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CONSTIPATION--problem with so many of our drugs

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Comments

  • minustwo
    minustwo Posts: 13,806

    BevJean - SAS will be along in awhile & she is our expert. Have you already had surgery or is your chemo neo-adjuvant?

    I think I'd want gastroenterologist or colo-rectal doc to look at the problem now rather than waiting - even if you have to wait for colonoscopy. I will say that my docs told me to stop both Fish Oil & Vit E well before surgeries since both can be blood thinners.

  • I have had bilat mastectomy (just updated profileWinking) I don't think a GI would want to touch me right now while undergoing chemo. I feel comfortable waiting. Thank you for responding so quickly! I had 4 treatments of A/C which were really bad!! The Taxol isn't too bad and I've recently returned to work. I will wait on taking the fish oil just as a precaution. I was taking Vit E and have stopped that too. I have quite a story to tell and I will do so in another area of this forum. (suggestion as to where we share our stories?) I haven't really talked to too many others about my cancer/treatments. I am an RN and work in mental health. I'm sure we will reply to each other more. Nice to know others going through the same trials.

  • dsgirl
    dsgirl Posts: 193

    MinusTwo and BevJeanAnn.

    Thanks for posting the info on fish oil and possible bleeding. Ever so often I wonder why I am still here at BCO since I am not much of a contributor, always seem like my "journey" is/was somewhat easy and uneventful. so I have nothing to share that would be of value to others, but I have benefited and learned so much here the past 6 years. I have this subject in my favorites because Constipation has been a companion of mine for a long time. I recently had a colonoscopy, my 6th or 7th, lost track, and fish oil is on my list of supplements I take (ordered by my PC doc, to help lower cholesterol). The doc. performing the colonoscopy never did mention not to take fish oil, and for the firsts time ever I had excessive bleeding, blood clots, approx. 12 hrs after colonoscopy, Could very well have been caused by the fish oil, I take 2-1000 mg per day, and did take the fish oil that nite.

    On the constipation front, I was told to try fiber supplement and Colace, so far so good. Doc. told me to stay away from the Cascara Sagrada and use Mirilax only f I did get constipated again, although it really was a good remedy for me this past year. Only six days out from colonoscopy, and so far so good on the fiber stuff and colace.

    I did not have Chemo, but still have neuropathy in both feet, I only lost 4 lymph nodes, yet got truncal and arm LE, maybe another reason I hang around, there are so many wonderful women on here with good advice for us, and I appreciate that so much.

    dsgirl


  • sas-schatzi
    sas-schatzi Posts: 15,889

    hi sad here on kindle.Will check in when laptop is fixed

  • 123justme
    123justme Posts: 169
    Sounds like I need to eat yogurt twice a day! 😜
  • Minus two-

    With my age and previous hx of colon polyps, I will be able to have colonoscopy as far as insurance coverage is concerned. I haven't seen anymore blood with bm's today, so I am happy. Thanks for the input!


  • minustwo
    minustwo Posts: 13,806

    dsgirl - yes I follow the "Grrrrrr" thread about LE and the "VENT" thread about neuropathy even if I don't post much.

  • minustwo
    minustwo Posts: 13,806

    BevJean - hooray, no blood. Hope it's hemorids & things go easy (pun intended)

  • sas-schatzi
    sas-schatzi Posts: 15,889

    MinusTwo. Hi sweetie , i'm here and feeling no pain :) Thank you for thinking of me Went to a wonderful party tonight. Had computer problems all day.

    Bev.....I'm a retired nurse. I started this thread b/c BCo didn't have a constipation topic. BCO since started a constipation topic on the main board.

    Several parts to your question Will try to do some justice tonite--

    You don't state that the rectal bleeding preceded chemo. You do state that you have had constipation with chemo. Then you do state " After the BM, I had some severe rectal pain as if something large was pressing on the rectum. I also had bleeding for 3-4 days requiring a pad in panties. After the pain went away, I have had bright red blood passing with the stools. I am concerned of colon mets." " After reading all the great tips in this forum, I am a little relieved because it is most likely internal hemorrhoids" " My original question to you is; with rectal bleeding/possible hemorrhoids, should I take fish oil? I am afraid to take the fish oil because I remember hearing/reading something about the fish oil interfering with blood clotting. Any suggestions?" After a member suggestion of a GI appointment you responded " I don't think a GI would want to touch me right now while undergoing chemo. I feel comfortable waiting."

    Bev do you want a real response? Please, I will work on a real response. But what I read here is you aren't looking for one. The hardest thing to do between nurses, is to say you are wrong. You are wrong. I can guide you if you wish.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Bev, As MT suggested, It is a good move to see the GI guy as soon as possible. That will give them a chance to evaluate all the tests you have had done. They can order whatever else they want before the scope. This approach will prevent delays of getting a test that may want done before the scope. PLUS, the GI guy can tell you what to do if bleeding reoccurs. I think that is the best approach. Docs get bummed when they have to say I wish I would have known.

    Docs don't want to touch the colon for minimum 6 weeks after bleeding unless it's an absolute problem like an uncontrolled GI bleed. Would you go with a new GI guy in Grand Rapids? If so, you should check and see what there lead time is for first appointments. Also, ask how long after chemo they like to wait. If the lead time for the first appointment is close to the 6-7th week. Generally, they have the scopes scheduled 2-3 weeks after that evaluation. That would put you in the window to schedule a scope at that time. GI docs have to have seen a patient with in the prior month before a scope. Schedule the appointment to meet those two factors. The scheduling gal may not know about chemo just ask her to get an answer from the doc and you'll call back.

    Glad the bleeding stopped. Glad the prunes, fiber, and water are working. There is a stewed prunes and stewed apricots recipe near the beginning.

    I have a bias against Miralax because of it's warning to not be used by someone with kidney disease. That tells me it's absorbed. Until someone can define what Polyethylene Glycol--Miralax does once it get's into the circulatory system, I'm against it.

    Please, get your path reports from the last scope. And take any CT scans of the abdomen &pelvis reports. Any ultrasound reports too of abdomen or pelvis.

    Posting this on the board too. :) Good Luck.


  • Thank you sas! Going to call my family doc and have the appt made. I know there won't be any problem getting in with a GI doc here. Like I said earlier, I am ok to wait since the bleeding and pain have stopped.

    My original question was, with rectal (or any) bleeding, should I take Omega 3 fish oil supplements?

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Bev that's a hard question on Omega3. The easy answer is ask your doc. Omega3 is the cavalry that helps to control and interfere with all the negative prostaglandins produced by the Omega6. Say they're roughly 30 prostaglandins produced with Omega6 as the precursor. Half of them have negative affects.

    Omega3 has been processed out of our diets. You could try a diet higher in Omega3 and thus avoid supplements. Flax seed freshly ground is a great source for fiber and Omega3. But flaxseed is very high in Lignan. They're has been mixed reporting on lignans and BC. I switched years ago to fishoil b/c of this.

  • minustwo
    minustwo Posts: 13,806

    But SAS - were my docs correct that it does thin the blood?

  • sas-schatzi
    sas-schatzi Posts: 15,889

    MT every thing is relative. Our body is meant to be in balance. In a previous time before 1900 and the introduction of processed foods. Food was home grown or obtained from the land. Soils weren't depleted of nutrients. Crops were rotated. Then pesticides and food processing were introduced. Over time less and less crop rotation was done. Food was produced but with less nutrient value as the soil was depleted. Crop rotation allowed the soil to for lack of a better description to remain strong. Crop rotation allowed for natural resistance to destroying insects.

    The need for Omega 3 was observed back to Pharaoh times in Flax. The earliest finding in an Egyptian tomb was several thousand years ago. Those that ate Flaxseed were healthier than those that didn't. Charlemagne decreed that his subjects eat a serving a day of flaxseed.

    In the 70's research was heavy into finding out why Japanese and Inuit had less cancer. The conclusion was diet. A diet that was high in fish that was heavy in good fat. That chemical(bad word , but will do) in the good fat was identified as Omega3.

    Omega 3 is a essential fatty acid as are 6 &9. I forget what the ratio should be, but in our processed world 6 is predominate. The balance is disturbed. EFA's must be obtained by diet, as they can't be fabricated/made by the body. Interesting that we didn't develop this ability over time.

    I first started reading about Omega3 in 1997, with my first episode of diverticulitus. I wanted to do something to protect the bowel. I came across Omega3. I started taking it. Did great things for the bowel. Over about three months I saw a great difference in my skin. Over time I was faithful and then fell off. I' have had my cancer troubles, but think without the Omega3, I wouldn't be here. My genetics are awful as you know. I think the number is 25:53 with primary cancers. I've faired pretty well, considering those numbers. If my twin and brothers were compared on certain things, it would be interesting. One very visible thing is varicose viens. Nada for me. The three of them are quite variable. But you know me I like studies, I've read on it over time, but haven't revisited the subject in awhile.

    What is relative? Thinning of the blood so clots don't form--Good. Thinning so we bleed not good. If you are on Omega3 and are cut you will not hemorrhage. Omega3 helps in the prevention of vessel plaque-Good. Omega3 helps in cholesterol balance, cell wall stability, glucose tolerance. Cancer prevention. All kinds of good things. The ideal is to get it from diet. If we can't get it from diet, then we need make sure we aren't deficient by taking a supplement. The reasonable thing is to not take it before surgery, then resume after surgery at a reasonable point a few days.

    There used to be two books I recommended. "Omega3" by Rudin. It's what I called a primer. Written for the layperson. "Fats that Heal, Fats that KIll" by Udo Irasmus" . Irasmus spent about 50 years researching the Essential Fatty Acids. I called his book the Bible of Essential Fatty Acids(EFA's).I f you choose to read his book, it's very important that you read the forward. He explains how to read his book. If you were to bypass the forward, and go to the first chapter, you would so fast close the book. It's all chemistry. The forward explains all. I won't try to replicate it here.

    The study of the Essential Fatty Acids likely doesn't get much attention in Medical school, just as nutrition doesn't. It certainly, wasn't mentioned in nursing school in the 70's, but that was a very early time in the understanding of EFA;'s. How much is taught today no clue. BUT the fact that so many docs caution about bleeding is interesting. Also, it's interesting the slow , but steady support for Omega3 as a supplement. When I first studied it in 1997, I predicted that within 5 years(2002), it would be known within the medical community and it's use would start to spread. I predicted that in 10 years(2007) that it would be known by the general public. It happened just that way. Now Omega3 is mentioned in so many things, and included in so many processed foods as an additive.

    Everything is relative :) When docs say don't take it, It tells me they haven't studied EFA's, otherwise they're would be better instructions.

  • minustwo
    minustwo Posts: 13,806

    SAS - thanks for the info. I agree, they probably weren't taught or don't know - just like with LE. Anyway, I'm a believer. I take 2 - 1000 mg softgels per day. And I'm going back to Vit E. I ran out a month ago and have been experimenting. Joints are all getting much more creaky and trigger thumb is worse.

    Obviously off target. On the subject at hand, I still need to eat 3 dried prunes every 3 days to stay regular. I guess I could do one a day, but they're not my favorite things so I don't remember. They do work tho.

  • dsgirl
    dsgirl Posts: 193

    MinusTwo

    Have you tried prune juice? Prunes are not my favorite either, and I was thinking I'd try the juice instead. I eat 3 a day. Thinking to try the juice when I run out.

    So far doing good (fingers and toes crossed) on the chewable fruit fiber supplement and Colace, am now now 9 days past colonoscopy and no Constipation.

    Dsgirl

  • minustwo
    minustwo Posts: 13,806

    dsgirl - Yes I've tried the juice and it doesn't work as well for me. Takes a lot more to get the same result. I really don't hate prunes. Just have to find a time of day to eat them that doesn't cause a "cross flavor" problem.

  • 208sandy
    208sandy Posts: 582

    I tried everything for constipation 7 years ago when on pain meds and my onc nurse suggested several things, none of which worked - Miralax was new at the time and it didn't work for four days!!!
    Anyway in desperation this nurse suggested WARM prune juice and it works in three hours - I tried 8 ozs. and it worked like a miracle but the last time I took 8 ozs. it worked too well so I cut it back to 4 ozs. I am currently on Faslodex and constipation is my constant companion so I eat 6 dried prunes a day and eat a high fibre diet - I save the prune juice for the few days after the shots when things are tough. I have taken stool softeners at night before bed on occasion (I take 2) but prefer the juice above all - I buy the unsweetened and add the sweetener myself.

  • JudiH
    JudiH Posts: 1,168

    208Sandy, I'm going to try the prune juice. If I eat 6 prunes then I have explosive diarrhea. So I going to try 2 ozs. of the prune juice and see what happens. Will let you guys know.


  • Just an FYI--I went to our local farmers market and found some prune plums. They are a God-send. I usually eat 3-4 per day and BM's have been normal. I also take fiber with plenty of fluids. Good luck everyone with this plugged up problem.

  • Mom2ABoy
    Mom2ABoy Posts: 125

    Hello! I'm just popping in to say Thank You for starting this thread. I'm on my second week of a 12-week chemo program. I had the opposite problem,diarrhea, the first week. This week I was constipated for two whole days. Then I bought a mega-probiotic with 30 billion bacteria or something crazy like that! I took it last night and although this morning I had a headache and nausea SE's, I think the probiotic actually worked. Also had a smoothie for breakfast yesterday and included in it a scoop of organic fiber supplement and some ground flax meal. It was a tad bit grainy but didn't taste terrible and I suspect it helped too. Good luck everyone with beating your constipation on the way to beating your cancer!

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Hi Mommy2B, I'm a big believer in Probiotics. Started studying the subject in the days of yon. 1970's. The word probiotics was coined in 1995. I take them almost daily. They are bacterial organisms meant to replenish the bacteria of the gut. Many of the chemicals that we take can alter the bacteria in the gut. Even foods.The science behind this has become very strong The word coined in the last decade or so is the biome or microbiome. The science is identifying specific strains as being more beneficial than others.

    I did a thread on weight and as part of the learning process we meandered into the microbiome. I will link it an you can read what interests you. The study of the biome/microbiome will be exploding for the next decade or so.

    A few cautionaries. Probiotics in a reduced immune state can be trouble. They are bacteria. In a reduced state they're is a possibility that they become a problem versus a benefit. Avoiding them during the week of chemo and the next week maybe two is a consideration. What we need is some evidenced based research on this. If anyone can locate some EBR it would be appreciated.

    Buy from a reputable health food store. Not GNC, Walmart, Walgreens. Target. There was a big expose in the spring of 2015 re: these companies and their supplements. Google "New York Attorney General and fraud and supplements 2015", if interested. Buying on the internet can be a problem too. One b/c you don't know about quality and two the product might be subject to heat extremes that may affect the bacteria.

    High quality health food stores work with their suppliers to assure the product is protected when shipped. Some companies products need to be refrigerated and are cold packed shipped. Other companies product do not need refrigeration, but shipping still can be a problem in areas of high heat.

    On the weight thread I was just getting into the search on diet that best supported the microbiome of the gut. I hadn't completed the search. Roughly. low fructose foods( there is a link), Mediterranean, and Paleo diet support the little buggers. Again I hadn't finished.

    Link to weight thread

    https://community.breastcancer.org/forum/73/topic/832722?page=1

    beginning discussion on diet is on page 3

    Additionally, as a result of studies based on the Hygiene Hypothesis, Foods that are obtained from local sources carry more good bacteria, than foods from distant places. Fruits and vegetables from big commercial sources use irradiation and chemicals to kill bacteria to prolong shelf life.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Please, don't miss scanning from the beginning. Many have offered suggestions. Prunes and Apricots have been the most often identified products for a better go :)

    Thank you to all the new folks offering suggestions. In the end, it will be helpful for a great output. :)

  • 208sandy
    208sandy Posts: 582

    Make sure that it is WARM prune juice - makes all the difference!

  • dsgirl
    dsgirl Posts: 193

    Thanks 208 Sandy, I am wanting to try the juice, and will be sure to warm it, those wrinkled prunes in a way tastes OK to me, but I happen to have a bit of a problem chewing the skin properly,

    dsgirl

  • sas-schatzi
    sas-schatzi Posts: 15,889

    DSg, That's why I suggested reading through from the beginning, so many had suggestions and different recipes from members. I did a tally of I think the first 8 pages. You will see it if you roam back. Prunes and apricots were the most used. Many different ways and recipes. I didn't do a tally since that time, I don't think.

    Stewing the whole prunes will break down the fiber of the skin. The fiber of the skin is an excellent natural source of fibr. Same with the apricots.

    Sandy, I remember when we had hotplates that were in the nourishment rooms on the nursing units before they were outlawed b/c of fire risk. Of course, the primary use was for tea, prune juice, and broths. We did have separate small commercial coffee makers, usually Bunns. Warming foods that were allowed from home was just one extra use of the hotplate. The invention of the microwave made it so much easier. LOL. Think of that memory......life without a microwave. Hmmmmm, I'm old.

    Also, reminds me of going to The Henry Ford museum in Detroit( my hometown). shortly before we moved to Florida in 1992. Henry Ford believed in preserving the tools of every day life. DS was 7. I was dismayed that many items I grew up with were on display and I was only 42.

    MT we always diverge. That's what's nice about we can do what we want(mostly) :) As you can see I just diverged off to HF museum :)

  • dsgirl
    dsgirl Posts: 193

    Thank you Sassy, I did go back and read some time ago, and found some things that worked for others, one was the Cascara Sagrada that seemed to work for me when I was constipated.

    Recently I had a colonoscopy (Aug. 20th) and the doc. nixed the C.S, said prunes, fiber supplement and Colace, and knock on wood, so far so good, regular BMs, but it's only been 11 days. If the warm prune juice does not work as well as the prunes, I will stew them and see if I can chew the skins better. I suppose when plums are available fresh in the store, I could stew them as well.

    I am sure this thread has helped many besides me, I am thankful.

    Dsgirl

  • sas-schatzi
    sas-schatzi Posts: 15,889

    DS, good , glad it's helped going back. Even the camaraderie. Lot's of puns.. I think mixing up approaches helps too. Gawd I'd have to restudy cascara to even have a clue LOL. Haven't thought of it literally in decades. You wouldn't happen to remember what page. Is it possibly in the page where I wrote something on all the stuff pg.10?

  • dsgirl
    dsgirl Posts: 193

    Sassy, it was one person recommending the Cascara because it worked for her, I may remember this wrong, but seems to me it was around the time someone mentioned a product called: Linzeeze- sorry don't remember the spelling of it, and you cautioned us about a new product on the market, but glad it worked for her. Yes lots of puns for sure, since alot of us were full of chit.

    dsgirl

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Ds, I went and looked at page 10. I did a thing about all the different classes of things that can be used. This is the section that included Cascara


    5. Stimulant laxative: Induces bowel movements by increasing the contraction of muscles in the intestines, and are effective when used on a short-term basis. Examples of stimulant laxatives include aloe, cascara, senna compounds, bisacodyl, and castor oil. Bisacodyl (Dulcolax, Correctol)

    http://www.medicinenet.com/laxatives_for_constipation/page6.htm#stimulant_laxatives

    -------------------------------------------------------------------------------------------------------------------------------------------------

    Their is a distant memory about cascara, It'll probably wake me up some night.. This was on WebMD


    cascara Overview Information

    Cascara is a shrub. The dried bark is used to make medicine.

    Cascara used to be approved by the federal Food and Drug Administration (FDA) as an over-the-counter (OTC) drug for constipation. However, over the years, concerns were raised about cascara's safety and effectiveness. The FDA gave manufacturers the chance to submit safety and effectiveness information to answer these concerns. But the companies decided the cost of conducting safety and effectiveness studies would likely be more than the profit they could expect from sales of cascara. So they didn't comply with the request. As a result, the FDA notified manufacturers to remove or reformulate all OTC laxative products containing cascara from the U.S. market by November 5, 2002. Today, you can buy cascara as a "dietary supplement," but not as a drug. "Dietary supplements" don't have to meet the standards that the FDA applies to OTC or prescription drugs.

    Cascara is used as a laxative for constipation, as well as a treatment for gallstones, liver ailments, and cancer. Some people use it as a "bitter tonic."

    In foods and beverages, a bitterless extract of cascara is sometimes used as a flavoring agent.

    In manufacturing, cascara is used in the processing of some sunscreens.

    How does it work?

    Cascara contains chemicals that stimulate the bowel and have a laxative effect.

  • dsgirl
    dsgirl Posts: 193

    Thanks again, Sassy, my doc. did not say why I should not take Cascara, but I do see in your notes it mentions for short term use for constipation, I used it for 7-8 months, because the Miralax he had recommended worked too well, I ended up with diarrhea when I used it, however it did cure my constipation, lol. I do take calcium with D, to help against my osteoporosis, and I have read Calcium also can cause constipation. I really am on too many meds and supplements, so it's no wonder I have issues. I have several health issues, Low Thyroid, High BP, High Cholesterol, got a coronary stent in 2004, so I do take the BP meds, and thyroid meds too, nothing for the Cholesterol. I ordered the Cascara online, there is only a Chain Drugstore available in my neck of the woods, and I learned here on BCO most chain drug stores quality of their supplements are not too good.

    Again thanks for the info.

    dsgirl

  • dsgirl
    dsgirl Posts: 193

    MinusTwo and Sassy- Hello again,

    Found that the prune juice does not do a thing for me. I tried the recipe for stewed prunes, golden raisins and apricot, it does not look real appetizing, but tastes great, I can chew the skins now, and it works for me. Funny how some things works so well for some, but not for others. I suppose the prunes stewed like Sassy suggested would work too as far as me being able to chew the skin properly, but the combination of the 3 dried fruits, really pleases my taste buds, so I will stick with that. I have my followup visit with doc. that performed the colonoscopy on thursday, and will be able to tell him the colace and fiber supplement plus the prune/apricot/raisin stuff is doing the trick. I do feel very bloated after taking the fiber supplement, but have no pain from it, and it does go away within 1 hr. or so I drink plenty of water, would like to cut down on that but don't dare, because I make a bathroom run to pee 2-3 times every nite, but do get right back to sleep.

    PS: MinusTwo, I had purchased the raisins to make the drunken raisins for the neuropathy, and never got the Gordon Dry Gin, did you ever try it? I got sick on sloe gin once, and even the smell of it makes me gag. Does it smell the same as Dry Gin, hope not.

    Dsgirl

  • minustwo
    minustwo Posts: 13,806

    dsgirl - funny that the raisins are sitting on my cupboard and have been for several months. And I have no excuse since I drink Gordon's Gin occasionally and keep it on hand. Just never remember to get cheesecloth, and I know if I used a clean dish towel I'd immediately spill the whole mess. I actually got out a nice clean jar a couple of weeks ago so as to be ready, but....

  • I found sushi nori seaweed sheets work for me. I got the boxed seasoned (salty) ones from Costco. If you google nori, you can see pictures.

  • Has this happened to anyone? I recently increased my use of oxynorm and being aware of its SEs upped my fruit intake and thought everything was functioning normally. I didn't think I was constipated. So I awoke on Wednes morning with a headache and nausea. I took my usual meds and some paracetemol and stematil (anti-nausea) but headache and nausea got worse. Then I took two neurofen,but headache and nausea increased. I rang the hosp and one of the onc nurses told me to take oxy-norm and a different antinausea med. That worked and I thought I had just picked up a virus. Next morning I woke up with headache etc, took oxynorm and antinausea and promptly threw up. Phoned hosp and onc said to come in for ct brain scan. It came back ok. I suddenly thought could it be constipation? So I took a laxative when I came home and after going to the loo that evening I woke on Friday feeling ok. So my question is - can you be constipated and not know it? Also can constipation give you a blinding headache and v bad nausea?

  • Aoiba. My two cents is yes.

    Yes you can not realize you're constipated until you're miserable

    Yes it can cause nausea from being backed up

    Yes it can cause a headache if you're dehydrated

    Yes it could have been a virus

    These meds have all kinds of SEs. You might not have been aware of how potent the new meds were and your body was adjusting. If it happens again, I would definitely call the dr.

    My solution besides prunes and beans and carrying a water bottle everywhere is 400 mg of magnesium at night. Initially you may have some belly pains but you will be regular. An SE is that it helps you fall asleep. Finally as good SE!

    Hope you are doing well otherwise.

  • Yogagirl, thanks for the links and the info.

    Zills, thanks for your two cents. You know, I always thought you'd feel blocked up or feel pain with the dreaded constipation. Does your bloodwork show if you're deficient in magnesium? I ask because my onc doesn't want me to take any supplements and I want to check it out before I approach him. How are you doing?

    Hugs xx


  • JudiH
    JudiH Posts: 1,168

    Sas, just wanted to check in with you. So I finally did a stool sample and it was inclusive as apparently I didn't put my birthdate on the vial. The vial didn't require it so I had to do another sample. Yay, sample was negative for any parasites. That med that the infectious disease doctor prescribed did the job. After 20 years, I'm parasite free. On another note, I was around my friend's grandkids and I ate out lunch after our labour day weekend. Either one cause me to have diarrhea. Diarrhea for a week. Man I was wishing to be constipated. Finally over it but rear end is sore. I called the doctor's office for a requisition so I could submit a stool sample and they didn't send it. I'll still do one just to see but I hear a lot of people were also having a bout with diarrhea!

  • I don't know the answer. I would think it would help with the bones. They sell a cal-mag supplement. I was told to take two calcium pills a day. My PCP okd the magnesium.

    Once you start it and you are regular, it's awesome. Much better than those veg fibre pills which I was told by onc to stay on during chemo.

    Too much pain pills and nausea pills can make you miserable/constipated. Worst misery I ever had. But it wasn't sudden.

    Having ovaries removed next week so I can go arimidex. Tamox stopped working. Three spots in lower spine/hip. Just tired. Some pain but think it's more weak muscles. Chasing kids doesn't help.



  • Oh you poor thing. Not easy having an op with two active kiddos. Will you have to stay long in hosp? Hope that you'll have support when you get home. Hopefully arimidex will do the job on thoses spots or will they radiate them?

    I didn;t realise nausea pills made you constipated. Must look into getting the magnes as I feel laxatives can be counter-productive (ha ha).


  • I meet with surgeon tomorrow but it's supposed to be drive-by, keyhole, laparoscopic. I love all these terms. Just outpatient.

    More worried about fatigue the following week than pain. Will rescan in Jan and see if arimidex and xgeva are beating it or try something else. Just happy to have dodged chemo.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    JUdi-----------yeah send that doc a cigar LOL. How did you find him? Shorty story again please?

    Zills good luck

    Aio---yes, you can be constipated and not know it. On the headache thing, this is related to pressure----the distended abdomen can push on the great vessels (aorta and Vena cava) and the diaphragm. That would create swelling in the ankles from limiting blood flow from returning by the Vena Cava route. It can create a backpressure on the Aorta b/c of limiting forward flow. that could create a headache. Generally, it would create a felling of fullness in the neck, and a sense of pressure behind the eyeballs. The nausea can be from direct pressure on the nerves in the abdomen especially around the stomach.

    A simple example is put a BP cuff on your arm. Don't let it deflate. You will sense what I mean.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Had to share this---too funny---tooo true


    image

  • JudiH
    JudiH Posts: 1,168

    Sas, love the Cat in the Hat post. Found infectious disease doctor through referral as I was going to South Africa. Unfortunately, he is older then me so will likely retire in the next 5 years.

  • I have been suffering severe constipation since chemo started, only having a bowel movement about every five days, and then it was excruciating. It was so bad I was going to quit chemo. I went to palliative care and they set me up with their "pooping protocol". It is working for me and is different than anything my chemo nurse said to try. So if you're really stuck (pun intended), here it is verbatim. I am not a doctor so use at your own risk

    Hydration! Dehydration is the number one cause of constipation along with pain and other medications. Drink water, gatorade, diluted juices, etc, mix it up! IT WILL BE KEY TO BE VERY REGULAR IN THE TWO DAYS GOING INTO YOUR NEXT DOSE OF CHEMO.

    Prevention of Constipation

    The medicines for pain and nausea make the bowels slow down, so you'll need to take a stimulant laxative every day to counteract this. This is essential, because severe constipation can require hospitalization.

    Goal: You should have a bowel movement every day or every other day. Do not use fiber supplements, get your fiber from foods you enjoy, oatmeal, prunes, green smoothies etc.

    Purchase the following over the counter products at your local pharmacy.

    • Sennekot 8.6 mg tablets (sennagen)
    • Miralax, powder form
    • Milk of Magnesia liquid form
    • Bisacodyl (dulcolax) tablets

    Keep these in your home so that you can stay ahead of your constipation

    Prevention of constipation EVERY DAY NO MATTER WHAT

    • Please start Senna: 1 tablet twice a day, every day to prevent constipation. You may gradually increase this dose to reach the goal of 1 bowel movement at least every other day. (up to four tablets twice a day)
    • Take one dose of miralax (one capful) every day. (My nurse had me start with 1/2 a dose every evening and that seems to be working. )
    • You may hold these medications for 1 day if you are having frequent loose or watery stools.

    Rescue Treatment for Constipation: IF NO BM BY DAY 2

    • If you do not have a bowel movement on day 2, that evening take Milk of Magnesia 1 ounce by mouth at bedtime or Bisacodyl tablets (2 to 4 tablets)
    • Next morning (day 3) If no bowel movement Reapeat Milk of Magnesia with 2 ounces by mouth or bisacodyl tablets 2-4
    • By afternoon if no results call your doctor for advice. Also call if you have severe cramping or abdominal pain, or you cannot pass a solid stool but are having uncontrolled liquid stools.
    Something my doctor told me that I want to add is we cannot use any type of enema or suppository when on chemo, it runs the risk of a bowel infection. He also said the measure of enough hydration is how much you're peeing, not how much you're drinking. So drink enough that your're urinating frequently. Good luck, a good poop is highly underrated!



  • sas-schatzi
    sas-schatzi Posts: 15,889

    Raven , nice list. Please don't forget to go back to the beginning and read. Many, many members have offered many ways to combat constipation. Not everything works for everyone. It is a trial end response. (nice typo hahaha).

  • sas-schatzi
    sas-schatzi Posts: 15,889

    sas-schatzi wrote:

    Cheerleading for BCO. They are our home, our resource, we gain so much by being here. They have costs. Let's help.

    They make periodic requests by email. They're is the donation link in the header. An easy way for those that do online banking is to set up a donation on a predictable basis.

    We need to do this. They take care of us. Let's make sure we take care of them.

    You don't have to send a check. Do it simply in your online banking. But if you are still stuck on checks.........

    To donate by mail, please send your check payable to Breastcancer.org to:
    120 E. Lancaster Avenue | Suite 201 | Ardmore, PA 19003

    link to BCO Our biggest advocate

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...

  • Sas-schatzi,

    I did indeed read from the beginning many times, as I was trying to get some relief, with no results... I just posted the written instructions given to me by my palliative care team at Kaiser Permanente. I've been delighted to start pooping again! If this works for other women, that's great, I am not saying its the only way there is, just sharing information that worked for me.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Raven, no not indicating anything negative. Just used it as an opportunity to suggest a look see at other ideas here. :) The plan your team has put together, gives you a concrete "TO DO" list. A cook book recipe so to speak. I applaud them for taking the time. With all that happens to us--surgery, test, treatments.......it's constipation that can bring us to our knees crying for relief.