Kicking LEs butt!! Exercise & Self Care Log

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  • binney4
    binney4 Member Posts: 1,466
    edited June 2013

    I'm not kicking LE's butt, or anything else for that matter. I'm not doing my cork-jogging either, because I broke one stupid toe last week--ran it barefoot into a chair leg. It's not the little toe (which I've broken before), but the one next to it. It never ceases to amaze me how a small thing like that can handicap you. ONE STUPID TOEYellYellYell! Anyway, I'm grumpy, and trying not to limp so I don't throw the whole leg out of whack. FrownTongue OutSurprisedUndecidedCryFrown

    Boo!
    Binney

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    Oh my, I thought I was the queen of busted toes!  I know how  you feel!  Unfortunately, you need to baby it till it is over healed!

    I have busted baby toe, the middle toe and off course, me big toe about 16 times till it needed surgery to remove all the built up knobby thing on my bunion!  The last helped the right foot but sort of think my left foot is jealous and wants attention also!

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    Binney, that's  horrible!  I'm so sorry to hear that you've got one more issue to work around, as if being bilateral LE were not causing you to work around so much, already.  My gosh, please try to take it easy!

  • purple32
    purple32 Member Posts: 1,767
    edited June 2013

     because I broke one stupid toe last week--ran it barefoot into a chair leg.



    YIKES!

    Oh, I'm so sorry Binney. That stinks!  It is so true that one 'little' acute thing can just take over. Spoils all the best laid plans of mice and men.  It's amazing- and it just plain sucks . (Hate that word, but it does)

    Get better soon.

    Kiss(hugs)

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    well I broke my baby toe about a week before high school grad

    could not get shoes on except some stretched out sandles

    I limped across the football field, with my hand on my hat to get my diploma, such a cute look!

    I broke it chasing my younger sister around the house, she slammed the bathroom door on me!

    oh, such great memories

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    well I broke my baby toe about a week before high school grad

    could not get shoes on except some stretched out sandles

    I limped across the football field, with my hand on my hat to get my diploma, such a cute look!

    I broke it chasing my younger sister around the house, she slammed the bathroom door on me!

    oh, such great memories

  • purple32
    purple32 Member Posts: 1,767
    edited June 2013

    Just did Lebeds opening.
    Counting on you ladies to keep me honest here.  Cant really exercise due to the bad shoulder and rash necomes inflamed ...cant do MLD due to the comoing and going of  the 'rash' and was not going to do Lebeds due to shoulder, but I do find I can do most of the opening with just a twinge here and there.

    As an update, rash may be due to pre existing thyroid issues. I have  a multinodular goiter and  my TSH levels have always been on the border of normal but edging toward hyper.  Bloodwork revealed it is now hyperthyroid. I have it in my head that MLD was what stimulated my already stressed out thryoid, but I dunno'.

    In any case, I need a  follow up with endo drs. Beta blockers would be my first tx choice but  no can do  because of my extremely low BP.  Tried them once many yrs ago and they had me salt loading to try to keep the BP up and I still passed out it got so low.

    We'll see.

    Rebounding and Lebeds before work making me late----must run!

  • binney4
    binney4 Member Posts: 1,466
    edited June 2013

    Purple, good for you! So glad you've found a way to stretch out a bit without doing damage to your shoulder or your rash.

    SmileBinney

  • nibbana
    nibbana Member Posts: 349
    edited June 2013

    Carol,

    I hate using chemicals, so I use a long sleeve, light colored shirt to keep insects at bay. I remember there being much more bugs in Michigan though. Out here all the bugs are in the mountains during flower season.

    I'm keeping up with my weight lifting. I only missed one day of legs and I felt horrible!

    Purple, that rash sounds nasty! Feel better soon.

    Keep on kicking LE's butt!

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    We sure do have bugs!  Live completely in the woods, on water.  I guess that means we've rolled out the red carpet for the critters. Had I only known I would get LE!  (I would live here anyway...it's beautiful and peaceful.)

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    Oh, I should report in.  Got more than 5 miles of steps in today, including one mile at a steep grade on a treadmill, to work the ticker.  Did my usual weight training routine at the gym, and I'm also counting a whole lot of scrubbing, to take rust stains off siding on the house.  Glad that job's done!

  • purple32
    purple32 Member Posts: 1,767
    edited June 2013

    Thanks, ladies.  I'm trying, but it's a tad discouraging.  Have my lil 3 yr old grandgirl for 5 days - starts tomorrow ....hoping it wont be too much.

    We'll see !

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    Purple, How is grandbabes doing?

    I am happy to report that I just finished my walk and did lebed opening this morn. OH I AM SUCH A GOOD GIRL!Tongue Out Now how about all the rest of you? GO..........GO...GO!

  • fgm
    fgm Member Posts: 448
    edited June 2013

    Thanks Hugs for the info.  I went to a bra fitter who specializes in cancer patients,etc.  She ordered me a Bellisse compression comfort bra in a size 40G. She wants me to wait to pay for it until my lymphedema PT sees how it fits. The blasted thing costs $250. And I should get one to wear and one to wash.  She's not sure how much my insurance company will pay for it.  

    Purple, sorry you are still suffering with that rash but somehow when you are with your grandchild things don't feel so bad....at least that's how it is for me.

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    2 hours stretch class at professional development day today and deep belly breaths.

    I hop I am not sore tomorrow.

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    Hmm, seems our reporting in here is waning. Thanks, Hugz, for raising your hand with a report!  I've been handcuffed to my computer for days, with big work deadlines that are giving me fits and making me work long hours.  So my fingers are getting a good workout, but cardio has taken a real backseat these days. I have stuck to my 2x per week gym schedule to do my weight lifting (too scared to let it go, in case I don't feel like starting over if I miss too many!). Yesterday was gym day and I got a very good workout that wore my batteries down in a good way.  I've been getting close to my target 10,000 steps each day, or even more on some days, but not enough of the heart-pumping variety. My bad.  Need to tell work to stop, already!

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    I understand being afraid to stop the gym schedule!  I have been out of the gym for the last couple of weeks as I have a hacking cough and do not want to scare anyone.  Let alone trying to figure all the stuff to wipe down!  Keeping up with my stretching as else I get all achie.

    I read something last night on line that has me ready to call my onco this morning.  It said that weakness in the legs can be a side effect of aromasin.  My legs have become noticably weaker in the last 5 years dispite all my gym workout but I never linked it to the dumb pill.  Maybe it is not all me?  I am due to end the pill the end of Dec so perhaps my doc will agree we can stop now?  Or maybe I just will and then discuss with her on my next visit.

    At my last visit to onco, I asked when I could stop the AL, she asked if I had any side effects and I said no as I did not relate the leg weakness at the time.  It is so close to the end of the 5 years that hoping doc will agree. 

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    Proud, I always claim I did the full course of AI but I actually quit a month or two before hand due to awful joint damage.I honestly don't think it made a problem.

     Bad side effects ruins quality of life and you are exercising and taking care of yourself obviously, and in my opionion that may be just as good as skiping the pill for a couple months.( It may be a different story if you quit a year before)  If you are Estogen pos. the exercise helps tamp down the estrogen production which AI are suppose to do.  Still check in with doc as she may have stats proving otherwise and want you on for the duration. My onc is a major researcher and had me go off a bit early.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    Thanks hugs, I spoke to my docs office (the NP) and told her my desire, I don't think any of the med teams want to go against the recommendations but we agreed I am taking a 2 week vacation!!  I have my mamo in about 2 weeks and then the next appt with the onco not till Sept.  

    For now, I am going to see how I feel in a couple of weeks.  I was DCIS, 3 lumpies to get clear (I had big boobies to work with) but nothing but the achies since!  

    I have memory issues, and weakness in my legs, makes it hard to walk much so yeap, QOL issues for sure

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    Proud,I am looking forward to seeing how you feel in two weeks. I wonder though if two weeks will make a diff. I am thinking more like a month but you and your doc know your body better than me. I don't think I ever recovered the memory thing and my body is always so tight now no matter how much I stretch. Not sure if it is post cancer drug side effects or just aging and a slipped disc. When I went to stretch class yesterdat I was one of the few that couldn't do all the routines because I was so tight. Wonder if it was all the drugs or tight connective tissue running thru my body due to DMX. I did like the class though and I am not sore today.

    Did lebeds opening and breathing. Got to walk today.

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    I know zero about these drugs. Is a two-week vacation long enough to get it out of your system and allow the weakness you're wondering about to reverse, if indeed the drug's the culprit?

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    I HATE DRUGS PERIOD.grrr Opps I should be on the grrr thread. Its just that we never know what they REALLY do to our bodies side effect wise. Yet we feel so afraid if we don't do them and some do save our lives. Catch 22 situation.

    Since being off cortisone for spider bite I have no morning mini hot flashes which I rarely had before I started the drug. Weird, I am going to go to doctor google and see if I can find anything about it.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    No 2 weeks is not enough to really get the meds out of my system.  But hoping to feel a bit dif?  maybe the break will just help me get to the end...  I am planning on talking to my trainer net week (I canceled Sunday due to a nasty cold/ cough

    I think I can keep myself stretched out or hoping to

    need a break, nasty to hear you neer regained your memory loss as that pisses me off!  I have a computerized embroidery machine that I hope to use in my soon retirement and would like to remember how to thread the dang thing!

  • Estel
    Estel Member Posts: 2,780
    edited June 2013

    Just checking in...

    I too have been really sick.  Thought I was going to die a few weeks ago Tongue Out ... kind of funny now but I've had the worst 'cold' or 'flu' I've ever had. Started in my throat, within hours it was in my lungs (couldn't breathe), then moved to my head. It sounded like Darth Vader in my head for several days.  I'm through it now but that knocked me out for a while.

    My LiveStrong trainer graduated so I'm on my own now. Still lifting 2x a week.  Slowly getting back into cardio.  

    Thankful we've actually had a Spring.  Been relatively cool here.  Enjoying that.  

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    glad to hear you're on the mend, Dawne-Hope.  Ease back into cardio, don't overdo!

  • purple32
    purple32 Member Posts: 1,767
    edited June 2013

    Purple, sorry you are still suffering with that rash but somehow when you are with your grandchild things don't feel so bad....

    Thanks.

    SO true ...she was a delight to have for the week.  Kept me super busy, and I hated to give her up when Mommy and daddy returned.  Now I am much more aware of the acute shoulder pain . Surprised

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    so been talking to several pals who have finished their time on AL, they think I am nuts to give up now.....so after a short vaca, I will finish my time or at least until my next reg onco visit to have a full talk, that is Sept

    sounds like I can expect to regain some of my balance/weakness issues but the dumb head memory will just be a part of me

    wonder if I had known all this 5 years ago, could or would I have avoided the meds if I had a mastectomy, sounds like a question for Sept but I was very uninformed and scared at that point and just wanted the stuff out!

  • carol57
    carol57 Member Posts: 1,550
    edited June 2013

    Proud, second guessing in hindsight is easy to fall into, but not so productive.  I think we all have some had-I-known regrets. I sure do!  But I try not to go there.  As Binney often says:  Onward!

  • proudtospin
    proudtospin Member Posts: 4,671
    edited June 2013

    Carol, I know and I do believe in onward to the goal.  Just need a bit of vacation and then to focus on my plan  going forward.  I am fortunate in that I live in an area with great docs and I have to believe they gave me good advise in the beginning

    Been a rough week at work so that is part of my stress right now

  • hugz4u
    hugz4u Member Posts: 1,818
    edited June 2013

    Proud. I think you know what is best for you and if you want just a short vacation then go for it. Sept Appoint really is just around the corner and you can discuss with your docs your AI future. Sounds like you have a plan so that is good.

    Dawnehope. I was worried about you cause you never posted in a while and here it was"the stupid cold" that is going around. I hope you have regained strenght and can report a bit of exercise.

    Did lebed opening and stretches and walkies. :)