mets to lung
Comments
-
Thank you Cookie! This is the only place I can come where everyone understands everything. I got the final results yesterday. All 3 lymph nodes tested have cancer cells. I went in thinking there was one node that had it and the other didn't from CT scan. Came out with a surprise node and all 3 positive. They will be attaching a Ki67 score to it as well as hormone status. I expect Ki67 to be higher as my first tumor was 52.
Today, I am starting on my full dose (400 mg) for me of Kisqali. I've been taking 200mg for almost 2 weeks to try to get my body used to it before the wham! I'm going to attempt to possibly trick my system a little and take 200 at breakfast and then 200 at lunch. Maybe my digestive system will tolerate it a little better that way.
I asked the Kisqali rep why can't you take 200 in the a.m. and 200 at bed? She said their trials didn't work that way. Hmph. I'm always questioning a better way to do it or make it more tolerable. I'll never go to 600 because I know my body and I know it won't tolerate that.
So the experiment begins! I can't imagine taking this pill 3 hours apart could make any difference in it's efficacy. Maybe they want people to do it that way so they don't forget to take it.
Monday is my last loading dose of Faslodex, thank the Universe. Then onto once a month. Here's to hoping it all works!
3 -
I am sorry they found more cancer. Hopefully they will test it for mutations as well. I am not sure if you said they had before.
0 -
I was surprised. I was hoping. Monday, they are doing a 360 Guardant to test for mutations. The only other thing the pathologist will show is hormone status and Ki67 score.
1 -
The Guardant360 will tell them a lot. Sounds like you are on the right track.
0 -
Received the hormone test back. ER 90+ (original 99) PR neg. (same), Her 2 negative (her 2 low last time). Small changes. But the KI 67 score was only 2 percent. Last time 52 percent. So at least it's not dividing quickly. Best news I've had in awhile. Last loading dose of Faslodex yesterday, so thrilled about that one!
0
