INSOMNIACS place to talk in the wee hours
Comments
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What is everyone studying? Or getting dinner ready?0 -
I'm studying a new solitaire game until I go for a walk. Got to get my steps in. Been modifying clothes. Kinda nice, I don't have to go buy anything new yet. What's funny is my underwear still fit and I know I've dropped a couple of inches from my butt! I'm sure I'll hit 25 lbs tonight. Hoping!!
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Yay Smarrty. Hope you think this is funny. That's a good size turkey
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lol Sass, I just posted this in another tread maybe you can tell me. minutes ago Enerva wrote:
I am still having a lot of disconfort from my exchange surgery in Dec 2013. I wanted to ask anyone here, does this pain ever stops? I mean is like nerve pain and in comes and goes, sometime sharp around the scars. I just feel so down knowing that I will start from zero again soon as I will have surgery again, but keep thinking is it ever going to get over? like no pain.? Or do bc survivor live life with this pain for ever? Forgive me if I sound nuts. It just seems as if it never ends
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not to gross you guys out but they had this in class a couple of weeks ago and we passed it around. So I've lost at least 4 of these. This is not me.
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OMG Smarty you go girl lol 😁
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way to go smaarty!!!Sas...I am going to look into that nerve condition. Mine are on overdrive a night usually .
Not doing much today sas, chemo Wednesday, and my get up and go, got up and went two weeks ago...having a real hard time finding it. !!!! Doc said we could take a week break from chemo and see if I feel better...to afraid to do that...I said no way....so I will keep looking for my get up and go energy
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Nettie,
What a terrible predicament you are in. I love to toss and turn and it would wake my husband up. The next time I got a cold, I started sleeping in the guest bedroom so he wouldn't catch it. I just never moved back. We both sleep so much better. Separate bedrooms would certainly help but perhaps separate beds would do just as well.
If you aren't on any blood thinners, ask your PC if you can take bromelain. Bromelain is a very effective anti-inflammatory. It may help with your pain. http://www.ncbi.nlm.nih.gov/pubmed/?term=bromelain+inflammation
Meditation may also help you. Here are some simple instructions. http://www.accesstoinsight.org/lib/authors/thanissaro/breathmed.html
Meditation will certainly help you relax and perhaps sleep. You do not have to sit in the Lotus position. Any chair will do. Or you can try lying flat on the floor or in the bed. This works as well and the worse that will happen is you will fall asleep.
Best wishes
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ok...don't have that nerve thing sas......I have another "nerve" thing...but not that one. Back to the drawing board
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Enerva--My recon sucked. I don't think I'm the one to ask. But maybe Whippetmom has a clue. She talks to so many about their experience. If anyone went by my experience, I don't think much reconstruction work would be done. UGH.0 -
Sas,
Thanks for all the info!However, let me say, I’ve tried it all!And I do not have the luxury of the darkness thanks to DH!I once told him with all the “little” lightsin our bedroom you could land a plane!!I would cover them all with towels!!But that doesn’t stop him from coming in whenever he feels the need andturn on lights!Not the main light, butcloset light, cell phone light, alarm clock light, bathroom light!It never ends!I’ve begged and pleaded for a change, eventhe light from a TV on in the living room comes in under the door and wakesme!It’s terrible!I’ve tried blindfolds, but even on the nightsI managed to fall asleep with it on, after a few turns it was off and thenthere was light!As for earplugs, thenoises don’t wake me unless it’s extremely loud!And I found when I used earplugs, my ownbreathing sound bothered me!You see, I’mhopeless!!The problem is that he, DH,doesn’t get it because he can sleep anywhere under any conditions!
I was told by massage therapist today that I had so manyknots that he wants to have an hour session next week!!This is becoming ridiculous andexpensive!!When in truth, I thinkrestful sleep would solve most of it, but can’t seem to get that across!
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Nettie you're not hopeless. You just haven't found a solution yet. I think we should sic Chevy on him.
OFF to dinner
BTW where are Ziggy, Jwoo, and Tang?
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lol have a great dinner Sass, you are right I found some info on Wheepetmom s tread. Which help, I do think it's all due to my rad.
need to bring it up with the new Ps see what his opinion is.On the other subject, I haven't heard tang,or the others
Have a great meal 🍴
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Hi everyone--I've been busy and lazy today, doesn't differ from other days I know. It got cool outside so we have everything open and it's nice.
Nettie oh wht a mess u'r in--my neice is a lot like u--when her boys were little and got up during the night they were not allowed to flush the toilet even tho it was far from her she wakes up for any little noise and so does her father my BIL
my sister and my BIL do sleep in different bedrooms now --that's the only way he can sleep and now my sister can sleep on her terms too. I don't sleep as well as I used to and I notice I feel not as good as when I do sleep well now--never bothered me before..and sometimes I think it takes our brains longer to catch up with all the crap our bodies go thru for healing, that's just my opinion.
Enerva I'm sorry about u'r furbabies that's tough I think most of us know how sad it is. Chevy has just gone thru this too.
OK I might BBL depending on my nite now LOL
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Nettie, so go sleep someplace the light and DH won't bother you. Spare room, couch, tent with a/c in yard!!!??? DH and I have separate rooms. We sleep much better that way.
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smarty- you rock ! 25 lbs. that's awesome. Keep up the hard work !!!
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Pm'd Jwoo, she's got stuff going on . She'll be back.:)
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Hi ladies...too far back to catch up. A little update:Sunday during church service I started feeling like I was going to pass out. I was sweating, tingling sensastion and tunnel vision. I left church after it eased up and drove to my parents house. DH met me there and I apparently passed out briefly 2 times, they called 911. I was taken to ER and found out there that my WBC was down to 2000. The pumped me with fluids, did CT scans on my head and lungs. Lot's of labs and all that good stuff. Doc admitted me *sigh*
When they did the CT on my brain the doctor saw a spot, so of course they want to do an MRI. I'm panicked, dh and I are scared and we don't tell anyone that night about that. Good news is the MRI was clear.
Now, in the meantime...my left "breast" area starts getting swollen and pink again. They give me the neupogen(spelling??) shot sunday night and put me on reverse isolation. Meaning everyone has to wear masks and gloves. By Monday morning my left breast is huge again.
So, now I'm back on IV antibiotics...cefepime and vandamycin. Tuesday morning doc comes in and says, your hemoglobin is at an 8, you may need a blood transufusion. uggggg...I'm grossed out by this. We decide to wait until this morning to make a decision and sure enough, it dips down to 7.8.
I got the transfusion and I'm home now. I'm still worn out, wondreing how long before I feel anything from that transfusion.
Sorry for the book and probable grammer issues. My bones are killing me too.
((hugs))
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Oh tang...so sorry. Hope you feel better soon. Makes me ashamed of my petty complaints.
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tang sending you hugs. Good night everyone. My sister had her. NSBmx, this afternoon and hopefully she will be ok next will be rad.
I wanted to show you she only got one draínage apparently from France and supposed to take care of both breast. Here they send me pictures. I wish we have that here I had 4, at my mx and 4 at my exchange. 
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Hello Again!
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Omg too funny. I love it. That cat is too sweet lol
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oh tang.....I am so sorry. Hope u have a good night sleep at home and feel a bit better tomorrow. Hugs
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Tang I'm so sorry this keeps dragging on for you. I'm glad the MRI was clear though. Feel better ((((((Tang)))))))
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tang and Nettie, sorry you guys are going thru this. Nettie, it's not petty, we all have our issues.
I love the weight lost but can see a big difference in the girls and they ache now, I think it's from still stretching. My BP was 100/59 this time, so I'm suppose to email the doc. I'll see them next week and just need to slow down some of my moves. (No, I don't pole dance!)
Everybody try to have a peaceful night.
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Tang oh sweetie you've been through the wringer. Please, tell me you have a homehealth nurse? They can do the lab draws at home. They will likely want to test you tomorrow. Not fair to ask you to go in for the test. One unit of blood averages one gram elevation in HGB, so you are still anemic. Probable level no greater than 9. Don't stress yourself by doing much. They want your body to kick in and make blood. Hope they gave you decent pain meds. You have my phone number. Try for no visitors till this passes So, sorry you are going through this L&H&P's sassy
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notself, you expressed how I have been feeling while on the anastozole (arimidex). I lurk but most of the time I am exhausted, in pain or something and just too tired to post. I beginning my second year on ALs and can hardly imagine going another three plus years. Was given a three week break at the beginning of the year and by the end of the three weeks, I felt like a brand new baby. Of course, now that I am back on, I feel like an 80 year old woman. Thanks for letting me know that after treatment-I can get my energy back.Sass- my reconstruction is also a mess. Will have to wait to get it revised because not only am dealing with other issues like a painful foob, etc., but just found out I am pre-diabetic. So disappointed with my lack of progress and all the underlying issues involved with taking ALs. Hope all is well or better with you --your thyroid, etc., and situation. PM me if you wish!
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dwill,
Sorry to hear that you are having so many side effects. The pain is the worst I think. I switched meds and for a month I was pain free. After a month the pain was even worse on the new meds so I switched back to Arimidex. I did get a prescription for just plain codeine which helped when the pain was really bad. I can't take any of the drugs with acetaminophen.
I also had trouble sleeping and would go days with only two or three hours of sleep a night for weeks. I finally broke down and got a prescription for Ambien. Unfortunately, Ambien made me groggy the whole next day even when I was on the lowest dose and cut the pill in half. Now when I can't sleep I take Alka-Seltzer Plus Night. It comes in two pills in a pack and I dissolve one pill in water and that's all I needed. I still use it occasionally.
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Smaarty - that reminds me of the time that Oprah came out onstage in her skinny jeans, pulling a wagon full of fat representing the amount of weight she had lost. These days, I can't even carry the 40 pound bag of bird seed from Costco.. how could I have carried it around on my body for all those years?
4sewwhat - SO CUTE! I want that raccoon AND that kitty!!!
Nettie - please forgive me for not remembering, but have you been through a Pain Management Program? I'm not talking about a short appointment with a Pain doc, but a long-term, medically-supervised, educational and physical program of rehabilitation and pain management. I have a reason for asking.
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Thought I was doing better by being off the Femara, and doubling up my Synthroid. But this morning, DH and I attended an Obstructive Sleep Apnea seminar at Kaiser, and while I was taking notes, the signs and symptoms all started sounding eerily familiar.
DH snores like a chain saw, stops, gasps for breath, and starts in again. He also yells in his sleep, and has periodic limb movement disorder: punching and kicking in his sleep. His dad has it, too.
However, he doesn't wake up with a headache, isn't cranky, and doesn't fall asleep during the day. I wake up like a bear being poked out of hibernation, my head feels like it's filled with concrete, and today I took a five hour nap and missed dinner entirely.
The Tech giving the class said that OSA was prevalent in post-menopausal women, and those with hypothyroid. There is no longer a need to go to a sleep clinic and try to sleep in a strange bed, hooked up to a million wires.
Today's tests consists of a small wrist unit that measures sleep times and depth, and two finger clamps that measure blood oxygen, pulse, BP, etc. No electrodes, no wires, and you're in your own bed. DH is doing his study tonight; I will be asking for a referral for me tomorrow.
While we have a nice big master bedroom, we finally decided to make the bigger guest room HIS room. He has it furnished nicely with his own things, has a great Tempurpedic bed, can read as late as he wants, and get up early if he wants to. The main bathroom is actually closer to him than the master bathroom is to me.
We both get a good night's sleep this way. This is not a subject that was up for discussion. It didn't matter whether he "liked the idea" or not. His priority was my health. In the end, this arrangement benefits both of us. We can always have our "together time" in the big room, then to sleep, we each have our own beds.
They say sleep apnea can be fatal - I know this because many times I have considered putting a pillow over his face. And I love this man dearly!!!
Stay tuned for more sleep apnea info!!!
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Tang, my heart goes out to you. You've been thru so much. Big hug to you {{{{Tang}}}}.
Nettie, you too have lots going on. I know you've had tests and tried lot of things. But you're still in pain, so something must be going on. You need Doctor House.
Chevy, your pic of yourself is beautiful. It's nice to see your face. Your daughters sure are brave out on the river.
Hope your doing okay tonight after chemo Susan. Love all the animal hug pics you post.
Notself and dwill, I agree with you about arimidex. I will be on it 4 years in August. Every muscle aches and bones hurt, and now have osteoporosis and feel 100 years old. Looking forward Notself to enjoying life again like you are. One more year on this estrogen sucking drug.
Enerva, sad to hear your dogs died. Love your avatar.
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