Weekly Taxol group
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Hey Ladies,
I’m glad to see that we’re managing these Taxol SE as best we can. I’m headed into treatment # 4 this week. Wondering when hair loss came into effect for anyone (if it’s happened yet)? Would like to have an idea so I can prepare.
Best,
Aneesah
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I just had my final Taxol treatment. There was no fanfare. No bell ringing,no t-shirts,cake, balloons.. It was just another infusion. I think I will make my own celebration!. I highly recommend icing your fingers and toes. I don't have any neuropathy ,nails lifting. No nausea, diarrhea,or other bad side effects. I have been working thru it all too. I'm putting this out there if you are starting Taxol. It really isn't that bad. I know everyone is different but I hated reading everyone"s awful experiences. Now onto Herceptin until July 2018. goodbye Taxol. I hope we never meet again!
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Seaster, yay! Great news, you deserve a treat!
I am sorry if I already asked you, I asked this question everybody who was given weekly Taxol. How large exactly was your tumor? What was your Ki67% and whether you had LVI? You can PM me, thank you in advance, but it is ok if you don’t want to share this information.
Cherry
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Hi HaveFaithinHim
I'm on weekly Taxol for 12 weeks. Today was my #3. Hair started falling when home.
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HaveFaith, mine started coming out after #4, and Taxol was /is my first chemo. Just shaved it off yesterday, so today my first full day with a scarf, and I celebrated by going to work. Not sure how I feel about it. I'm pretty tired today despite getting 10 hours of sleep last night. Was ready for a nap starting at 1:00 pm.
My skin is also dry, my hands have red patches. I will try Burt's Bees cream at Teese's recommendation, I use their chapstick, and love it. For the body I've long used Vanicream after each shower. I also set up a humidifier in the bedroom - we are in a very dry climate, and I've dealt with dry skin prior to treatment.
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I buzzed my hair on second AC, maybe taxol you can hang on to your hair a little longer.
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Hi Aneesah, my hair began shedding a few days after Taxol #4. I remember it distinctly. It shedded slowly enough that it just thinned out for another month, but by Taxol #9 it was bare enough that I wore headscarves out. In retrospect, I really wish I had buzz cut my hair at about Taxol #6, the shedding was a bummer. Hang in there, you have a good chunk of treatments under your belt!
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Seaster, Congrats on finishing. Honestly I think I'll start celebrating more in a week when my SE start to wear off. But no denying how good it feels to be done! Woot!
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Susie I thought I was nuts to schedule a kitchen remodel while I'm still on chemo, but you! are remodeling the kitchen and doing some of the work! Glad the tests worked out ok.
About facial dryness. I had a facial person who had been through chemo. She had me start 2 products on top of my moisturizer. Glo-therapeutics pure hydration goes under my moisturizer and Eminence facial oil to add to my moisturizer. They keep my face from drying out.
After Taxol #6 my side effects are holding steady. I'm not happy to hear about Robin's new SE after #9. I was hoping once we are most of the way through, the worst will have happened. Always I dream on.
Theresa!!! You made it! Happy for you LOL about the scar.0 -
For those taking magnesium to manage SEs, which type do you take (I.e., citrate, sulfate) and how much? I take 125 mg of magnesium citrate to help with constipation, which seems to work. I am wondering if I increased to the recommended dose (250), if it would help with the neuropathy.
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Jen - I didn’t know about magnesium help with constipation now I want to know what’s the dosages?
Travel - I’m hoping our SE are holding steady also, can’t take more for the next 6 weeks.
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I had the same pattern with my hair, it started shedding on 3-4th and then I had maybe 30-40% left by 6th, then it was just thinning out. Yesterday I cut the remaining 10% and today I shaved it off. I miss my hair. Sometimes I forget I no longer have any.
Peoy, how large exactly was your tumor if I may ask? I recondider to add an anthracycline to my treatment and looking for people with the stats similar to mine who is doing weekly Taxol. Was it hi Ki67 you had?
Cherry
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Peoy and HaveFaithinHim - welcome to chemo land. We are unlucky to get cancer, but I feel lucky to have stumbled upon this site. Each of us has sustained the full assault , both physically and mentally, from brutal chemo. Yet we remain young at heart and chemo hot. My mind gets soothed here to enable me function in normal world. Thanks everyone here.
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Re magnesium. I have Magnesium Oxide 500 mg. I only use it as needed, take it at bedtime and it works like a charm.0
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travelhound... are you using it for neuropathy?
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Teese, you made laugh about the scar. Thanks
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Hi y'all,
I did my 2nd taxol today! But every 3 weeks I get AC + taxol.(for 12 weeks total) So last week I was good until day 3&4 very bad days but Fri, sat & Sunday we're Awesome! I haven't had any mouth soars because a little 🐦 told me to gargle with salt water, so I do this full on for 3 days after treatment, plus I fast 12 hours B4 treatment only (per Dr) , best part chemo day is reward day so my hubby brings me a sugarfree peanut paradise w/whey smoothie to suck on during my 1&1/2 taxol treatment& as much as I can eat jalapenos straight from the jar I don't eat anything that is above mild heat... 2 down 10 to go!!!
God bless all of you, stay ++++
Mmmmmwahhhh
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PauletteK- how are you doing? I read about you drinking liver water. Good idea! I finally made a big effort of eating chicken livers in order to overcome the fatigue. My hemoglobin is back into normal range after 6 consecutive results of below the normal. I wish I had eaten livers regularly in the past!
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Teese hooray! The last one for me was Thurs and so far only SE is Minor leg aches but did have bad pelvic cramps. Took Claritin this time and lo and behold did it not help my taxol pain? Geez if I'd known that I would have been taking it all along with the taxol. I did initially triy t with the AC but it didn't work so I stopped using it. so if you haven't started taking it take it now and for the next few days.
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Beauz - I’m doing better this week, yes I haven’t made any liver water this week yet, I don’t drink enough to make a big difference. I don’t think I can eat the liver, so I made liver water.
Welcome Julz - sorry that you join us here. But this is a good group.
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Hi Cherry
My tumor is 3.6cm IDC, ER+80% PR+70% HER2+ grade 3+. Stage 2A, T2N0M0.
When I saw yr earlier post, I checked my Histopatholoy results - can't find any Ki67. I immediately wrote down in my list of questions to ask my oncologist when I see her this Friday. BTW I'm 54 years old Chinese from Singapore.
My oncologist plan is to do 12 wks THP then Surgery. Depending on the above results, subsequently +/- Chemo (AC) and +/- Radiation.
Thereafter compulsory 1yr Herceptin and 5yr Hormonal Therapy.
Hope above help you make a more informed decision.
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Jen I use the magnesium for constipation which seems to regularly occur on day 3.0
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I was hoping you are using magnesium for neuropathy. I’m looking for something for neuropathy.
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My MO gave my gabapintin (not quite the right spelling I don't think) for my neuropathy. Helps some but not enough. I stopped after 8 infusions. Have 4 more months of herceptin and AI's for what feels like forever. For the constipation, I did probiotics and miralax. I made sure I pooped the day before chemo (even if I needed a laxative to do it.) Drink as much water as you can all the way through treatment. I also realized that what I initially thought was nausea was acid reflux and I took nexium. I did gel manicures all through treatment and my fingernails did well. Lost two toenails however. My center didn't do icing although it seems that I am reading rather mixed opinions on that. My hair was pretty gone by 4 weeks and has come back very slowly, except in the places I'd just as soon not have any.
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Taco, I had 6 taxol so far and my fingertips are pretty numb and I wish there is a way I can improve my numbness. MO cut back 10% of my dosage it helps my appetite and other SE but not neuropathy. I even started soaking my feet with epsom salt and didn't stop the pains. I have the same stomach issue also, I thought I had nausea but I think it was my acid reflex also.
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Hi Peoy,
Thank you for your response, I see you have AC scheduled afterwards anyhow. I live in Sweden.
Ki67% is not a very reliable aspect but still show how cells mitotic rate and can be used to predict prognosis. In adjuvant setting it is also possible to determine whether the tumor had LVI, but I do not know if it can be seen in neoadjuvant setting when the tumor removed first after chemo.
Cherry
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Hi ladies! I'm actually sitting in my car by Lake Michigan, watching the waves roar in on a chilly, wet day. I had good weather over the weekend, but it's been raining since then. I'm heading home tomorrow and it looks like no rain, so I'll get up early and catch some scenery before heading out. I have dear friends here though, and I'm just happy to spend time with them when the weather doesn't cooperate.
I actually noticed another new SE, but at least this one I've heard about. My sinuses are so dry and stuffy! It's funny because half the time I'm scrambling for tissues because my lack of nose hair makes this situation an emergency! I haven't had a bloody nose yet, but I can see how easily it might happen.
I picked up some healing type hand cream at the drugstore, and my hands seem slightly better. They still sting, and are sensitive to being bumped. With three treatments to still get through, I imagine they'll look and feel pretty bad by then. Plus last night I had to take a compazine, it felt like someone was grabbing my stomach for a good squeeze. I'm really over all this nonsense. Uncle!
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msrobin, I had to laugh at your "Uncle!" I know what you mean. I also have the sinus/stuffy issue ... I started using Ayr Gel at night, and sleeping with a humidifier in the bedroom. The gross part -- when I blow my nose, it's usually a bloody discharge. No "bloody nose" per se, but kinda. *sigh*
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msrobin, Jenn, count me in, bloody nose, dries during the night I feel so stuffy in the morning I blow crusts, yuk. And skin in my face around my eyes is so dry no moisturaizer can make it better. I actually wore my wig for the first time today, looked just like my hair underneath this new hat I bought when I found out I was to do chemo. And I did some make-up for the first time since July Cherry
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Yes, that’s exactly it. Not really a bloody nose, but when I blow you see it. Yuck. I’m still in a hotel, but when I get home I’ll get the humidifier out. I actually went and got a manicure today and she pampered my beleaguered hands for me with a deep lotion massage and a paraffin dip. Ahhhh.
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