INSOMNIACS place to talk in the wee hours
Comments
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Marley, I've been an advocate of probiotics since the 70's. Can't explain why I haven't religiously taken them over the years. Usually I am reminded why I believe in them when an antibiotic causes havoc. I have very expensive probiotics in the frig. For several decades as a nurse I had to be very careful about talking to patients about probiotics. Late 90's and the 2000's it was progressively more accepted. Viola it's now mainstream beyond our wildest dreams. Hope when you feel better you can look at all the links on my trouble making page.
Just so done with all the studies that say obesity is linked to BC. The researchers were so lazy by not connecting to Microbiome work. Blinders.
Anyone here have a sudden unexplained weight gain within approximately two years of BC diagnosis?
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This is so cute.....
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Our house is now a faced cream color, with dark brown trim.... I'm lightening it up, with an off-white, and a prettier brown, like the fence....
This pic was just taken, but I just want to "clean it up"..... The fence will be prettier also....
The house across the street....! I know it is "wild".... but so pretty when the sun shines on it!
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Sassy- I lost 40 pounds with all my health issues in 2012. I put about 20 back on with being in bed so much and no exercise for a good 6 months outside of some limited walking.
The only weight gain I noticed quickly was an immediate 10 lbs when I went on the AIs in 2013. Nothing more with time really, although loosing weight is really hard now. I have lost some weight this year through my personal training program the past year.
My trainer told me after age 50, our metabolism does not just slow down in general but after 12 p.m. So the majority of the heavier carbs should be eaten at breakfast or lunch. That is working for me by eating less in the day and avoiding the carbs later in the day.
When I went off the AIs for a month in late 2013, I lost 10 pounds immediately. It did not come right back on when I went back on the AIs the second time. I assume some of it relates to a further slowing down of the metabolism with no estrogen. I also think it could be water weight.
Those are the only weight ups and downs I have had.
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Chevy, The house across the street is very close to the color we painted our house. We were trying for faded adobe. Trim is dark brown and turquoise. DH added some yellow to the doors, but I don't like it. Neighbors did though, so my opinion doesn't count.
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Thanks Jazzy, The link in the post where I said I was stirring the pot. Give it a quick read and you will see why I'm asking. If you get to the Microbiome post and links, it is changing all the accepted concepts in many areas. What we thought we knew, is going to have to be completely re-evaluated in light of this area of study.
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Ok ladies that works 4 me, yep 3 my gs who is 9 n my sd doesnt know he is cming , me n george. Southwest airlines. I just have to tell her to come there, is it easy to find? R u sure, dont want to put u out. I am excited, just tell me what to tell sd...
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Ms. Blondie, you have beautiful grandkids...so carefree and innocent.
Marlana, it is always helpful to have connections haha, especially with "the Man". My dad has to wear a hearing aid also, but he doesn't like to wear it when he is at home. We tease him that he does it intentionally so that he can't hear mom nagging him. I hope you are getting your energy back soon. I still can't believe you are working through your chemo treatment. Tough cookie you are.
Jazzy and FrenchFrey, thanks. The two nieces are pretty sharp kids. The older sister, who is hearing impaired since 4 or maybe earlier, faces many challenges as a result. She has to wear hearing aids and is completely deaf without them. Even with the hearing aids, she still needs to look at a person when he/she talks to lip read. Her hearing with hearing aids has gotten worsen over the years. She is a very compassionate, kind, and loving young lady.... she just loves medicine. After several rejections from different residency, she finally got accepted into the orthopedic surgery program. I really admire her strength and perseverance. Her younger sister is a chatter box and feisty, but sweet. Went to Oxford on a scholarship and is now a prosecuting lawyer. Both girls have very good work ethics. They are good role models for my girls.
Ms. Chevy, I love your cottage. I can't believe it was built in the late 1800's and still looks good . Lots of history. I wonder if there are any hidden treasures between the walls.
Ms. Smarty, are you back from Tahoe? Heard there was a fire there?
Ms. Sass, always up to something haha. No significant weight gain for me 2 years prior to dx; however, I can't seem to pin point the 5lbs gain after TE placement (since January). For me 5lbs is significant because I am small frame. For sure it is not the implants because they are small. I did not have chemo because small microinvasion and am not onTamoxifen. I notice that I have been shedding a lot of hair. Seeing my MO tomorrow for quarterly check up and will ask for thyroid fxn tests to make sure thyroid is behaving.
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Blondie, go back to that post and either read it to her, or cut and paste and email it to her.
Loverly, Please, post on that thread. My thought(hypothesis) is that weight gain before ( and possibly during as you identified) is unexplained is the body protecting itself? It's not been an area that has been researched. By posting your observation that you can't explain the weight gain is important. What docs assume is that we are eating more, exercising less etc. versus considering that the body has a mechanism of creating an environment that will promote survival. Women in general are acutely aware of weight gain. We are aware of what we eat etc. When we see the scale moving and we haven't changed anything, our reaction is WTH? I'm not suggesting that all weight is related to this.
That pic was fun. How many attempts to get all off the ground at the same time. Your nieces sound wonderful
overcoming the hearing loss is an amazing story.0 -
Yea Blondie!!!!!!
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the fire didn't affect us. It was over a ridge and the winds didn't push the smoke towards us. I'm home, just crashed when I got home, forgot a meeting I wanted to go to last night. Got a lot done. 2 dresses, 1 partial dress, 1 top, 1 skirt, and 1 quilt. A couple Xmas stockings too.
This quilt will go to my SIL. She's heavy into red things. This is a quilt-as-you-go. It's all done when it's all assembled.
Sassy, have you seen this? http://discovermagazine.com/2014/dec/16-true-believer
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Smarrty, Thanks, not sure if I've read about that particular gene. I have thought that I should be tested for Chek2 and Pten after allot of research about 3 years ago. What's very cool is Farmerlucy started a thread. She identified Color Genomics(CG). It was started by a group of folks after Myriad lost their court case for Brca patent. This group felt that genetic testing could be made available for a llot less than what other companies charged.
CG charges only 249.00$ and tests for 19 different genetic errors. Inclusive of the Brca's. I tried to C&P a list and couldn't. This link is to a page that has a box with each listed. Put the cursor over each one. A box will drop down with an explanation of what the gene is related too. https://getcolor.com/learn/the-science You don't need a doctor order. But some have been able to work through getting the doc order and insurance coverage. I haven't gotten around to that b/c I forgot.
I checked the list and Kras isn't on it. I'll look into it.
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Smarty- that is a beautiful quilt!
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Funny you're talking genetics. Gyn just really was onto me to get MO's opinion on genetic testing for me. He wonders if I GASP need my ovaries out. He gyn gave me the genetic testing guidelines last year and I meet none of them. I really don't know a great lot about my father's family. I was estranged from them from HS on. Know basically about his brothers, mom, dad, etc but not much about my generation cousins health, but they are still living because uncle died a couple of years ago and I have the obit. Same thing with my mom's sister. No way would I ever contact her again. Know she, 3 cousins still living. Sassy you might could answer this question you being a nurse way b4 I was. Not sure if my maternal GF died from Hodgkin's lymphoma or non Hodgkins (1964). All I remember is they treated him with nitrogen mustard - I was in the sixth grade amazed I even remember that. Know it was pretty quick from say December of one year to June of the next. Any guesses as to to which one it might be. Don't worry I won't hold your feet to the fire lol.
Oh great just read about nitrogen mustard. Seems it is or was used for both. Somewhere I have a box of my mom's papers. I wonder if GF's death cert. might be in there. I think this box has lots of my GM's stuff in it too.
Thanks to this discussion I just spent about an hour on Find A Grave. Not that it's going to tell me much but did find out about longevity in maternal GF and GM's families and paternal GF. Oddly enough no genealogy on paternal GM. Not really a genealogy buff but might have to do some digging.
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Ms. Smarty, glad you are home safely and beautiful quilt.
Ms. Sass, ok if I cut n paste? You are going 100 miles/hr on the other post. I get dizzy reading them haha. Very interesting tho about dysbiome. You remind me of my younger Sis. She loves researching and bombards me with tons of info.. Has very good memory. She can't sit still. Self dx ADD lol . Two trials to get the picture...very creative young ladies. I wish I can find the newspaper clipping of cousin1 when she was in the Philippines helping the people after the Tsunami...such caring soul. She had done medical mission in India also.
Pattycake, hope today is even better for you than yesterday. Has the black cloud somewhat changing to gray? No need to apologize. It is hard not to be negative when you are cornered. Hugs
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Smaarty - LOL I just realized those were hands on the sides holding the quilt. I though geesh small quilt, looks like a pillow. It is beautiful. Sounds like a productive time at the retreat.
AC man bounced me outta bed at 8 am. DH was on the spot. Already done, AC fine. Didn't have it checked last year. Awaiting plumber from 3-6 for install. DH is asleep and I'm about to go on a food search.
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Hi Goats and Jazzy. Just looked up and saw your posts. Funny you mentioned the size of the quilt. First look, I thought the same. Then, saw the hands. Okay, stay away from sweets, Goats.
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Anyone here with Tp53 variant?
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I think you can get 30 days free on Ancestor.Com. DD spends time there trying to find my bio father Traced moms family back to 1700s Germany. .
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Wish I could use Ancestor.com. First generation immigrant
Family is not good with keeping history. Both sets of grandparents died young. All we know is my greatgreat grandmother was 1/2 French and probably was born out of wedlock/rape.0 -
cute house Chevy
Feeling much better today. Got out in the sunshine v( thanks SAS). Way too hot to be out and about. Heat index has been 105. Whew. A person can nearly melt in these Temp's. The pool finally warmed enough to enjoy. The last few days i be gotten some serious floating on a raft time. The sun feels great.
Hootie hoo
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I have some family history esp. on my mother's side. Father's not so much. SIL has done a lot for my DH's side. MIL was a KY Hatfield so no problem tracing her ancestry. My mom did tell me I was eligible to join DAR, Daughters of the Confederacy and also the Texas Republic - the last on my father's side. She never did any of them. And alas she did not write it down and I was not smart enough to grasp it. I pretty much thought I had years of time to do this. I really don't have the bucks to do these and really the interest. Just would want the info. The Texas Republic I could prob. find, not that long ago.
Hootie Hoo back atcha Patty.
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I found 2 old newpaper clippings 1919, 1920 but wanted you to subscribe to their subscription service. I use the cached copy if I can and the control F function to search. Amazed when I did it to the uncached copy and it worked. Voila no need for their service.
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Littlegoatssssssssssss alas, the discussion caused you to look for a grave???? and you are doing some digging? OMD. LOL. I findly caught it on Find a Grave--- you can look for relatives. .....Nope not a clue about nitrogen mustard other than that was the WMD of WW1. Hmmm. WMD from WW1 became a cancer treatment and a WMD from WW2 became a cancer treatment.......DBF got me a Hershey's bar. Their chocolate is so good. Every bit as good as Godiva. They're is another one in the frig
Loverly when I get the Color's test it will be in the panel. I was worried about it, Thyroid doc said it would likely be positive. He explained that TP53 was a chicken and egg thing. Can be present before cancer and likely is after cancer. Their is a TP53 thread here on BCO just repost the color's thing there. It's been in my favs, but it's been inactive. Some of the gals there did allot searching for info on it.
BBL
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Loverly, here's another link on microbiome. Not sure if I linked it here. You betcha on that weight thread, I'm learning so much. One breadcrumb leads to another. Thanks for posting there. Minimal traffic, but they're lot's of lurkers. I just talk to them like they're sitting next to me and we are learning together. Ask your Doc tomorrow for a Thyroglubulin & autoantibodies as a baseline. He will only want to do a TSH. Also, Free T3, Free T4. he'll balk, but try.
https://community.breastcancer.org/forum/73/topic/832898?page=1#idx_2
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Sassie that is the plan.
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Hey Rose, hope your scan went well today. Had appointment with my MO today and I think I might need to change doctor. Not sure if I am in good hands. She doesn't seem to be listening to my concern/question sigh.
Stop pushing the heat wave down to us!! It is 100 degree here. I feel so sluggish I don't feel like cleaning the last restroom (we have three). Even the ants and spiders are trying to escape the heat and found their ways into our house. They should go to our neighbors' instead. I think our AC just went kaput.
Thank you Ms. Sas for the link
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MORNIN' CHEVY
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loverly- thanks.. glad it's over with. One more drop of contrast and I would have busted a seam or puked. None of Oncologist I have had have listened well -not a single one, so if you think that's a must have oy... good luck with that search. Yes this is a crazy hot June by Oregon standards.. never had it be this hot here and dry for this long. Global warming is real. We usually drown and it's crispy dry.
Chevy your garden and house is adorable. Hope your DH pulls out of his funk. Blondie have fun!
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I have a paid ancestry.com account so if anyone needs someone searched, you can pm me what info you have and I'll go from there. I can't guarantee a fast response since I'm still sleeping a lot but I go back to work on Sunday and will probably have some down time later in the night to search
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https://www.youtube.com/watch?v=aRp6UoiI7c0
