Bone Mets Thread
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Patty~ I was waiting for the question also. Hope everything is settled in your new home! So glad it all worked out for you and you found your new place! Hope you're feeling rested after moving. It's all such hard work!! Hugs! ~M~
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the question is can she live with all this
I'm sorry,my mind is messed u
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FireKracker - she can live with this. And there are ways she can improve her odds of living with it and living well. Buy her Anti-Cancer a New Way of Life. Science based information on how lifestyle effects outcomes with specific recommendations.
Focktober. I am with you.
>Z<
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thank u so much...I was looking for hope and I appreciate i
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IntoLight, welcome to BCO and this group! So glad you're doing well on Letrozole+Ibrance! And cat pictures are always welcome!
Hi, Firecracker! So sorry about your friend's daughter. Has she gone to MDAnderson, as a FB message mentioned?
Wendy, I love your idea about Carol, and was hoping some of those stories would end up on the thread I started that we can tell her kids about sometime. If you have another idea, let us know. I can share one amusing one with you all. Several months ago, when she had some worrisome progression, I had sent her a cute mug that said YOU GOT THIS! When she called to thank me, I told her that my hubby had been with me when I spotted it, and I was flabbergasted that he didn't immediately get the meaning behind the slogan and I had to explain it to him. She laughed and told me that her hubby didn't either -- that his immediate reaction had been, You got this? You got what? You got cancer? We had a great laugh over how out of the loop our hubbies were on something mbc friends say all the time.
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Hi Deanna
At this point I don't no anything more that I told u
I cannot get in touch with any of them
Thank u for ur kind words
I will keep u posted.x
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my friends daughter is right now going to MD Anderson as we speak
That's all I no
Thanks again deanna
Please pray for Lauren,31 yrs.old with 2 babies
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FireKracker,
I am praying for Lauren and her family.
Ronnie
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Fire~ I will absolutely add Lauren and her family to my prayers along with all of my other MBC and BC sisters. Stay strong and take a deep breath. Sending thoughts of strength! ~M
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Hi Everyone,
I'm stunned by Carol's passing like many on the Board. She was one of the folks who welcomed me when I first got the stage IV news. What a wonderful light she was in our group and I'm so thankful to have gotten to know her. That, on top of the news of Myra and Cristina in recent days, is such a reminder of what we all face. They were all gifts to us and it reminds me to be that for those who continue to join us.
So, for those who are new here, the good news is that we hold each other up. This is where we meet the people who offer encouragement and information on diagnoses, treatments, complementary practices, diet, exercise and anything else we discover to help improve our quality of life and ability to keep going in order to have time with those we love. This is the place where we "get it." This is where we rant and this is where we have to say goodbye.
Thank you to all those on this board. I appreciate all of you!
I've been absent lately due to crazy (good) life changes. In the course of four weeks I interviewed, accepted and started a consulting job in Colorado Springs after being retired for 19 months. I went through a series of scans with a stable outcome (thankfully). Work keeps my mind off of cancer which is also a relief for eight hours a day. It meant moving to Colorado where I found a rental house for this six month assignment. My youngest daughter lives here and it's a blessing to be able to spend some time with her. My house back home is for sale and I'm hoping someone falls in love with it like I did. My goal for all this is to improve the finances that took a huge hit from a simultaneous job loss and DX, see my youngest daughter more, and be closer to good quality comprehensive cancer care. Colorado Springs has an NCI affiliated Cancer Center. It also gives me that DWD option when the time comes.
Oh...and my first book went live on Amazon yesterday! It's titled Downstream, Claudia and the Science Club. It is young adult fiction targeting 9-11 year olds with a story about how a group of high school kids solve a mystery after discovering a substance in a local creek during an extra credit science project. It also teaches readers about how stream pollution impacts lives. There are discussion guides at the end so teachers at the 3rd and 4th grade level can use it in the classroom in a water unit. (I'm sure I will find typos once it comes in the mail...but the second printing will be perfect I hope. :-))
Those of us with MBC have things to contribute...and time to check off bucket list items. Our lives still matter.
Thinking of our friends with progression and harsh treatments. Praying for peace and pain free days for each of us. Sending hugs to you all...and thank you.
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Kathryn, You made my day- congratulations on your first book! How exciting! Life rolls on, and don't worry too much about that DWD thing, hopefully we won't need to be bothered about that for a very long time!
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Nice to see you Kathryn and super congrats on your book! Our lives still do matter and thanks for reminding us! Some days I feel like i've been written off by a few......I like working too but look do look forward to 6 weeks of summer off to pursue my own creative interests!
Fire, prayers for Lauren here too...
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Kathryn, Wow! What an accomplishment! Congratulations on your book! You are one busy woman! Good luck with your new job, I also like working, ( most of the time) because it keeps my mind off of cancer for awhile. I'm exhausted by the end of the day but I make much more money then my husband and we need the money.im glad you are enjoying being near your daughter also. You are a living example that life goes on despite cancer and that joy can be found.
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Kathryn, so glad you are doing so well and congrats on your book!
I'm sorry if my last post was kind of down, but the reality is that losing these friends last week really threw me and I'm feeling very depressed and helpless. I'm tired too, which doesn't help. I hope you all are doing better, and am wondering if a break from the boards would be good, although I can't get a break from life...ugh. Hard to know what's best right now.
Keeping all of you in my prayers
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Gracie~ I am truly sorry for your losses. I wish that there was a magic wand i could wave and have all of our cancer go away. There are days I post and days I hide. If you need to hide remember while you're hiding you're not alone, most likely if you look in the other corner you'll find me already in it. What I'm trying to say is we all lean oneach other and you're allowed to feel whatever the heck you want to and no one can say differently. You are valued, beautiful and kind. Cancer cannot hold a candle to your spirit and the wonder of who you are as Gracie. I started to color because I thought I was losing my mind with worrying all the time, it helped for about a few weeks. But no matter what remember we are here when you're ready to gather with people who truly do understand what you're going through. Gentle sweet hugs. ~M~
Kathryn~ congratulations on your book! How awesome is that!!!?? Hope you're proud of yourself that is a legacy you're building!!
Power and strength to all. My vent for the days is this... I wanted to shower because I needed one. So I shower. Then I sweat out like 10 heat flashes and it's like I never even made it to the shower at all. Ugh!! Like seriously?? FU cancer for hurting my friends and taking away our athletic strength and mind set to even get out of bed some days. You're all important, you're all beautiful and special. Cancer however is and will always remain a huge pain in the***hole!! Ok sorry I'm done. ~M~
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Gracie - hugs. Take a break if needed. We're here. Hoping this dark cloud passes quickly. They sometimes do.
>Z<
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Congratulations Kathryn! That is amazing. I have sent a recommendation to my dil for my avid reader and environmentalist granddaughter. Writing a book has always been a dream of mine too. I taught fifth grade for a while and LOVE ya fiction! I'd say Bridge to Terabithia is my favorite book of all time.
I've been hiding a bit too. I come and read and get support from you wonderful people. But, since the addition of brain mets to my dx, my second radiation since the first of the year and the extreme fatigue- I have been pretty down physically and mentally. Trying to dig up the strength to rejoin life! We cancelled 2 fun friend activities last week because I'm so weak and tired. MO has run extra bt, pcp is looking at heart/lung issues. But, I really think it's just the cumulative effect of what my body has been through the past 6 months.
So, I haven't been very interactive with you, but know that I read, care and pray for us all.
Gentle hugs.
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Kaption - sending hugs and energy your way. But you may simply need the rest. It's been a rough 6 months indeed.
>Z<
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Gracie and Kaption, I feel you both.
After finishing my second sets of rads in 1 year (so I've had a total of 6,000 rads PLUS whatever radiation one gets from the interminable scans every 12 weeks) I am SO fatigued. I sleep ok most nights but wake up even more tired than when I went to bed, sigh.
And my eyes are really bothering me. Eye dr says it's all cumulative. The chemo takes a toll EVERYWHERE. I have drops and stuff, but it doesn't help much.
We all have to remember that we are NOT defined by our cancer. But, shoot, it's really hard sometimes.
Prayers to all of you. Getting the results of Monday's PET scan this afternoon. I'm trying to remain neutral.
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Thank you both. This really is the place to come where folks understand what you are going through.
Here's to good news, Lita
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Kathryn, I ordered your book! I used to teach high school LD and Speech, but I'm on a reading committee at our district to recommend new young adult books. I look forward to reading yours and forwarding it to our staff. Congrats.
Kaption, I loved Bridge to Terabithia too. Hope you are feeling better soon.
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Big hugs Kaption!!!
Lita, your strength just amazes me!
I don't know where I would be without you ladies
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Scan results back...good and bad as anticipated.
The bad: Uptake in left underarm lymph nodes (which I expected because they've been achy). Progression to new ribs on the right side, and the old lumbar vertebrae mets are still pretty active, also to be expected. Pelvic mets are still showing uptake, too. Standard uptake values are all in the 5 - 6 range.
The good: T3, liver, pancreatic and adrenal mets are stable so MO doesn't feel it's bad enough to switch to the heavy duty IV chemos just yet. So we continue to live from scan to scan.
My peonies didn't bloom last year when I was first dx'd, but they are in full bloom this year, and my roses are going crazy. I am blessed.
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Roses going crazy...
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Beautiful pictures, Lita. Thanks for sharing.
Mixed results can be frustrating, but I'm glad MO feels confident to keep you on course a while longer.
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Lita,
Glad to hear your MO wants to maintain your current course!
Sending prayers,
Ronnie
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Lita ~ Mixed results are what I believe we all are going to face at some point in time. I am glad you're staying the course on the medicine, and hopefully it will bring everything to a stable point!! You're one strong woman, sending out prayers to everyone awaiting scans or results or are just plain sick of this entire way we are faced to endure And live. But having stable liver mets is a good thing! Try to get some sleep. Rest is everything to help us keep on keeping on! ~M~
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Lita,
Glad you have some good results and a plan until the next scan. Peonies are my absolute favorite flowers.
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Gracie and Kaption, We all need a break from here occasionally to try and just live without cancer for awhile. But we do miss and wonder about our friends when they are gone too long. So nice to see you both check in.
Lita, I think the good news sounds better that the bad, which all in all is good I think!
micmil, You hit the nail when you mention how sick we get of all the hassle of this disease. This week has been one of those for me. Started with a bad toothache on Friday, so had to try and get in to a dentist in between Onc apps. this week. This morning had to go at 8:00 for a CT scan, then over to lab for an IV for contrast for the bone scan 2 hours later. Then off to my crummy dentist who I feel caused the dental problem in the first place. She passed the buck and is ending me to an oral surgeon. Tomorrow I should get results from my scans and then off for a root canal. i need a break to just BE, VEG out, watch ladybugs fly by...
All the talk about flowers, I have to add that last week was staff appreciation week, Mother's Day and my birthday all rolled into one. I cannot believe the amount of plants and flowers I received. My kitchen counter looks like a nursery and I am not sure if I will manage to get them all in pots or in the ground before they die! But I'll sure try...
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Kathryn congrats on your book. That is awesome!!
Kaption sorry to hear what you are going through. I had no idea! You have been so strong a full of helpful knowledge and I hope you feel better soon.
Lita your flowers are so pretty. For me I get to enjoy the beauty of nature everyday in 30 greenhouses full of flowers just waiting to be planted. It makes me smile and forget all of my issues. Then I photograph them to remember what beautiful flowers we grow each year.
Stejoy, sorry about you lousy biopsy that is a bummer.
Artistatheart, my birthday and Mother's Day fell on the same day. I too had so many flowers from people my allergies went to the roof! But they were all so pretty.
Warm hugs to all as we struggle with our issues.
Anita
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