Bone Mets Thread
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Yeah!!!!! What she^ said!!!
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Macy,
Do you have a nurse assigned to you? I do. She's my go to person for any questions I don't understand from the onc. See if your onc can give you a name of one of her nurses you can ask for. Yes, Neulasta can give you some temporary bone pain. It shouldn't last too long after the shots. By the time you get to your 4th treatment, you'll be old hat at all this. The other thing I remember while going through chemo is to make sure you get enough sleep, so if need be, ask for some sleeping pills to help you sleep. Wow what a diff it makes to get some good rest. Sometimes it took 2 pills, sometimes just 1 was enough. Also a sleeping mask helped me block out any light.
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Thanks rangermom, I went for 2nd chemo today and was able to ask the onc and her nurse all my questions answered in language I could understand. I don't know what I would do without y'all!!!. Hope everyone has a Blessed New Year!!!
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Happy New Year girls! Hoping 2013 is kind to all of you.
Macy, so glad you got answers is a language you could understand.
Love n hugs all! Chrissy0 -
Happy New Year to all! Hope 2013 will bring great news of significant progress in cancer treatments if not a cure! Beyond cancer, hope we all have more dreams coming true in the coming year!
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Hi everyone. I am 2 days out from my 2nd chemo, and so far I feel great. No se 's at all and pain in my hip is gone. I hope and pray that the next 10 weeks of chemo will be the same. How are y'all doing I miss you girl's. Hope everyone has a wonderful day.
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Macy -
Glad to hear that things are moving along for you without any issues. Also wanted to mention that Neupogen is just like chemo - each woman reacts differently. I had no SEs on it.
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I am so glad to be starting a new year! I like to wipe the slate and think positive thoughts for the year. And I'm also glad to be finished with all the relative visits. To say that I got upset with my oldest brother is the polite way of explaining it. Thankfully my other brother is a fantastic man who always knows the right thing to say.
This last week was really hard on my emotions. Knowing that I've been progressing these last few months just through me into a emotional wringer. One minute I'm thinking about the TM going down, that they never got that high and then I'm in tears, thinking about the grade 3, comparing myself to my sister.
But I just have to look at this as emotional exercise. So I've done my anxiety jacks, my crying in place, and my it-will-get-better stretches. Built myself some 6 pack attitude abs.
I will be ready for the onc visit next week!
Wishing all of you a very good and happy 2013!0 -
We're with you Ana! We'll hold you up!
Scorchy
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Hi all! I have mets in my skull, sternum, ribs, back, hips & femurs. My pain has been much better since my mets diagnosis but some days I just HURT! I judge a good day by not having to take ibuprofen/Tylenol. I can usually go a week or two without any pain relievers then BAM, my hips, legs and back ache and it's back to the ibuprofen/Tylenol and sometimes a Tramadol. Does this happen to anyone else? I'm having a lot of pain today
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Hi, Kasi:
I also have extensive bone mets. I never had any pain until a few months ago. They are going to treat it with radiation, but in the mean time they are going to give me a prescription for tylenol 3. My pain isn't that extreme or else I guess they would give me something stronger. Maybe this would work for you?
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Thank you LauraO! Ibuprofen usually works like magic for me. When I was first diagnosed, they told me to take 2400 mg of ibuprofen and 3000 mg of Tylenol daily. I take much less than that now and I always feel so happy on days that I don't need anything. I just hate that I can be pain free and then all of the sudden I'm not.
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Kasi I am in the same boat i was diagnosed with bone mets in may. I was in such pain I wanted to jump out the window. I was taking 4 advils every 4 to 6 hours. I cried my self to sleep. Then I started treatment of famera and faslodex and zometa and I started to feel better it got to a point where I did not have any pain. I thought I was getting better. The doctor decided to take me of faslodex and leave the rest. The pain came back after 4 months. He put me back on faslodex about a month ago and I swear I feel better each day.
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Where is everybody? I hope everyone is doing well. I miss you girls. Had 2nd chemo on Monday the 31st. No bad ses so far. My hair is still here.
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Hi, Macy!
I'm here - I've just been sick with some virus/sinus infection combo, and it really knocked me on my butt. Today is the first day in about the last 4 that I feel half human. And I am so grateful for it!
Kasi - hi there - I am so sorry that you are joining us. I have lung and bone mets, newly dx in October. After about the first month on Tamoxifen and chemo, my back feels a thousand times better. But there are definitely days where my back flares up, so I can relate...
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Kasi, I was diagnosed with extensive bone mets last March. I had been having really bad pack pain and mostly it has lessened over time. I also use tylenol/naproxen for pain relief and am happy when I can go without for a few days. Nights are the worst and I am pro-active with taking something before long car rides. Personally I don't want to do more rads unless/until the pain is intolerable.
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Want to ask you all something. I went to work today and we had this big meeting with the sales Reps in town and so many of them say to me "you look fantastic" or you look so great or something to that affect...is it because they expect that I should look haggard and in pain that they say this. It makes me feel like they are thinking "how can she have cancer when she looks so normal?" Know what I mean or am I just being way too. sensitive. when they ask how I'm doing i just say, I'm doing great, or I feel great. Of course, I'm not going to go into my details of how I really feel, who wants to hear all that. Its almost better for me to stay away from them, even though I know they mean well and mean to be encouraging. Its so hard to be around people sometimes.
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Oh and another one today, she wanted me to call and talk to a friend of hers who was stage III and cancer free for 20 years. No, don't think so. Stage III, been there, done that, was stage Iv all the time, just wasn't dx. Crazy isn't it. Well meaning people help us learn even more patience and tolerance, don't they?
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Rangermom,
Almost no one at work knows I have a bone met. They all know about my bmx last year and that I have had and continue to have tx but not that I'm stage IV. I don't mind them saying that I look well and I'm grateful that I do!
Caryn
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I get the "you look great" all the time too. I think people do feel like the typical cancer patient should look frail, sad, and sick. Very common misconception. I know they mean well, but yes it can get irritating.
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Rangermom, I think because in the past people saw others with cancer looking, acting, and being sick all the time. I too felt the same way having watched both of my parents pass away from cancer. The look of cancer has changed a lot over the years. People are now living with cancer diagnosis instead of getting automatic death sentences. Since I've been dx I have met so many women who had the same dx as me years ago and they are doing great.
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Personally, I think they want to acknowledge somehow and just don't know what to say so they fall back on the ole stand by.
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Hi girls, sorry for the absence but my mom passed early hour 1/2/2013 and we buried her yesterday. Trying to get back into the swing of things.
I'd have to agree with Frapp in that people don't know just what to say but want to acknowledge you so fall back on the seemingly positive ' you look good' or ' you look well' even if its otherwise. Usually if someone asks me how I'm doing I tell them I have good days and bad days but that particular one is a good day.
Love n hugs. Chrissy0 -
Chrissy,
Condolences on the loss of your mom. I hope you and your family are doing well and that the new year treats you all gently.
Caryn0 -
(((((Chrissy))))) So sorry to hear about your mom.
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Chrissy, so sorry to hear your Mom has passed. Yes, its good to be back on the boards to help you through it. She has left a legacy through you as you are a loving person to all us here on the boards. I like what Caryn said somewhere here or on another board, that she hoped her parents go before she does. I feel the same way. Mine are in their 80's. they had one daughter die of cancer already and it is too hard for them to hear about mine. I tell them I'm doing fine.
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Rangermom,
Yes, I did say that and mean it with all my heart. February will be 2 years since my sister passed away after a horrible 4 month battle with uterine cancer. She was the youngest of three. I don't think my mother has ever really been the same since and I never want her to have to go through it again. I believe the grief would kill her.
Caryn0 -
I never told my mom that I was stage IV because not long before I was dx'd my elder brother passed from mesothelioma and esophageal cancer. I felt she would only worry about it so didn't tell. I also buried my own son when he was 23 so I'd have to agree that the right order in life's cycle is elder first..........as hard as it is, burying a parent is still far easier than burying a child.
Love n hugs all. Chrissy0 -
So sorry for your loss chrissy. You have my deepest sympathy.
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I'm sorry for your loss Chrissy. Sending you love and hugs from Canada. xo
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Chrissy, I am so sorry for your loss. Stay strong and may 2013 treat u well. Hugs stella
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