Bone Mets Thread
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I want to wish everyone a Merry Christmas, and Happy holidays to you and your loved ones! May next year bring us all more peace, less pain and progression and more healing! Hugs and prayers,
Claudia
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Christmas blessings, Happy Holidays to all! I hope you are each surrounded by love and warmth, and that the spirit of the season will bring us all renewed hope and peace. Deanna xoxo
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Aurora, I am sorry for the progression! It's so good that you are at home to spend time with your family and feel comfortable. Don't loose hope! There are so many treatment options. My prears are with you
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Babs, he's beautiful. So glad you are there! Been thinking of you but I know you are busy. CONGRATULATIONS 🍼👍🏻👶🏻😘. Hope mom and baby are doing great. So excited for you.
Anita
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Babs, so happy for you all and welcome to this beautiful family little Anton! You are glowing! So sorry to hear about your Dad...goodbyes are hard as we all know.
Kathy...welcome to the best place for information and some of the nicest people you can meet!
Aurora, glad you were able to come home to rest for a few days. There are good treatment options. Hang in there!
Hope everyone has had joy filled celebrations in recent days. Safe travels to those who are in the road.
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Reminder to California Ladies: Get your CBD tinctures, oils, edibles, etc. BEFORE the New Year. The municipal taxes are going way up after Jan.1, when the recreational MJ law goes into effect. (More than 100% in most cases.)
I just returned from the dispensary I usually go to in San Jose. Thank goodness I called in and placed my order for pick up. The parking lot was full, and there was a long line, but DH and I breezed right in, stood in the "pick up" line and were outta there in a matter of minutes.
To give you an idea of how much they tax MJ, I bought six 0.5 oz bottles of tincture (they were out of the 1 oz bottles), and w/out taxes, they are $180. With sales tax and local municipal tax, my order was 214.65!!! Almost $35 in taxes alone. Insane, but that's the way it is. California is going to make a bucket load of $ off recreation MJ for sure.
L
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As they say. One life in one life out. My dad of 96 years passed away yesterday peacefully at home. The last time he showed any sign of acknowledgement was when I called him to tell him my grandsons name of Anton and how it was chosen-and he smiled. Life’s cycle for sure!
Bab
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Babs - I'm sorry to read about your father's passing. My condolences to you and your family.
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Babs - I am sorry to read of your father's passing.
>Z<
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Babs, sending my sympathy on the loss of your father.
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Babs, I am sorry to hear of your father's passing. It was nice to hear that he knew of Anton's birth and name. Perhaps he was holding on long enough to share in the joy of the new life. I am praying for peace and comfort for you and your family.
Hugs and prayers from, Lynne
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Babs,
So sorry to hear about your father's passing. I'mglad you were able to let him know about Anton. I'm sure it gave him some joy.
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Aurora ....I'm so sorry to hear your news. I missed it. I've been offline for a few days. I wish I could find something to say but all I think of is how much we all love you and are thinking of you.
Thank you Maire, Christmas Eve was a beautiful day. How sensible to make Christmas an easy day. We had take away food as well and enjoyed it because there was no effort.
Lita, happy to hear from you. No, I've seen nothing from Patty, i'm sad to say.
Love to all of you. Babs that baby is gorgeous!
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Babs, how lucky he was to have had such a beautifully long life. I’m sure you will miss him terribly. I wish we could all be so lucky.
Mazel Tov on you grandson, Anton. It’s wonderful grandpa got to see him before he left this place.
May his memory always be a blessing.
Stefanie
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I'm so sorry, Babs. It's a lot to deal with right now, but 96 is a good, long life, and I hope that will bring you peace in the coming days. Hugs and prayers for you and your family. Deanna
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I'm sorry to hear he has passed but so grateful he was able to hear of your darling grandson and that his transition was peaceful. It's hard none the less. Much love, hun.
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I’m send condolences to you and your family. The loss of a parent at any age is difficult but how blessed he was to learn about Anton. Maire
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Babs~ Very sorry to hear of the loss of your dear father! He was waiting to know your grand sons name and to know he was strong and safe before he let go. Amazing how things work and how they just seem to know! My wishes of strength to your entire family ! ~M~
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Babs, thinking of you, it's so very hard to lose an anchor in ones' life.........MJH
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Babs - sending my condolences for the loss of your father. If I recall correctly you were able to visit with him recently. And now the circle of life continues with your Grandson. May Anton live a full and happy life to at least 95 as his Great-grandfather did.
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Babs, I’m so very sorry for your loss. Prayers for you and your family
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Gracie how are you doing?
Z
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Doing ok, Z. Started Faslodex two weeks ago, other than a few extra hot flashes, I can't tell much different. Starting Ibrance on the first. How are you doing and do you have any results from the treatment you received in Japan? Would really like to know how what you learned has helped you
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Babs your father died knowing the he has a great grandson to carry the family forward. May you find l.p. peace in your grief
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Babs. My deepest condolences on the loss of your father.
Mary
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Babs the other day I watched a documentary about a Jewish man who had gone through so much in his life he had been a prisoner in a concentration camp and so much more the space would be filled here with all he had done. He was 96 and had written a book about his life. During the documentary he said if I die tomorrow I've lived a full long life and I'm happy with it. I've had lots of love and tenderness in my life. When I read about your father I thought of this and how he must have done so much in his years and that's something that's pretty awesome. Give Anton a big kiss and be happy you were able to share him with your father😊 Big hu
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Thank you my sisters for your condolences- they mean the world to me.
Yes I just visited with my Dad 3 weeks ago and as with every visit I said goodbye and told him I loved him ( at 96 I knew every visit could be my last). He led quite the life. At 6 he list his father due to a tooth infection-before penicillin was discovered. At 21 he went into the Air Force. He was a bombarder. His first mission he was shot in his rush-I always asked to see the scar but he said no on his 20+ mission he was shot down in Germany and was a POW until the war ended. He returned 6’2” at 140 lbs. He married my Mom at 26 years old. They had me and my sister. Then in 1969 my mom died at the age of 42 to BC. He remarried my step mom who had 3 kids. We really all blended well. He had 47 wonderful years with her. He always said he wasn’t nice enough to have 2 great women love him! He was always a character-that’s for sure. While I’ll miss him 96 is a very full life. I wish that for all of us!!!’
Babs
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Gracie -
Glad to hear you are settled into a new treatment protocol. May this be a long run.
I had a strong but incomplete response to adoptive cell therapy in October. Basically the scans and TM's all showed a strong response, but the NKC count did not reach a therapeutic dose. On the one hand this means the effect is not expected to endure, on the other hand, if we can get the NKC count higher I am clearly responding and the response could be a lot better. I had an undiagnosed UTI while I was there which likely interfered with the treatment.
I will return to Japan in February after radiation in late January. My TM's dropped hard after returning from Japan but last week they rose quickly again. A flare, or progression? Oh joy. TM's are such a mind game. I would like to jump on a plane tomorrow but the radiation is likely a key to a lasting response.
I want to use a certain radiation oncologist at Mayo in Rochester, MN who researches the immune response from radiation treatment. He is on travel until January 22. I have great correspondence with him. My second agenda is to get hooked up with the whole immunotherapy group he works with at Mayo have support from an immunotherapy group in the US. If I can pull this off I will finally have access to a leading group of researchers for opinions and care.
I've changed my oncologist here in NM to the head of medical oncology at presbyterian hospital. OMG the difference is huge so far. A dedicated RN who specializes in supporting the breast cancer patient and ... (get this!) answers the phone. A PA I can see with one day advance notice!!!! However, still I have to provide the new MO a notebook of annotated research papers in order to keep him part of the conversation ... I am definitely ahead of clinical practice in Northern New Mexico. Hold your praise ladies. This more or less like being ahead of oncology practice in Bangladesh.
Where do things stand? I am off all standard of care and except for lupron working non-standard strategies at the moment. I may start faslodex and/or zometa when I return from the holidays because the rise in TM's is freaking me out when I give it some thought. But otherwise treating my cancer with fresh pasta and chianti here in Florence.
In short, life is good, but all the usual MBC crap persists.
>Z<
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Babs, what a life story! His generation was so strong and brave and full of character. I am sorry this world is losing that generation. I feel like they have been our ballast in so many ways.
You were blessed to have such a father. May your time of grief be blessed with warm memories and the comfort of loving that beautiful baby boy.
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Beautiful story. Doesn't matter the age our parents leave us, the loss still leaves a big hole in our heart. Your dad sounded like he loved his family and his country.
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