Bone Mets Thread
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those doggies are precious!! Thank you for the much needed smile this morning out of the worm hole . ~M~
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Mommall - Yep, we've all been through so much! I just got hit with waves of gentle hugs lol, thank you. I joined the liver mets thread and already have some good suggestions for questions. And as usual, you know you and Dani are always in my thoughts. Big hugs right back at you both!
Babs - glad to hear your MO is staying the course with current tx and praying hard it does the job.
Wishing everyone a painless day with little smiles here and there. Love all the dog pics! It sure helps with a few smiles.
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Thank you for the beautiful pictures of your cats and dogs! They are such a boost to the day! I have 2 dogs that I will share when I figure out how. I also want to share a picture of the real BigB. My son and grand are coming this weekend, he will help with technology issues and I'm sure once I see those boys faces my fight will come back.
Linda - I am so sorry to learn of your progression. Thank you for taking the time to share your thoughts with me. My PN keeps saying that also, we can try it and if I don't like it, we can stop. I want you to know I am thinking of you and praying for you.
Wendy - So sorry to hear about you too. It is easy for me to say stay strong and fight! Hard For me to practice for self. I am winging huge and prayers for aall my MBC friends! Keeping you close in my thoughts.
C
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HI
I FINISHED RADIUM TWO WEEKS AGO. ALL MY TREATMENT IS FINISHED AND I AM ON TAMOXIFEN. I HAD A CHEST XRAY LAST WEEK AS I HAD SHORTNESS OF BREATH, IT WAS CLEAR. I HAVE PAIN UNDER MY RIGHT RIB CAGE DON'T KNOW IF IT'S BONE OR LIVER PAIN. OF COURSE I AM FREAKING OUT. ANY HELP WOULD BE APPRECIATIVE?
SABINA
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Linda and Bigbhome, my MO was talking zeloda or havalan if Ibrance doesn't work. He mentioned the taxanes as an also ran. I've read several times on this site that zeloda is suppose to be good for liver mets. My liver panel got normal after my first cycle of Ibrance so it must be doing something besides making me tired. If I stay on, I may ask for a short course of steroids, just to do my spring cleaning.
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Hi Sabrina! I believe you are on the wrong thread. We are all stage IV. Maybe you could find a better thread for you.
I will say it is not unusual to feel pain and tenderness for while afterwards.
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Sabina, I'm guessing your pain might be the result of inflammation from your radiation treatment. That can take several weeks to go away. But a good rule of thumb for any new pain is to wait 3 weeks, during which time most things with benign origins will disappear. If it hasn't, or if the pain becomes severe enough that OTC pain meds don't help, then it needs to be reported to your onc.
It's very normal following active tx for bc to fear every little pain that comes along. But try to remember, you had pains in the past that had nothing to do with bc, and this one probably doesn't either, except maybe residual but temporary swelling from the radiation.
In the meantime, the best place to re-post your question is here: https://community.breastcancer.org/forum/8/topics/...
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thank you, yes the fear is just so frightening.
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babs. Sorry to hear of progression. Hopefully your body just needs more time on tx
Lindae. So many choices. I think you made a good one. You can always quit if you want. I have always said no more IV chemo for me since I finished the first time 15 years ago. But now this is my last oral !Ed's I am reconsidering. My Mo says same thing. Chemo for stage iV is much easier then first line tx chemo. If only we had a magic ball. Is your dog hanging on you more lately. It's amazing how they can tell when we are sick or feeling down. Truly man's best friend indeed
momATT. Hoping scans went good and Dani feels well today
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Hi, I thought every thing was going well, had a 6-month visit with doctor on April 20, then the follow up scans showed progression after 2 years on Aromasin and over 3 years on Faslodex. The progression is in my gerota's fascia in the belly. Anybody knows about belly mets in this area? Well, since I had Xeloda during the first chemo and radiation, Onc wants me to try Halaven, two weeks on and one week off. My Onc always told me the next treatment is easy, but I learn my lessons differently.
Has anybody from Bone Mets thread been on Haleven? How is the side effects? Also, shall I get a port back? When my port was taken out during mastectomy 6 years ago, I told myself if I ever need chemo again, I will have a port put back in. I can't imagine my poor vein going thru chemo, even tho Helaven is a push chemo, only two to five minutes injection (longer than Faslodex shots), I wonder if getting a port is a kinder treatment to my right arm.
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Folks,As a follow up to our post on sleep or lack thereof I met with my GP today. We spoke about general best practices such as meditation, no exercise or electronics an hour before going to bed etc.. We also discussed the many sleep aides available and decided to start with TraZodone 50mg one table before bed. In addition to the sleep aide we decided to re-start my prescription of Paxil for anxiety which could also be contributing to my insomnia. I also reached out to ONC and requested a referral for Palliative Care and haven't heard back. I am hoping, praying this works it is so hard to focus without sleep..
Any of you ladies have any experience with TraZodone?
Praying for all you who are dealing with sleep issues.
Ronnie
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Ronnie - I have had sleep issues off and on my whole life, but it became a permanent condition after 1st diagnoses in 2005. I take a half 50mg trazadone in the evening to relax, then at bedtime I take 2-5mg melatonin & 10mg ambient. Some nights it works, some nights not so much. The trazadone helps. Good luck, I definitely feel your pain.
cling - if they are ever able to talk me back into chemo, I will definitely get a port. My veins are shot from the red devil (nickname for a/c)
Prayers for all!
C
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Here are my two dogs Jake and Alice. They are both totally spoiled. I've made a few comments on this page but I'm posting the picture to make me official. It is bone mets ER+ will know PR and HER2 next week. I would love to hear peoples experiences of starting treatment and helping me with questions I should ask.
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Patty - funny you ask about my doggy. She must feel something as she doesn't want to eat which is a very rare event for her!
So I saw MO this afternoon. Liver is full of small mets, too many to count or outline. Brain and C-spine MRI show no brain mets but a there is a small growth of met on C1 compressing the hypoglossal cranial nerve causing headaches, swollen tongue and slurred speech. Plan is Taxol 3 times per month with one week break. I start either tomorrow or Monday, waiting for call from hospital tomorrow morning. MO consulted with my RO to do rads to C1 which will have to happen on a "off week" chemo and we hope there has been no permanent damage to hypoglossal cranial nerve.
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OMG, these dogs are so cute! Priceless
Paula.
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wow. Busy thread here.~ Linda small means they can shrink faster when taxol starts kicking there met butt. I am finally happy to hear you're going to get some relief from your swollen tongue issue. One step at at time dear one step at a time. I am keeping you in prayer.
JFV~ love the cuddle bugs. Makes me want to pet them. ! Mans best friend and woman's little darlings! Thanks for sharing and hope this book of knowledge these women are can always help you and the questions you may have. We all try to support each other when we are ready to fall.
Ronnie~ Don't give up on the pallative care doctor. It's better to have one established before you're sleep problems lead to other pain and anxiety issues, as we go through this like we have all said ups and downs. They helped tremendously with the downs , tramadol I have taken, it works for a while then doesn't. That is why my pallative care doctor changes up the medicine every three months to avoid your system becoming adjusted or used to certain chemicals that you are always taking! I wish you good nights of sleep , hugs
Cling~ I am sorry to hear about any progression anytime ever. I have never been able to remove my port, it it what I rely on to get blood drawn every month, my veins are shot from the AC chemo as well, awful to think back on that horrible time, I always said I would never do anymore chemo , like you said it all depends on side effects I pray you find the medicine you need to kick back and shrink any progression You will also be added To my MBC and BC prayers, have a restful night everyone!
~M~
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oh Linda have I told you lately how much I hate cancer😔 . I'm glad you know what's going on now I think it's always good to know to attack it where it lays hiding and Taxol will do that for you. I'm on the exact same routine we can be Taxol buddies and compare our successes. I think it's working on my liver mets last blood test showed lowering of my liver values which were four times normal before I started Taxol. Also my energy is back and I can eat a lot of food again so to me that means the tumour has shrunk. I have my next ct scan on June first so then I will know for sure. Besides the little bit of yucky feeling sometimes it's not bad at all. My oncologist figured I was so sick during the first week because of my cancer and liver not the chemo. Just bought four wigs today hahaha was having fun and I went a bit over board. Always wanted red hair so I figured nows as good a time as any lol. Taxol will take care of your liver and you will get through this bad patch. We got this and tell your puppy he can eat again you will be fine😊. Funny dogs know when we are upset cats too I think.
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Wendy, you are rockin that red hair
Babs, I'm so sorry to hear yours news. Hoping the meds get rid of those little buggers!!!
Linda, so glad you found out what was causing your swelling and speech problems. Hoping you get those mets shrunk into nothingness!!!
Talked to my pharmacist today. I can take some melatonin, but not at this time. I've been taking Lorazapam for so long that I can't just go off of it all at once, or it can cause anxiety attacks as a kind of boomerang side effect. So I have to work down off of that slowly. That means probably sleep problems still for a while. He thinks the melatonin could help me, but am kind of worried about it causing vivid dreams, as I already have night terrors. Sigh....it seems it's always something. Never thought about chocolate...will cut that out. And I love to read, but just can't find anything that interests me at all at this point. I've always devoured books, two or three a week, but haven't found anything to catch my interest in a while, I think that must be from the anxiety over the cancer.
Still haven't talked to the onc yet about palliative but it's on my schedule.
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Wendy, you look gorgeous in that red hair! I have a wig just like that, only blonde! You seem to be doing so much better lately and I am SO glad.
Linda, I am also currently on that same 3/1 schedule with Taxol, just like Wendy. It hasn't been so bad, since I got past the first round. I totally hate having no hair but in terms of energy and side effects, I may actually have better overall QOL on Taxol than I had on Xeloda for three years. So far, anyway.
Loving all the pups. I should try to post a pic of my little cutie pie.
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Piper, my sunny little Westie girl. She always does her best to distract me from reading books at the park!
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So sorry to hear of progression for so many friends here. Sending hopes for good response to treatment and thoughts to all of our mets sisters
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jfv and lulubee, DARLING doggie pics!
LONG DAY 4 me. Had to get up early for dd's college graduation ceremony. Took 2 hrs to drive to San Francisco this am. But I made it thru, thanks to all your prayers and my wheelchair. You can really see how much the cancer has eaten away at my bones/spine here. DD and I used to be the same height, and I'm wearing 1.5 inch boot heels in this pic.
Glad I was able to fight evil Mr Cancer off long enuf to be able to see her graduate...MAJOR milestone.
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Lita, so glad that you got to see your daughter graduate! I know the feeling as I was able to see my sons graduate college. Next step is a wedding...just need them to get on board with that!
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I posted this on our liver mets site but for all of us who are battling bone mets to I hope you can muster up and have a wonderful MOTHER'S DAY. UNFORTUNATELY I've never had my own children so I live through nature to take my mind off if this dreadful disease. I love the baby birds and animals so I photograph when I can. For all of you Moms out there hug and protect them. It's a big undertaking especially being sick. HAPPY MOTHER'S DAY!!
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Gracie~ read Big little lies. Great book! -and mini series. Fabulous!! It helps me get tired at night. David balducci has a ton of excellent books!! So much too choose from!' Hugs ~M~
Wendy ~ gorgeous woman! You are unstoppable yahoo Looking strong, smiling, paddling your little heart out! So happy ! ~M~
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LindaE, always sending you my love and hugs!
Lita, so happy you were able to see your daughter graduate. What a beautiful picture!
Wendy, you are beautiful! You are rocking that wig, you look like Julia Roberts!
Love and hugs to everyone here, Annie
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Sending ultimate healing wishes to everyone facing new treatments for liver mets. In awe of the strength, resilience, humor, honesty, hope, and beauty exhibited here.
Love the pet gallery! Such a smile producer! (We only have 3 fish)
Wendy-the wigs looks FANTASTIC! Love it!
Lita-your infused water recipe sounds perfect! and, the graduation must have been so special!
,LindaE- relieved that you are on your way to relief-what a flipping ordeal.
Giant healing hugs to all my MBC sisters, MJH
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Lita, I'm so happy for you to enjoy this milestone!!!
For our friends who have the p53 mutation and for those on Taxol please check out this article. There's a new drug combo that's making a big improvement. https://breastcancer-news.com/2017/04/07/metastatic-breast-cancer-patients-reolysin-taxol-live-twice-study-finds/
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I echo what MJHJAN says, what a remarkable group of women and men. Louis.....Is KD recovering well?
Wendy, I love the sassy wig. I would want one like that.
LindaE, You are in my heart
Thanks Photogirl for the animal photo gallery. I love to take photographs as well. Gets my mind somewhere else besides cancer.
Lita, I must say I got a bit teary seeing you and your daughter at graduation. I'm determined to see my son get his PhD in August in NY. Lovely picture and so happy you were there for her. A special day indeed.
Finished my first cycle of Ibrance. Happy to get a week off now and toss nausea aside. Going with my friend on a kayak today. YAY!!!
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Wendy. I love yor wig. You are so pretty I bet even bald you are a beauty!!!
Anita
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