Bone Mets Thread
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Wendy ~sending warm hugs. And many prayers. I'll be scanning may 5th, not far. My thoughts are with you.
Fight~ I take Claritin, just had mine yesterday, just a little achey and tired today. Water!!! Water!! And i mean Claritin everyday to help joint pain and aching bones from the anastrazole!
Granny~ I guess time will tell. I'm just not into surgeries anymore! Keeping you all close in prayer !
~M~
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Wendy-so sorry 😐. Taxol wasn't that bad as far as side effects. Yes, the hair part sucks. Hugs..
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Wendy, what a blow! I'm so sorry. Do they ever use cold caps in Canada? If you're not familiar with them, here's the thread about them. https://community.breastcancer.org/forum/6/topics/... But with or without them, you've got to kick those stupid mets to the curb, and I pray that Taxol is exactly what you need to do it.
Great photo, Delvzy! Glad you're in less pain and feeling much less fatigued. Good to know Chinese herbs might be worth looking into. Is there anything in particular you're using that you feel is making a difference, or is it a whole program?
Lita, I'm sorry you're going through a rough patch. I hope and pray you were able to get some additional pain relief.
fight, I haven't had any issues with Xgeva -- other than the one time I decided to try the injection in my tummy vs. the back of my upper arm. We're all different, but in spite of others reporting that the tummy injection is easier for them, that was the only time I had bone pain for a few days. In fact, I just had one today, and except for some stinging going in, it was very smooth. I hope yours goes as well.
Carol is finally home after 12 days in the hospital. I hope to talk to her tomorrow and will share any news. I know she is very grateful for your prayers and concern.
Welcome, Mel, and anyone else new here. Hugs to all, Deanna
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Deanna, Please let Carol know that I am happy she is home. Tell her that she remains in my thoughts and prayers.
Thank you.
Lynne
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Aw Wendy, I'm so sorry. It's time for you to stop AIs and I'm sure Taxol will destroy all those nasty cells. Sending gentle hugs.
Deanna - thanks for the update on Carol and look forward to more news. So glad she's home now.
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Wendy, my thoughts are with you at this difficult time! Damn Cancer! Hope your next treatment knocks it all back! Stay strong!
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Wendy gentle hugs and prayers for you. Lita I pray you get control of your pain. All of you ladies are so strong. I hope I can be as strong. Thank yall for being here. I am learning so much. Gentle hugs to all
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Oh Wendy, I'm so sorry. As you may remember, I moved on to Taxol in January after three years on Xeloda. On my third cycle now (of three weeks on, one week off-- I'm in a clinical trial). The hair loss is a total bummer, not gonna lie. But Taxol is holding my mets stable for now, so it is what it is. I have a few wigs in my arsenal now and several cute scarves, and onward we go.
I'm here if you want to ask me anything about Taxol. Hugs and prayers, friend. Hang in there. You can do this.
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Oh gosh Wendy, very sorry to hear your news! Taxol kicked the crap out of my cancer the first go round! And I thought it was a lot easier than the Adriamycin and Cytoxin. Hoping it works really well for you and that you tolerate it. Big hugs!!!
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hi all!
Wendy, I am so sorry to hear about your progression. The hair thing is hard, I won't lie. It sucked big time but you will get thru this too. I did the wig thing because I live in a small place, but you could totally pull off hats & scarves. ((hugs))
Deanna, thanks for letting us know about Carol. I sent her a PM a while ago when I was wondering about her & then read that she was not well & in hospital. Good to know. Please send her my best wishes.
I am still quite sick but they won't take me off Ibrance just added more drugs to my evergrowing pile. Now on antibiotics & they still want me to do my infusion tomorrow but I postponed it by a day.
take care everyone, cheers, dee
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Wendy~ I wish I had a magic wand for all of us, I am sending you every ounce of strength I have to help you get through each day. I think we all can relate to how you're feeling. I know I do. Feel our strong hugs of comfort and understanding that only someone going through it,. Would ever have a clue. You're in my thoughts and prayers. ~M~
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Wendy - I felt a punch in the stomach reading your note. I feel very connected to you. This is devastating. Gentle hugs. You are very strong and taxol is a good drug. I am so glad you have chosen to do it. There are many ways to enhance the effectiveness of chemo and reduce side effects in your complementary arsenal. Keep fighting girl.
We are all in this with you.
>Z<
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Micmel - I opted for one boob, no reconstruction and never looked back. I get mastectomy bras and use Knitted Knockers or a very lightweight microbead form from TLC for a very natural look. Gave up on the low cut tops, but at 65 I am ok with that!
Fight for two - I've had 4 Xgeva shots so far with minimal side effects, just some aches that a couple of Advil takes care of. Good luck!
Lita - I'm so sorry you're having pain issues. Praying you get some relief soon.
Wendy - sorry to hear your news. Losing our hair is never easy. When I lost mine, I discovered that I preferred caps and scarves rather than a wig so I made a game out of coordinating scarves with my outfits. It seemed to keep the nurses in the infusion room entertained. Claritin and lots of water helped with SEs. You're in my prayers.
Prayers and positive energy for allwho are fighting this sucky disease.
Marti
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Wendy-so sorry about your progression. Im on Taxol now-have been since either November or December . It is pretty tolerable and I am stable since I'm on it so a good treatment for me-hoping it does the same for you!!!!. I must say losing my hair was hard-especially before my daughter's wedding. I hate wearing my wig but do. I love wearing turbans though! Will you be on the 3week on 1 week off regimen? I can answer any questions you might have on Taxol-PM me.
Babs
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Wendy,
A tip I got from a friend before taking Taxol. I had decided ahead of time not to shave it. I did get it cut very short. The tip is to comb or brush it before you go to bed. Hair will come out, but it's better than finding it on your pillow in the morning. That really helped me.
I did have one wig for "dress up." I was already retired, or I might have worn it more. I got Royals and KU ball caps. I can see you as a classy scarf gal too.
It grows back :-). Hugs!
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Wendy...keeping you in prayer. Will Canada let you do xeloda? It works well on liver mets. Don't see it on your list of previous treatments. What about cyber knife to shave that liver met down?
Don't lose hope.
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Hang in there Wendy, we are all thinking about you.
This disease robs us of so much. I hope and pray that Taxol treats you well. I see you as a classy scarf girl too..Fight, i just started Claritin 4 days ago and i swear it has made a huge difference already with the achy-ness.
Thanks Deanna for the update. 12 days in the hospital she must be sooooo happy to be going home. Send her our love.
Dee, I sure hope you start feeling better soon. Are you on the full dose of Ibrance? Just wondering if hey could switch you to lower dose or longer break in between until you recover?
Delvzy, great pic. Kayaking looks heavenly right now. You even have a nice tan! Unfortunately after a few days of thaw we are supposed to get 3 feet of snow up top......Maybe I will get another snow day!
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Wendy what a bummer. I always said I wouldn't do it again even though I had little or no side effects but I guess if it's to kill off the darn little cancer cells we do what we have to do.
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where does one begin to look for a fake boob.? Geeze the stuff we have to talk about. Through this awful tunnel of hell. Wendy , I am thinking of you. I prayed for us all again last night. I wish the medicine we needed to fight back this monster wasn't so harsh. Especially on our hair. I mean as if battling cancer wasn't enough. Throw in the world knowing, even if we have chosen not to share what's going on In OUR lives . I feel that pain you're feeling everyday, I look in the mirror and I always go back to my go to question, that again never gets answered. "Why?" "Why us?" Hair does grow back yes it does. But the loss of going through that is in-explainable, until you go through it. I understand Wendy. And I chose to hold on to every strand I could for how ever long. My hair was half way down my back and it was my treasure. My best feature. One day it was gone. I had to grieve it, I still do. I won't look at pictures that remind me of yet another loss I can't control, which in way or another we all feel that at one point in this journey. But what I'm trying to say is. You will get used to it like I did , you may not like it, but I would rather have you here fighting, then give your hair another thought ,when in reality I spent way to much time when I did have it focusing on how it looked. I realized that beauty truly does lie within, and clearly Wendy, You are beautiful, and so is each and everyone of you.
Keeping you all close in prayer. ~M~
Oh and Wendy. Do everything on your terms. If you want to pre-empt the falling out and take control. That is your choice. My family kept pushing me to shave it off and I wasn't ready. I cried everyday, but one morning I woke up and decided I I I , I was finally ready. No one else but me myself and I finally decided when it would be done. Listen to your own heart. 💜 The color of hope !
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Thinking of you Wendy. I got bad news from my Pet scan this week too. They found liver mets. It's such an awful feeling. Headed to Dana Farber Tuesday. Maybe we will go bald together!! I have no idea just feeling so hopeless at this point.
Hugs to you!
Anita
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photo~ big hug. I know what hearing crappie news is like I went from being stage two one week,to stage four the next, ooops it's on your liver and in your nodes let's operate now!!! Took all that out ba bye!!! . Then on to the heavy two sets of the most aggressive chemo out there. I am still recovering from all of it, and have been told after all that and getting that NED statement, that only lasted three months. Ooooppppps would you look at that,during the heaviest chemo possible it landed in your pelvic area and a spot on your back. Oh how could that have happened? I guess really it's because they just don't know. Up and down up and down. When I was a little younger, when I thought nothing like that could happen to me. I used to see women with breast cancer and they always had short hair (like I do now ) and I always wondered, why they all had such short hair. Well now I know why. All of the treatment those strong precious ladies had to continually go through to stay alive. Now boy do I get it. All too well. And all too up close. You're strong lovely people, please don't ever forget. We didn't choose this, for some reason we were chosen. I don't know why. But there had to be a reason. Maybe someday we will find out. Hugs to all you amazing ladies out there.
~M~0 -
Anita,
So sorry to hear of your progression too. Too much bad news recently. Holding hands with all of you!
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Anita - Thinking of you. Dana Farber is an awesome cancer center. You will have good options, except for the hair thing. I cannot imagine, although I am sure I won't have to imagine it at some point.
Carol - I think of you every day.
Wendy - I hope you saw Lita's post. Those mets may be easy to fry. Hope it is possible.
>Z<
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Wendy, I'm with Z, what a gut punch.. you must be a little numb and reeling. What a royal pain it is to have to keep adjusting to new normals(or new "abnormals") . I will struggle,too, when it's my turn. I am wishing for you the collective positive energy of the universe.
Dee, I had a viral cold in November that took me 5 wks to recover from. Just one more flipping thing to take the joy out of life. Hopefully you will turn the corner and be on the upswing soon. Sending you the collective positive energy of the universe, too!
Anita, also sending you the collective positive energy of the universe. My MO did residency at Dana Farber and is just such a fine physician. You will get state of the art treatment.
Curse this disease and send it straight to the depths of Hell.....
love to each, may the force be with.... MJH
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Anita, big hugs to you too! I hate bad news days...hoping you get on a good plan very soon
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Wendy- I have a new blonde wig you can have if you are a blonde. Let me
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Wendy,
I hope you feel better soon. Praying for good results for you..
Ronnie
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Wendy,
Darn I am so sorry, this disease sucks. Keep positive this is just another step in the journey you are going to be fine. I went bald years ago its not so bad..
Ronnie
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For Wendy and all of us today...
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Good one, Deanna. And she faced many health challenges!!
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