INSOMNIACS place to talk in the wee hours
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Oh Mags, I forgot.... SOME times you look at things and think, okay, I can give this away now.... but ask first! If it won't mean as much to someone else, then keep it........ put it all in your special box, or trunk, or shipping container....(see? that was funny.).... but you will still have it all. My oldest Daughter still has little things she remembers from my Mom that I gave her....
My Dad gave my Mom this pretty little "baby-doll" that she saw in the store, so Dad gave it to her for her Birthday one time.... She kept it on their bed on the pillow.... Well I took it after she passed away..... And since DD#2 has her own doll collection, I finally gave it to her.... I couldn't stand it.... I needed that doll home with me.... so I asked for it back... And she's on my bed.
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Chevy called me a kid.....ha ha
Thanks for all your well wishes. I did finally fall asleep last night and slept well. Got about 4 hours before bathroom call. That was beautiful.
Since I have been spending so much time in bathroom, I have developed many excerceises while sitting on the toilet. Do you think there is a u tube video in there somewhere?? Uhmmmmm
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Susan- glad you slept better and for awhile before the bathroom summoned you. Wishing you a better day with SEs. You still have your sense of humor, I can see that much!
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Susan a video! Ohhh you are brave. I have so many intestinal issues and have for so many years that I know all the best bathrooms and just how long it takes to scramble off the freeway and get to them. Important information! Your sense of humor makes me smile!
Got a PM asking why I am not on the tried and true combo taxotere and perjeta (sp?) in addition to herceptin since my markers decided to flip. I was offered taxotere when I developed ascites before I asked them to test the fluid. I declined since taxol made me so miserable I simply couldn't stand it. I couldn't even feel my feet after the 4th dose and after the 3rd dose of taxol I had big blisters on the bottom of my feet! The thought of more of that taxol/taxoterrible road just wiped me out. I don't know about perjeta. I assume there will be markers drawn next week and we can discuss then. I want quality of life at this point and have not read that any intervention stops ascites, so if the side effects are icky I won't do it. I have enough icky. My left lymphodema arm is aching and tight under the arm pit.. very uncomfortable this morning.
Chevy I love the doll! Comfort critters. I have a stuffed otter (fav wild animal) and a little fuzzy chemo bear my DH gave me that I keep on the bed. One is never too old for some thing to ease life's rough patches and make a smile. I will see what I can do to find a tutor at the local university that has special ed/ deaf ed and education majors. We tried getting a student this summer and the gal we found could only do it one week before class committments changed for her. I will keep on it. I shouldn't get so disgusted and depressed, since there are adults who never learned to read and did so later in life, going to college and making a life. Still to hear a 14 year old sign to me what's the point in working hard or bothering to even try is jaw dropping. This kid needs to learn to read and write English to be employable. She has no speech and open cavity cochleas, so she doesn't even have enough of the sound spectrum from her cochlear implant to learn to speak. Nothing science or medicine can do to fix it. She will be ASL dependent and deaf for life. Off to get a little done.
Be well.
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Rosie, I just wish I could give you and your Daughter a big hug.... wish I could help....xoxoxo
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My cousin is going back to work, part time, and is trying to get her ducks in a row before she does. She's almost 79! Anyway, one of the things she's been doing is helping me organize my closet since it got so messy when I was going through tx. She did a bunch of laundry and folded it and put it in the guest room. Today she said it was time to finish and brought it all into my bedroom and stacked it on the bed. I've sorted and organized and put things away, and determined that I have too many clothes. You would not believe it.
Anyway one thing I finally did is pull out all my bras. There are maybe 2 I could wear with my knitted knockers, and the rest I have no idea what to do with them. What do you think? Some of these are pretty expensive. 44DDDs don't come cheap.
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Mags.... Just keep the ones you can wear, or really like.... And give away, or take them to a shelter, or somewhere like Good-will....
I did this too.... I had a few that got too big... in the cup....So I cut down to the tip, made a pleat, and stitched it back together, to make the cup smaller.... I had a LOT of bra's to.... but I just put them all in a bag, and took them up to the "Treasure Trunk".... Families can go there, and if they don't have money, it is given to them.... Otherwise the things are sold...like a thrift shop.
Also, if they are too big around, you can shorten the width... I mean the expensive ones can be made to fit.... But doesn't it feel good to get things organized?
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Mags, If there's a local domestic violence shelter, ask them if they could use them. So many women get away with only the clothes on their backs. And you're right - those large cups do not come cheap.
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Mags- funny you should mention the closet because that is where I am working today. I have too many clothes too, and been working to thin things out for awhile. I have more things hanging to go to consignment, and a big bag for donations working too. My closets are too crammed and I cannot even see the clothes I have.
Women's shelters are a good place for night clothing and bras. They will take most any kind of using clothing, except perhaps for bathing suits and underpants. They will also take extra shoes, linens, house hold items. I found a new place this year that seems so appreciative of my donations. I am taking everything to them now.
It will be nice to have the space in your closet to access things more easily that you will use now. Kuddos for your cousin for continuing on with work!
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Mags.... I found a woman's shelter through the local Police Department.... And Jazzy is right.... Some women run away in the middle of the night... and these shelters run facilities, like "The Treasure Trunk"..... And you just drop things off... Even for children, not only Women.... I have taken bedding, kitchen-wares.... EVERYthing.....
One time, I went with our Company after we had a clothing drive.... This shelter is for the kids of broken homes, and kids who's Parents just don't want them, or who have been taken away.... Man, it was heart-breaking to go through this place, on a tour.... So I kept going back, and just dropping stuff off.... for their own little private place, like a bedroom they shared....
Actually The Treasure Trunk IS for the children and battered women............... Just different facilities.....
You guys, just a note.... DRINK LOTS OF WATER! My older friend just got back from the Hospital.... She was getting worse...It was not High Altitude sickness, like they thought.... She was DEHYDRATED! She had to go last night, but is back now, feeling a little stronger.... I promised her I would drink more water, if SHE would..... It can really be dangerous!
Take good care!
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I went through my closet too. Two gigantic bags gone. But of course I bought a few more comfy things
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Rose,
Perjeta makes herceptin works better and they work together as a first line in her2 , the taxol is only for six months. Though you are right taxol is a tough chemo . It caused me neuropathy and the aftermath takes longer than other chemo to recover from, but it was very effective with the her2 therapies. While there are no known intervention to stop ascites but if the tumors in the liver are totally reduced , the ascites will dicrease . My quality of life during treatment was ok , i just got tired towards the end of taxol and took cymbalta to lessen neuropathy which helped a lot.
Still i truly hope herceptin makes a difference with minimum side effects .
Be well
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Susan, please no bathroom vidoes here! Lordy! You always make me smile. And Chevy, NOOOOOOO, that doll has eyes!
Mags, I loaded a box of wonderful bras and took them all to the shelter. Can't do better than that especially when you run off in the middle of the night. My mom did that one night so I get it. You don't always have time to get things.
Shower was wonderful, DH's exwife was here and all was fine. 3 hours was long enough for me . Took an hour nap cause had to get up too early. Still have company but it flies west tomorrow!
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sigh. Gonna be one of the insomniacs tonight, Hospital, two-hour antibiotic IV will do that to you.
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Smarty I made one for a little girl this week
Mags sorry about your friend.
Chevy u are right every time one of our relatives or friends get c it Hurst us so much
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Wait, you guys are getting rid of clothes? I just organized so I can find all the ones I have! See, I hate doing laundry. So I have enough clothes that I don't have to do it very often. Now I'm embarrassed. But Jazzy, you know, when you run your own business, and you're in the midst of a huge project (I used to do 400 page catalogs) sometimes laundry has to wait. I would would normal hours the first few months, then for 3 or 4 months it would be 12 hour days, sometimes 18 hour days, my husband called it "catalog mode" because I was so focused nothing else mattered.and I would do that 7 days a week until it was printed. I remember going on vacation to New Orleans, meeting up with my son and his family, and we'd scheduled it for after the book went to the printer, and there I was in the dining room of our condo, making page corrections on my laptop and sending them to the printer while everyone else was out partying. But when it's your business you do what you have to do. And that's why my back is so messed up. And also why I have so many clothes. And that's my story.
Yes, I want to donate the bras to a women's shelter, just have to find one first. I have some second hand experience. My younger sister was married to an abuser. She called my brother one night in the middle of the night, from a phone booth in Bangor, Maine, after her husband had chased her with a CHAINSAW!!! My brother the lawyer called in some favors, got someone from the local shelter to pick her up and get her on an airplane to us. She was black and blue all over. A few days after she arrived, a guy I was friends with (just friends) from church choir came by to pick us up to go to my mom's for a little get together. She walked out the door and his eyes fell out of their sockets. They were married a year later, and he adored her to the day he died, too soon, of cancer at the age of 49, leaving her with two kids, age 6 and 9. Sad story. She has another good one now though. Her son has never gotten over losing his dad though.0 -
https://www.google.com/search?q=dunedin+new+zealan...
Good Morning Spookie! I was reading my Brother's FB page, and somehow, one of the guys posted about Dunedin! Thought you might like this...
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What did she just say? I mean Mags! She's talking about printers and condo's and corrections, and she sounds like Phyllidon'tknowwhothehellsheis! You mean correctional institution? Or something like that?
Yes... We all hear of those women who need to get away from an abusive marriage... or relationship.... Sometimes they are so in love with this guy, that they just stay, or keep going back for more. The average abused woman will leave and return 5 times! And any kind of abuse .... is abuse. Whether it is mental or physical....
Good morning Woody! Thanks for popping in here, and talking to Rosie! We need all the help we can get.... I myself just can't do it all.... because there is very little that I know anything about....
Queenly! WHAT HAPPENED? Are you okay? Now?
Mema! Isn't she supposed to have eyes? But I have her laying down, on a little crochet blanket, and her eyes are closed... Am I supposed to be watching her?
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Chevy: the short answer is "erysipelas that didn't respond to oral antibiotics" plus a sensibly cautious PCP. Three two-hour infusions of vancomycin in 24 hours later I'll allow as how I look considerably less like an extra from a cut-rate George Romero knockoff but we'll see what the attending has to say today. Actually got a whole four continous hours of sleep last night without the aid of benadryl.
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Aw geez! I just looked it up! AND saw a picture! But at least I'm glad you got some sleep! How did your infection get to that point? That's what it was, right?
I had a "severe allergic reaction" one time.... scared me when I looked in the mirror... ER, lots of Benadryl in oil, plus Adrenalin, but mine was from an allergy build-up shot... So I kind of know what you went through.... I'm sorry....
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And now I know who George Romero is!
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Chevy- given where I live, I am big into drinking fluids all the time. By the time you get thirsty here, you may be in serious trouble.
I went to a health workshop years back and remember the guy teaching it saying "the two biggest problems as people age are loss of balance and dehydration." Yoga helps me with my balance. Water helps me keep my fluids up!
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The sleep issues are due maybe 80% to a combination of chronic insomnia plus being in a hospital in the first place. Noise. Light. Strange environment. Nurses talking right outside my door. Nurses coming in to poke me on a regular basis the first night to make sure I'm alive. Last night I think I got upgraded to "patient quite capable of alerting us to the fact that she needs something".
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Morning back at ya!! Yes, I've heard of Dunedin New Zeland. A poster on Cats is from NZ, we had a good laugh.
Getting ready for fall, a cool front is gonna knock out the oppressive humidity!! Yay!!!
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Two more pages, and we are at 1000!!!! Yay!
Queenly... So glad you are "capable"....Hah! And Spookie.... A "cool front"??? Is it going to get down to maybe 75? Break out those muck-luks! Or wear socks with your flip-flops!
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We recently got everything out of storage.....sold some stuff in a garage sale, gave a lot to a charity. So much had accumulated over the years. Both parents gone...had been keeping way too much and never saw any of it over there. I had to get tough and get rid of so much. My kids are interested in having old glassware etc. I should have packed it up and shipped Sas. Going through all of my closets....slowly. Already passing out my diamonds and good jewelry. My new daughter in law had my sons wedding band made up with my diamonds. What a very sweet thing to do. Much rather they enjoyed them while I am alive.
The storage was over $100 a month. Trying to get things in line so our kids don't have to deal with so much stuff when my hubby and I are deceased.
Of course, I needed stuf out of my thinned down craft closet as soon as I got rid of it.
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It's gonna blow out the 95% humidity!!!!!!!a/c still on, blanket tonight!!!
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Most definitely "capable". A couple of times yesterday, I ended up standing at the nurses' station with my IV drip wheepling, staring very hard at them.
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And with your neat little hospital gown flowing wildly in the wind! You'll probably scare those people half to death! Go drink your water....
I just filled that big thing they give you in the hospital.... make sure you fill it with WATER.... and nothing else!
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Or at least don't let the hospital staff smell the water bottle.. But I admit nothing. (One of the nurses last night teased me about not providing a towel for my shower, after about the third time I mentioned it. (I wanted a shower REAL BAD.) to which I responded "Fine! I'll just stand in my nothing at all up at the nurses' station and drip dry." She laughed.)
But I'm getting SPRUNG TODAY.
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