Canadians in British Columbia
Comments
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Tazzy, I've been on Arimidex for 6 months, and the SEs are not bad...the worst is joint pain when I've been inactive for a while...
Ossa, Dr, Oxley was my PS but with my failed TE I've decided to consider DIEP and not sure he has the experience. He doesn't seem to keen on the idea. Do you have implants as well as fatgrafting if I may ask?
Marian, congrats on your marathon...you look fit and strong. Did you always have curly hair or did this come after chemo. My hair is pretty curly, when before It was straight. Wouldn't mind keeping the curl,Here is a picture taken recently.
Another question how often do you get tumour marker tests done? Ive been told every 6 months but that seems quite long to me...Very nervous about a reoccurrence at this point and don't really like the "wait and see" approach my MO is advising.
Hope everyone is having a great weekend, can't complain about our weather eh?
Carrie
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Carrie, my hair was curly before chemo and after too but now getting straighter~~maybe due to the change in hormonal levels with the Anastrozole. As for tumour markers I don't think many of us have ever had them done~~lots of discussion but most MO's seem to indicate they are not always accurate so no value unless symptoms. MarieK would attest to this. I take it you have had yours done?
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MarieK, whatever happened with your MO appt. after your July bloodwork?
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Carrie.. I have an implant, did have one round of fatgrafting, but it reabsorbed. DrOxley is not keen on DIEP His partner Dr Lee has done them.
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Marian: I. Have had mine done twice, once done by my naturopath oncologist and once through the cancer clinic...both were in the normal range.
ossi: thanks for this information...I was supposed to have dr. Lee then due to scheduling conflicts had dr. Oxley. He was not very supportive of DIEP so I'm glad to hear that Dr. Lee is experienced.
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Carrie
I was supposed to have dr Mien, but also due to scheduling conflicts I had Dr Oxley. Dr Lee did a couple of my fills as Dr Oxley was away. He seemed like a nice guy.. A friend had dr Lee as her PS She got implants and alloderm.. Much more "normal" looking than mine
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Hello Friends ... Long time!
Carrie, my friend had Dr Davis & Dr Lee. She has the worst botched up mess of a recon I've ever seen. If you are considering DIEP contact Sheina Macadam's or Peter Lawson's office for a list of qualified DIEP surgeons, not all of them will repair someone else's work.
Marian, great marathon photo.
Ossa, you must be having a great time with those grandsons!
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Hi she nice to hear from you. You coming this way anytime soon?
My GP contacted Macadam's office. Got a message back saying she only accept new recon patients does not take on patients not happy with other Ps. Her office did give my gp another PS name and number (same building as Macadam) , we have never heard back from them even though MY GP office did fax a request in twice.. I also emailed Dr Macadam explaining my situation and that my MO had highly recommended her.. also no response, so I am basically have no choice.....
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went to my gp today.... He sent me for x-ray on my pelvic... have had a lot of pain in area lately... Also have to go for urine test to try to figure out whats going on with my kidney??? Now we wait for results aaarrrggg
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She: thanks for the info...Inwill be trying to contact Sheila Macadams office since I Have not had any reconstruction so might be accepted.
ossa: Hoping that you receive good news from your X-ray...waiting is very difficult but I always tell myself: worrying about tomorrow robs you of today's peace.
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hi Ossa! I'm sorry no one has gotten back to you. I understand Sheina is only taking on new recons, but I thought they would have more than one reference for people. Sorry you're worrying about a kidney now, hope it's nothing... Not sure when I'll be around, probably Oct or Nov. I'll post as soon as I know and maybe we can have a get together.
Carrie I lived in Langley for 17 years! I hope Sheina will take you, she's an amazing surgeon. I'm not sure if she would consider a failed TE having no recon but it's def worth a try. She did my bilat DIEP five years ago.
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hi Ossa, sorry to hear you are having to wait for more results, I am thinking of you , knowing how hard it is .hope all the X-rays and urine tests turn out to be easy things to solve.
I like what Carrie said a about worrying about tomorrow ,, robbing you of today. Carrie , also love your photos ,you look great ! I had straight hair before , and mine looks similar to yours, just a little shorter.
To everyone struggling to figure out recons, I am thinking of you and in your pocket. Hope everyone can get that figured out and find good doctors.
So far so good starting tamoxifen , taking it at night. Had one morning where I felt a little nauseated , but ok. The arthritis I got from chemo induced menopause, feels slightly better now..... But one day at a time...
Enjoying what might be the last of the summer heat.
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When I last asked Dr. Lennox about not taking new patients ( there had been yet another article) he said that it was not that they were not taking ANY new patients, only that they were not taking delayed reconstruction patients~~in other words they are taking only new mastectomy cases (like She's, mine, and several others we know). I think I heard recently that there are one or maybe two PS's now in their office but may be. I know I heard that they are referring on to a couple of PS's.
Nice to see you here She and hope to see when you are in Vancouver. I am off to Nepal again Sept. 25 to Oct. 24.
Time for another get together for all of us from last fall and new friends too!
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hi all! We are planning another BC Get Together on Saturday November 22nd at Marian's house!!! Please post if you are interested! Make that afternoon free for great food! Secret Santa and of course boob talk!!!!!
Hugs Kosh
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as long as I am not having my revision surgery that day I will be there
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I actually wasn't given a choice - because my MO told me that because I've had my ovaries/tubes removed - post menopausal - it was better to switch. She told me that would happen when I first met her, or when I went on tamox.
Ossa: jumping in pockets for your scans.Hope you all managed to enjoy the last long weekend of the summer. Went camping in the Shuswap. Went with 2 groups of friends and the Outlaws who are visiting for a month from the UK. Thank goodness for wine.
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I've added the date to my calendar. Thanks Koshka. Looking forward to this.
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I am still looking for the list we made with "real" names and emails but hopefully all will check on this thread sooner or later! It is on my calendar.
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thanks Koshka , I am new this year to this site and bc., but would love to join and meet everyone .....is it open to all?
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Gardengirl it absolutely is! I am near 57th and Arbutus~~more details to come but last time we had a potluck that lasted all afternoon.
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Gardengirl. Everyone is welcome. we did this last year and has so much fun.. .. Glad we are doing this again
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I've only checked in periodically but I would love to join in if possible. I've got it in my calendar. It's my anniversary weekend but I'll try and leave that afternoon free
Sounds like fun.
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Allyp71, I hope you can join us, as Ossa said we had so much fun last fall!
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Good news (sort of) from doc. Tests all came back negative.. no mets..yay..... However doc thinks my pain is muscle pain and that it stems from damage from rads, and mastectomy. Muscle has tightened up so much that it causes pain. Will probably have this for the rest of my life.. Have to note down what I have done when the pain is bad.. (and learn to avoid it) The pain I have daily is doable and better than the alternative. I will take the pain any time .
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Ossa, rads cause so much damage to the tissue! 6 years later I still have pain.
Looking forward to seeing you! I can drive this time!!!
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re: Get Together
Everyone is welcome! Even if you barely post on the boards and if you never! We had a good time last year and made new friends! Had some good boob laughs too!
Just face it! Nobody "gets it" like we do.
Stay tuned for details. Last year we emailed everyone in private and we also made a list of what everyone is bringing etc. also gonna try Secret Santa this year too!!
Hugs Kosh
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I have sent out the invite to those who came last year and hope they invite other friends too. Nov. 22 at noon and PM's yes for address etc. and email addresses if anyone wants to exchange them.
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Who do I send my email address to for more info on the get together?
TIA!
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Allyp, send me a PM.
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Ossa - sorry remind me? where is your pain. I am currently seeing a physio for my scar tissue under my arm/across mast site. She has given me exercises and massages it. The scar tissue has caused my muscles to tighten and hence my shoulder rounds in... by doing these exercises it straightens my posture, stretches my back shoulder muscles too. Really have felt a difference. Now I am dealing with a broken ankle I can only do the laying down exercise. Also the PT has reduced my le like you wouldn't believe.
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