Weekly Taxol group
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Ubeee- so day 3-5 are bad days for you, only good days will be 1-2 and 6-7. That’s sound bad, I am not much better either I didn’t gain any weight I lost more weight because I still don’t have appetite. Nausea stopped on day 4 afternoon, I don’t have headache I have fingertips numbness on #5. Fatigue is my biggest problem now. Hope I have energy to do some walking on day 6.
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Taxol is being much kinder to me than AC. The hot flashes are insane and the bone/muscle pains send me in a panic that I have mets, but still better than constant nausea.
We will get through this! My eyebrows still look good, but I have little faith they will stay
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VL -I didn’t have nausea in AC, now I got it on Taxol. 🙁🙁 how many more taxol do you need to do?
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10 - #3 tomorrow if hemoglobins cooperate hoping I'm not speaking too soon about feeling ok. I have been moving a lot and I notice I feel better when I am not sitting around. I do need to drink more water, but it is very hard to do. I truly hope not to get nausea - I feel for you! - it is just horrible.
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I've got treatment 6 tomorrow. I want to stop so much. I want to feel like me again and knowing that once this is done I still have to face radiation is almost unbearable. Will I ever be me again
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Hi Kay and ubeee, congratulations on finishing AC! Other gals here have posted that they tolerated Taxol better than AC. I hope that is the case for you all!
Kay, my MO had me take Clartin daily throughout weekly Taxol to head off bone pain. Not sure if that was my magic bullet, but I had only minimal hip joint pain.
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PauletteK I'm sorry it's so hard. You pretty much have one good day! Are you almost finished your treatment? A friend finished her Taxol 3 weeks ago and she's back to run/walking 7 miles, so I'm hopeful!
I feel lucky thus far, I'm not as zippy as I normally am but it's all tolerable, just an overall sense of blah. Can't wait for this part to be done!
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Hugs Brightness456! It's definitely a long haul. Hang in there!!
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T-Sue, thank you! Taxol so far is sooo much better than AC, and I felt I didn't do too badly on AC, other than it wiped me out more and more each treatment. It was getting really hard to go in by the last one (I cried in the chair) because I knew I was going to feel so lousy, but I was so happy to be done with it, and hopeful for the Taxol which so far is so much better!! Treatment yesterday and today I walked the dogs twice and got in a 5k walk (of course this could be the steroids!). I do feel the aches coming on a bit earlier with each treatment, but so far nothing that I've needed to take anything for. I find walking helps a ton - I ache when I start but I don't when I finish.
Brilliant idea with the Claritin - it SAVED me from the Neulasta when I heard about it - I used it for the last two doses. I will definitely keep this in mind should the pain ramp up. THANK YOU!!
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Today is my day 6 I feel so much better I finally can enjoy food and did my 40 minuets walks this morning. T-Sue I will keep that in mind on Claritin, so far my aches is manageable I don’t have to take pain killer.
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Paulette, glad yesterday was good, so today is infusion day right? Is it also a good day? Hoping so. If nothing else it's one more done and closer to the rainbow.
Have a good infusion da
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Hi Teese, I have Friday infusion today I have appointment with my MO. Thank you! Yes I can’t wait to reach to the rainbow. Btw, my baby name is Mimi
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I did Taxol #3 today and got a flu shot. Thanks for Claritin idea - I took one last night and will continue/ my bone pain was my worst SE after my last Taxol.
Todsy I feel like this is doable and I'm excited about the future - as we all know, this will change! But I'm embracing it today
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Just finished my last taxol! All done with the chemo part! They pulled my PICC line as well. I feel free! Got to ring the bell and choked back years. Now onto Bone pain and slight nausea in a few days. Oh well I know it's the last time. You guys can do this! It will be over before you know it.
Good luck for minimal side effects Paulette and teese!
Take care . I'll see y on the other boards! Pm me if u have any questions about DD taxol
Teresa
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It's so nice to see people finishing and finding ways to manage. I cried during #6, but made it through. I'm hoping I don't feel sick or worn down this week.
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Yes it’s nice to see people finished this chemo treatment, can’t wait for the last infusion.
Tpralph- how’s your fingers? Are they fine???
VL - I had my flu shot last week, praying to God please give me a minimal Side effect infusion. Last one was tough I got several fatigue days.
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Had my Taxol #4 today. I reacted again.
I have a reaction every time, but we are stopping it very quickly. 30 min of flushing with saline follows, some more steroids/benadryl/pepcid (not all of this together, it depends on what I got before the infusion) and we continue to the end without a problem.
They've done all possible things for me: I was prescribed dexamethasone (steroid) the day before (resulted in a crappy night), they put too much of everything in me, and we start at almost 3 times slower speed. I feel like no matter what we do, I will react anyway, but then will continue after the pause without a problem.
Anybody had a reaction every time?
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hi far, I have reaction toward the end, now they slow down my infusion so it takes three hours instead of one hour for taxol. I do not have reaction on premeds. Tomorrow is my #6 taxol, I’m rather nervous now.
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Ubeee, yes, I think walking helped me so much throughout chemo. Keep it up!
VL22, so glad you are tolerating Taxol well! You have a great attitude.
Tpralph, congratulations!!! You did it!
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Paulette, sorry to hear that.
Don't be nervous, though. I'm getting more comfortable with it, because I know what to expect. Also, for the #3 and #4 I was advised to take lorazepam (ativan). I think it helps. My second infusion was the worst, even though we stopped the reaction just as quickly as in other infusions. I had a very nervous nurse
. That led to some weird pulsating vein in my neck. They gave me ativan into the line, and it helped. Now I just take my regular 0.5 mg pill about an hour before infusion.Not loving it, as I almost didn't need it in the last few weeks after my anxiety subsided somewhat, but I agree I need it for the infusion to keep me calm during the reaction.Mine also takes 3 hours, because of the reduced speed and ~30 min break after the reaction in the beginning. I'm thinking I will talk this over with my MO, and ask her to recommend 2 hrs, instead of 3, because I will react anyway, on any speed. And I will most likely be ok later.
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Far, I might do what you are doing, take Ativan an hour before infusion might help me to calm down. Should I ask the nurse before I do that??
I’m so tired of taxol, I don’t know how much longer I can take this treatment.
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Paulette, my MO prescribed Ativan as 0.5 mg every 8 hours if needed. Seems like a lot of Ativan to me, but with that, taking it before infusion, assuming I didn't take one in the prior 8 hours, is no big deal and I feel I didn't need to ask anyone. However, nurses at the infusion center looked my prescription up, and said I SHOULD take it before the infusion.
I had a minor panic attack on Sunday night, so I took it before I went to bed (I needed to get up early in the morning on Monday). Then Tuesday I had a major panic atttack (and major reason for it), so I took another 0.5mg. And one today.
The week before I didn't take it at all, until I became nervous after my reaction during Taxol #2, when I got it in the line. So, overall, my plan is only to take it on Thursdays before infusions, or on some bad days, which I hope, will be few and far between.
Hang in there, I see you are doing Taxol after AC. I'm starting with Taxol, and so far, don't have many side effects. I'm worried about AC though!
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Paulette, my MO prescribed lorazepam .5mg every 6-8 hours, but I only ever take it before bed. One of my chemo premeds is Ativan. I get it as soon as my blood work clears. I also need Benadryl for allergic reactions though, so between the two I'm pretty zonked out during treatment which is fine with me because it controls my anxiety about having to do chemo. To be honest, I don't think I'd make it through chemo without it and I've never needed an anti anxiety med before in my life. I can't wait for this to be over so I can get back to my normal life as much as possible
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Far, I depend on Ativan more now because a good night sleep makes a big different for the next day. My MO told me take it as needed and usually I don't take melatonin first if I can't sleep then I take Ativan afterwards.
I did four rounds of AC before taxol, it was tough on #3and 4, but I passed it. Dealing with taxol has been so tough because it's weekly. Could be my body wore out from AC so I don't handle taxol that well. Just hoping the treatment over soon! 🙏🙏🙏
Brightness- I never use any anti anxiety drug before also, this is my first time also. Same here I can’t wait for my normal life back!
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Hi ladies, I had #9 today, only 3 left and I think I can see the light at the end of the damn tunnel! It’s faint, but it’s definitely there! I realize that I still have to trudge through another month of SE’s, but I’m trying not to think of that. I’m going to celebrate ringing that darn bell, and I think I will walk a victory lap around the infusion room. I might even bring a small token gift for everyone. A woman brought her whole family in to watch her ring the bell today, and I burst out crying because I so wanted it to be MY last day!
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Has anyone experienced hot flashes at night? Lately I woke up feeling very warm, pushing the blanket away from me, I have a duvet blanket and my bedroom is small but very warm, I like it this way. When I get one of these flashes I have to open the window and just fell back to sleep under a cooler air,. Then suddenly I wake up because I am very cold and have to roll into my blanket. I noticed it during the last two weeks.
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I have some hot flashes but not as bad as you do. I just need to remove my cover then cool down in a few minutes. But I’m much older than you, I passed menopause already.
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Cherry, yes, that is exactly what happened to me in the middle of chemo. Like clockwork at 1am and then sometimes a second time a few hours later. I had to get up and put a cool washcloth ony skin and turn up my ceiling fan. Surprisingly, they have now subsided.
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I'm with you Cherry - I get them throughout the day. All of a sudden my bald head gets really hot. At night, I'm freezing in bed one minute and kicking the sheets off the next. Just another wonderful SE.
Msrobin58 - so happy you are so close to ringing the bell!
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I'm having hot flashes throughout the day and night, but I'm 50. I had them in July 2016 (then stopped) and again in July this year (then stopped) and for the past 6 weeks they are back. Not sure if it's chemo or meno!
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