Life on aromasin
Comments
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How long does it take for the side effects to go away when you stop taking
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it is really hard to say, realize you will be 5 years older than when you started the pill so aches may be age related now, which is what I have now, tons of arthritis issues
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JNC for me the side effects were gone right away when I stopped Aromasin. I noticed I was trotting up and down the stairs within a week.
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I wonder how many people were ignorant about BC like I was before my diagnosis. Thought stage 1 with surgery was like a bad perm. You get it cut off and that's the end of it. More like that's just the beginning of it Little did I know
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I was totally stupid about BC, no one in my family or pal circle had experienced it, we have cancer in our family but not BC
call me stupid but I learned more than I wanted to know!
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No BC in my family either. So much I didn't know like: "there is no known cure."
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I think most of us did not realize how many "after effects" there are.
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for me, since I am over the 5 years of junk, I am really surprised at the after effects. So many folks, myself included, said during treatment that we felt old, well mano but I feel so old now! but guess I should be glad to have caught it and to be alive after not too bad a treatment thing
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I was most worried about pain. I felt great and was in the best shape of my life when diagnosed. Found out I have a high tolerance for pain. I feel great now, maybe not as great but I'm older and I have gone through chemo-pause. Would have gone through it naturally by now anyway.
I'm playing the lottery today. 5 years ago I was officially diagnosed with breast cancer. I'm still here, healthy cancer free. I now consider this one of my lucky days.
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lago: CONGRATULATIONS ON THE 5 YEAR MARK! That's fantastic and inspiring!
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High V Lago! May you have another 50!
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Facebook test says I'm going to live another 78 years
http://en.nametests.com/test/how-many-years-do-you...
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lago, wonderful....I think!
course I would not have enough money but good for you
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oh dear, it says I have 78 years left as well, better fix up the old printing press~
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I don't know who has extra cash after being treated for cancer let alone enough saving for 78 more years!
Printing Press? Do you do letter press or screen printing?
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JNC- my hands, feet and arms are swollen too. I am on a break from aromasin, it's been a week. I am still swollen but the pain in my ankles/feet and arm seem a little better.
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Hi Treelilac. Thanks for the link
I'm 65, with a 5.1%chance of dying in 5 years. Oh goodie!Iago - I have 87 years remaining and I am good, compassionate and kind.
So add em both together...I'm gonna live till I'm 152 Ha! Yikes..
Great fun gals, thanks
x x
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Well I better see you posting here in 87 years
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Lago, I worked in the printing industry. mostly offset print but also laser printing. The sort of printing that is dissolving as an industry~~
e mail just does not need the old paper and print any more
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Hi gals,
I havent posted in a long time...hey...in August it'll be 9 years since my diagnosis
I'm still taking Exemestane. How long are ya'll gonna take it? I feel fine but stupid. I'm wondering it I'm having cognitive side effects because of my CRS situation...you know...can't remember sh_t. My oncologist is sort of saying..we'll there is quality of life...I think sometimes they're afraid to say quit taking it...i mean, hey...if alls ok after 9 years...what are the chances of recurrence??? My onco says the side effects can reverse themselves when you stop taking the AI....
Would love to hear your comments...:)
Fran
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proudspin, direct mail is making comeback. I'm a graphic designer.
Lifestooshort1 I know my MO is going to want me on it another 5 years. It's been 4.5. I haven't made up my mind yet. Have to see how my bones are doing on Prolia. But I didn't have ILC. ILC is know to be tricky.
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iago, congratulations on the 5-year mark!!! I'm not there yet, but had my six-month mammogram yesterday, and radiologist said all was stable, so I can go back to once-a-year mammos. I'm happy!
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Iago, congratulations on the 5 year mark! I remember seeing your avatar when I joined this group right after my dx and reading some of your posts, and thinking wow, if she can do this, I can. You are an inspiration; thank you.
And thanks for reminding that ILC is tricky, it seems to recur later if it is going to (so 5 years out doesn't mean a lot for some of us ILCrs), and that it's often impossible to detect on any scan until we can actually feel the tumor or it's huge enough to be seen.
My doc says I have to be on something. If not aromasin, then tamoxifen. I've been taking aromasin for almost two weeks now and my trigger finger, painful wrist, and hips and joints seem to be a bit less painful. Fingers crossed.
Claire in AZ
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Thanks everyone.
Wave I feel like I've know you forever. You're just one year behind me.BTW its LAGO. I'm not clever enough to come up with iago.
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Lago, sorry about getting your name wrong; you've had to correct me before! Yes, I've been on here for almost 4 years. You've been a great help to me and many others with advice on hair, side effects, etc. You and I both switched from Arimidex to Aromasin. Unfortunately, the joint and bone pain came back on Aromasin for me, despite changing manufacturing labs. I'm going to put up with it, though. I don't want Femara or Tamoxifen
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Hi Yall
Taking a 1 month vacation...wrist pain was making it very difficult to even write my name:(. Pain is easing so will enjoy my weeks off. Skipped my zometa infusion...mo was ok said most people receive 5mg a year and I was receiving 4 mg every 6 months and it stays in system a long time...whew. Trying to get all my team appointments on same schedule so dec/jun.
Still pounding the bones, eating prunes, and taking suppleme...counting down the months 24 done 36 more!
(((Hugs)))
Cindg
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I am also getting zometa infusions every 6 months (I think 5mg?). I've only recently started hearing about the risks. In a way, I wish I had never started it. I don't think the 3% benefit of it maybe preventing it from spreading to the bones is worth the risks. I need a lot of dental work done but now I'm too scared to go in. My dentist says I have fractured teeth, but maybe that's normal for someone my age. Still....I wish my docs would have told me to go to the dentist well before I started on the drug. I think my clinic has changed their thinking as they now require a signed form from your dentist before starting zometa. One good thing....I went from having osteoporosis in the beginning to osteopenia. We don't know if it was the drug or just having the test at different clinics or what. But I'm glad my bone density has improved. Still, I think I'm going to tell my NP that I'd like to stop it now. None of this is ever easy, is it?
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I've gone off it for a few weeks, just to see if I feel any better overall.
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I am really so frustrated about all of this right now. I just left a message with my MO that I will NOT be doing my lupron shot in July and will not be taking exemestane the month of August. I need a break. I have not heard back from her (yet). I feel so conflicted. I want to do what I can to prevent a recurrence. But I cannot keep it up for 10 years. The celebrex has helped but not enough. We had planned a very active vacation (hiking, swimming, etc) and there is no way I can enjoy it the way I am feeling. This is not "ME". I am an active person. Of course, my MO says this is all menopause and I would be feeling this way no matter what. I need to find out if that is true. So. I am going to see if I return to myself. I hate this so much.
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