All about Xeloda
Comments
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back on my miracle drug (as of last nite). Happy Holidays everyone.
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Happy Holidays!!
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Thank you very much Zoh and Judie; I appreciate your concern and advice a lot and would never mind anybody trying to help!
When I started this journey 7 years ago, the port was put in the L side at the same time the breast surgeon did the R sided mastectomy. I ran a low grade fever which actually delayed me starting chemo for 7 wks.and I ran the fever the whole time I did the TAC and Zometa chemo despite heavy duty iv antibiotics I did at home thru the port. Every one assumed that it was an infx in the mastectomy site but as soon as the port was removed after I completed the chemo and before radiation began, the fever went away almost immediately.& they were unable to culture anything from it. I continued getting the Zometa thru iv the next 3 yrs until I cracked a tooth all the way to the root and my onco (who had already had a patient with osteonecrosis of the jaw) stopped the Zometa.
Same thing this time--only the fever was higher but it went away within 3 days of taking the port out & again they they couldn't culture anything which would cause an infx.
They put this one on the L side again and since I have LE in the R arm, shoulder, & chest I don't know if they will use the R side altho my onco said we might try again with an actual vascular surgeon implanting the port.
I do have Hashimoto's thyroiditis which is an auto immune disease and right now my thyroid antibodies are 1187 (they should be less than 30) which means my immune system is in overdrive attacking my thyroid--wish it would attack the cancer that way!
I am so happy for all of you for which X is working--just wished I had a better response!
Happy new year to all!
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Apple, good attitude: back on miracle drug. Hell, crosses blood brain barrier, right? Can I get an Amen?
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AmryAnne - I had a vascular surgeon the first time but am not sure about the second one?? My first port on the right side was incredible! The one on the left (that's the one they put in after I threatened not to leave till I got it) was a pain in the butt. It hurt the whole time and left me with a dent in my chest that is still sore almost 2 years later. Looks like they forced it into place and also had some kind of issues hooking it up. Also had to go to emergency for that one as we thought there might be infection... I'm thinking a vascular surgeon is the way to go if you get another one... Wishing you the best of luck on this!
Day 7 on X and se's are still very minimal! (warm feet, tired but not extreme and a bit of nasea/headache) Whoo hoo as I just have 3 1/2 days to go then 11 days off. Really hope this type of cycle continues to do its magic.
Hugs Suz
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Zoh I'm an ex X diva on Gemzar too, having mild dry HFS too. I don't know if it's a resensitization, or just a Gemzar thang. Anyway the Udderly Smooth Extra Strength with Urea and gloves overnight help a lot.
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hi my name yvonne, im 56yrs old, i have breast cancer mets in lungs. i have been put on a vitamin tablet from dr that will help with sore hands and feet
it called pyridoxine one tablet 3 times a day
this will really help, on the last chemo i had ihad sore hands feet, but they didnt give me this vitamin, u need to take it everyday, i hope this will be some help to you bless ur xx
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hi my name yvonne i just read ur thread and noticed like many of u are having sore hands and feet
well there is some vitamin to help of ur oncolist
it is called PYRIDOXINE 50MG ONE TABLET 3 TIMES A DAY
WORKS FOR ME YVONNE XX
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Pyroxidine that's B6. And I was told by my onc nurse to take 50 mg a day to prevent hfs. It seems to help, and I remember now that when I first did chemo, I got a bit of hfs from the taxane and took B6--it made it disappear.
Well, I'm baaack! I go back on X on the 6th. Am going to try to discuss 7 on/ 7 off with the onc, but don't really want to rock the boat too much. Will be taking 1500 mg twice a day, 14 on/7 off for now...
Happy New Year to all!
And, my personal feelings, good riddance to 2011!
Much love
Sue
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Has anyone else been offered 10/11 or even heard of someone being on it? My substitute Onco said a flat out no to the 7/7 when I asked about it, but put me on a 10on 11off instead. I figure its gotta be a Canadian thing..
(only in canada eh) Im not knocking it as Im on day 10 today, am just very curious if we are behind the US in tx dose or just different?That said Im ringing in the New Year with an 11 day X break. Will be a somber night as I reflect on a year that has had the good, the bad and.... hmmm the ugly (C got the ugly part) I hate what its doing to my bc sisters!
Love & Hugs, Suz
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Try BAN DEODORANT for H-F!!!
My hands and feet got really painful last cycle despite lotion, gloves, and socks. This cycle (I am on day 8 of 14), I am putting Ban deodorant on my feet. I read this tip on someone's cancer blog, and I was surprised to wake up this morning to pain-free feet. This is after just two days of rolling that dang deodorant on my blistered feet after my morning shower. This woman's onc told her deodorant shrinks capillaries which helps keep the Xeloda from leaking out. Why Ban? Dunno, but it seems to be working, and I am going to try to ski on these feet Monday! Yea!!!0 -
Happy New Year Xeloda Divas. I wish you all a good 2012 with minimal SEs, but always keep in mind, if the stuff is working, it's worth it. Don't post on this thread often these days, but keep you all in my thoughts and prayers. xox Marybe
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will try me some Ban tomorrow, thanks!!! HAPPY NEW YEARS!!
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B-6 and or Ban Deoderant. Its so crazy it just might work! MJL and I are both off X for some time and using (I just quit) a chemo called Gemzar and still have the kookie HFS. Mine is different now with extra swelling from liver mets, so I don't know what to blame on X. I like to see that so many of you are still using it and that it's doing its job!
Congrats to you Apple! Hope this baby kicks some more a$$ for ya!
Mary Anne, Your port story sounds tough. I had a bad painful port in the left first time around. I waited two years until I simply had NO veins left in my L arm to get the port placed in the right. (no LE) It has been all the good things they talk about and the scab isnt even healed yet. Your AI disease must complicate things like crazy too. I hope you find a loop hole in there somewhere so that you have the most comfort (KEY) and the most options for meds that you can. Its all any of us can do really. Thanks again for posting.
Happy New Year to all.
Zoh
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Ban deoderant huh? very interesting.. the deoderants seem to have the same ingredients.. I wonder if the aldi special will work?
I am having some issues with dry vocal chords... i have the cutest voice too.... It sucks that no one can hear it sometimes. heck, i have sinus, and respiratory dryness all over.
Feeling good tho...... found some great books, (willa Cather) have been cooking up a storm and am glad to have finally quit my emotionally draining job and on to a new one (which i haven't found yet).
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Happy New Year to all of you, we felt close sharing Xeloda but we are and will be, together on a strange journey.
apple so happy you get to walk away from crazy. Interesting re voice! I can't seem to talk for very long......
Y'all have lifted me with your spirits and made me feel less alone. Duh, I know, but its really something.
wishing us all the personal journey we wish for.0 -
Happy New Year to all my sisters here in X Land!! Hope Xeloda conti ues to work well for all of us ALL year long!! May we all be well as long as we possibly can.
Judie0 -
XOX could be our secret code.
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So, dies X cause mouth sores or is it this damned 2-month cold my DH and I have?
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sometimes they do K....
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Hi K-Lo, Don't know for sure, but my mouth sores make themselves known on each of my "on" weeks (I do 7 days on, 7 days off), so I'm guessing it's the X, at least for me. What a pain in the....mouth! Popsicles? Be better soon- SUE
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Thank you once again Zoh--my heart is breaking for you and your son and Mom. Keeping you in prayer that miracles will happen.
Apple, enjoy the free time that you will have now--especially the Willa Cather books--great author.
As for all the rest of you wonderful ladies--will really miss you all--not as much action on the Faslodex thread but what there is has been wonderfully helpful.
I wish all of you success in your treatment and a happy new year.
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I sure had mouth sores on X. I think I had about every side effect on the list! And I'm still wearing my fleece lined boots long after h/f has faded away... my security! X is powerful stuff! I hope it continues to work for a LONG time for those of you still on it. A very Happy New Year to all the Divas, past and present.
xoxo
Rose.
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Checking in....Have been super busy at work. Christmas is always crazy at the salon and spa! My family and I had a great Christmas. My hubby and I took my 5 yr old son to NYC for 3 days. It was magical! We even saw the fated spiderman show on broadway!
I started my 3 cycle of 14 days on 7 off on New Years Eve. I take 6 a day. I have started to notice that my hands and feet are burning. The redness comes and goes. Seems like when I wear my fleece boots they get super red. I wore gloves last night on the way home from work and they were fireball red for about an hour. I have been using bag balm and working hands every morning and night since I began the x. So now what? Will this be something that waxes and wanes throughout treatment?0 -
it does wax and wane.. i constantly moisterize and wear socks and gloves.. but whatever works for you works.. i would avoid nicks and cracks in the hands completely.. they take a while to heal.
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Glad to see this thread, i start xeloda on friday. Im on a 7 day on, 7 day off schedule.
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well, well, well,.. it looks like i might be leaving Xeloda and moving on to Halaven.. it's been 13 cycles.. depending on scans (and it looks like I'm having minor progression). I've done well.
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apple when r the scans?
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the 10th? (I'm supposed to order Xeloda for the 16th if I will stay on it.) I'm about sick of the hand feet issues. .. i don't get nervous about scans I do NOT like skipping my morning coffee tho.
I figure.. whatever.. it's just cancer... just another one of those things that get to us and everyone has issues at some point except the very fortunate, ...I've had a wonderful life.. can't complain.
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Sorry to hear that Apple {{hugs}} but I know what you mean. I feel Ive had a really good life too. Wow 13 cycles huh, it was one of the things I was wondering about. How long do they keep you on it? I was guessing until either the se's were too much or it stopped working. Wishing everything good for you if you have to change to Halaven.
Hugs Suz
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