mets to lung
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Carolben, hope you gain new strength each day, and begin to feel better soon. I'm with you concerning tummy troubles and fatigue. I will be thinking of you as I lay down for a much needed nap.
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Brenda, Special hugs and prayers that your MRI results will be negative for any progression. Peg
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Brenda did u feel me iwas with u also
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I mistakenly said one of my liver mets is stable...meant to say one of my lungs mets is stable : Liver mets are smaller. I declined chemo...just doing Herceptin/Perjeta, and estrogen therapy. Due to side effects I'm stopping xerta (bone shots). What is also helping is taking large dose of turmeric and green tea supplements and essential oils.0 -
hindsfeet how do you take the turmeric?
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Praying for strength for all my lung mets sisters. This road we are traveling together certainly takes its toll on us. I so admire you all for making choices that are right for you. I had a bone scan today and get results tomorrow. Have had increased pain in my right lower part of the rib to the point it wakes me up and I can't get back to sleep! Glad I don't have to wait long for the answers!
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good results from your brain scan, that's what I wish you, Brenda! Thinking of you with love.
Had a blood test Monday & neutraphills went down - & this is after 3 shots of Neupogen?? Anyone else have that happen? 2 shots of Neupogen usually bring all wbc' right up. So I'm having another 3 shots of Neupogen - last one today & blood test tomorrow. Having headaches, back ache, bone aches. Woke up this morning with a roaring headache & a really sore back, then threw up and tummy had a run. Great way to start the day - it can only get better! Thanks everyone for good wishes! Know these aches etc can be se from Neupogen.
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Carol even so they are annoying... hope they figure it out. 530am here in philly
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MO just called to say, "Your scan is perfect."
One small statement for MO, 10 giant bounds and leaps for Brenda!
Your words, prayers, hugs are keeping me warm with joy!
Thank you, thank you, thank you.0 -
Brenda what beautiful words to hear from your mo. Congrats. Let's pray that more of us can get results like this
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Love perfect
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Wonderful news, Brenda!!! You go and jump and leap, girl!!!!
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Great news Brenda!
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Brenda, that is the most awesome news! So happy for you, you must be jumping for Joy! Yippeeee!!
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I got mixed results at my appointment with my oncologist today. The bone scan I had yesterday was good. No Cancer lurking there. My blood counts are troublesome. The absolute neutrophils are too low for chemo. It's hard to believe they are still low when the last time I had chemo was the middle of August. My tumor marker is slightly elevated, 67 and has been below 40 for most of the time I have been on chemo. My doctor believes there is some "subtle" progression going on somewhere but he can't see anything on the scans to indicate where. He is worried about my weight loss and lack of appetite and started me on megace. He is going to present my case to the tumor board and see me again on Nov. 20 to determine the next plan of action. So, the waiting game begins again!
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Brenda, big big yay, what great news!!! Been thinking of you and wanted to ask what prompted the brain scan? Were you have symptoms or anything? Whatever, that is such great news, I'm really happy for you!
Glenna, we all wait with you - it's a hard game to play, waiting! Hang in there. My sister always tells me to hope for the best but be prepared for the worst. I like the the first part, and try to ignore the preparing for the worst, I mean, we all know it's going to get worse, eventually, probably, but to live in hope makes today bearable!
My bloods are all up again - reds are normal and wbc & neurtraphills high - no wonder, after 6 shots of Neupogen!!
So I'm 2 weeks from the last chemo and just starting to feel a bit stronger and the light's back on! Spent some time at the beach yesterday, watching a friend sky dive for his 50th birthday, that, added to blood tests and grocery shopping had me flat on my back on the sofa for the rest of the afternoon! But that's ok, first big outing in 2 weeks!
Am going to lunch with a friend today - somewhere on the beach, which will be lovely. I'm at the stage where the thought of food is attactive at times, but it all tastes like crap still. Then I'll have a meal and wow, it tastes good!! Maybe at lunch today - grilled fish & chips, cant go wrong! Sure I'll be back on the sofa for the rest of the afternoon.
I'm enjoying the fact that the stress of having to be better enough for the next chemo is gone. I can give my body the time it needs to recover. So tomorrow the yoga dvd goes on, and I'll do what I can there, time to get this body moving gently.
Strength and humor and hope to all of us - we are all warriors here!
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Carolben, extreme vertigo prompted me to get a brain scan. Woke up Saturday morning after Friday chemo and I could not sit up for 2 seconds! Got better Sunday, then Monday I went to a regular doctor to have my ears checked and they were fine. I am imagining you getting your immune system up and going. You never know what your own body is capable of doing! One of these days I will try getting off treatments just to recover from them and to see if some of my own defense systems still work. I know why our doctors don't recommend it, but if the patient insists on it, they can only agree. Did your doctor agree to get you off treatment or did you have to sign a waiver?
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no, Brenda, my onc is very big on qol. We talked about stopping 1 cycle early & he fully agreed with me. Every time I see him he asks if I want to continue with tx. He will tell me his opinion but always has left decisions up to me & been respectful of them. I think I got lucky with him!
Had the most divine massage this morning, am now ready for a little nap
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I've been off treatment since August and have seen no improvement in my white counts. I don't like being off chemo. In my mind, when I am on chemo I am doing something to keep this beast at bay. When I'm not on chemo I worry so much about what kind of growth can be going on in my body somewhere. I'm tired all the time yet have trouble sleeping. I want to go rake leaves and be outdoors, and yet I can't for so many reasons ... Mold in the leaves for one, trouble breathing, and just lack of energy. I've found a project to work on at my computer .... Organizing and backing up photos ... But that's not all that exciting. Our church is holding it's annual winters relief next week where we house the homeless. There are so many things I used to do to help with that. Now my doctor wants me to stay away because of the risk of infection. Although I have found some things I can do (like makings baggrd lunches) it's not the same as actually participating. I know, we all have to make changes depending our our circumstances, but it isn't always easy. Guess I'm on a pity party today. Better drink my smoothie and get moving. Good day, everyone!
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gator gal I hope you start to feel better soon
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Wow Gator...I know what you're saying about chemo giving you that sense of security! My last one was 10/22...gladly...not because of counts but new onc believes 22 months was enough & scans & tests have looked good for quite some time. Still...there's the concern...it found me 3 times...what next????
Sorry you aren't able to do the things that made you feel vital...at least that's how I think of it. I also make sandwiches for the homeless...all I could do because, like you, chance of illness was high. No working in grandkids' school classrooms (retired para & school secretary)...breeding ground for illness. And the mall...ugh. I'm hoping going off will get/keep me a bit stronger. Most of the time I felt really good, a bit tired, so it was hard to think in terms of...this might not be a good place to be. For me, the pain in my stomach of diastasis from diep flap surgery is more prohibiting.
I hope your counts start having babies (Redwolf says that & I love it!)...and energy finds its way back home for you XOXO
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Hi All,
I got this link from another forum. It is about a doctor who gets it when cancer patients talk about their fatigue:
http://m.jco.ascopubs.org/content/19/21/4180.full
Brenda
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Brenda, thanks for that article .... Seems to validate how I've been feeling lately! I do hope to get some energy back though I know I'll never be the go-getter that I was before! My doctor does seem to understand the fatigue. he gave me a prescription for Ritalin which does give me energy but I hate getting on that Merry go round of taking one pill help me stay awake, another pill to help me sleep. I'm pretty careful about only taking it when I really need to be alert.
Ronnie Kay, are you NED? Thanks for understanding where I am right now. I was enjoying the break originally because I thought it would be short. Now that it's extended into three months I'm starting to panic. I should just relax and enjoy it!
Did sit all day at my computer organizing photos, it ended up being a two day project but I got it done and feel good about accomplishing something!
Glad I have a place to come to vent!!
Glenna
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Barb, how are you feeling lately?
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We can have our pity parties here with each other since most of us probably don't want to do it in front of kids and husbands.
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I am feeling well Glenna. Thanks
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Hello all,
I was wondering if anyone has had a similar experience...
I am stage 4 HER2+ with mets to bone and a new met in the lung . The CT scan showed a brand new 25mm nodule on the left lung ( happens to be the side of the original breast cancer). The last scan was three months ago and there was nothing there and my Oncologist whom I only been with for a year thinks that this thing could have grown that big in three months.. I am so confused and upset as to how something like this could even be possible? Could it grow so freakishly large in only three months?
Currently I am on TDM1 and there was no progression in any other areas, except for this mass on the lung. My gut is telling me that this could be possibly of an inflammatory nature and not necessarily malignant ( I was very sick with the flu and cough on the day I took the scan and was even apprehensive about going on that day).
Obviously, the only way to really find 100% is to do a biopsy. Has anyone ever found themselves in a similar predicament?
Feed back would be appreciated
Thanks
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mygod,
Do you have pleural effusion? If you do, they could drain and test the fluid. It's less invasive than a biopsy.
Good luck.
Brenda
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Brenda,
No I don't. Its just a freakishly large nodule that showed up on the CT scan.
I scheduled a "second opinion" with my old Oncologist whom I was with for 4 years before I moved out to the burbs and am hoping that she will help me understand this better. I'm hoping she will approach this in a different way..so maybe biopsy this first and find out if the Taxotere+Herceptin+Perjeta is necessary or could we do xeloda+TYkerb combo instead..
Thanks for responding
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mygod,
First of all, I don't think 25mm is "freakishly large" so I wouldn't worry so much about that. In my first PET/CT scan one of my lung tumors was 4cm and I didn't even know I had cancer. I would also think, as you do, that it is not new but was missed on the earlier scan. In general, I found the Radiologists to be highly imperfect. I know tons of people who have found out that things were missed on their scans. Big things. I believe part of the problem is we are not assigned a Radiologist the way we are assigned our other doctors. We don't have a relationship with our Radiologists. They just go over scan after scan after scan completely disconnected from the people whose bodies they are analyzing.
I had my lung tumor biopsied and the procedure was very quick and simple. There is always a danger of lung collapse but I don't think it's super common and they monitor you after the procedure. If there is a lung collapse, they are right there and they know how to fix it. My MO wanted to be positive that it was breast cancer, not lung cancer. Luckily, it was breast cancer in my lung which has a much better prognosis than lung cancer.
Did the CT scan show FDG avidity? If so, I would think it's not some kind of inflammation but I'm no doctor.
Hoping for the best for you!
Hugs, Susan
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