The Hermit Club
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Thanks Cami. I am getting my first cup of joe going here and watching the movie, The Wiz, on HBO this morning as I get my day going.
Remember that movie? Made in the late 70s with Diana Ross, Michael Jackson, Lena Horne, and so many more. Maybe one of the first musicals made into a movie?
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Jazzy this ones for you.............
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Aww, thank you my hermit friends!
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I hear it has been snowing back east again. I just had to share this with my winter weary friends.
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This is for anyone who knows Grayson's story.....my grandaughter found this, and my son and I are buying it for Grayson....we can order it on April 7th from a company in Ireland where a woman invented this for her wheelchair bound son so he could stand upright......my Grayson will finally be able to see the world "standing".......God Bless that woman.
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Dwill-hugs
I hope all turns out well. I remember going into the dentist after my DX and didn't know how or if I should say anything about my new health issue. Of course I was all kinds of confused in my head anyhow and I knew I did have to say something. My dentist and the hygienist could not have been nicer and compassionate. Everyone has a story about someone they know who had cancer or BC. I found many walking on eggshells around me for a while too-not wanting to be negative or disclose certain things about others. Even I sometimes don't even know what to say or how to act. But, we learn and try to show whatever kindness we can. Some are smoother than others.
Yes, crappy white stuff on the ground this am, however, warmer temps are coming or so they say. I want warmth on my days off from work.
Wishing you a very happy day tomorrow Jazzy and a special shout out for Grayson........soon baby girl will be standing proud!
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Happy Birthday Jazzy!
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Happy Birthday Jazzy
Cami, the cat with the cupcake is darling ... brought a smile to my face.
Ducky, wonderful that your granddaughter found the Irish device. Is it a new invention?
Dwill and Sand, I had been wondering how much to say at my dentist appointment in a few weeks. Your comments have been helpful plus I don't feel so alone about wondering. I had a small growth removed from my mouth two years ago and a dark spot three years ago. Neither were cancer. I now have dark spots at the corners of my bottom lip which I hope will be nothing too.
I bought some pansy bedding plants yesterday. Working in my planting barrels is an anxiety relief. I have an appointment with my surgeon tomorrow. She wanted to see me after radiation treatments ended, but I never asked why (and I usually ask a ton of questions). I don't think I should be anxious, but I am. At least I can get her opinion on lifting light weights again.
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You know Sally, I think many believe our dentist are totally focused on just our mouths, when in fact, they are physicians concerned with our total health. I just needed a gentle reminder of that. And My dentist said if I needed any rads close to the head and neck area they would be able to assist in devising protective "gear" for that region or if I needed Chemo they would assist with any SEs. Thankfully, my dx remained stage 0, however, it was good to hear and know they were ready to be part of my team! I am fortunate that even my Hygienist is also so totally focused on the whole person. Together they are quite supportive.. Even if I see another dentist in the practice or take my son for a visit...the one dentist who held my hand through the initial phase of my BC dx always stops and gives me a smile and asks how I am doing.
Honestly, I am fortunate to have it reinforced that I have picked some of the very best health care providers for myself and my son.
That said, I think I am going to dump my Gyne Doc. I know she cares about me (I have known her for too many years to mention) but the last couple of visits have been way too rushed and I felt like she was a bit too 'rough' and brief when doing my breast and vaginal exams.
Live and learn.....Although I am kinda tired of the continual learning process.
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Sally........it is called an Upsee........and developed by a woman in Northern Ireland for her son......the story is heartwarming......this is a picture of it off the child......it is attached to the adult, and then to the child.......amazing.
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Happy Birthday Jazzy, sorry not clever enough to post a picture but the wish is there xx
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Thanks to the ladies who have wished GRayson well on the different threads on this website.....my grandaughter sends her love to all of you for your thoughts and prayers......I let her see all the nice things you all say........there are other threads who know about Grayson too....they have followed her for 3 years......her age, and my dx date.......they were born March 3rd, and had surgery March 15th 2011, in the same hospital.........we did not find out immediately she had a disability, but once I did and shared it most of you have showed a love and interest in her...and you know who you are and I thank you.......some never have, but that is there loss....she is an angel.
I will make sure once she gets her little Upsee I send you pictures of her standing......I already promised Alyson I would do this for her, as she has a friend who has twins, and one is disabled.......would be thrilled to share it.
Again to Grayson's cheering team.......thank you from the bottom of my heart......hugs.
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Happy Birthday Jazzygirl!!! Hope you are having a wonder day!!Jazzy and Ducky and the rest of you lovely Hermits--you make me feel so good! Sometimes we need a soft kick in the butt to keep from going in the basement! I was well on my way last night! Thought about what you guys said and got up this morning with a big smile and a whole new perspective--
at least for now. I am a big believer of doing one day at a time and just keeping on working on the days to follow. Had a very happy and fun day with my students. I know my students being happy in class depends on the tones the teacher sets. So I told myself, a lesson well learned from you!Rescheduled a bone density test that my doctor arranged without conferring with me and that was at the same time of an important meeting at my job. Last night that seemed a big deal--today, I just called and had the date moved up for 3 days. It's amazing when you are able to think more clearly how you can move "mountains" around. Well have a wonderful day, my Hermits!
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Ducky every one is always delighted to see Grayson's strength growing with her. And the girls are beautiful
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Thanks Cami I know you do..........and I appreciate it.........you have followed her from the beginning, so you know what struggles she has had......when I get her picture in her Upsee i will post it.....I can't wait.......I am so excited....my God to see her standing upright will be wonderful.........just to see her be part of everything, and not being held or on the floor......she wants to do thi'ngs, but can't, now she will be right there with everyone standing........even if she is attached to her Mom or Dad........thanks again Cam......
Dwill......anything for a friend, and you are a friend..........so happy to see you happy and smiling again.......found out today I have 2 forms of skin cancer......having surgery on May 7th...not what I wanted to hear, but hey, shit happens right................it could be worse........hugs everyone.
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dwill, glad the appointment change seemed a clear choice today. I know what you mean about moving mountains around. I often find that time is an ally only after it has helped and after I have suffered with concern. Too bad I don't remember to tell myself to take "wait time." I too often fret over issues that would seem easier if I just put myself on "pause" for awhile or better yet overnight.
Ducky, sorry to hear about your skin cancers. Thinking of you. It will be wonderful to see Grayson seeing the world upright.
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HOLD ON--WAIT--Ducky u have skin cancer now? WTF I don't remember u saying anything bfore--Sorry but I need more info on this, and kinds. Jeeze like one's not enough.
Onco I sometimes wonder just what these Dr.s know, I mean I'm grateful to all of mine but there is a fine line with caring and worrying about a law suit too. And sometimes u don't know what is going on--and most Docs will say oh this will disappear in time--what time? they won't give u a time cuz know one knows and u can't hold them to it either. Ha
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Oh, ducky
What's the plan? 0 -
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My Katie Kat the pic is so big she's much cuter in person--the pic add 10 lbs on her LOL
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Jazzyy HAPPY BIRTHDAY TO YOUUUUUU
Teka, the boys are 6 & 8
Ducky, where and what kind of skin ca?
Will Grayson be able to eventually get enough muscle strength with this device to stand alone?
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Hi hermits- it was a good day today, despite the usual craziness at work. One friend the client site made me choc covered strawbs (had one and shared the rest with my team), brought flowers, and made me some really fun jewelry. One of my fellow consultants took me out for a delicious lunch. Another friend came to bring me a card and wish me a good day (we have lunch plans next week). Many calls, texts, and FB wishes today along with yours here. I feel blessed.
Ducky- how wonderful you found something for little Grayson to help her along with her walking/standing. We look forward to seeing more photos of her as she continues to grow and get stronger!
I am sorry to hear about the skin cancer. I hope it is nothing serious. But I understand it is now something else to deal with. Keep us posted on what is going on there.
Dwill- several here mentioned this and our other providers do need to know about our overall health, treatments we have had, meds we take. The SEs can affect many things in our body. My dentist always goes over my medication list and asks about any new health issues. Same thing for the eye doc (for those of you on AIs, they can cause cateracts so best to let them know so they can be watching for those).
Lily- thanks for the birthday greetings all the way across the ocean!
Piper- I have changed gyns in the past as needed. Maybe you need to write a letter first to her if you have been with her awhile and let her know your feedback, before you change. Most docs are just not given enough time with their patients, they schedule them in 15 min blocks and sorry, not enough time to really get checked out or listen to what is going on with us. Maybe if you let her know via a patient dissatisfaction letter, she will do better. If you get no response, then you will know it is time to find someone else?
Sally- I drove past some pansies today and was thinking how much I yearn to plant some in my big garden pots out front and also in my rock garden. I will wait until after I come back from my next trip so I am around to make sure they get plenty of water as they are getting started.
Thanks again to everyone for the good b-day wishes. Onward into 54 I go!
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Duckyb--So sorry to hear about the skin cancer. For us, if it is not one thing, then it is another. Keeping you in my pocket and keeping faith that your doctors will have a method of attack, You have enough to worry about with the BC. Please keep us informed. Sending you many hugs my friend..
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Ducky she is a lucky girl
Jazzy happy birthday
Dw we r in u r pocket
Ne started my chemo today and someone I became clear with in chemo diedtoday,50 pancreatic cancer, I am so sad and will miss him all-out went to chemo together for a year, cancer sucks
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Cami.....I had been to a Derm 7 months ago..got a check, but again after being to 3 others and not satisfied my daughters MIL told her about this woman, and she was fantastic......she cut out several spots 1 being a spot on my shin that I had asked the previous Derm about......I said "what about this and showed her my leg with the brown/black spot...........she said "oh that is just sun damage"........I said "you sure".....she said "yes, that's nothng".........
When I went to this new person she said "I am going to take a piece of this spot on your shin'........I said "the other Derm looked at it and said it was sun damage"......she said "I am cutting int it, and she did".......then she recut another spot on my chest that this woman also overlooked..........
Today she called and said "the spot on your LE arm is benign".........the spot on your chest is basal cell, but has grown back for the 2nd time".............then said "but that spot on your leg is not sun damage, it is a squamous cell cancer".......I said "but it was checked 7 months ago".....she said "yes it was, and it was misdiagnosed, and should have been tested"......she is cutting both out on May 7th......she said the one on my shin is the more serious, but won't know anything till she cuts into it.....as to how deep, and big it is...............so we wait...........thanks for asking........
And yes, we can't wait for Grayson to get her Upsee.........
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Ducky I had basal cell on my face, was treated with a cream. Looked badly burned for a few weeks, it's ok now.
Then I had what I thought was an insect bite on my arm. Never itched, and wouldn't go away. Derma cut it out in office, path said it was squamous and she got clean margins. Scar is about 2".
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Yea the Derm said they have to keep cutting until they find no cancer, and get good margins...ugh
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Sorry Ducky, good luck with your upcoming procedures.
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oh Ducky, so sorry to hear this, doctors should always default to checking not assuming but guess its local anaesthetic ??
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