Single life after a mastectomy
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jazz I love it and thanks a lot for thinking of me.
Well my sister is worse now in a coma and family refused the machines so is a matter of time now ; (
I am so sorry, sad, upset no words to describe how I feel.
I have my appointment on Thursday to get that stupid injection which Hurst so much
I am tired already
My STD was extended till Feb 20th
I am just in a bit of a mess mentally not in a good place.
I started to crochet and it is helping me distract my mind I don't know what would I do if I didn't have any hobbies? It really helps me.
So far so good on the MMS.
I ll keep u all posted
Love you girls
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E- I am so sorry about your sister. Sending you much love friend
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E, I have no words.
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E - i am sorry about your sister....and take all the time you need. i am glad that you don't have to go to work....
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Someone at my yoga retreat this weekend was talking about this app that is a great resource for daily meditations. I wanted to share it for E, but thought others here could be interested.
https://www.headspace.com/headspace-meditation-app
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Also something I like. Going to print out and put on my fridge. I am plagued by insomnia most of the time
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hi friends
Ok so I had a long day.
Went to do my blood test then I went to see the oncologist. I told him about an urine infeccion I started yesterday and also some wierd pain on my jaw .ir started today around 10am and now I can hardly open my mouth. He says to take Tylenol and then he said yo wait that he wanted to review my blood test. Then he comes and gives me a prescription for a blood test and also tells me he is concerned about my right kidney and that I should get an ultrasound cuz I may need to see a neurologist to invert a Carteter in it . I was like what? When where what?
So ibwent to the pharmacy and then went to 3rd floor to do an ultrasound. The lady started asking me questions and I told her what happened with my CT scan back in Dec 18th
The she said humm I don't see any blockage
I said really ? Well my oncologist is concerned
Then she said wait here let me review this with the dr here .
Then she came back and said ok all ok I ll send the report you can go now.
I then went to the pharmacy again picked up the antibiotics and I left
But I now got the results and actually they saw a small improvement So what is going on?
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E,
stress is a huge factor affects our body/health....i think may be you are feeling bit less stressed out (not dealing w crazy coworkers??) i am glad there's some improvement. you must be doing something right....
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E- Did you get your shot today and are you feeling okay?
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well I have an appointment with a urologist next week. So much for my happiness
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Why the appointment E? Did the Dr call to explain why? Well I think it is a good idea to get checked out and get some answers. Do you feel any better yet being on antibiotics?
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hi no broken no call.
The way I see it .
He asked his nurse to book the appointment in front of me when I was getting the injection. He also told her to take a pee test before I went to the pharmacy to get the prescription. Which I was not to start until urine test results were up.
So what I think is this :
When he saw the results for the ultrasound his secretary /or and nurse had already faxed the referral for the appointment. Plus when I saw the result for the urine I already had been gone.
So I am ok I will go to the appointment for the specialist to explain a frew questos to me. But he will have both the CT scan and yeterday ultrasound which means he will have to explain how the kidney got better ? And if the kidney got better why is there a need to insert anything?
I am not going to be a ginne pig for them. I am my own ginne pig now and the natural stuff I am taking is what clear my kidney I have no doubt on that.
Is all ok I just had a breakdown yesterday when I read the appointment and what they plan on doing but now I am ok I analize the situation and I think the oncologist just want to prevent a bigger problem cuz he had no idea my kidney had improvement by this time it should have been in big trouble of course cuz instead of helping it back in Dec 18 when it was having an issue they did nothing but send me away with hormone blokers now he is in a rush but I already helped myself with the MMS natural solution.
I don't mean to overwhelm you girls just trying so you know where all stands
No news yet from sister she continues to hardly breath and in a deep sleep everybody just waits
Cremation arrangements are done and we just wait .
My appointment is on next Wednesday I ll keep you all posted
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E, you never have to worry about overwhelming us. We are always here for you to share.
E, is your sister home now?
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E- thinking of you friend and hope you can get some good answers on the kidney function issue and what they feel is the root cause?
Sending much love about your sister. I hope she is home and comfortable and surrounded by family
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hi girls
No she is still in the hospital. The doctors said there is nothing else to do but my siblings fear that if there is then at home they won't have the iv or anything to act. You see it is very hard for them to acept this so all they can do is pray and wait right there by the waiting area. They are allow a few minutes at the time to see her then back outside. Is such a big mess is so sad.
It is just a matter of time now
Jazz the root couse as per why my kidney was in trouble back in December was due to the mass in my pelvic area was pushing and blocking a tube which comes from the kidney that is what they told me in December but they didn't do anything about it . So now the oncologist wants to act cuz he think by now my kidney can explode due to the month that went by but some how I manage to make it improve and I will have to see what this specialist thinks.
Unless my kidney shows problems I won't allow them to insert anything in it. Let's wait for Wednesday and see . I want to know what is this stem hey want to insert. What is the risk for how long also how easy is it to reverse and what are the chances of infection etc. There is no way I ll do it unless my kidney really needs it. I ll keep u all posted I wish I could discuss all with my surgeon but I don't see her till Feb 14th ; (
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E, my mom has struggled with urology issues for some time now. I too always worry about her bladder bursting. Is this tube they are talking about a catheter? I don't mean to be snarkey but if this mass is causing pain and now affecting your kidneys then why the heck not remove it? I assume there is a reason but in my simple but logical head that seems like the best solution, no?
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E, as to your sis, this is likely no comfort to you but as an outsider I am glad she is no longer in pain and fearful. Oh E,....😢
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E - i hope your kidney condition is on the way to recovery.
i am sad about your sister....at this time i'd just do whatever make her comfortable.
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E- okay got it. I agree here about why they won't remove the mass when it is causing other problems. Get more information and if the surgeon's apt is a couple weeks later, maybe the doctor can wait until you talk to her first. That is my hope for you.
The hospital will ensure she remains comfortable, although hard to be there and for folks to visit. Sending you hugs. This is so sad friend.
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hi hi
Small good news today
Sister woke up from coma .
Still in critical condition but at least she woke up. No able to talk much but she seems she knows who she is and seems to be able to blink and smile and we'll is very small but we are happy.
Yes we fear of the future for her by we are taking a day at the time . Hopping she survives yet another night
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E - that's very nice.
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I hope she continues to improve E. Miracles do happen. This is amazing!
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E, be cautiously optimist but I agree this is a godsend. Perhaps she is stronger than anyone realized.
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E- how are things today? Any news on your accounting test results from 10 days ago? Hope all is continuing to get better for you.
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hi friends No news from my accounting test.
My sister is better than yesterday and that gives us hope . She may never walk again and still no able to move her hand but arms are gaining strength.
We are just so happy she is able to comunicate now very small words but it is enough for us for now.
We know we know this may no last but we are greatful for what ever we can have
Tenants gave me a low ball #
And I have agreed .I just need to sell and I have no energy to go through headache right now.
I will speak to a lawyer tomorrow to see about doing it as a private sell.
Good night all
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I went for my six month check in with the MO today. All went well and I won't need to see them again for another year. They want me to stay on the Prolia shot for awhile longer for bone health (I am ostepenic from the AIs). The good news is I am confirmed to come off the hormone suppression in March as planned. Grateful for a good check up!
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jazzy - that's great news!! 5 years, what a milestone!!
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hi friends
Jazz I am happy all is good.
Few updates
Sister continues to improve even though still paralized she is now able to talk and move her arms and hands. This is really one of those so called miracles thank you all for your prayers
I am keeping positive for her to be able to feel her legs one day
I ll see the nice doctor who did my surgery on dec, 13th tomorrow morning
Not sure why but I think he is the only one who listened to me and thanks to him I now know what I have so I am glad to see him. I ll be able to thank him again.
Hope you are all doing well.
Good night
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E - good luck with the appointment.....fingers crossed
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E, great news about your sister! Thank you much for sharing that great news!
So you had your doctor appointment this morning? I emailed you earlier but forgot about the doctor. Please update either here or via email when you can. Just wonder how it went. Love you.
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