Weekly Taxol group
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Good for you Cherry and msrobin for giving yourself some extra TLC. You have earned it!
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I do not blow my nose anymore, I did that one Saturday morning I ended up an hour on and off nosebleed.
As for now, Neuropathy is enough worries for me.
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T-Sue, your picture has actually inspired me, I thought it was about time.
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HaveFaithinHim, my started to shed around the fourth Taxol.
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Taxol is easier for me than AC, but these hot flashes are annoying!
Also, the bone and muscle aches have me freaking out - is it a muscle pain or mets to my liver kind of thoughts. You all know what I mean - so easy to get paranoid.
This is my favorite time of year, so my goal is to enjoy it and not wish it away because of treatment
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My hair started coming out after my 2nd AC so I shaved it off. I've just finished my 5th Taxol and I noticed last week that my hair was starting to grow back, but not sure if Taxol is going to take the new growth too! Oh well it's just hair.
VL22 I also had joint and bone pain starting earlier each treatment. Because it's an expected side effect I don't think about it being anything but that. I read here that Claritin helps, so I plan to start taking it today (I didn't want to take it yesterday because it's benadryl day).
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VL22, I was thinking the same thing the other day -- I can't wait until the point where these random pains either go away, or don't concern me. I was in the EC last week to rule out a heart attack or clot (neither was an issue -- it's muscular pain in my chest or reflux). Then I was limping because my calf was all cramped up (DVT? not red or hot or swollen). Everything freaks me out.
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Every little things freaks us out now I was reading up neuropathy last night it got me so worried I have to walk away from the website.
Yes we all wish this over soon. We will see the end of the tunnel.
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Paulette, are your finger tips still red and tender? Even though Taxol was easier on me the worry over neuropathy has made it stressful. At least with AC I knew the nausea would end. Today is day 3 and this is when the tingling and numbness gets worse and then by next week starts to subside. However I'm always left with a little more than the time before.
Praying that it actually where's off and I'll notice a difference when I don't have the next infusion. I'll keep you informed so you'll know what to look forward too.
Theresa
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Hi Teese
Thank you for the information, My fingertips usually numb during the day, red and tender mostly in the evening. I can deal with other SE, neuropathy is something I can’t overlook. One thing bad about weekly taxol, there is only a day for recovery then chemo is up again.
I’m praying daily for everyone and hope God will watch over our shoulders. 🙏🙏🙏🙏
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Hi Paulette, hope you are doing better. Did you try B s for neuropathy? I take B1; B6 ; B12 and 2 teaspoons of l-glutamine every day. I do have some tingling in my toes, mostly the right foot but so far so good. I also take frozen pea bags for infusion. I do get bloody site node too and have been using She saline gel. Seems to help a little. Number 5 tomorrow for me. Good luck Friday
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CM,
I take B6, 12 and glutamine, I’m going to step up on glutamine maybe it helps on my fingertips numbness. I do ice my hands and feet, will have my #7 🙏🙏🙏🙏 send prayer to your infusion tomorrow.
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PK. Forgot I also take ALA. Hate autocorrect! For the bloody nose I use Ayr nasal gel. Thanks for the good wishes, same to you!
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CM - what is ALA? I use Ayr nasal gel also.
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The neuropathy in my feet and legs is so bad that I'm considering stopping chemo after only 6 of 10 weekly treatments. I just started taking the B vitamins a few days ago so by the time it might help, I'd be done chemo anyway. Per the MOs direction, I'm skipping chemo tomorrow, but still get herceptin. The MO and I are going to talk during my treatment. Maybe just skipping a week will calm it down enough? He did say it could continue as long as 6 months post chemo and of course I've read on this site about some people who have permanent damage, which would be horrible. I was right at the cut off point of needing or not needing chemo, so I'm hoping 6 treatments may be enough to decrease my chance or recurrence. Hopefully some is better than none.
I've also got the dry, bloody nose, but it's manageable, and the achy cold/flu feeling frequently as well as a terrible twitch in my eyes, which may be just a coincidence? I have no neuropathy in my fingers thank goodness and I've had no nausea, but I've had a lot of headaches, dizziness and blurry vision. I told my MO I was worried about brain mets because of how dizzy I get. She said I do not have anything wrong with my brain. I hope she's right.
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Cherry, I'm so glad!
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Brightness- I totally understand your decision, quality of life is very important. My feet are doing better than my hands, if my hands get worse I am considering stop chemo also. Will do my #7/12 taxol this Friday and step up my L- glutamine hope it helps.
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In the chair for Taxol #4! I feel very lucky not to have any signs of neuropathy- I am on a Complex B vitamin per the MO.
Told to doa better job of staying hydrated for hot flashes. Drinking anything, especially water, has become a chore.
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I'm day 4 after final infusion and my neuropathy symptoms have always been the worst about now in the other infusions and then gradually subside. So far this time not so bad, hoping I don't wake up tomorrow to any surprises.
Last night was my last steroid night, so looking forward to a good night tonight and from now on. Still have to put up with the crash tomorrow, today I feel drained but tomorrow is the crash.
All in all DD was doable and I tolerated it well. Putting this out there for anyone who is following this thread and starting DD soon. I know I read and followed everyone I could find.
Hope everyone is having a good day.
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Teese - 🙏🙏🙏 for better day 4 for you and you will have few weeks to rest up before radiation. Enjoy your time and see you in FB.
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paulettek-- I can't post the link from my mobile access to this forum but found this information and thought it might help you with remaining Taxol It is posted here on BC.org
"A small study suggests that wearing frozen gloves and socks for 90 minutes after Taxol chemotherapy can help control neuropathy symptoms.
Doctors call therapies that use extreme cold as a treatment cryotherapy.
The research was published online on Oct. 12, 2017 by the Journal of the National Cancer Institute. Read "Effects of Cryotherapy on Objective and Subjective Symptoms of Paclitaxel-Induced Neuropathy: Prospective Self-Controlled Trial."
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DodgersGirl- thank you so much. My taxol infusion time is 3 hours because of reaction now I need to get more gel packs and I used frozen peas for hands maybe I need couple frozen gloves.
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I met with the MO today. He’s covering for my regular MO. He basically said that given that I may not have needed chemo to begin with and because I’m having issues wotneuropathy, he would consider stopping chemo at this time. I’m taking this week to think about it. I would still continue the herceptin for a year and I’ll move onto radiation next. I feel pretty certain this is right for me, but as with all things BC, there’s no magical way to know what I should do.
Thoughts?
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Brightness- from what I read you lost sensation on your feet that sounds pretty serious. I have numbness on my fingertips and toes for now, and I’m bitching already. I have ordered one more pair of ice sock and gloves so I can wear during chemo time. It is almost impossible for me to cover 3.5 hours infusions time. I’m stage 2 with lymph nodes and I might not able to complete my taxol . I will do as many as my fingers permitted. I’m doing one day at a time also.
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Hi, PauletteK and Brightness. I met with my oncologist's registrar today. She said that if the numbness on my feet get worse, she will stop the treatment. My neutrophils has dropped to 1.3 this time. Oh bugger. Wonder what it will be like next time. Had my #7 (of 12) yesterday and felt the same as before. On positive side, my weight has been steadily increasing since AC, from 45kg to 47kg+ which is what I want. Could be steroid at work. I think my ideal weight should be close to 50kg. Best wishes for you.
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PK. Alpha lipoic acid is an antioxidant supplement recommends for diabetics to help with neuropathy, It also helps lower blood sugar. I am pre-diabetic so I have been using it for awhile. There are 2 good websites. Integrativeoncology-essentials.com. Also www.mskcc.org. Lots of info on good supplements. Everyone is different some work don't. I'm just trying to keep neuropathy under control. Seems like you have it worse although you are 2 treatments ahead of me. Best of luck tomorrow, #5 done for me 🙏
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Beauz - wow your neutrophils has dropped to 1.3 that’s low. So your wbc must be low. I thought when we get that low, they won’t do infusion. I’m watching my wbc also, mine is 5.0so I’m still good. Will have my #7tomorrow.
CM - I will check with my nurse or MO about Alpha lipoid acid tomorrow. I need to check with him before taking any supplements. My numbness started after # 5 and it was mild now it’s numb but haven’t havea y pains. 🙏🙏🙏 I’m praying daily.
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paulettek-- best wishes to you tomorrow for your next Taxol treatmen
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PauletTeK- my oncologist only monitors neutrophils. If it's below one, they will delay the treatment. I don't always get to see my whole blood test results. The ones I had, my WCC were all below 3. Poor thing! Best wishes for your next infusion.
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Hi, everyone. I know most of you have got a port for your infusions. I have been using cannula for infusion until taxol #6 and had a picc line put in for taxol #7. I decide to share my little tale about cannula. I did ask my oncologist about port at the beginning. He said to see how you go with cannula first. Nurses always comment how good my vein is. Until taxol #4, they had no trouble putting cannula in. But for #5, they did. They had to try 3 times and two times to get cannula in. The vein was still easy to find. But when they put the needle in , my vein would form a bubble (about 1.5cm in diameter) around needle. So they had to try at a new spot. They ended up putting the cannula on the inside of my elbow and inside of my wrist. I had to keep my arm straight for letting drips in. With the cannula on the inside of wrist, I had trouble putting my pants up after using bathroom. The nurses said my vein "blew up and not very happy". My arms had many bruises from cannula. My husband said I have druggie's arms. So I asked my oncologist for a port . But the waiting time for port surgery is 3 to 4 weeks, too long for me. So I got picc line put in almost right away. I wonder how long before my skin can become irritated with the sticky tape on it. The smell of the dressing annoys me a bit. Thank you all.
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