mets to lung
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Have you called them? My Dr. won't call me unless I reach out first.
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Brutersmom,
Yes,I emailed them to let them know I completed the CT on Tuesday like I normally do. They did not respond so I called on Thursday just to make sure they received it….they said they would contact me when they had a chance to review it. Just hoping they can give me some info before the weekend.
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What hospital do you use. Sounds like my facility.
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in St Tammany Parish LA
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I've had mention of a couple of types of opacities: groundglass and tree-in-bud. I've seen a pulmonologist for them, but he's just keeping an eye on them. They seem to be resolving and may be from inflamation or aspiration due to my esophageal mets. My next scans are at the end of May, so hopefully, they'll continue to resolve. I'm usually not short of breath, but I do check my O2 sats just to be sure.
Carol
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bookworm, my experience was that a few years ago when I had a lung nodule show up on a scan that was just slightly increased than before, my onc was not concerned. She said if the size had jumped considerably, she would look into it further. So we just monitored the situation, and now it’s a non-issue. Your nodule increase seems like a slight change, so it may be that your onc will want to monitor it with no treatment changes at this time.
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sunshine99,
Hoping your next scan is good!
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divinemrsm,
They have been watching a bunch for about two years due the number of nodules and opacities. None have really gotten that big or progressed in that time frame so I am hoping this is can resolve like some others or just not grow!
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so Pulmonologist says nothing worrisome on the Ct, but still wants to have an appointment by telephone on Monday! Thanks to the ladies that read and/or responded!
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I have a 1cm(ish) lung nodule, opposite side of breast cancer. The radiologist thought it suspicious because of slight growth between PET scans, but my onc disputed whether there was really growth or not. (He was also overly optimistic about my bone mets, thinking they were inflammation.) Also, since my tumor and bone mets all shrank with AC-T chemo, the lung nodule should have also, it if were mets. So who knows. There doesn't seem to be any perfect reading of these scans. I guess it doesn't matter in the big scheme of things, since the treatment would be the same either way.
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Hi all, back with results from my right lung biopsy. Not MBC in my right lung, it is stage 1 lung cancer.
Left lung is MBC with lymph node involvement. HER2+, but awaiting FSH results on that. Possibly will have a bronchoscopy on my lymph node.
Tumor board will be discussing my treatment at their next meeting on May 8th. But my oncologist does not think that surgery on both cancers will be an option. Ugh I hate waiting.
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oh gosh @fossf56 , what a double whammy! A triple whammy with the worries about insurance. Keep us posted on the treatment plan and I hope you have some good things in your life, too.
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My oncologist is still on vacation but leaving, so I met with another oncologist today who talked me through the tumor board discussions and plan. I like her and I've been assigned a RN advisor.
Over the next two weeks I'll be having a biopsy of my hilar lymph node to check which cancer is lighting it up.
Getting a port placed, having an echocardiogram and a brain MRI.
After that the plan is to start TCHP (Docetaxel, Carboplatin, Pertuzumab, Trastuzumab) every 3 weeks for 4 sessions. Then Herceptin/prejeta until I'm not sure when. That treatment should also work for the lung cancer and I'll have a scan after two rounds.
I did alot of bloodwork today and they are sending some to Tempus for DNA hereditary cancer testing.
The oncologist and advisor kept saying they knew it was tough news, but I told them not knowing anything was worse.
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Fossf56 This sounds rough. Sorry you are going through everything. You are right not knowing is worse then knowing but it is still so hard
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My MBC has now been diagnosed as TN and after 3 TCHP infusions I'll start with Gemzar/Carboplatin on Monday for infusion cycle of one per week for two weeks and one week off. I'm pretty annoyed with the misdiagnosis and the fact that I don't have genetic results yet from my breast cancer tumor in my left lung. A brain MRI showed what maybe a stroke (WTF!) but the neurologist is sending me for another in case it is mets to the brain (also WTF). I'll have that MRI next week. Then should have another PET scan before the second GemCarbo treatment.
I'm also moving to a different practice in September where I hope they are more on top of things than the current practice where I don't feel that communication or follow through is good.
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fossf56 it sounds like you are making a wise decision in changing practices. I just did that and it has been a great help. I feel like I will receive better treatment. I hope you get through your tests without to much frustration and your new practice has abetter understanding of you cancer.1
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@brutersmom I do feel better now that I've decided to switch. My chemo schedule has changed though and it runs through the appointment I have with the new oncologist.
How did you "break up" with your former practice? I haven't mentioned to them that I am moving.
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Fossf56. That can be a challenge. It sounds like you have been through the mill. Go to your appointment and ask the Dr. or the nurse navigator how they want to handle treatments. They might be able to get you right on the schedule. You really don't need a reason. You can just say I really feel like I needed to make this change.
I got lucky. My cancer center had very few women Physicians. I felt like it was an old boys club in the Breast Cancer group. I wasn't happy and my daughter agree that my care was substandard so I started looking around. I discovered that Penn Medicine in the neighboring county had only women Oncologists for breast cancer care. About the same time I read an article that women who receive care from female drs. for serious and chronic illness live longer and do better than women with male Drs. Once I figured out what I was doing that became my reason. They tried to talk me into staying sayinh I could switch to the new Dr. that was just completing her fellowship. I told them that was good to know and maybe after she has been there for several years and she has some experience, I might come back. My real thoughts were, I don't think so. She was trained by the older Drs. and women drs. end up leaving because of the old boys club. I can't see it changing until all the old male drs. leave.
Since I don't like burning bridges it was a great excuse. I still have to move my eye Dr and my PCP. My PCP will be told my oncologist would like me with a PCP who is familiar with there oncology practice. I also need to switch eye drs. They want we with an ophomologist. I see an optometrist. This has gotten muddy. I have a retina specialist from a detached retina years ago. I was going to switch to him but he left after the area after they were bought by the local hospital that owns my old oncology program. My new Dr just completed his fellowship at wills hospital Now I am torn. My ophthalmologist move somewhere down around Philadelphia/New Jersey which is about 2 to 3 hours with traffic. So he is no longer really an option.
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@brutersmom I just today had a follow up with existing oncologist, and earlier this week with the new oncologist who I am switching to. Both have different roadmaps for me and I prefer the new.
So I'm having two more GemCarbo infusions on existing schedule and then will switch.
New oncologist recommends surgery for right lung to remove the lung cancer, then enhertu low dose long term to treat the breast cancer which is actually finally diagnosed as Low HER2+.
Old oncologist wants me to continue with gemzar long term.
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Sounds good. I hope it works. I had my second visit with my new oncologist. I asked her to explain my diagnosis because I felt like I never got a full explanation. When she was done my daughter commented that no one ever really explained it in that much detail. Our understanding is so much better. Communication is an important part of our care and we must feel comfortable with our Drs. So far my treatment has not changed much. She does want me off aromatase inhibitors because of my side effects and the fact that my antidepressant needs increased again. I will start foslodex in October. She believes I will do better both with fewer side effects and cancer control.
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hi Friends I had a lung biopsy came positive for breast cancer. But luckily one solitary node size 1.6 cm so doctors said it’s oligometastatic with cure. They started me on tcp for 6 cycle and will scan again in January to see what the step would be. I was er/ pr positive 5 years ago but after surgery was mild her2 positive so did another year of HP and Nerlynx. This time biopsy showed her2 strongly positive . Doctor decided chemo HCP and said it possible for node to melt away. They will rescan in January and then posssible VATS or Stereotactic radiation. My question is as I had taken HP for one year will it work this time?
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I see this thread is inactive. Is there another thread for more lung mets?
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I just perused the first two pages of the Stage IV forum and did not see anything more recent for lung mets. If you post, it will bring the thread to the top of active topics and it may re-awaken the thread. Alternatively, you could start a new topic to address your questions/concerns. Take care
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Thank you. May I ask why you decided against Faslodex? My MO wants me on it and I have read about it with a big OMG. Will already be dealing with Kisqali SE's. Just curious.
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Fear! I did the first two loading doses and, literally, ran away from the third. I am simply too freaked out and creeped out by the injections. My fears don’t diminish. I don’t really get used to things like that. Short of sedation, which would not be appropriate, I simply cannot tolerate it. Arimidex, which I am now on, was actually the first AI I took over 13 years ago.
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I feel the same way. I got up this morning with a panic atttack about it. I see the side effects and I'm not sure I can do the Kisquali AND those side effects too. I might change my mind because my AI did fail. So I am in a different situation. But I need to bite this elephant just a little slower right now.
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hippmark,
Though I feel like a newbie in some ways, 13 years at stage IV with no progression lulled me into basically pushing mbc to the back of my mind. So like you, I am suddenly overwhelmed by treatments, tests, appointments, research, learning, etc., and so much of it is new (Ibrance, Kisqali, Verzenio? Nope, not in 2011). However, the one thing I did learn was that I didn’t need to understand every little thing right now. I just needed to learn and pay attention to things that needed to be dealt with soon. This didn’t mean I didn’t consider long term consequences or se’s. I just had to put them in perspective against the good they might do.
As for side effects, knowing about them in advance is a mixed bag. Obviously, you want to be aware as some can be critical, but not everyone develops every se, and not to the same extent. Some develop se’s that get better, some get worse, and some have no se’s. There is no way to predict this and one person’s experience can be the polar opposite of another’s. Not entirely the same, but my radiation 13 years ago was a none event, piece of cake. This time, I have really been struggling with side effects that have impaired my mobility. The difference in experience has stunned me.So, let’s dine daily on bits of that elephant 🐘 😊
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100 percent. Thanks for your perspective. It helps!
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@hippmark i started foslodex in October. I have had no issues with the shots. Except for the injection itself I find foslodex so much more tolerable then aromatase inhibitors.
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