Kicking LEs butt!! Exercise & Self Care Log
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Linda, jury is still out on what the cause of my vertigo is as I just had the test on this past Wed and will find out results at followup appts next week. Definitly looking into the link for th eye excercises, worth a try it seems. I had been blaming my balnce issues for years on a "dumb toe" problem but fixed the toes last year so no pain but balance it still off.
gee, don't we all get such interesting stuff?
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Proudtospin.. my thought is that we get such interesting stuff because we NOW are more aware of our bodies... I hear you!!! Hopefully, it will be figured out soon!
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GMA, I agree about us being more aware. We also realize that early action regarding any problem is more likely to be successful!
I have really decided not to stress too much on this dumb vertigo or whatever they decide it is. I have done my best, saw the docs, did the tests, taking the dumb PILL and gonna try the excercises from on line.
But I would just as soon skip all this interesting stuff!
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Well, I started the day with MLD that I finsihed up in the shower...then did a 25 min. ' fast walk' and plan to do another shortly. Sleeve and glove of course.
I need opnions :
I called a Vodder therpost who was not avail. who then gave me to someone else who is not trained in LE , who gave me to yet another person not trained in LE. ( I Have an appt for FRI / maybe)
In any case, they all agree I should have had some hands on tx. The girl I spkke with says she has been a PT for over 25 yrs and has done lymphaic drainage on "several pts with good results". They also do a fitness program there ( NOT esp for cancer or lE pts)One thing that was a bit of a red flag was that I told them I am having some symptoms in my ' good arm'. They said in the future they might be able to take me thru some treadmill walking, and fitness etc ...with oximeter and BP readings. I said I will not be having any BP readings becuse I *might* be bi lateral, I just dont know yet.
They tried to convince me BP would not be very likely to be an issue. In the end, I made it exceedingly clear that I will not be having my BP taken there at all, but I dunno'.... I do not want another bad run .Should I hold out for a" real " LE therapost ( or just go to my own massage girl who is willing to learn and has also had some experience )
Not having a great feeling about these ppl. I dont want to use up my remaining PT visits on frustration.Whaddaya think ?
PS Look who was just out of my reach:
Kathy J. Fleming, PT (Vodder, Foeldi) was pretty nearby. I looked her up online and she has some great videos. I called the place the net said she was working at and they said she is a teacher of LE now and hasnt been there in 6 yrs., and they dont know where she is , but believe she no longer does the therapy :>(
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Purple, have you tried googling the LE person? I do that all the time and can often figure out how to reach the person, worth a try, often folks do an update on linken
me, not so good tonight, seems what I thought was vertigo may be something else, tests showed at some time in the past, I had a stroke on the right side, MRI of brain showed this
still trying to digest and now wondering if the event the other week, was really the stroke
only had phone contact today with docs but will see PCD on Mon and the neurologist on Wed so trying not to let my imagination go wild
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proud
Never mind me right now ...hope you are going to be okay. Did the MRI show white matter changes ?
PLS try not to worry too much. I work with many clients who have had small strokes and are 100%!
Good Luck to you.
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Proudtospin. Stroke, if so I am hoping you have had no lasting damage. Man If it doesn't rain,...it pours! You sure don't need this.
Purple, I am aware of Flemings videos, I would do everything in my power to find her. I would even drive a great distance to see her. If they are instructors such as mine is, indeed they are busy flying and teaching but they usually retain a few patients to keep their"hands up" and also to make a living. If she doesn't take patients she will certainly know LET or PTs with "Good hands" Even If you can get her to take you for one session of MLD teaching techniques.
15 min fast walk, stretched and tai chi brtr
Becky, Dawne, Tina, you must be really busy. Come up for air!
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Proud. Sending good thoughts your way.
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I found her hugz
She's just out of my reach teaching now. ugh. Big name.http://www.bwmassage.com/workshops
Looks like she left my area in 2009 . http://www.linkedin.com/pub/kathryn-fleming/5/802/406
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Oh my Proud, you take care of yourself, said a prayer for you.
Did Lebed opening, short walk, and cooked dinner - salmon, baked potatoes and squash - it smells so good, just waiting for DH to get home.
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Purple--I wish you were here and could see my therpist. I feel your frustration.
Hugz--I have been exercising but so busy and not posting. Tina is visiting friends in my area and we are getting together on Monday. I will at least show her the dam but weather may not permit us to walk. We will see. Maybe we can go to my community center and walk their walking track and talk. Just thought of this Tina.
I did walk out at the dam Thursday and ready to go again in a short while. Yesterday I had a appt with my LE Therapist for measurements for new daytime garments. I am also getting a Solaris Tribute Vest with detachable arm sleeve for night wearing for my truncal LE. I will be so happy to get rid of my Jovipak sleeve as I have lost so much weight that I have to bandage tightly over it to get good compression. Then I went to the masectomy bra center to pick up some new bras I had ordered. After grocery shopping I came home and crashed. I did get my MLD and Lebeds in but that was it. This LE stuff takes up so much time!
Your turn Dawne.
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Oh BTW, I walked about a mile yesterday, wore my sleeves and gauntlets and MLD last night.. Doing very slow and hoping I can stay this time... Still having swelling in my good arm but the swelling has moved to the inside of my arm... hmmm one more challenge to jump... 5 weeks out from my seroma surgery and no leaking... hoping I'm good.
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Whatever the crappy tests show, docs said to take it easy this weekend, for me that means going to my lovely gym and chilling for a couple hours.
did some stretching then treadmill, bike and pool
the pool and laps for me, is like taking a pill, it so relaxes me so that is how I feel now.
will deal with MRI issues on Monday trying not to self diagnos any issues
thanks for your warm thoughts
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Ah, Proudtospin, I'm so bummed for you--having to wait out the weekend is such a stupid challenge! So sending thoughts and prayers and wishing you some chocolate while you wait it out. Hang tough!
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Purple, don't waste your insurance allowance on that crew. If they don't know BP shouldn't be done on either arm they'll only do harm. Keep us posted on what you discover.
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Binney, almost wishing my doc had waited till Monday to give me the results
but lap swimming for me, is like a tranquilizer so now I feel mellow
hey, got the dump BC under control and learned that from scratch!
I thought the majorthing on my list was deciding if I should be continuing my AL for 10 years instead of the 5 years!
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I wish so too, Becky!
GMA. it sounds like you're doing great!
Thanks , Binney - I had a bad feeling in the pit of my stomach. I am going to call and cancel the FRI appt. I just keep feeling like the weekes and mos. are whizzing by without tx . (sigh)Proud - you hang in there. The DRS *could* be wrong. ( Wouldn't be the first time
) IF NOT, my hope it it may have bene a TIA ...oh, lots of possibilities. Just hoping for the very best outcome for you.Take Care all!
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Thanks purple, truthfully, I did a gentle work out this morning, and have felt great since then! Plan on the gym with gentle workout tomorrow and thinking this needs more clarification for me
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I did a gentle work out this morning, and have felt great since then!
That's the spirit, proud!
Many yrs ago, ( app 14) I went to Lahey Clinic for a complete battery of tests for an array of symptoms - the primary one was being dizzy. They found white matter changes in my brain and a neuro dr declared I had a stroke.After a MULTITUDE of other tests, and a few more specilists, it was discovered that I had in fact, NOT!
Hang in there, kid!0 -
purple, thanks! and glad to know your scare turned out to be nutty doctor !
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Becky - I hope the weather cooperates so you and Tina can go on that walk. Wish I were there to join you!
I'm not doing much more than the bare minimum ... meeting with my trainer twice a week, trying to get in enough water, stretching and Lebed opening. My arm has given me alot of trouble this past week ... a lot of pain. I'm thinking it's weather related but it's got me kind of down. The stress of the season isn't helping either but I got over a big hump last week ... big deadlines met. AND the Hobbit is coming out this week ... so that makes my world a little brighter.
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I was able to wear Jovipak last night to sleep, did some light stretching, Lebed opening, walked 1/2 with DD, and a little more stretching today - It's a start - that's the Lebed two days in a row
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that's the Lebed two days in a row
Good for you, Linda. I've been bad about the LeBed. Busy watching the grandaughter today so just did my MLD and am about to do it before bed.Will try to do more tomorrow- though I need to catch up on my Christmas shopping etc ... oh, how the weekends fly!
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Hi ladies! I've been in constant motion these past few days, meaning driving 5 hours to/from family. But--of the past three days, I managed 4.5 miles two days --just not today. Had some great fun stroller pushing with my granddaughter (almost 2 years old) who sings from her seat with gusto, so a great way to get exercise in. But aside from the walking, no heart-pumping cardio, no Lebed, no MLD...and probably not enough water. Not enough time in the day for all of the above! Tomorrow I travel for work, so airport walking is in my plan, and I'll do Lebed in my hotel room for sure.
Ah..Purple...if you walk with a good pace, holiday shopping can give you the gift of steps! (unless you do it like i do..point and click!)
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hahahahah!
No, no point and click, Carol but lots of stop and compare prices :>)Carol, can you tell us how many days you went without MLD ( nope, I dont plan to skip!) and the impact if any ? As you know, I am always curious as to how mild LE responds and if it is responding ' more ' to the MLD, the cardio, the water intake etc ... and although we are all different, there is ONE thing we all have in common! Thx for any detials on changes you may or may not have noticed in your unusual schedule.
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Hi everyone! I haven't been here since the week before Thanksgiving. There were too many posts to catch up on. I will just jump back in. I found it easy to keep up with everything while I was on vacation, but now that I am back to the grind, it is hard! But I know it's worth it, so keep trying. Dropped my DD off at dance yesterday, went to the gym and did ten minutes on the treadmill, then stretching, the circuit, stretching and back to pick my DD up. I did wear my sleeve all day, but that is as much as I can report. Well I did get some steps in shopping, but have no idea how much. Probably not as much as I think. I have been so bad about wearing my tribute at night. I need a swift kick in the butt. And my arm does ache in the morning, and I can tell it's swollen. I promise to put it on tonight. I will have to get back to training for that mini triathlon next August too, but right now just trying to hang on and keep up with something. Hang in there everyone, you're all inspiring!
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Purple, to answer your question, I have been known to skip MLD for three or four days, as of all that foes with LE, it's what I truly hate doing; not sure why. If I have otherwise been picture perfect in my LE care, I do not seem to have serious consequences from skipping it. But if I have overdone arm activity, or eaten too much salt, or not consumed enough water, I feel achey and doing MLD helps a lot, but I need to be consistent over several days to end the aches. But I cannot say whether salt, overdoing exercise, etc might not have led to ache had I not missed my MLD, too. I just am not that scientific about tracking cause and effect on all the various factors at play here. I do find fear to be a powerful motivator. When I kayaked for a week straight, all day each day, I was so afraid of what the repetitive motion and resistance might do to my arm, that I was a saint about all othere LE care elements, including twice daily MLD. And although my arm tired out, it never had an LE flare. And I suppose that experience tells me that taken as a whole, all the LE care elements can do a lot to help manage the condition and prevent flares.
Which makes me think that today I took two flights. I got plenty of exercise in, 2.6 miles of walking and 2 miles of jogging before leaving home. I wore the sleeve most of the day. I avoided sodium, and I did some deep breathing. But the flying worries me, and I know I did not drink enough water today, so I had best drink a bucket of water and do some MLD now!0 -
carol - I am so with you. I hate doing the MLD too and like you, I am not sure why. I do it about the same too ... when I'm hurting, done too much, too much salt.
Some day I'm going to grow up and not be afraid to fly with LE ... just like you!
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I know it's not much but got moving a little today. Wore pedometer and made just over 3 miles of walking in the day. MLD just finished and off to bed. 3:30 am comes early! Still coughing and am back on my asthma spray but doing better.
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Dawne, I don't do Mld but I do deep breathing and lebeds. Done lebed opening every day for about a week. whooo hooo!
Some day I am gonna grow up too and not be afraid to fly with LE like Carol. Dawne, you go first then me next! I can't believe that I am staying home this spring while my family is contemplating Central America. I keep thinking the worst. Bug bites, sunburn thru my sun clothing (my mind is running on here with fears) Hot sticky clothing with a hot sticky sleeve and glove, Losing my LE stuff, staying up too late, not enough rest for LE, feeling really uncomfortable in flying garments, and the worst....not being able to keep up with family due to always trying to keep up with LE issues. Thinking of the whole thing makes me tired and I just want to stay home. This is not like me. I am born to travel!
GMA, Thats fantastic, Doesn't it feel good to move again!
Did Lebed open., tai chi breath, and going to have my date with Leslie sans one now. 1 mile.0
