The Hermit Club
Comments
-
I so sorry Lily....I have no words to express the sorrow that you have to deal with this, the professionals are supposed to be there for you...is there anything we can do?
0 -
Lily I think we're having a hard time trying to think of a way to help u and not being in the US it's harder for us. I wish I had some real answers for u--I just feel so bad.
0 -
Thank you everyone, it does help to know you really get, i have been very tearful all day and am thinking of going to the hospital with a solicitor but its the only hospital I can use so that is scary prospect.....I am thinking of leaving this country now as I have lost faith but have been here over ten years...
0 -
No but the law is written down and clear, and i have witnesses who will support that i asked for referral to other hospital and or immediate recon, also that they promised me recon, all of which they are now backing away from! It takes so much energy to be angry and right now i just feel beaten...which i hate
0 -
Lily, you are so right about the energy it takes to fight. Perhaps you can have an advocate--a dear friend or someone on your side--to be your grizzly bear. You make the decisions, of course, but that designated person would do the phoning, footwork and be on the battle front for you. I don't know if that would work, but I agree with blondie--if you can think of anything we can do... Sometimes, depending on the situation, there are legal aide people who can do battle for you (without cost). Hugs and high hopes. I am so sorry this is happening to you...
0 -
Hello all - I am feeling quite hermity lately. DH is going off on his annual sojurn on Monday. He didn't go last year due to my thing - so he is due. I know this is him and makes him who jhe is so I am OK - sort of. Just our DS (Dear Son) has Cerebral Palsy and Epilepsy and just today had a seizure - so I am feeling worn thin. I know when I tell you all of this you will hear me - and understand - I want to do it all - but sometimes it feel that it is doing me!
Lily what country are you in? Is there no on at the hospital you can talk to? A medical social worker?
Laurie - you will get through this - I promise. I am going to find the name of the lotion I used dur rads - and write you - it was the best.
Well Hermit Friends - I am going to sign off - thank you for being hermits with me.
0 -
Marily u sound like u need hermiting right now and alot of rest--I certainly don't blame u--we're here tho is u want us.
Lily O my--Ok u can't make any majoor decision in the sadness tht u'r in. So just rethink everything and find out (like Skittle said) if their is someone who can help u and take up u'r cause--that will be so much help to u. Like Marily asked where r u?
0 -
I am in southern Spain
0 -
Good morning all.
Lily Spain?--Oh wow I know nothing about any rules or health ins. in Spain or anything in that area. I hope some here can help u--We wondered why it sounded different. Honestly I think someone will kniw or u can be directed in the right area. So please be patient--It's so different everywhere.Lily u did say about moving? Where would u go and with whom and how? Cuz that a huge move to even consider.So to even consider that u must feel lost. I'm so sorry.
0 -
cvm... Best wishes for energy. I cannot imagine the patience and strength you must practice. I have had students with cp and students with epilepsy, but never both, and never more than 4 hours at a time. Your love and kindness must wrap your son daily, sapping your inner reserves. I hope you have someone who can help...
Lily... Have you searched different threads on this site for others in Spain who may know the alternatives there? There may be someone close who has traveled a similar road...
Teka... Enjoy watching the little one grow! Last summer we had wobbly-legged fawns munching bird seed from our feeders, and watched as they grew into yearlings. (Herd ranged from about five to twelve. It was wonderful.)
Laurie... Keep hold of dh's support. It's always (to me) difficult to rely on another's firm grip, but with bc what it is, it's a good thing. Enjoy Omaha--your son will have a blast just knowing you're there! Glad you are going before more bc decisions. Good to air the cobwebs out of the muddled mind. That's what the beach does for me.
Camille... Joey's freedom should start soon. I hope he has a good last few days of school. Enjoy his company. :-)
blondie... hugs and hopes for good days.
Hermits, all, have a good weekend ahead. Hug those fathers among you. Our girls are taking their daddy out for the Superman movie tomorrow to avoid a tiny bit of the Sunday rush.
Anyone know much about flaxseed? Am trying to eat a more healthy diet all summer and wonder if flaxseed will make much of a difference.
0 -
CV SORRY but you are strong as we all are.....HUGS
thanks Skittle you have a good weekened also....
Took flaxseed when was diagnosed in 1996 for a while, stopped ....
HUGS TO ALL OF YOU HERMITS....trying to get a car for some of the weekend to do errands, can't wait til I can get my car fixed, need money for the starter it is in my driveway, exhusband will fix it he says.....bbl
0 -
Lily, Blondie and all of the rest of you beautiful ladies,
Thank you for your thoughts, insights, and love. I treasure each one of you.
I am doing well. I am working on trying to jump the referrals ahead quickly so I can get in to see the MO/RO prior to Wednesday. That will be a feat in itself! Haha....but it can't hurt to try. My husband and son just left for Utah again (baseball tourney) and so I have the next 2 days to myself with total quiet. I should be able to get a lot of writing and such done. I also have an online camera class that I need to take before Omaha, so I get the best use out of my camera.
I am looking forward to the peace and reflection. My daughter Paige is coming over tomorrow to watch scary movies with me and I am really looking forward to that as well. I was careful to time it with making sure that we watched them the same day my husband was coming home so I wouldn't have to sleep alone after watching them! Hahahaha... I love them, but I get terrified at night and I need someone to be sleeping with me. I am not used to being alone in the house at night and the older I have gotten, the more scared I have become. Last week when the boys when to Utah, I locked my bedroom door and kept the TV on ALL night! What a baby I am! Tonight I may let my Shih-zhu "Gary" sleep in bed with me too. What do all of you have planned for the weekend? How are all of you doing in your journeys? I think about all of you every single day. I pray for all of us.
Love you all,
XOXOXOXO
Laurie
0 -
Laurie you are so sweet and happy that you will have company...how do you feel?
I am trying to borrow a car to do errands, nothing exciting.....
take care....xoxoxo
0 -
Miss Blondie,
Today is day eight after the reexcion and it is still hard, but I feel as if I may have turned a small corner. The doctor was sad that I was having so much pain with this one and told me to start compressing myself with ace bandages. I have begun to do this at night and it is helping. When I roll over, it lessens the feeling of "tearing". I am still icing from time to time every day as well. I am going to try not to take pain medication today...we shall see how far I get.
I also had a problem with my last IV. They had to try twice (it is always a problem for me as my veins roll and collapse). On the second try, I felt an electric shock of pain down my arm through my thumb. I said, "something is wrong.....something is not right." I explained what I was feeling and the nurse said, "Oh, I'm sorry. Sometimes we hit a nerve. It will be ok." Well girls, it is NOT ok. Day eight and I am having problems with my hand. My BS tested it...I passed the "tests", but he remained concerned and said he will call the insurance to make sure I get help for my hand. Ugh. Another issue. It concerns me though. When I reach out to grab something or swing my arm down, or use the computer, I get the electric pain. Did any of you experience any IV problems? Maybe it will just go away over time.
XOXOXOXO
0 -
Oh Laurie isn't it crazy such a simple thing yet it can be so annoying and a little scary too. I have a port so my veins never get involved--which I like---but someone on here might have an answer for u-but a nerve might ery well have been hot and it would cause similiar aggrevation.
Oh Skittle u write so beautifully, who can say more for all of us.
Teka I think as cute as they are, I wouldn't want them to eat my garden, unless u'r sarcasm came on to sweet LOL
Blondie I knw that feeling not to have a car---it's awful.
We're having a BD paty for Joey tomorrow so the kids are so busy and I mostly cleaned my bedroom (big deal) and Joey started to cry-???? He did not want me to do these things alone cuz of my back and arms hahaha--but I took my pain meds anyway so I could do more--now I feel it. I think he was right.
0 -
Teka
I thought so.0 -
Thank you all for your kindness - it means a lot. I think that sometimes on this "journey" we just need to hear -"wow - look at you! You are functionong and not falling apart". Simple but yet not. My DH leaves Monday - I am sort of anxious about it - I wnat him ot be safe and come home - but also looking forward to having space. I agree though w/ Laurie - at night your imagination can get away from you.
0 -
Laurie I have no idea what the nerve thing is, but it saddens me that you are still having so many problems after all this time....if you need the pain meds, like we all say you should, people convinced me also, if you need it Sandy take it don't be in pain, so I do. I do not over use tho..
The twins say I am annoying complaining about the car so sorry if I am....
Cammie have fun at the bd party!!!
BBL have a good Friday night!!!! also HAPPY FATHER'S DAY WEEKEND!!!
0 -
Hm, Teka, I never tried a keep-deer-out formula. Sounds worth a go. We usually just write it off as an entertainment factor. (My main frustration is squirrels! Those furry little tricksters turn all bird feeders into all-you-can-eat buffets. agh!)
Laurie, I hope the scary movies distract you from your discomfort. The only electric jolts I've had were when my back disintegrated a while back (a few zaps continue infrequently, but I just take them as a permanent reminder), and a few post node/lump sizzles got my attention. But those went away, too. I'm hoping yours do not persist. That nerve electricity tops out the pain charts...fast.
blondie, I wish I could export dh for your car woes. He can really fix anything. Even if parts are needed, he can come up with the strangest whatevers and get things running. (Replaced dd2's odometer and speedometer recently. Garage wanted $900. He fixed it for $40 in parts.) You're not annoying! Your wings are clipped. (Did the flaxseed make any difference? I don't expect miracles, but better would be nice.)
Camille, thank you for your kindness. I know I prattle on too long. I just start up and stream of consciousness takes over and off I go. Bad habit. I don't think about it. It just tumbles...
cv, enjoy your time. Sing louder, dance sillier, cry harder. We all need a little time away from eyes. Hugs to you. Wish I could give you a few hours of care for your son... so you could truly just be you and get away. No guilt or qualms. Just to be.
Lily, we're all thinking of you and hoping your options open up.
Lori, hope the quiet from your direction is a good thing. Just concerned and hopeful.
Take care, dearest hermits. Sleep well if you are able...
0 -
Laurie it's so true about being alone--when the kids sleep over somewhere and I've been alone--I swear every noise I hear I'm going to call 911--they are the same noises when eeryone is home but for somw reason it's so much louder and I sleep with a hammer tucked by my side with the hook part ready to go first. I watch to many crime shows and scary movies I know.
Blondie u complain all u want about no car. OMG it's so understandable---My car was 22 yrs old and the original mileage of 32,000 miles on it but it need work and rusting out so I had to let it go and can't afford another so I have no car--I know my kids get my things for me but it would still be nice to be able to just go without permission.Altho I never ask so complain away anytime. cuz I miss my old car and my condo and just being by myself--oh well Es la vida---One of my many languages that I don't know.
Skittle I love how u ramble when I do it's true rambling.
0 -
Laurie, Camille, others... if you are frightened, keep a can of wasp spray at your bedside (or in your car, or wherever.) There's wasp spray that is designed to shoot a distance so you don't get stung... Why? It is just as effective as pepper spray. It is perfectly legal in all states. It works at a decent distance. Any "invader" will be temporarily incapacitated, giving you plenty of time to call 911. Rest well. Be safe. Hugs to all.
0 -
Skittle Hmmm sounds like a good idea--but then I want to beat the hell out of them with my hammer.
0 -
LOL ladies! Here I am! I made it through the night! Hahaaaaaa! Thank you for your funny and sweet messages. I am thinking of you all....car issues, birthday parties, gardens, everything. I wanted to share something that happened to me yesterday....this is a post from my facebook page:
The most amazing thing just happened and I have to share it all with you. About two weeks ago, I was sitting and thinking about this journey that I am on and how I got here. I was thanking God for leading me to the initial doctor (Dr. Romero-Joseph OBGYN) that MADE me get the mammogram that ended up catching the cancer. I have told the story of that day when I went to see him to get my hormone replacement therapy pills and how he wouldn't fill the prescription until I went for a mammogram in my initial facebook story of finding the cancer. I realized as I was thanking God that I should be thanking Dr. Romero as well. I had been telling the story of him to hundreds of people by that time, but HE needed to know that he saved me life. So, I put together a picture card of our family and enclosed a letter telling him about the journey I had been on since I had met him in February. I reminded him of our appointment and the things he had said to me and I told him that cancer WAS found. I also told him that if it had not been for him, I NEVER would have gone to get a mammogram ever. I ended it by thanking him for saving my life. I mailed it couple of days ago. Tonight I was resting and my phone rang with an unknown number. I answered it and it was Dr. Romero! Now, I want to remind you that he and I had only met that ONE time. He called to tell me that he had gotten my card and it had stunned him. He was emotional on the phone and he thanked me. I of course said, "It is (I) who needs to be thanking you!" He said, "I want you to know that you are not just a number to me. You are a person. I care about you and all of my patients and I believe you have been given this journey for a reason. I want you to keep sharing your story because you are saving lives. I also want to give you my personal email address and I want you to keep my updated on your journey. I am here for you, whatever you need." Okay...you ALL know about my "angel" doctor...Dr. Banich. He is my cancer surgeon. You all know how amazing he has been with me and now the journey continues with Dr. Romero too. I have been give two doctors with the most incredible hearts. GOD has his hand in ALL of this. I am so blessed. I am very excited to meet my Oncologists now because I know they are going to be angels too. —
feeling blessed.0 -
Laurie u know it is u'r love of people and u'r kindness that brings the angels to u. Remember that.
0 -
Hi everyone! Just wanted to pop in and give everyone hugs. Happy Birthday Joey!!!! Is he 9 now?
I have been crazy busy with the house and mom's apt. We might skip town for a couple days and go to a near-by lake.
Lily I'm so sorry for what you're going through!
Teka glad you had fun!
Skittle I wish you could send your DH to blondie too
Back to cleaning! Love and hugs to all!0 -
Awww Camille....what a kind thing to say. Thank you my friend.
Markat-I'm so sorry for the loss, but so happy you found happiness in the day.
Hope you all are well and at peace.
XOXOXOXO
Laurie
0 -
Laurie how wonderful for you and for him....I bet no one has ever done that for him and he is so humble is appears and grateful....there should be more drs. like him around....so now you have 2 angels watching over you.....hope you are feeling better....
Teka, glad you could have a pleasant lunch....
Am in and so excited that I don't have to go out for the next couple of days...and I find myself finding a reason not to go out which isn't good.....
HUGS!!!!
0 -
Hi hermits- just checking in here on this weekend. We had a weird dust storm last night. Grit in my teeth. Ugh.
Teka- glad the luncheon went well. I would dread that too. I am sure those folks enjoyed a break from their grief to spend time with those who understand so very well.
Laurie- many things to be grateful for during this difficult journey.
Cami-
Going to the local farmers market in the am. Looking forward to filling a basket with fresh vegetables and greens.
Love to all hermits!
0 -
Good Morning everyone---we did have a busy day yesterday with the party, but it was so nice--my sister and cousins cam too which I love and a bunch more--So it was a busy day and I'm glad to do nothing (again) today m TV and computer will entertain me.
I truly hope every one has a good day today.
Teka wow I'm glad it turned out good for u.
0 -
Jazzy thanks for checking in and hope you have a wonderful day.
Cammie...glad you had a wonderful day and me too....want to weedwack and make potato salad, bought all the ingredients cept for the bacon, yesterday, am making lazagna for dinner....just the three of us....and don't have to really go out til thursday!!! Am waiting til 9 to see if I can get hours at Macy's we pick our own hours so will see...
have a wonderful day all!!
BBL
Sandy aka Blondie
0
