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Radiation recovery

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Comments

  • edwards750
    edwards750 Member Posts: 1,568
    edited September 2016

    Congrats and have fun Josie! I went to Branson years ago with my sister and parents. Had a great time. Keep us posted on baby's arrival

    Sew - they are a handful but I'm not raising them - just helping out as much as I can. My best GFF helps me so much. She has become their auntie!

    Diane

  • josie123
    josie123 Member Posts: 1,749
    edited October 2016

    imageimagemy daughter had her baby Maisie Marie Lynn at 12:00 pm today 5 # 12 inches 19 1/2 inches lon

  • edwards750
    edwards750 Member Posts: 1,568
    edited October 2016

    Congratulations Josie! Such a little one. Hope she is okay and your DD.

    Diane

  • april485
    april485 Member Posts: 1,983
    edited October 2016

    Oh Josie, she is beautiful! Congrats Grandma! It is soooo fun to have a new baby to love. Maisie, Marie Lynn, welcome to the world!

    Heart

  • MostlySew
    MostlySew Member Posts: 1,311
    edited October 2016

    Oh Josie, how beautiful she is. I'm loving her hair wrap. She looks almost ethereal. Welcome Maisie Marie Lynn.

  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited October 2016

    What a cutie! Congratulations, Grandma!

  • josie123
    josie123 Member Posts: 1,749
    edited October 2016

    imageThanks everyone, this morning they decided she needed the bililights so she is being closely monitored for that but it's very common .They will probably send them home tommorow

  • 70charger
    70charger Member Posts: 591
    edited October 2016

    congrats grandma!

  • josie123
    josie123 Member Posts: 1,749
    edited October 2016
    Thanks Fran !!
  • 70charger
    70charger Member Posts: 591
    edited October 2016

    Just got the call, guess I get my kidney stone blasted next Tue UGH, have to leave around 5 am to be there for 6:45am. Not amused.

  • MostlySew
    MostlySew Member Posts: 1,311
    edited October 2016

    Fran don't blame you about the early morning trip, but it sure will be nice to have that thing gone! And you won't have to fast all day long

  • edwards750
    edwards750 Member Posts: 1,568
    edited October 2016

    Sorry Fran but agree with Sew at least you get it over with early. Keep us posted.

    Good news Josie. Such a precious baby. Welcome to the Grandma/Nana Club!

    Diane

  • april485
    april485 Member Posts: 1,983
    edited October 2016

    Fran, I agree...early is a good thing. I have to have my 10 year colonoscopy soon and if they won't give me first appointment, I will change the date. I would MUCH rather get it over with! Hugs and hopefully it will be in your rearview mirror soon.

    Hey Grandma, how is the little peanut? She is so adorable!!

  • edwards750
    edwards750 Member Posts: 1,568
    edited October 2016

    April I'm due for a colonoscopy in December. I'm getting first appointment or else another day too.

    Diane


  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited October 2016

    I had an interesting thing happen. Last Thursday morning, I suddenly had an acute attack of vertigo. It was pretty much gone by mid-afternoon. Friday, I was supposed to drive down to Connecticut for a grandchild birthday, but, concerned about another episode of vertigo, with the world turning upside down at 75 mph, I cancelled. That very afternoon, I heard a weird noise coming from the water pump in the cellar. (Yes, my well is just downstairs--old house. Very old house.) Turns out the water tank attached to the pump had bitten the dust and water was flowing all over the place. My plumber was able to replace it the next morning. If I'd been away for three or four days, as planned, the well would have been pumped dry, the pump would have burned itself out, and who knows how much other stuff might have happened! Very luck timing! Thank you, Vertigo!

    One benefit about the very old house is that the cellar floor is dirt, so no damage was done.

  • abigail48
    abigail48 Member Posts: 337
    edited October 2016

    too much salt. I'm getting a bit dizzy and bad ear getting cloggy again after eating salt again for some months. vertigo if true is not fun, totally debilitating and makes you worn out for a while like unconscious.

  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited October 2016

    Indeed, Abigail. About twenty years ago, that was exactly how my vertigo treated me. I usually describe it more like being underwater, or maybe that heavy-as-lead feeling when you first climb out of the pool. Yes, it can be pretty miserable. Luckily, it's pretty much stayed under control, except for that one "event." Here's hoping it stays gone!

    If, salt or no salt, your vertigo is ramping up, Abigail, do try limiting your head movement--that's what works for me.

  • josie123
    josie123 Member Posts: 1,749
    edited October 2016

    imageMaisie had a long day at the hospital again .She had to go back last night but is back home tonight.Her Bilirubin is better

  • edwards750
    edwards750 Member Posts: 1,568
    edited October 2016

    That was divine intervention Brookside. Thank goodness you didn't go.

    I have had vertigo in the past but it was mild and haven't had an episode since thankfully. It is scary.

    Diane

  • chisandy
    chisandy Member Posts: 11,408
    edited October 2016

    I had a very strange episode in 2005 after a head cold—I woke up one morning and music sounded out of tune, with my left ear hearing pitches 1/4 tone flatter than the right one. Unamplified stringed instruments—even my $4000 guitar—sounded tinny, watery and low-volume, whether I heard them live or listened to recordings of them. Piano and violin music was excruciating—sort of like a bad 1970s 8-track tape deck wowing and fluttering. My ears felt very full. No vertigo or nausea, though. My ENT shrugged and said “must be something in your cochlea" (ya think?).

    I was referred by a musician friend in Seattle who'd had the same problem to her neurotologist, who referred me to a colleague in Chicago—only to find out that the guy had recently passed away. His partner was not a musician, declared my hearing was “perfect" for a musician my age, especially one who'd played in rock bands. When I asked why the pitch disturbance, he said “You're a musician—too picky about pitch." (Say WHA???). My brain MRI was normal. He handed me a leaflet about the diet for Meniere's disease, saying that because I didn't have vertigo I had “atypical Meniere’s." He said it was a “diagnosis of elimination," i.e., after ruling out more serious or obvious stuff. The diet was no caffeine, very ltd. sodium (<750 mg./day), no “brown drinks," no alcohol, no sugar, 10+ glasses of water a day. Just shoot me.

    I'd read a Lancet article about sudden sensorineural hearing loss that recommended a prednisone dose-pak, vit. E, vinpocetine, alpha-lipoic acid, quercetin, and manganese—but the regimen had to start w/in 28 days of onset of symptoms. I nagged my neurotologist to prescribe me a Medrol dosepak—which he finally gave me and I started on day 27. Within 4 days my hearing was normal again. Maybe the sodium restriction helped, maybe it didn’t. But the steroid, vinpocetine & antioxidants sure did. And every time I get really bad tinnitus (I’ve had tinnitus my whole life, and have no idea what silence sounds like), I pop 10 mcg. of manganese and it’s all good.

  • Blinkie
    Blinkie Member Posts: 123
    edited October 2016

    Tattoos vs stickers ~ When I had radiation in 2007, I received a few teeny tiny tattooed dots as markers so the equipment could be lined up properly. This year, at a different clinic, they did not do tattoos. They just made marks with a Sharpie felt tip pen and covered the marks with clear round stickers about the size of a quarter. I had no problem with the adhesive from the stickers, but now, 7 weeks out from the last radiation treatment, I've got a number of small skin tags on that breast. I think they are where the stickers were. I'm assuming they could be cut off easily, just like the skin tags I get elsewhere.

    I'm wondering, has anyone else had skin tags on the breast appear after radiation?

  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited October 2016

    Yikes, Sandy. A hearing specialist (I'm guessing that's what a neurotologist is) calling a musician, "too picky" about pitch? Does not compute.

    I also have a variant of Meniere's where I pretty much always have to deal with a low level of vertigo, but my hearing is not affected. My father had it also and, at 94, he could hear a pin drop. It is my understanding that not a tremendous amount of research has been done in this area, so perhaps there are several variations, some of which will eventually be gifted with their very own names.

  • MostlySew
    MostlySew Member Posts: 1,311
    edited October 2016

    Blinkie, I haven't heard of that but It sure is suspicious. Can you still contact the RO to discuss, or the surgeon? I'm also very sorry to realize you're going thru this all again....different breast, but same blasted disease. How very difficult for you, even if you did know the routine. Let us know what you find out as I'm curious.

  • Blinkie
    Blinkie Member Posts: 123
    edited October 2016

    MostlySew - Thanks for the response & the suggestion to speak with the docs about it. I will. I do think it really is just that I am the Queen of Skin Tags. I've got them everywhere - eyelids, underarms, torso, etc. Sometimes they fall off and sometimes I get a doctor to cut them off, but mostly I ignore them. Given the choice, I'd pick tattoos again, rather than stickers.

  • MostlySew
    MostlySew Member Posts: 1,311
    edited October 2016

    Blinkie, you're welcome. I think one of the docs will have heard of it. I think I'd choose the tats over skin tags too. I've got lots of those tags too and also ignore them. I'd guess your skin just wasn't happy with the tape (I'm also allergic to latex and surgical tape) and did the only thing it could think of....making tags! I do still think you should check with them though just to make sure.....

  • 70charger
    70charger Member Posts: 591
    edited October 2016

    Happy Thanksgiving!!

  • Mariangel43
    Mariangel43 Member Posts: 45
    edited October 2016

    Damazon, I have seroma under my armpit and it does not go down. I hope the PS will work with the area when I have the exchange. The area where the drainage was still itches and aches. I changed RO because the one i was sent to firsthand didn't like the way she acted. I cannot communicate with her. I will be going on the 24th of October to a new one, Since I am having lymphedema flare ups, I will ask the new RO not to radiate the armpit and my thyroid. I am trying to avoid the worst of lymphedema on my right arm. I will need radiation in my supraclavicular nodes, they were active for radioactive glucose. I want to ask her some other things and I need to clear some doubts about the procedures.

    Ladies, I am lost here. What is the real difference between a boost and the regular rad tx? I was given 28 reg tx and 5 boosts by the former RO. I hope this new one gives me 20 or less since I fill the criteria for post-mx new guidelines. Hope me good luck, ladies.

    Good night. I need to work tomorrow.

  • april485
    april485 Member Posts: 1,983
    edited October 2016

    Hi Marianagel, A boost is a dose of radiation that is concentrated directly on the area of where the lesion was. Prior to the boosts, your previous rads were spread out over the entire breast (if you had whole breast radiation) so these boosts are insurance that they kill off any stray cells that might have escaped the scalpel.

  • josie123
    josie123 Member Posts: 1,749
    edited October 2016

    Fran, happy that thanksgiving to you.I forgot yours is way earlier than ours!!

  • 70charger
    70charger Member Posts: 591
    edited October 2016

    Getting our 1st blizzard today, hunkering down for the weekend. Had my kidney stones blasted on Tue. Lots of pain, lots of resting. Take care