The Hermit Club
Comments
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Hi ladies- I had my first frappacino today at Starbucks for the summer months. It was yummy. Little things make me happy.
Laurie- the thing that bothered me most from the surgery was the sentinel node incisions. I have one on each side and they hurt more than the breast incisions, but they cut through muscle and that is why. My breast incisions are well healed some six plus months post surgery. My sentinel node incisions were much pinker for a longer time but mostly fading now. Now that it is warm here (up to around 90), I wear a lot of sleeveless outfits, but am careful to keep my coverage over those areas so no one sees the scars. Vitamin E creme has really helped my incisions to heal well- something to try when your incisions are healed.
Teka- I like the things growing in your yard. Love wisteria.
Cami- I was thinking how I wish I were retired today! I am working to get my house paid off so I can choose some easier work next.
Hi to the newbees here too!
George Clooney is on HBO (The American) and going to go watch that and relax. Wishing all the hermits here a good sleep!
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camillegal, I was so proud of myself for paying off the $40,000 in the five years after my divorce. I thought I was debt free--who would have thought the State of Il was going to come after me for taxes on a school loan. The loan itself was paid off. I remember the night I was told I had cancer-- all I could think about is here comes more bills after I cleaned up the mess my ex left me with. You think the State of Il could have found me between August 2012 and June 1st, 2013--the day of my first disabiilty check since I've been living in the same home for more than 20 years. Yep the check came from the state controller, Judy Barr Topinka but along side the statement in my mail saying she sent it out was a letter from the State of Il (ISAC) stating they had taken the entire check. I am going to take your suggestion and complain and let them know about my Cancer and I could have made arrangements if I had been given the time and opportunity to pay those suckers--even though I did not think I owed them anything. Sallie Mae got their money--they should have paid the taxes. You know I am not going to let this get me down. There are too many other more important things going on and if they gave me the right figures--then I only owe them another $200 dollars. However, the cancer bills--not covered by my insurance are beginning to add up. I will deal with that too. Life is short--not going to let anyone still my joy away. Dammit, already dealing with the HT pills--sweating like a pig right now--trying to deal with my ups and downs--who needs manufactured problems. I just think there are too many unscrupulous people out in the world. Thanks God there are really good ones, too--like you guys!
Rest of you ladies, hang in there--hugs for all!
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Dwilli Good luck with that I found her the easiest to work with--but blah to the rest of them--u know when I worked for the state I went out of my way all the time for people to get the right thing done for them and I did all the calling and persistent talking to Springfiled all the time. I just thought that's what we are supposed to do. But I find out now the higher up u go the less they help u and that to me is unacceptale as someone we are supposed to trust. So that's why I bother them constantly about another matter that they screwed me on. Oh what else do I have to do LOL
Laurie I loved what u said about u'r son--he sounds like u--so sweet and caring. What a wonderful feeling for u. And again u got a meal--See how much u mean to everybody. How nice. And when u see u'r Dr. always ask whatever u'r concerned about and if something is really on u'r mibd--just call the office and they can help u right away. I never really looked at snything so I can't help u on what things look like but I'm sure others have.
I hope everyone is having a good nights sleep tonite and is reated to have a good Sunday.
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Teka u would.
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Teka hahahaha
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Markat I hope u'r doing OK----sending love.
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Teka--you and Camille should get together for a dvd night! Lots of giggles.
Laurie--I hope your crop circle pattern disappears with no aftereffects! I don't know if I had anything like that or not... because I was the color of a deepest, darkest plum, larger than my palm, entire breast and up into node-ville. I had bruised badly from my "vacuum-assisted biopsy" (mammotome?) a week before. (Biopsy/results/surgery within a week.) Dr. was baffled, and certain I was on blood thinners--but those were the days when I took nothing but a rare Excedrin/migraine... So... the bruising would have covered any odd patterning. I hate to hear it's painful. If it persists into Monday, I'd give the dr/nurse a call and ask what's going on. And your Nick sounds like a sweetheart. Glad he's doing well on AND off the field. (and--you could stay as long as you like. The country is alive with singing frogs, buzzing crickets, bird song, and sunning turtles. The deer are hiding with their newborns, but they'll be brave by July.)
Well, hard to believe, but I'm off to pack the car for the trip down to the coast. (!!) Happy dance. Meds and sunscreen top my list. We leave first thing tomorrow! And I know I'll think of each of you--the beaches have so many, many hermit crabs. They scuttle about and yet make way for each other. They are fun to watch.
Best of luck with all the financial, legal, work, family and health struggles. Hugs to each.
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Love and blessings to you Skittle!! Have a WONDERFUL time! I smiled when you told us about the hermit crabs.
XOXOXOXXO
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Hi all , sorry I have been MIA. Taking a bit of a break to concentrate on getting healthier. Lots of new people and was having trouble keeping up.
Markat, sorry about your mom, thinking of you and your family often.
Laurie, glad your surgery went well, was trying not to scare you, so I hope it was not too much worse. First couple of weeks are the hardest. Glad it seems there was not any surprises, will keep praying for confirmation of this on your final path report.
Cami, skittle, teka and the rest of you wonderful ladies, wishing you a great week.
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Skittle- have a wonderful vacation. I was thinking about days long ago when I lived back east and we spent our summers on the beaches of RI. Miss those days this time of the year. The ocean is healing and will be a good place for you!
B-girl: good to hear from you and that you have been taking care of yourself.
Having a slow day today, as I did not sleep well/enough last night. It thundered and tried to rain here but nada. Bad fires starting up again in the forests here. Need to keep doing the rain dance.
Everyone have a good week!
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Skittle have a wonderful time and be safe--and I liked the crab mention too Laurie.
And good to see u Bgirl, I'm glad u'r taking time for u'rself but if u need or want to share how u'r feeling u know we;re here for u. Even tho we have all dealt with BC there are probaly not 2 of us that have had all the same things happen, but we all seem to understand anything that happens--it's a no rules disease that's about all we're sure of--I hope u'r healing well.
Laurie again--u'r son is a treasure---especially at that age---he'll be such a wonderful man--Of course no one will be good enough for him--you know that???
(((MARKAT)))
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CAm only get a discount if I use my prepaid charge which I don't have anymore..
Dwiii, but SAS will know and if not she will find out....
Laurie what a good kid, he loves you!! There are such sweet people in the world....
Skittle what Cam said...have a wonderful time!!
Me doing ok, just pissed my car is still not usable....hermiting today, not sure about tomorrow....but excited I don't have to go out of the house, pathetic I know but you all understand, and turned the AC off it is like 70...got sunburned at grandsons baseball game yesterday, it sort of hurts but I love it....have to shop a bit on Wednesday to get things for the weekend just in case, never know how you will feel, the mouth/tongue sores suck....ice cream helps tho, lol
Teka, Markat, Michelle, Cam, bgirl, sweet Jazzy and all of the rest hugs!!!
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Blondie a good flavor sherbert is good too.
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I ate water ice yesterday that was awesome also!!
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WRF is water ice---ice cubes???
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camillegal, Okay it was not a pleasant experience talking to the agent at the State level, today. Those state guys are vicious. When I told them I wasn't even aware that I owe them anything since I paid off $13,000 in Sallie Mae (school loans) with the Ch 13 which was in Aug 2012. When I got my discharge papers, I was told I had paid off everything. He told me I should have known I needed to pay the interest and it wasn't their job to send me notices to remind me.He said when the payments stopped in August 2012--that's when the loan went into default. He would not even listen to me when I told him they were being paid through my Ch 13 and it was they who told me that I was discharged and did not owe any one else. I brought out that i had Cancer and the money they took was for disability--he told me that had nothing to do with it and it sounded like I needed to talk to a counselor. I told him he was rude and inconsiderate--he said I could call this other person but he doubted very serious I would get the disability money back. You are right--time to write letters with documentation and complain to whoever will listen. I guess I may not get the money back--but I am going to become a pain in their butts--just because they were so inhuman about it. Got to stand up for my rights and everyone else they are screwing out there.
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next time ask for the supervisor and go up the chair of command...When you work in human services you need to have compassion, be kind and considerate.....sorry you had to deal with that Dwii
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bgirl...thank you for your words...Skittle, Blondie, Jazzy, Camille,,,,love you all. Thank you for the kind words about Nick.
Ok ladies...6 days post op and I still feel like crap. HAHA. Just laying around and decided to check for my pathology reports online again. Guess what? One page was there. I don't remember my heart pounding so hard except when I was about the read my MRI reports. So, it says that the margins are "clear, but close". Give it to me straight girls.....what are my odds of a re-do? It's okay to tell me the truth. I looked it up and it says it depends on the doctor. I want YOUR advice. Everything was presest, Necrosis, grade 2-3, blah, blah. No Oncotype score yet. I'm sure that will trickle in in the days to come.
Thank you for being here for me. Love you all.
XOXOXO
Laurie
P.S. My son got chosen for the summer travel team!! Hurray!!!!
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Teka,
Not sure if the last question was to me or not, but I don't have any info on lymphvascular....
They upped my follow up visit to 6/5. That is good. I will be able to talk to the BS sooner.
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Laurie, when they did my lumpectomy, he didn't think the margins were clear enough and when they went in to do the lymphnodes they took more of the margins, but remember that was 1996....
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:aurie, I'm sorry I can't help u-I really don't know anything--that's how I liked it so I don't even know what an oncotype is but people will know so don't worry. U sound good.
Blondie I'm sorry but Dwilli was talking to the government not a business but the GOVERNMENT EMPLOYEES---this is not a sympathetic group and if u get another person they will tell u something different. It's the GOVERNMENT=remember I worked for them and it would amaze me how people thought they had the power they did, Ugh--Dwilli that's why I'm still fighting with them--they don't bend rules BUT the IRS bends for whom they want and the state of IL has had more governors in jail than most states so what doees that tell u. So Blondie they really don't care unless u aggrevate the hell out of them--It's all right that I write this cuz I write them letters all the time Gov. Pres, and say the and I also tell them same thing. Oh and I also tell them I could help reduc all this debt and get out of the hole we're i. They don't believe me
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I check several threads and I'm a couple of posts behind and then I come here and I'm a couple of pages behind! LoL
I'm doing fine - just been really busy going through stuff in my Mom's garage. Of course that means I also have been busy trying to make space in my own house for stuff I'm bringing home plus trying to make space for some furniture that my boyfriend is going to be bringing back from his Mom's house in Omaha. Too much upheaval for me but it will settle back down eventually.
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Jinkala I'm glad u'r doing ok--but I hate uphevel too. Just like my cat I want no confusion around me or to do--I was always like tht tho, now I'm worse.
(((MARKAT)))
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Yay Teka! Thanks!
Jinkala---busy bee! Wonderful!
Thank you Blondie! Very helpful.
Just told my husband about the sketchy margins. He said, "I know I don't know a lot about this, but I don't think you should have more surgery. I think this is over and it isn't necessary." He doesn't get it. I know I will ultimately have to decide what is mentally and physically right for me. He will support whatever I decide, but I can't help feeling that he thinks that more surgery would be overkill. That hurts. Ugh. I don't want to be perceived as a drama queen, but I KNOW the facts. He doesn't. I think he is back in denial a little again. He wanted this surgery to be it. So did I! And maybe it will. Maybe the margins will be enough for the BS and radiation will take care of the rest.
Happiness and light to all of you....
XOXOXOXO
Laurie
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Laurie, sorry about DH. Sometimes I think they just want it to be over, but mostly because they don't want to see us go throught more stuff. There is a difference between close and not clean, so don't jump too far ahead. Wait to see what the dr. says. Especially if you think they will be recommending radiation.
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Laurie I agree with Bgirl just take it slow and usually men just have a harder time for u'r sake cuz they just can't handle all of this.
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Thanks Bgirl and Camille. I believe you are right.
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what Teka said!!
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Blondie- sorry about the car. Sorry you have to deal with that on top of the rest. Ice creme recommendation- Ben and Jerry's Liz lemon with a swirl of lavender. It is delicious and will feel good on that sore tongue.
Working heavy hours this week but just popped in to say hi! Thinking of all of you tonight. Keeping Markat in my thoughts are prayers during this difficult time as I know we all are.
I have a really funny cat thing to post if I can get it figured out.
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Hi everyone! Thank you so much for the kind words, hugs and prayers. I ended up taking the whole week off from work last week and planning mom's funeral. We had to wait until Saturday to have the visitation (viewing) and then had the Mass and burial right after. It was nice to have it all on one day instead of breaking it up. That week of waiting was a bit emotional however. Now I need to get all the business stuff together and get her apartment cleaned. 3 more days of work and I'm done!
Laurie I'm glad your surgery is done and you are recovering. Before becoming an internet doctor(I mean that in a sweet loving and empathetic way), just wait and see what your doctor thinks is the best course of action. I remember second guessing my decision to have the double mastectomy almost every day for about...6 months lol! Your DH is stressed, you are stressed, and he is probably just wanting life to return to normal- whatever that is!? I remember going to a concert with DH, and our best friends, about 6 weeks after my surgery. I was still bald, so hot, and my whole body hurt. I had to go to the food area and sit for almost the whole concert. DH realized at that point that things would probably be different for a long time. You guys will figure it out. Just give each other some time to let everything sink in. Prayers and huge gentle hugs to you!
Skittle I'm very jealous of your vacation, but you deserve it friend! Have fun!!!
Lori I hope things are going okay!
Blondie, I hope the car is fixed?
Wisteria is a pretty weed here. People either cut it down before they realize, or let it go and it looks beautiful. My mom has it along her fence at her apartment.
My kids at school made me a huge banner while I was gone. It was so sweet Hugs and love to all!0
