Weekly Taxol group
Comments
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T-Sue, thank you for clarifying. I feel like I've had to learn a whole new language since my dx. I'm so scared, but moving ahead anyway. It's almost worse that my MO said I was right onthe border of needing chemo or not, so they left the decision up to me. What if I don't really need it and I'm about to put my body through this for nothing? In the end, I don't feel particularly lucky these days and the thought of finding mets later is just too scary, even scarier than doing chemo, so here I am.
I'm pretty sure I'm going to try cold capping. I really don't want to face losing my hair.
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Brightness - everyone has different SE taxol will make you lose your hair from what I heard. For me I buzzed all my hair and I really don't mind people know I'm a cancer patient. I just don't want my cancer recurrences I want to have 10 years of peace without cancer. 🙏 .
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Hi Ladies! Finished Taxol/Herceptin #5 today! 7more7more7more! After #4, my hair was really coming out,so I had it clippered to #2 guard. It feels better and I'm having fun playing around with scarves, wig and turbans! So far my only major S.E. is a rash. It is mainly on my arms and legs. Doesn't itch but looks awful. Dr. saidto call my dermatologist. Has anyone had the rash? What did you put on it? I was going to try over the counter cream 1st.0 -
Hi Guys,
It is regarding my mother. She is undergoing weekly taxol, and this week will be her 6th Dose. The thing is, every time she goes for the treatment, she needs to do blood test. When her TLC is above 4, then only they give the dose. But it makes me afraid, when her blood count goes so low. She feels tired, could not get up from bed, and does not want to eat food. She feels like her intestine is contracting. It makes me cry. I am a little bit emotional, but it is getting tough for her. It hurts me when I see her, so thin now. She was 65 Kg when she started the Cancer treatment and she has already lost more than 10 Kgs now. I am earning to pay her bills and living far away from her. My dad is with her, and no one cares. My company people do not care. I am literally begging in front of them, to atleast give me transfer, but no one is willing.
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Sorry to hear abt your mom, Noah.
I think it is quite normal to have bloodwork done prior to treatment - I get mine done 30 mins before I sit on the chemo chair every single week (I'm going for #5 on Friday). They will not give you treatment if your count is low because they don't want you to get too ill. I think that makes sense. I'm sorry your mom feels so bad - do you know if she's eating right? It is important to provide nutrients to your body during this time --- myself, I've gained a solid 10lbs in one month. I hate it but I know the steroids is doing it. But it helps me feeling good and I only have 2 more months and then I'll lose that weight (hell, yes, I will
) Plus drink A LOT OF WATER. Your mom cannot be dehydrated - it will cause all kind of nasty wreck on her body. Try to get her to move (as much as she doesn't feel like it) and keep somewhat active. She's halfway done -- the end is near and she'll be all OK again. 0 -
Sala - I would love to gain some weight also. I lost about 5 lbs during AC and lost appetite. Would love to gain back some of the weight ready for taxol.
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OMG PauletteK 😱 I wish I could lose some weight but my apetite is FEROCIOUS!!! I'm hungry while im sitting on chemo chair and it ends like days later. So frustrating!!! I have to double up on my daily exercise just so i csn keep the weight gain to 10lbs. I had tears the othe night when i had to shove chocolates in my mouth at 3am coz the steroids was making me crave it 🙄
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sala - how's weird about this chemo SE, you can eat your heart out and some of us just can't. I'm hoping taxol will give me some appetite back , since you are filling up with steroids your energy level must be high.
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DD taxol #1 for me today at noon, wish me luck!
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Good luck, Tpralph!
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I hope it all goes well Tpralph. Let us know how you're feeling
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Tpralph - 🙏🙏🙏 for you and let us know how you feel
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Thanks ladies. Not bad. Just side effects from the benadryl of drowsiness so far! My oncologist gave me a prescription for Tylenol 3 s if I need them for the possible joint pain. But I'll try just extra strength first if and when it occurs! I definitely get body aches from that darn neulasta shot. Ugh hate it but it works so well!
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Tpralph - did you take your Claritin ahead of time? My Onc said I will not get neulasta shot during my taxol. I'm done with this shot for now
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I am not getting any Neulasta shots, they told me they do not give those with weekly Taxol.
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I had 1st taxol yesterday 9/8. Had allergic run 10 min in. They stopped, treated and restarted. This morning my face turned red. I have taken 2 benadryl but not subsiding. Any suggestions
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psufan- my face was always red after Taxol. Assumed it was due to steroids in the pre-med
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Psufan, I had reaction to my second Taxol, had only so far had three. They stopped, gave me some more cortisone and ran it slowly. Your face is red of the pre-meds.
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Cherry do you have allergy in normal days? Are you allergy to any trees? From what I read someone said taxol is from tree so if you have tree allergy it might be why. I think I need to google it more.
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hi all... starting Taxol on Tuesday (12 weekly infusions). The info here is so helpful, but a little scary too... officially freaked out about possible allergic reaction. Ah well... I'll know soon enough!
Question: anyone using L-glutamine powder to minimize (or avoid) neuropathy? My naturopath recommends it, and I'm wondering how to use it -- can you taste it in water??
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JenRuns, I used l-glutamine for neuropathy during taxol. I thnk it helped - at least I never progressed beyond some mild tingling in hands and feet. The standard dose for this purpose is 30 grams per day, divided into two or three "servings". It didn't have a taste, but it's gritty and it doesn't dissolve. I mixed it in Crystal Light iced tea flavor. You can mix it with anything you want.
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Hi Paulettek, I am not allergic to anything as far as I know. I just felt that my throat tightened and I took a hand to it and just said to the nurse who was observing me in the room that I could feel my piccline and she said no, this is not piccline, turned it down and called in a lot of people. They took my blood pressure and measured oxygen, told me that it was a mild reaction, gave me some anti-histamine and cortisone and ran Taxol slowly.
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JenRuns, my oncologist says that vitamin B6 can be given for neuropathy, but it cannot be prevented, they will give it when it comes.
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paulette, yes I take Claritin starting chemo day and continue it for up to 5 days but doesn't seem to do anything for me. not sure what would happen if I didn't take it. As I am on DD taxol maybe that is why I am still getting neulasta. I had asked to discontinue the neulasta but oncologist said no go.
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JenRun- my Onc said Vitamin B6 and B 12 help out neuropathy. I started couple days ago taking both vitamins.
Cherry - thanks for the info I will watch for it on my first two infusions closely.
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I also had a reaction after my second weekly taxol / herceptin infusion. I got really itchy, developed hives on my head and neck and then eventually became so red and flushed that I had to be rushed to the emergency room for treatment. My MO first said that it could not be the taxol because any reaction to it would have happened during the infusion. He thinks its from Herceptin. He gave me xantac twice a day and claritin once a day which has helped to bring the itching down to manageable levels. It's always there, sometimes I have to oil or put aloe vera gel on my head and face to cool it down. I was concerned that this reaction would occur even more during the herceptin only cycle cause it will be more dose dense but my MO says that the intensity of allergic reaction will not be affected by the amount of the dose. That I would essentially have same reaction whatever the amount of dose. I hope so, I don't think I could bear anything any more itching.
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Hi All,
I'm now 7 weeks PFC and only 7 more sessions of radiation to go. To those asking about AC versus T, in my experience Taxol was much easier than AC. Having said that I didn't get neuropathy until the last week of Taxol, and now it is quite bad in my right foot. Has anyone else had this happen? I see my MO on Wednesday and am interested to find out if he has any suggestions. I contacted him and he said take alpha lipoic acid as well as the B supplement, but it hasn't helped
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I have had 3 taxol treatments so far, my skin is getting really sensitive especially my face can not use my normal face moisturizer because it burns and irritates my eyes any of you wonderful ladies have any suggestions on what to use?
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Bmac - did you take vitamin B6 and 12 for taxol?? My MO suggested that for me so I started before the infusion. I haven't started my taxol so I won't know about my SE. So you got neuropathy from the last taxol? Sucks, are you seeing any specialist
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Hi ladies, I've been active in the group dedicated to those of us who started chemo in May, but thought I'd also pop over here with the weekly Taxol group. I've completed my four AC treatments, and have had four Taxol so far, eight to go. AC was brutal on me, including a five day hospital stay. So far Taxol has been more manageable, while certainly no picnic.
It's interesting to compare notes with everyone, and see the different reactions. I especially marvel at those who gain weight. Granted, the nausea of AC had lots to do with it, but Taxol has wreaked havoc on my taste buds. Between the two I've lost over 30 lbs! Luckily I have it to spare, but much of that was way too quickly. It has slowed down now that I'm eating again. But the list of foods that taste edible keeps getting shorter. Still, I'm grateful that I'm not nauseous.
What surprised me is that I'm still having issues with low blood counts, and have already had two of my four treatments postponed due to it. This past week I had to give myself three daily injections of Granix, and that really brought on the aches! Neuropathy is still an unknown to me, but a couple times I found my left foot to feel a bit numb even though it didn't last long.Honestly, I haven't exactly had good luck through all this, so I'm expecting to deal with it eventually. However, I already take Gabapentin twice daily for back pain, so perhaps that will shield me.
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