Bone Mets Thread
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Linda I took the premeds for my Taxol infusions and after my second dosage I had the premeds reduced-the decadron got me a little crazy. I had treatment Thursday after work and spent most of Saturday's resting in bed. Though I was tired it was a relatively easy treatment for me I hope it's easy for you
Wendy. OMG. I hope it gets easier for you!
Bab
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Wendy~ those pre Meds are vital.they help our bodies fight rejection. Never skip pre Meds unless it is substantially substituted with other medicine. You might have been having an allergic reaction. It happened to me with abraxane. If anything have them slow down your infusion drip speed after the pre Meds. Those pre meds do a lot more that you would think. It is helping your body accept these medicines with toxins . The cells in your body will go on attack mode and that is what likely happened to you. It was your body rejecting the foreign substance it's not used to having. It is scary. Those nurses are amazing. All of a sudden have capes and are there in a split second. They know what to look for. Sounds like you were in good hands. Along with slowing the actual time you have the insusion. I.e.; if it usually takes 30 mins then have them slow it to 45 mins and during the entire infusion eat!!! Eat something that has substance. Like a breakfast or a sandwich. Eating does something during infusion for you to metabolize the toxins faster and easier on your GI and body. You already seem to have the fluids down. Don't stop sipping water during it either. A lot of times our bodies are already a tad dehydrated , especially if we have an infusion early in the morning. We aren't awake enough to have put back in our bodies the needed water to dilute this when it hits your system. I hate you cancer. But I adore you Wendy. Hang in there honey. It's not a picnic. But it works good. You're always in my prayers. ~M~
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OMG Wendy! Thank goodness they had the Benadryl etc. around!
Yes, pre-meds.
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Wendy-hugs for that scary experience!
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Wendy what a scare!! A step at a time. So glad you coming along!
Artist the gall of these people, we are still going back and forth, D got a bunch of numbers from supervisors, she is not taking it sitting down, we'll see. It's a new Ins, they are paying more as to not have issues, so this is a pain the neck! Well, tomorrow is scan day, so they gotta get it together by tomorrow.
Thanks everyone. MCK it was good to read that info you sent thanks.
Patty, comfortable?
Linda hope you know soon what's the results.
Lynne feel good.
Nan re things disappearing after you write, we all had this happen, a lot of the times I write on Word, then copy and paste it here.
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My two rescue dogs! Peppa (rat terrier) and Maggie (Lap/Shar-Pei) they love each other..
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Okay got grief from my cats for only posting the dogs! Here are the actual rulers of the house Daisy(Black) and Piggy (Orange)..
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Ronnie ~ loving the furry friends! Brings a smile everytime. Thank you. ~M~
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My cat is a Bengal of noble lineage but I think I need a rescue rat terrier.
How are things post trauma, Wendy? It's over but it can take a while to shake the shock ... I am so proud of you for doing this. The taxol will work but it also sets you up for some other good options should you need them.
>Z<
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Feeling a lot better Z playing with the idea of heading to the gym for a light work out. Very light I just never know what to,do,with my stupid head. Have a bit of fuzz mostly white now all over my head. Looks terrible but I don't want to wear a wig to the gym yuck. Hahaha that would go bad because I'm constantly readjusting and shifting it around as it is. Look out jocks here comes cancer chick lol.
Ronnie your orange cat is gorgeous so fluffy! They are both gorgeous love kitties.
Nice to see all the critters it makes me feel like we are sharing our lives a little more with these picks.
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Wendy - A light, loving workout is just EXACTLY what you need. Try a sauna to help move toxins or whatever detox you prefer. Right attitude. Massage? Way to go! Take care. You are amazing.
>Z<
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Wendy So glad you re feeling a little better! I love your spunky attitude. You go girl, I see a lioness in you
Really enjoying the fur babies.
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MICMEL, great advice on adjusting the drip time and having something to eat as well. They tell you to hydrate a lot the day b4 and day after to help with toxins, too.
If water is difficult to suck down, try homemade broths....I can easily guzzle down a couple large mugs of that. Stay away from caffeine because it actually dehydrates you.
In the summer, I like to infuse water with sticks of raw ginger, cucumber slices, crushed mint and a little squeeze of lemon. I can drink it all day.
L
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I have some news. Abdominal ultrasound confirms liver mets. Radiologist came in to take some more photos after tech completed the exam and says liver has significantly deteriorated since last US in Jan. She was not specific in terms of number of lesions or location. Anxiously waiting to speak to MO. No news from brain MRI yet. Bummer indeed, but at least I didn't have to wait days and days for results as usual.
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lynn. Good luck. On surgery
Lindae. Darn. Not good news. Glad you didn't have to wait. I have no taxol experience but just sending hugs and healing warm.
Hi all
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Linda sending prayers for emotional strength. I don't see capecitabine on your list (Xeloda). It works well on liver mets.
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oK ladies and gentlemen, I have a question. When I was first diagnosed '05, I got 4 round A/C, after 1st treatment I got strep throat, bronchitis and mouth infection. Fought it and was able to have next treatment on time, be thereafter, I would get treatment, recovery 1st week, then get above again and get well just in time for next round. Needless to say, it was awful! Also know my body does not like meds. For example i can not tolerate antihistamines or narcotics for pain.
Ok, to my question, had rads to left hip for new growth, only new activity, so hopefully rads knock it back, but chemo is possibly next and I have said no chemo. Am I short sighted? I had such a horrific experience with A/C i don't want an experience like that again. MO respects my choice, but PN keeps trying to gently change my mind. Am I making a bad decision or not. SO supports whatever I decide.
Thank you in advance for any support!
C
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Linda, I'm so sorry. I know what a terrible blow your news is -- a blow that will take a few days for you to regain your equilibrium. But you will. And hopefully your onc will get you on something to address what's going on quickly, and hopefully it will work great and get you back to stable and even NED, which I've been happy to realize many women do get to and stay at, even with liver mets. Extra prayers right now for your brain MRI results.
Patty, so glad you're resettled in your own place. Hope it's a peaceful, healing environment for you!
Wendy, what a frightening experience! Definitely need those pre-meds. And glad to see your come back spirit prevailing with thoughts of going to the gym, which I hope you were able to do.
Love all the fur baby photos. As someone (Wendy?) said above, these little insights add so much and make us realize that we share so much more than a stupid mbc dx and med SEs!
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My girl, Jackie, decided she wanted to run errands with me earlier today. Who can say no to that face?? ❤️
BTW, don't tell KD that I let Jackie ride in her van.
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My candle shines bright for many. tonight. May its light bring peace, serenity and calmness to my mbc sisters dealing with disappointing news, loneliness or worry.
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Linda~ Liver mets are also very treatable. Now onto finding you the right treatment!! I am glad you did not play the waiting game for results. That's awful. I am praying for you to bounce back from this and have some well deserved relief not only physically but mentally. Gentle hugs for you and prayers for all my BC sisters.
Bighome~ I myself had always said if I have progression,find me something that won't be harsh and won't take away my hair again. I can't loose it a fourth time. I understand feeling that way completely. I sometimes also have someone say to me. If you could have chemo again and it would work And give you a lot more time wouldnt you want that? I honestly didn't have an answer because I went through hell and back and lost feeling in my feet and fingernails right along with my hair.so I can understand what you feel completely, I believe it's a personal choice, but then I hear my son laugh or see my daughters beautiful blue eyes light up, and I realize I would do just about anything to spend every last breath with them. It's nothing but An up hill battle either way. I do know that people live many years as stage four. I want decades for us all! Hugs and understanding ~M~
KD's husband. Adorable puppers! Love the smile! No one could resist that face no!!
I love all the animals they are so freaking cute. Thanks for sharing and I agree with Wendy it does bring our lives closer seeing the pets and family. It's very special to share lives and feelings,. I feel lucky you all understand because sometimes even the closest person to you just doesn't understand anything ! Have a pain free restful sleep! ~M~
Waves to Lita! Glad to see you today 😊Always in my prayers for your pain relief. ~M~
MCK~love the light thank you for sharing. I need peaceful thoughts.
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Bighome. I agree with micmel. For me I would do anything to spend more time with my family. But I believe in QOL. If it's not what I want I'd rather do nothing.
Hi Patty Deanna Lita and Wendy and all my bc sisters. Louis Your dog is hard to resist! MCK like the candle!!!!
Finall got my scan results. Since this scan was really looking to see if I had kidney stones they didn't do contrast. So they said it was hard to compare to my scan of 4/14. But in just under 3 weeks 2 of which I was on Gemzar my liver mets increased from 1.8 x 1.6 to 2.8 x 2.4. And 3.4 x 2.5 to 3.8 x 3.1. A little unsettling. I'll be staying on gemzar MO wants to give it more time to work. And I agree!!!! But glad I'm off this week. I am tired!!!
Hoping to hear good things from all of you. Please!!!
Babs
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Bigbhome - Exactly the question I am asking myself as well. Seems like I have become AI resistant and chemo is my next step (probably Taxol). I've been mulling over this question for the past few days, last night I went to bed saying to myself no chemo. And then a dear friend of mine on these boards pm'd me this morning with a quote from one of Pajm's post a while ago saying something along these lines: Stage VI chemo is not as harsh as "curative" chemo. One can always try and if it's not right for us, or want to stop, we can. We don't sign a contract with chemo. So I decided to give chemo a go and see how it goes. I figure I don't want to have regrets down the line and say I should have tried. I wish you the best in your decision if and when the time comes to switch to chemo.
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Babs that sucks but I'm glad you are waiting on changing the treatment it takes time sometimes. My liver met grew from 2cm to 8cm in a month so it can be worse. Yours is still small I don't know if that helps but you will get it shrinking in no time. I met one woman on line that had a 20 cm tumour in her liver and was still working. I wonder if our livers are all around the same size usually or if some folks have bigger ones hmmm. I'm crossing all my fingers and toes that your treatment gets you fit again.
Linda I'm so sorry to hear about the liver mets seems to be for most of us the path this disease decides to take. After a bit the idea gets easier to accept and your fight will return. Took me a while but now my mind has accepted it I can focus on shrinking it. My big toes and fingers will be crossed for you as well regarding the results of your MRI .
Omg Jackie is adorable great pic😊
Patty I'm a little late on congratulating you on your new digs. I was in the military for five years when I was really young so every two years I had to move it stuck somehow. I love moving cleaning up old stuff reorganizing and setting up house. I hope you are very happy in your new home😉
I wish all you ladies a wonderful night
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Hi Linda,
Sorry to hear about the liver mets progression, sending hugs and prayers your way,
Ronnie
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Linda, what a bad week you've bee having. I'm so sorry you had that added to the mix. But as micmil and Wendy say, liver mets are very treatable and there are a lot of us moving along and OK. The next Tx could be the ticket. You too babs, progression sucks. But it doesn't mean it can reverse either as we have seen. Hang in there girls...
Linda, I am glad you have decided to at least try out the chemo and see how it goes. We are pulling for you!
Oh Louise! What a great smile on that dog!
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Linda, so sorry to hear of your liver mets progression. Hoping your next treatment knocks them back to NED! Hang in there, progression is never easy but I have read many posts here of liver mets being successfully treated.
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I tend to visit this site every so often always hoping that everyone is doing ok. Obviously this is sadly not always the case. I am am so sorry to learn that some of you brave ladies are facing progression and the awful "what next" treatment decisions. I so hope that you make the best choice "for you" and manage to get back on track.
My husband & I are on holiday in Miami at the moment and although we are having a wonderful time I am missing my many pets back in the UK. Seeing all your beautiful pet pics cheered me up & I tried to post a pic of my Wolfdog Bandit a couple of days ago but something went wrong so please see one of him sent to me from home today. He was just a year old at my dx last September and the first thing I thought of was that I would not get to spend much time with him however fuck cancer because I aim to be with Bandit a very long time.
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My "baby" Bella!0 -
Linda what can one say??? I feel so terrible for you. That must have hit you like a ton of bricks. Let's hope they call you soon with details. Do you feel this????? These are the enormous hugs coming your way. We've been through so much. WTH??? But come join us in the liver thread, it's a bunch of super super cool ladies. Everyone is gonna have something to say to you. They do have lots of good treatments for liver. Find out if it's in one side, or the entire liver etc... Waiting with you for the MRI news.
You know, before this trial, D was telling me she ain't doing chemo again. BUT as it turns out she lost her hair, that was barely coming back, again. Chemo, would have been the next choice. I told Onco if ther is a chance with this then of course let her have this first, if she will get to chemo, it's gonna be very sad, with the kids and all, but it's a very personal choice, but but if there is a chance it works, and she is still doing stuff and enjoying things, then to say no is really tough.
Bigbhome, i hear you, there is a lot to juggle and see if it is sustainable.KD so nice to see you posting, so you've got GF on the side huh? How is your princess?
Babs finally!! Why did the not do CT with contrast? Because you were in pain? So now you know that it progressed, but what caused the big pain, was it the UTI? Are you feeling better?
Wendy it's so cute seeing you being the big mama now. Love it!
Tomorrow is scan day, she will know in the morning if they okd the Pet/CT.
Peacefull night to all.
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