Canadians in British Columbia
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The 14th of June is fine for me too.
Thank you for hosting the pot luck again Marian, much appreciated.
Kathy
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i can't make it that weekend
hope to make the next one have a great get together ladies0 -
Hello fellow BC ladies, I am in Abbotsford, I was a member of the Boards 8 years ago when I was diagnosed at 26, two days ago I found out I have a recurrence in my Supraclavical nodes...34 now mother of two. I will be heading to Vancouver for treatments as my original oncologist is there.
Just thought I would say hello
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too_young hello to you to and though I hesitate to say welcome back, I know that all of us are in your pockets as you head back to Vancouver for your treatments. Looking at your history, I don't see rads so I am thinking this is what may be ahead for you? Who is your oncologist here?
Kathy let's wait and see about the # who respond then make a decision for sure. I see that Ossa can't make it and would love to see her! Maybe July would be better though I know that anytime in the next few months people are coming and going.
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Hello marianelizabeth
Ty lol didn't notice that rads are not on there... I did 36 rad treatments. My oncologist is Dr Chia.
Michelle
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Hi Ladies, haven't been on the boards in a while. Just going back a couple of pages and catching up.
Marian … what a fantastic trip! The pics are amazing.
Marie … sorry to hear about Sam.
to all the new ladies … welcome.
Hope everyone is doing well!
Would love to see you guys but unfortunately can't make June 14/15th weekend.
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Thanks Marian. I should have been clear, I'm fine with either June14/15th OR 21/22, (just not June 7th).
Michelle, not fair and definitely too young. Did they even radiate Supraclavical nodes (with nodal involvement) back eight years ago? I know I was surprised when it was offered to me in 2010 - this was before the recent studies showing benefit came out - I refused.
Kathy
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I had the supraclavicular area treated along with the IMC, both of which I had never heard of. Inner or inter mammary chain is the IMC I think. Rads tech had to walk me through that one. But since I had a positive node with my mastectomy pathology even after chemo I guess that better to hit both those extra fields. Who knows!
I have heard good things about Dr. Chia.
I never liked my RO and wish I had been proactive last year. Oh well I know plan would have been the same and I am almost over it.
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I was pretty sure they did... however honest 8 years ago I sounded like a MO and the farther I got away from that time in my life I list my cancer knowledge.... slowly coming back.
Dr.Chia is great, although he took over my file a few years after finishing treatments, as my original MO Dr Tallos kinda disappeared... I assumed he retired.
I just want to go to sleep and wake up to go see him, it has only been 2 days and I am anxious to start the treatment plan. However feel it may be delayed as I posted in other threads my armpit has a infection, been on 5 sets of antibiotics and it is still not better
not sure if they will have to clean that up first or not.0 -
Marian you are so sweet to offer your place again for our get together.
I'd love to get together but both weekends mentioned do not work for me. Keep me posted on the final date in case plans change.
Michelle - welcome back but sorry you have to be here at all. You must still be reeling with the news of a recurrence.
How did you know you have a recurrence in the superclavical nodes? Did you feel it or was it detected on a scan?
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Marie and all of our BC/BC sisters~~let's put the get together off since there are so many conflicts in June. I am off tomorrow and after the retreat my DH and I are going to try some Montana camping then visit friends in Calgary and Edmonton~~back home June 12. Spring is certainly here but I am looking forward to more heat. I was spoiled in Nepal and Turkey. Hope all is well everyone.
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Our newest grandson Gunnar. We now have two handsome boys Logan is 6 moths and Gunnar is 1 week soo blessed
Too Young.. sorry you have to be back here. I live in Chilliwack but work in Abby..
Hope the rest of you ladies are all doing well
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Ossa, congratulations,what beautiful grandsons you have ! Wishing all your family the very best. Thank you for sharing the photos, loved seeing them.
Too young , sorry to hear you are back here , hoping your infection clears up for you and your treatment will start soon for you. Thinking of you and sending hugs.
Almost finished rads, June 3 last day, a little sore, red and itchy...but 3 boost more ...then done ....then get my mind on starting hormone treatment in a few weeks.... Eyelashes starting to fall out now , but I have 1/4 inch of hair all over my head. (Yippee, ready for summer and no more wig!)
Hoping everyone is feeling well and wishing all the best to everyone!
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Mariek. I found the node my self whirl taking a shower, I wasn't looking for it and it kind of just jumped out at me. I honestly after 8 years and a bilateral mastectomy I and all treatments I really didn't look for nodes.....
Gardengirl6 thank you for your warm welcome back...... Still waiting for appointments
Ossa beautiful grand babies !!!!!!!!!
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lamp - I am in Westbank - would love to meet up with you and Dutchgirl. I am off work at the mo - recovering from a sal-ooph. Would be great if we could arrange something.Ossa: what precious little men - too cute.
Hugs to all xxxxxxxxx
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Joining!
I'm in nanaimo. I am almost 4 weeks post op and see the MO on Tuesday. I see the RO next week on the 25. I already know I need chemo. I am considering a BMX in between chemo and rads.
Hi fellow ladies...
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Welcome islandmama to our own BC/BC thread! One year anniversary from end or rads yesterday~~a few more anniversaries in the near future~~where do you decide to say one year from treatments etc.? Day of final surgery, day from diagnosis? I know it probably doesn't matter but I am curious as to how others see these things. I know I will remember the date of the day I found the infamous lump!
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Good question, Marian. I can't remember the exact dates of the beginning or end of my treatments, but the date that I got the diagnosis is forever etched in my memory!
Hi Tazzy! Hope you're doing well.
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I have many anniversaries...date I found the lump, biopsy date, dx date, first and last chemo dates, surgery date (which is my NED date) start end of rad date.... .and I expect my DH to buy me presents for each - ha haha!!
I am doing OK dutchgirl - thanks ! Just back at work after my sal-ooph. This will be my first 5 day week since May 20 - date of surgery. I then took off 2 weeks to just rest and recover.Bad timing for surgery actually as I am very much into the World Cup so had I scheduled my surgery for last week I'd be at home watching it all instead of having to PVR it
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hey there B.C. girls..havent been on for a really long time...just had my 6 month check up from my GP and she said everything was a ok and mammo will be scheduled in december....have been tired but could be the 54 hour work weeks that ive been putting in for the last 2 months.... DH bought me a bicycle for my 54th BDay ...now to relearn how to ride since i havent been on one for at least 22 years...lol...Lamp, Tazzy and DutchGIrl ...would love to get together since we are all in the same neighbourhood...Kelowna for me...
Shann
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Happy 147 Birthday Canada!
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Happy Canada day to all my breastfriends
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Hi everyone, not sure if I posted on this board before but I live in Langley and have finished my treatments in April. Now it's "wait and see" which I find a little unsettling. next step for me is reconstruction and Am considering DIEP and possibly fat grafting. Can anyone recommend a plastic surgeon in the Vancouver area who is experienced with this procedure?
About the question of PET scans, I had one done in May which showed no cancer activity...but this was after I had an MRI done which showed 3 bone tumours...I have been seeing Dr. Klimo for a second opinion, and he strongly suggested that I should've had these scans done before my treatment, I only had a bone scan and a CT scan, which showed nothing. So now not sure where I stand we're these tumours cancerous or not, I will never know. So my recommendation if to get PET scan before any treatment.
Well, best wishes to all you fellow cancer sisters..
Carrie.
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Wow has it been quiet on here - hope everyone is out and about doing fun, summer things. Below is part of a post I put on 2013 Survivors thread:
I was in my friends truck last week - we got rear ended - stupid woman who was in a bigger truck, didn't even try to stop - according to reports - doing about 70-80 km and bang! But lucky not in my car cos I think we would've been squished like flies. Totalled my friends truck. So had lots of aches and pains from that - yuk!
Now we have a raging forest fire (Smith Creek) which as the crow flies about 1 km from our neighbourhood. We are OK and not evacuated or on alert. But friends are we have a house full of evacuees - praying for rain today with no wind.
Welcome Carrie: With chemo brain we don't remember if you posted here before or not
There are a few ladies from the Lower Mainland on this board so am sure can help you.Hope you are all managing to have a good summer so far. Love and hugsxxxxxxxxxxxxxxxx
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It has been quiet! Carrie, you might get more answers about scans on the Canadian thread which is more active than this one these days. But I think it is pretty standard policy to do just the bone scan and CT scan prior to chemo and not the PET scan. I did have a PET but that was because a lung nodule was identified on the CT scan. Sounds good that the PET did not show any activity!
Tazzy, so glad you and your friend are OK! Wildfires all over the news and hope that one near you goes out soon~~a bit of rain here today so far.
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Carrie I forgot to say also about the PS, that I think most plastic surgeons in Vancouver do not take delayed reconstruction patients. My PS is Dr. Lennox who works with Dr. Sheina MacAdam and that is the case for them but I have heard that they have a couple of new PS's in the office who might take new patients.
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Hi Tazzy, glad to hear that all is ok with you, firewise anyway. I hope you're not hurting too much from the rear-ending. What a generous offer to open your home to evacuees! In 2003 friends of ours, an older couple, took us in, teenagers, dog and all! Because we lost our house, we ended up staying with them for six weeks until we could move into a rental. Even after all this time, I don't think that I will ever be able to thank them for what they did for us. It's times of adversity that really bring out the best in some people.
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hi everyone, popping back in after a break .
Tazzy ,how wonderful of you to help out taking evacuees in. I hope the fires are out sooner than later, the province does seem to be burning right now. Hope you and your friend are also feeling better from the car accident, how awful....glad you are okay.
Dutchgirl, sorry to hear you lost your house , that must of been so hard. It is nice to hear about your neighbours, and what a big help they were.it is nice when life gives us a hard time , the people that step forward to help.
Hoping we are all getting moments this summer to relax and enjoy ! Hugs to all.
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Hi All!
I have been busy enjoying life and not really enjoying an ongoing reno...
I don't see anything about a get together - are we going to wait until the Fall now?
Carrie - Dr Klimo was my original ONC before he retired. I really liked him but I think it's sad that he is telling you now what you should have had done but obviously didn't know or else you would have for sure. I don't find that vey helpful at all....
I always thought that we should have had some scanning done before any treatment just to find out what we are dealing with but no one ever suggested it to me either!
Since my treatment ended I have had tons of scans in these last 4 years!
I have had 3 PET scans so far (2 last year to confirm METS in my femur) and 1 just last week to see how things are going. I see my ONC on Monday to discuss the results.
I also had my blood work done yesterday but I won't check it until just before my Drs appt. I have made the mistake before of checking it on a Friday only to have my TMs go up and have to worry and fret all weekend. I'm NOT going to do that this time!
I hope everyone is doing ok and enjoying the summer - rain today - but the weekend looks good!
Marie
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Hey all! I just found this thread and wanted to drop-in and say hello. I am in the south surrey/White Rock area. Iwas diagnosed in May (after a painful month of tests and waiting), surgery 2 weeks later and am now on chemo. I go to the cancer clinic in Surrey. It seems all my June chemo sisters who are American are receiving dose dense chemo which I have read is more effective, so wondering if we don't get the best tx in Canada.
Anyways, I was excited to see a thread of ppl close to home. I'm a 41 yr old mother of 3. Shout out to my British Columbia sisters!
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