person.
Sounds like a pharmacy, but I was very careful how the drugs were used. The Fentanyl once it kicked in broke the pain cycle. Savella took awhile to come to blood level. In the first week it was the shorter acting drugs that got me through. Then they were decreased as the other drugs kicked in.
She also tested me for food allergies/& intollerances. It was a blood test. I had plenty. When I got them out of my diet that helped too. Each one has it's own thing that it does. If I stay away from them life is better.
Alcohol also makes my pain worse. Weird. But it does. I know I joke about drinking allot of wine. But not b/c the pain connection is so strong, it easy to say no. If I do make a night of it , my bones ache far worse than my head.
The biggest difference was when I ended the AI's. It took months for the fibro type pain to disappear, but it's pretty well gone.
In 2007 before BC and then this year, I got new beds(different rooms--long story). That made the biggest difference with the sciatica in the morning. I also have 4 bulging lumbar discs. When I'm on the new beds I don't complain. Put me on the one matress that's hard and the back is screaming.
The stretching can be your greatest friend or your worst enemy. There's one stretch for me that makes all the 4 bulging discs unhappy. Of course I had to learn the hard way. I did the stretch and after the pain sent me to the PT. I found out for my type of problems there was one particular maneuver I shouldn't do. I don't do it now. But all the other stretches are good for me. agree with HI1 for sure, but would add it's nice to know if something's going to hurt you. The goal I gave the PT guy was to teach me how not to injure myself. But I had MRI's to help guide him as to where my bones weren't right. He was very happy with that, made his job easy.
Just like Blue I take an Oxy when I need to. This is where my abnormal liver enzymes work to my advantage. It metabolizes so slow, one-two pills last almost I swear 24 hours or more.
Pot helps allot too.
I have been off Fentanyl since 2010. Off Savella since Dec 2013. Was off Ativan daily for maybe a year and a half until recently when Sleep left. Valium is rare----I reserve it for TMJ pain and neck spasms.
I have post polio which is allot like fibro. But since I had fibro after starting Ai's Or maybe everything just got so bad with the AI's. Anyways the biggest change in pain reduction was getting off the AI's. The reduction in pain then took months.
Gentle hugs Nettie----hope you can put together a plan that works. I remember the worst of it, and I was sobbing the day I met my PCP and she fixed me.
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Chevy, cute shirts. Any snakes in those rivers? I should go there. Looks like fun
I saw that 444444444sneak in there. What up girl? Are you healed?
Susan all the tumor marker things can be plugged into google with "define CA125" A short answer will come up. I was on kindle last night. The stupid machine always picks out words and changes the word I'm typing. I've been in a sleeping jag thing. Using melatonin and Ativan. Now off schedule. Ladeda Nighty night sassy
Waving and smiling L&H&P's sassy
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night night
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I think Sleep has switched my pills. Someone mentioned as something. Well it's right up in the banner ASCO. Click on it and read the sections that interest you.
One section on pain recommends management across the board I.e.everyone gets the same treatment no matter the complaint. Walking and cymbalta.
I bring this up because this organization dictates treatment protocols that the MO s follow. You being aware of these guidelines are important self protection. Please, take time to find the sections that apply to you and read. Forewarned is for armed. Hugs sassy
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Morning gals! Oh Enerva, great pics! Yes, I saw the bird even in the first picture, AND her/his nest! How fun! I had a couple birds build a next in a planter I had hanging on our porch! So that took care of that plant... couldn't water the plant! But those little guys were pretty protected, and went on to live full lives...
444444444! Bout TIME you posted SOMEthing! That was cute!
Enerva, I mean to ask, WHAT is your avator? I see a hand? And a person in the back-ground? Cammi, do YOU know what it is?
Nettie.... See? I KNEW Sass would straighten things out for you... Now you just have to do one of those things, and you will be all fixed! I know I took Tylenol with something in it... Was it Oxycodone? That was for my broken hip... Someone else said they took the same thing.
Maybe one thing will work for you, if NOT the others that you have tried?
Sassie's whole lesson here, is don't drink and take pills... Ha! Either do one or the other.... not both at the same time. We'll fix you YET!
And Sass.... No.... no snakes... Florida doesn't have bugs or snakes, right? No spiders, no fire-ants, and no, not even ONE love-bug.
This is another picture, or Janie and Chase, our youngest GS! They are in that river, with no bug/snake/ protection, and they made it out alive!
I think he is showing her how to snorkel, or something? You can see her legs, and how clear that river is... So you have to GO there, and float down the Rainbow River!
SHE has a life-vest on... whereas the "kid" has nothing.... Ha! But you can stand on the bottom ..... So it is a little hard to drown yourself.
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Oh NO Chevy. Florida doesn't have ANY of those things you listed. Including gators. Gators are only in Gainsville. LOL
the best thing about clear water like that is you can see WHAT is coming to bite you! I still wouldn't get in there.
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Susan, I have two of those thingys and an elbow brace, both recommended by an ortho! They didn’t do anything for me!! That is except make my arm more sore!
Ok, let me run this down, I have talked to my MO, my surgeon, 3 PCP and an ortho about this pain! I’ve also complained steadily to my chiro for the last 6 months! Don’t misunderstand, I love all of the doctors except 2 of the PCP’s, obviously that’s why I’ve seen 3, but the last I really like! That being said, none of them seem to think my issue is serious! Now all that being said, I’ll add this….sleep is very important! It seems that when I have a restful sleep, I feel much better the next day, not pain free, but almost! Now, you may ask, why am I not sleeping…if you read my prior post, this is going to be a repeat, but here goes!
First, I have always been a very light sleeper, can’t help it, even on AMBIEN and other sleep aids, I still hear anything and everything! And then due to a family inherited trait, once I’ve been asleep for any length of time, if anything wakes me, I’m done for the night! Now you may ask, what wakes me? Well most of the time, I hate to say, it’s my DH! And someone on this thread has suggested to me before, separate bedrooms! I’ve begged for this also, but he is a no go, yet he refuses to respect my need for rest! It’s to the point, that I’m trying to get in with a counselor! I don’t know what else to do! I won’t go into exactly what it is that he does that interrupts my sleep, but lets just say it has to do with turning lights on and taking a shower!
Now the other thing sometimes is the pain, sometimes it’s the pain that wakes me, but more often than not it’s the DH!
My massage therapist, yay, I see him today, told me that my brain thinks my pain is worse than it is! In other words, like someone on one of the threads said, try to ignore it! I’ve tried this, and believe it or not, when I’m good and rested, I seem to have better luck with this! Some people may be offended by that, someone basically telling them the pain is in their head, but he actually made sense when he explained it! He was NOT telling me that I didn’t have cause for the hurt, he was saying that because of everything that I’ve been through over the past year, my brain is on high alert and is telling me that it’s worse than it is! (This probably didn’t make sense)
And just to add, not only can I not take the pain meds, I do not like to “not” be able to feel if something is wrong! I know, I’m weird, but I want to know when something is off! You see, I’ve lived with pain for most of my life due to Scoliosis, but I’ve learned the difference in that pain and something new! And believe me, this is/was new when it started!
Another thing that I’ve probably never mentioned here is that I have a weird “I don’t know what” about feeling “things” under my skin, or on anyone for that matter! So you see, I don’t go around poking and prodding and probably don’t check myself near as good as I should, because if I feel something under my skin, I get immediately weak in the knees and nauseated! And it’s not just if it’s on me, it happens if I feel that on anyone, example, when my kids were small and they would bump their head, people would say, did it make a knot, I would always answer, I don’t know, because if I couldn’t see it, I certainly wasn’t going to feel around for it! I’m just weird like that! It’s amazing that I even “felt” my original lump, and that was by accident!
Ok, I want to thank everyone for caring so much and offering all the suggestions, but I think I really have tried them all! Oh and my son is a PT so I get lots of therapy!
Sorry for the long post…. Sometimes it just helps to talk it out!
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Oh, and let me mention, I can't remember but one time that I "cried" at a doctor's office and that was not really crying, just a few tears! So maybe that's my problem, maybe I just need to cut loose and let them hear me wail! LOL0 -
lol Nettie my avatar is a picture of my little dog Britney checking out a red foot turtle.
well my dogs are gone now that is an all picture, i had two miniature pinchers they both past away ;(
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morning all, late coffee.....
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sas.....sooo happy to see your post....taking my doctors hat off now
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Nettie, you gave lots of info to work with LOL. Honest. BBL have to find something
FOUND IT!!!!!This has been in the news lately and describes your husband for sure. You could modify your patterns, but it will take work. Second Sleep is an important subject. Please, read this article through entirely. The bottom line is two periods of sleep were the common practice for millennia until the light bulb changed our sleep patterns. There was first sleep and second sleep.
The activities in the period between first and second sleep varied. Sex was a common activity between 1st and 2nd sleep. NORMAL. and fun.
What you may have to modify is when you start 1st sleep. If you go to bed for 1st sleep to late. You'll be to tired for the activities between 1st and 2nd sleep. Thus when you fall asleep after sex, you don't have enough sleep hours to be rested in the morning. Therefore, your body will be fatigued. Fatigue leads to pain.
Follow the recommendations in the article for at least three weeks. Please, don't vary it. Keep a journal.
The rediscovery of Second sleep is very important. This was accepted practice until the gaslights and light bulb changed things in the mid 1800's. As human beings that's a blink of the eye in time. Our bodies may be hardwired as the article states, to live and sleep by two periods of sleep. We keep messing with what the usual was for thousands of years
http://slumberwise.com/science/your-ancestors-didnt-sleep-like-you/
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Thanks Enerva! I see it now.... I'm sorry you lost your dogs.... We lost Lacee also, and I know how much it hurts...
And Nettie.... All I know is, I can sleep much better by myself.... In my own bed.... in my own room! I would just go sleep somewhere else... Tell him it's a matter of life or deathbyhusband! You need your sleep.... Get ear plugs... just relax before bedrime, and the hell with everything else..
But I would seriously look into some other med to help you sleep.... also. Can your Son prescribe you something? Tell him it is essential! That it is imperative.... then ask him if your DH could go stay with him nights....
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Nettie. You describe being in system overload. There is a condition(s) of the Autonomic nervous System referred to as dyautonomia. I tried to find a simple explanation, but couldn't. You are going to have to dive in and study it. It will take several readings to start making sense.
Not allot of docs are involved with this type of testing. The article is from a Holistic group. My contact being tested for autonomic dysfunction was through a Pain Mgt doc. If you can locate a doc that does this testing and then USES it to guide your care, that would be the ideal.
You may want to try Second Sleep plan for several weeks before going to this. You may solve your problems by going back too the old way of living before the light bulb. It will be cheaper.
Your sensitivity to wakefulness needs to be treated with behavior modification and environmental manipulation. The behavior going to bed earlier, shower before bedtime, and use earplugs. The manipulation of the environment black out the room. Studies have shown that even the slightest light in the room can disrupt sleep i.e. a lighted digital clock, diffuse light coming through the window from a street or outdoor light.
Sorry sweetie, lots of homework
http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html
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Susan you are so funny, Hugs0 -
I just put both links in the topic box. Hope they help. Sassy0 -
By the way Nettie in my earlier post when I said try everything here. I meant all the suggestions from everyone, not just from my post. What works for one may not work for another. There are many many great suggestions from everyone here.
You did however cause the light bulb to go one for me when you included a full description of night activity LOL Thanks.
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