Bone Mets Thread
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Thanks for checking in momall. I think of Dani, you, and your family often. Such strength!
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Wrapping you, momallthetime, in huge grateful hugs this morning. Thank you!!!
With love to you for all you are doing for not only Dani, but the rest of us as well.
Amy
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(((Mommal))) - My heart aches for you and Dani. You're two amazing gals and your strength shines through. Thank you so much for your update. Sending you love and HUGS.
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momall -. Thanks for the update. Y'all have been down a long hard road. Time for some good results. Hoping newest scans she is having will bring the good news
Hugs to all
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50sgirl, I will start off slow
10 minutes is a doable amount of time for me, so will start there. I wish I had someone to walk with, but most of my friends are busy with husbands, or jobs still. But I can see where that would keep a person going. Thanks for the advice Carol, I sure hope my se's from Femera stay manageable. Also though, I worry, if I have no side effects, does that mean it's not working? Silly I know, but I bet we all think those things.
Alcarroll, just a few weeks now. I took Arimidex for a full five years after my initial diagnosis. And I never had any side effects from that either. I'll let you know when I start my Xgeva if there is anything from that.
Momal, you and Dani have been through it. I will continue to keep you both in my prayers and hope that you get some good scans.
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Thank you all. You guys give me so much strength.
Not great news with the Brain MRI. Got the results this afternoon. Increased scattered lesions, they all got larger, some new scary stuff in very sensitive places. Hopefully I will get some input from my Brain Mets Sisters.
Tomorrow 8:00 Appointment with Rad Oncologist. Simulation follows for Rads right after. They are starting something, I just hope Rad Onco is willing to do a lot, the last convo she said it's not quite possible or doable or recommended. She is in touch with MO, so let's see if they will be changing something again!. Tonight was PET/CT, so we will prob know the rest of the story tomorrow. To be honest, with this horror at the skull including C1arch, C2 just doesn't look too good.
Def gonna talk Thursday with MO about doing another biopsy. She didn't want. But something has to give.
The kids are at my house, between the PET/CT tonight(she can't be near the kids, and 6:45 appointment for Rads to the sacrum, and the RO they will stay here, hubby will watch them while I hop there to see RO also. Yep, another day...
One day, one day I will post something that will actually make people feel good. Sorry. Warm hugs to my brave ladies.
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Momall-I'm sending you & Dani a BIG virtual hug. There needs to be a break for you two-and soon!!!!!
Babs
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Momall,
Sending healing thoughts to you, Dani, and your whole family. We are with you and hoping you get some encouraging news along with the strength to get through another stressful day.
Hating what cancer does to those we love. ((())
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Mom - Wishing you well with Dani's tests and appts.
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Momallthetime - you and Dani are in my thoughts. The two of you have been through more than anyone should have to. You are an amazing woman and mom. Sending you much love. I wish I could offer more.
Cathy
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Momallthetime, I'm so sorry for your news. I can only begin to imagine what you are going through as a mom of three daughters myself. You, Dani and the family are in my thoughts and many, many, prayers.
Lots of virtual hugs for the whole family.
Faith (in the future)
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Mommallthetime I'm sitting here thinking of something that I can add to what has already been said. It's enough already Dani and you and the whole family deserves some good news for a change. You amaze me with your strength and your positive attitude this is how this will be beaten. You both have that inner strength to get the best possible care and treatment . I am thinking of you both we are all here for you. Big hug from Canada🤗
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Momallthetime, prayers for you and Dani.
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thinking of you mom and dani. Wishing you peace.
Mary
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Flowers from my DD boyfriend to thank us for dinner!!!! Thought they would brighten up everyone's day- especially Momall and Dani!!!!Babs
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Beautiful! Does brighten the day!
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babs. What a Sweet boyfriend for DD.
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We met with the radiation onc this morning. I'm tattooed and ready to start treatments on T3 and my left pelvic bone early next week. Side effects will be fatigue (as usual) and a slightly "sunburnt esophagus" from the T3 zaps. So, maybe living on milkshakes for a few days!
Outlook is good for healing these 2 spots.0 -
That's great news, Kaption. Will be thinking of you, and hoping and praying you heal quickly.
Babs, beautiful flowers thank you
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kaption
I had some uti symptoms when my pelvic bone was radiated. My RO gave me meds (pyridium i think)that took care of it quickly. The radiation did work wonders on the pelvic pain. I hope it works for you too.
Mary
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Thanks, Mary. It's the far outside tip of the bone, so I'm hoping that won't be an issue. I have a long history of UTI and my RO knows. I'm on a med to prevent infections. Hope it keeps working.
Hoping...
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Mom- I am hoping for some better scan news. I keep checking in. XXX
Babs, DD has a winner!! And the flowers are just gorgeous.
Amy- waiting for more pics!!
Hugs to everyone, Carol
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momall, you are the BEST mom. Dani must surely know that.
Linda, Raphael is adorable and I love his name.
Kaption, good luck with the rads. I had throat pain after Cyberknife to C7. PM me if it's bad. I may have some suggestions.
Patty, glad to hear you are having a good spell.
Akshelley, ONJ is real and it's nasty. Can you find a dentist who specializes, maybe at a university hospital? I almost agree that unless it's not tolerable or getting worse, it may be better to do nothing. But I would feel much better for you if you would see a dentist with necrotic bone experience. It makes alL the difference.
hi to everyone else.
Stefanie
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Thanks, Stephanie. I'll let you know if I need some tips.
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akshelly - I put my experience with the extraction out there partly because I believe the trouble I had is related to the cancer and the treatment (I am on letrozol and Ibrance) and I was wondering if this my trigger some responses. I've had four teeth extracted with no drama in the past. This one molar was a nightmare from start to finish. I believe I had some infection in there for a long time that has been effecting my health overall. Hopefully, whatever it is, it is over.
momall the time - It means so much to me that my little dental situation gets your attention and concern given all you are going through. I also understand Dani spending every moment she can with her kids. I am so grateful I stopped working and I can do the same. Every moment with my children brings me so much joy. I resent everything that distracts me from my family. Even 5 or 10 minutes. so glad to hear from you.
>Z<
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Kaption. I had a burned esophagus when I had my initial radiation for my bc so my GI dr had me take Pepcid before my treatment to prevent discomfort going forward. Maybe speak to your RO to see what you can take before each treatment to prevent some uncomfortable SEs
Babs
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Thanks, Babs. I already take Prilosec daily, but guess that is different from Pepcid. I will certainly ask.
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Hi ladies;
I'm happy for every ladies that got good results and good response on treatment
Momallt: you and Dani are always in my prayers.
I had a CT scan done after 4 cycles of Xeloda and I'm stable, tumor markers went down by 500 points and I hope they continue to decrease. It stated that one lesion on my liver is more evident now and I don't know what to make of it.
I see my MO from here tomorrow so I guess I'll find out tomorrow. I'm also waiting to hear from my main MO from University of Miami.
I'm not very good expressing my feelings nor talking about what I'm going through andthat's the reason I don't write often. My husband says that I'm always short when writing.
Take care everyone!
Ziz
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Ziz, I think you write very well. Even if that weren't the case, you should post any time you feel like it. None of us will be concerned about the quality of posts. I often ramble when I post, so you are bound to look good compared to me. Many of us post during emotional periods, and our stress or fear or joy affects what we write. We will always be happy to hear from you. Stable sounds WONDERFUL. TMs are down 500 points? WOOHOO!!! I am doing the happy dance for you. That is quite a drop. I am sure your MO will be happy to discuss the comment about the liver met. Sometime I think that radiologists delight in making their reports vague and ambiguous.
Mom, I cannot begin to imagine the emotions you are experiencing right now. I wish I could reach out and give you a big hug. You are so strong for Dani, but you know that I worry about you. Please take care of yourself. I will pray for you and Dani. I hope you have positive news soon.
I am behind on the posts again. I will write more after I catch up.
Lynne
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good !morning ladies. Hope all is off to a great day.
Kaption- what do you take long term for uti prevention? I get uti's very often and end up in hospital for IV antibiotics
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