Bone Mets Thread
Comments
-
Lita, I am so sorry you are having such a rough time. Thank you for the advice about not putting off rads, pain meds, etc. I think we all want to be warriors and tough it out, but it catches up with us...lol. Thinking of you and praying you get some rest and relief from the pain.
Babs, what a beautiful wedding. Thank you for sharing it with us!
Blessings to all
Diane
0 -
Gentle hugs, Lita.
0 -
Lita I don't use MJ for much nowadays but for sleep and appetite it's still the king. Get yourself some edibles with indica in it and that should knock you out for sure. 😊
0 -
Lita,
Prayers that you find something to bring relief from your pain. I will always be the first to admit that when it comes to "pain threshold", women are definitely the stronger sex.
KD and I spent a couple hours at the MO's office today because she has been experiencing increased pain in her liver, increased nausea and no appetite. This is following the recent news of some progression in her liver mets.
Well, he pumped her up with some fluids and steroids because she was mildly dehydrated and read her the riot act about taking her pain mets as prescribed. KD is just like her dad, too tough and stubborn to take her pain meds until the pain gets really bad.
He told her that "If you don't take your medicine like I prescribe it, I'm gonna call your momma. Don't make me call your momma!!!" LOL (KD's mom is a retired oncology nurse whom he knows very well.)
KD is like many others in that she hates the way the opiates make her feel. I understand that because she has never even been one to drink, much less use any other chemical. I keep begging her, "Please take your pain medicine every day. I would LOVE to have to put you in rehab for pain pill addiction 10 years from now!"
So, bottom line is the MO basically told her to "Take 2 pain pills tonight (and every night) and call me back in the morning." LOL
PRAYERS FOR GOOD REST FOR ALL YOU LADIES,
Louis
0 -
Micmel...Thank you. This is exactly why we joined this forum: to share our struggles and support each other. Only YOU and all the other dear ladies here know what we're going thru.
I pray for relief from your pain, too. And yes, as I explore more palliative care options, I'll have to look into sleep aids. It's about time. Lots of us don't want to do that because it represents ONE MORE THING we've lost control of and need help with...and one more pill (literally) to swallow. But this is what cancer does to us, and stubbornly "white knuckling it" thru the pain and insomnia isn't going to win us any awards or medals for bravery. We're only adding to our own unnecessary suffering.
Better Living Thru Chemistry, as they say...and glow-in-the dark radiation when you can get it 😉.
Lita
0 -
Lita - I am so proud of you for fighting on. Please let us know how things go.
Anita - hang in there. Looking forward to hearing what DF has to say.
>Z<
0 -
lita. Cheering you on. Much hugs
0 -
Lita, hang tough! Do whatever you need to do to get some pain relief and decent sleep! You are in my prayers.
0 -
Lita~ I am the same way with medicine, I try my hardest to take it!! Utilize your pallative care doctor all you can. Mine helps me everyday, they are the hidden angels, in this cloudy place we have to navigate through. You're in my thoughts daily and I pray for you and all of our recoveries, and the prayer of living comfortable and filled with love and support. Rest up Lita, and if you have to honey, pop those pills!! I've learned with cancer, sometimes we are forced to play his. Games. I plan to win along right side of all you ladies for many many years to come. ~M~
Try to look at pallative care as another option to gain some control, which will give you back more over that darn pain. It's arming yourself with the weapons you need to kick this jerkos butt!!
0 -
congrats Bbs! Yes the smile on their faces tells it all and yes reminds me of Amal as well.
Ziz
0 -
Hi everyone,
Oh I love the wedding photos, Babs! What an incredible family time! So happy for you.
Lita, holding you in the light. Your frustration is tangible in your writings. I am honored to know such a strong and perseverant person. I am angry and upset that this is happening to you. Sending love and prayers that you may be out and about doing those errands tomorrow.
Dianarose, I am so pleased to hear that you are feeling better, no one deserves it more. Enjoy creating some lovely confection for your family!
Momallthetime- holding you and Dani in the light also. Sincere prayers for relief and for the trial to do it's thing NOW.
Thinking of you all, and so achingly wanting the best for each.
I feel as though I am in a grace period right now. I am so thankful for every day of it. I am keeping in the NOW.
Love to all of my MBC sisters, may the force be with..... MJH
0 -
I have minimal side effects from Ibrance. Of course you know how we all over think things. Makes me wonder if it's working. I feel better then I have in a long time
0 -
Yay, Diana! Enjoy the boost of energy and feeling good as long as you can.
0 -
Diana - It is okay to feel great. It doesn't mean the medicine is not working. Enjoy!
>Z<
0 -
- Babs love the wedding photos you two are like peas in a pod and both tall and stunning . 50sgirl I wonder if your urine deer trick will work with the kangaroos and wallabies lol . Funny how we have such different animals deer look soo cute. This is a photo taken today of me on the Mornington Peninsula near Melbourne I spent 3 hours today in a car to get here walked half the day then spent 2 hours in a canoe. I believe the Chinese herbs and acupuncture have helped me get from lying in agony on the couch in November to being like this Less pain and fatigue by a mile. Wishing all the girls having scans all the best love jud
Judy
0 - Babs love the wedding photos you two are like peas in a pod and both tall and stunning . 50sgirl I wonder if your urine deer trick will work with the kangaroos and wallabies lol . Funny how we have such different animals deer look soo cute. This is a photo taken today of me on the Mornington Peninsula near Melbourne I spent 3 hours today in a car to get here walked half the day then spent 2 hours in a canoe. I believe the Chinese herbs and acupuncture have helped me get from lying in agony on the couch in November to being like this Less pain and fatigue by a mile. Wishing all the girls having scans all the best love jud
-
Judy~ you're lovely hon! Such beautiful water and looks like a perfect day. I bet you were tired after such packed filled day with outdoor activities. Sometimes I think just being outside in the airmakes you more rested at the end of a night. Thanks for sharing. My issue is with the warmer weather coming. I have wardrobe issues. I only have one boob, and it's so hard to wear clothing anymore. So ugh! Time to either have reconstruction,which could irritate my lymphedema, and I have heard it's pretty painful. I don't really want anymore pain. Or just figure out the one boob thing. What is it even called? A foob? A an OOB ? I just don't know.Keeping everyone close in prayer! ~M~
0 -
Diana. Feeling good is a great sign
Just- wonderful picture. So glad you were able to do so much!
Babs
0 -
Micmel
My recommendation on reconstruction,based purely on my own experience is DO NOT DO IT.
My first bc was 2005. Lumpectomy and rads- beautiful boob still there.
Bc #2 was 2012-other breast. Decided to be "proactive"and get double mastectomy and reconstruct. (Btw, both of these bc were stage 0). I wanted to " look normal." Note, I'm now mbc- so there was no reason to do the mastectomy, but we didn't know that then.
After I was committed to doing the surgery I was told the radiated side would likely not match the new bc side. Ok. The surgery and reconstrprocess were very difficult! The results do not look good at all. The radiated side is much smaller and flatter across the top. The "better" side is not normal looking at all. Also very flat on top. I'm 67 years old, so not real concerned with how my breasts look. But, the reconstruction is still very uncomfortable. I always explained it as feeling like a tiny, tight saddle. I have looked into having it all removed and going flat- but I can't get healthy enough to go through such a major surgery without a really good reason.
I have adapted my wardrobe to camouflage my top. Always patterns, always loose. I know what works now.
All this to say, don't expect reconstruction give you back your original shape. Btw, I'm a fairly small person of average weight and had my reconstruction match my original B cup.
I have a friend who wears one foob and does fine with it. Seems like an easy option to me.
Hugs!
0 -
Kaption~ thank you so much for sharing your story with me. I honestly had been leaning towards not doing it. I just don't feel very womanly with one large boob protruding out words. But I have heard horror stories as well. Maybe I just need to get busy trying different things to wear. I always thought it could not possibly be easy physically or mentally. The more I learn about it, and the complications that can happen make me Re-think it. Hubby, sweet hubby hasn't missed a beat, and is still the sweet loving man always steadfast. Even though my chest and stomach look like a road map, from my liver and breast surgery. I just wish we all could go back to before we met the monster. Thank you again. I keep you all close in prayer. ~M~
0 -
Ugh... excited and anxious for my first Xgeva shot tomorrow. Excited to hopefully begin some healing and strengthening of my body but anxious about potential side effects. I was originally scheduled for Zometa and was told to hydrate the day before, day of and day after. Now that I've been switched to Xgeva, I've been told there is no preparation needed. Does this sound right? Anything you ladies do to help yourself minimize side effects on Xgeva? I also get to have another tumor marker test done while I'm there. Praying for the number to still be going down on Tamoxifen!!
0 -
So today is D-day otherwise known as scan results day. I have a bad chest cold as well and have been in bed for the last two days. So feeling very low today so afraid of what she will tell me. ...I don't know if I can physically walk into that room today. If I was feeling better I would run away.
0 -
Fight4two - continue hydrating. You may experience muscle and bone pain for about 48 hrs or so, a lot of women have zero SEs with Xgeva.
Wendy - you can do this. Imagine all of us walking in the room with you! Hugs to you.
0 -
Hello, Delvzy, what a lovely picture. You look so happy and it looks like it was a gorgeous day.
Wendy, we are all praying for good scan results for you today,
Micmel, I understand your feelings about the one boob situation. I had a mastectomy 20 plus years ago, considered reconstruction, but backed out at the last minute. I have managed very well with a prosthetic 'fake' boob. I am quite comfortable in a swimsuit. But the latest fashions with the super low necklines are not for me...not sure if I would wear them even with 2 boobs...lol. Actually unless I tell people, you would never know one is fake! You will know in your heart what is the right thing for you.
Diane
0 -
fight4two, no side effects for me, have had 11 injections of Xgeva.
Wendy, oh boy, I hate that butterflies in stomach, heart racing scanxiety--- so thinking of you and hope it's positive news.
may the force be with....MJH
0 -
Wendy, thinking of you and praying for good news!!!!
0 -
Wendy, thinking of you and sending ppositive thoughts and energy.
0 -
So I got my results...the letrozole did not work tumour in my liver went from 2cm to 8cm and is now pressing on my stomach so I have no appetite. Lol so many years of dieting and now I drop 12 lbs in two weeks. Eating an almond is a big deal. Also we have progression in the lungs at least my head was clear...
So next week I start Taxol Wendy will be going bald.
0 -
Oh Wendy. I'm so sorry to hear this. Hugs and prayers! You are one strong gal. You can do this. We're with you!
0 -
Thanks Kaption not feeling to strong right now ,always said I would never do chemo well one and a half years in here we go...
0 -
Wendy, I am sorry for the news of progression. Damn, damn, damn, I hate this disease. You know there are lots of treatments out there, and Taxol is a very effective choicefor many people. You have lovely hair, Wendy, but you will be just as beautiful bald as you are with hair. I know it is easy to say, but the fact is that your life is much more important than your hair. You are strong. You are determined. You are loved by your family at home and your family here. We will help you through this. I am praying for you.
Lots of big (((HUGS))), Lynne
0
