The Hermit Club
Comments
-
Mea Culpa, I've really missed a lot --I am sorry--been so goofy busy and not feeling the way I want to--Well like Superwoman, but I'd be glad to feel like Aunti Acid---
Jazzy WTF the person u were going tti talk to about references was escorted out of the place? OMG--but u will have great references from anyone so don't concern u;r self-u are such an asset to anyone. So don't wory;
And all the pics aeither funny or pretty, I never realized catus had any flower to it, but then until about a year ago I didn't know dandelions were considered a weed.
Ducky that pool looks gigantic and so peaceful--How lucky u r to have a family to enjoy it with, u've been blessed in so many ways.
Lily u sound pretty good , I'm glad things went well and I truly hope they stay well for u.
Basia how are u feeling?
Mags--well she might not read this, but just in case----never, ever go by statisctics, when my Dr. told me, I said until u can pove something 100% don't even bother and my Stats were not good at all, mine were so low and if I would have taken her seriously it might have proved to be right. So just forget it. And they just built the biggest roller coaster in the world, now that's what I would compare this to, but at the end of yers of chemo and rads u do get off, hey maybe that's why some of us are dizzy.??? Enjoy u'r time away
Is someone getting a port put in or was that Mags--OK easy peasy, I went back to work the next day-of course being the Drama Queen that I am I would say oops, can't pickthat up a lot, til finally someone said it's a PEN, I think u can handle that. OK I got caught. overdid it.
OK I'm getting that teeny weeny camera put up my bldder soon, not afraid, cuz I don't have to be put out, just curious that's a small opening--it amazes me what can be done now. Now see if I had a TV reality show then I'd feel like yelling lights, camera action but well let's face it u know I will anyway. Oh I heard from one of my Drs. tody and they want to run more tests on me--Not the urologist another one. I think they are all crazy
Teka u are so right Ignorance is bliss, well not legally but all this stuff.
OK back to work
I'm waving litteraly) to all I missed
0 -
Cami- did I ask you about the camera and why you are having this done? If you are on AI's, my gyn said that it can dry out the tissues around the urethra and cause bladder issues. She gave me a tube of estrace creme which is a topical estrogen to help the area. It seems to help. I hope it is nothing more than that. Good to hear from you today!
And I have my references lined up. That VP was a good dude to work with and they treated him poorly at the end. I leave this contract in a few more weeks and won't work there again. They are not a good client to have and not nice people either.
0 -
Oh Jazzy I wish u so much luck with u'r work.
Oh yes they know about all this pee thing and my problesm, they're just trying to rule out kidney problems and cancer--so they can go from there.
Geeze my primary just called she wants blood work done and wants to see me next week- Damn Drs.
0 -
Cami- good luck with the camera and please DON'T post the pictures here. Seriously though, I had a doctor do laproscopic surgery one time to rule out some pelvic cancer concerns and he started flashing all these photos in the recovery room at me while I was coming out of anesthesia. Sorry doc, I never wanted to see my guts and still don't! Eww! Let us know what you find out?
Teka- the culture I am working is so terribly abusive now. I have worked for them several times before and they always have had a certain dysfunction, but they are outright nasty now. You have heard me say several times I was ready to walk out of the place and am amazed I made it through the whole contract. Now I am ready move on and work for better people. Talked to my biz atty today about this proposal and he is excited to hear about the new work and said the company I am looking to sub through are excellent folk. Encouraging!
0 -
Yes Cami I am blessed...........hope your feeling ok........
It is warm here in Cape May, and a gorgeous weekend is ahead.........however I have to go back for a Christening for my 4th great grandaughter.........on Sunday.....
About the pool yes it is big........right now the temperature of the water is climbing, but still not where I like it.......I want to walk right in......not go......OMG, OMG, and watch the kids laugh..............last year with the heat it got up to 92.............now that was nice.......most would say .......too warm.........not me......love it............have a great weekend.......take care.
0 -
May I just pop in long enough to say, Cami, you crack me up.
And, port goes in Monday.
See? I just can't stay away.
0 -
0 -
Jazzy, I agree ... YAY COFFEE. The hardest part of my upcoming colonoscopy prep will be two days without coffee. The two day prep is new to me, but I have checked it out with the doctor's nurse and the prep people. I am scared of getting too weak but have been assured I will be fine. I have had polyps on both of my 2 previous colonoscopies ... B9 polyps ... although ten years ago, the first colonoscopy had some polyps that although they were benign were the kind that sometimes turn malignant. Can you tell I am scared? All tests/procedures seem scarier since my bc dx.
I hope everyone has a good week end.
0 -
Sally............thinking about you girlfriend........get that test every 3 yrs...........my mother had colon cancer...yea me................
0 -
Thanks Ducky. The prep starts Monday; I'm just worrying early. Enjoy that pool; it's beautiful and, I bet, relaxing.
Teka, that someecard has me giggling, and giggling feels so good.
0 -
Sally believe it or not I have not gone in.........still a little chilly.......well for me anyway........first time the pool was filled after it was built....my goofy husband said "I have to be the first one in"...........well he jumped in that friggin pool......it was April........the water temp was 55...............he is lucky he didn't have a damn heart attack..........he dove in the deep end, swam to the shallow end........jumped out grabbed a towel, and ran upstairs to the master bath, and jumped in the hot shower..........he was nuts.........but never pulled that stunt again.............he loved his shore home and his pool......so sad he did not get to enjoy it........cancer got him only 5 years later.........but here is the goof......loved that man
0 -
Sally- I hope the prep and procedure go well and no findings. I had my first colonscopy at age 51 and they found two of those adenomatus types that turn into cancer. Both were removed, and I am on the five year plan, and go back in two more years. I know I will be a bit more worried next time too knowing I a) had the polyps the first time and b) have already had another kind of cancer.
You are taking good care of your health by getting this screening test and please let us know how it goes?
0 -
Oh, Teka, it has been absolutely marvelous. I will write more when I get home. I'm laying in bed, listening to the continuing laughter and chatter from downstairs, wishing I could have stayed up longer, but even with a pain pill I hurt too bad to do so. Did not want this day to end. But my lumps are like rocks, and aching. We leave in the morning, eight hours drive home.
0 -
well the euphoria of feeling good and no infection has worn off and the reality that I will need a minimum of three, probably four, more surgeries to get a match and proper shape is hitting home, another year to go, then nipple recon after that............and my dear brother says, why bother at your age, you may only have ten years left, why make surgeons rich instead of enjoying lfe.............plus no one is very sympathetic or understanding as they see it as voluntary..........
0 -
Lily- I am sorry to hear you have so many more surgeries ahead. Your brother's comment to you is incredibly insensitive if not outright cruel. I never ceased to be amazed by the unkind words so many women going through this receive from others.
That being said, this is not about him, but about YOU! You are taking care of YOU! No one knows how many years any of us have (including your brother). Having quality of life in the years we are on this plant is what matters.
Hugs sister.
0 -
Ducky, great pictures ... what fun you and your husband must have had.
Jazzy, hoping the current contract will draw to a calm close ... just a few more weeks, right? Any news on the new job?
Mags, I hope your trip home is comfortable ... glad you had a good time.
Lily, so sorry your brother questioned your decision. How did you respond to him?
Teka, great thought.
0 -
Thank you - I told him I did not want to live as I was until I died and he changed the subject, after saying that it was only me and the man who loves me who would see me so why did it matter......!!!! No clue about my discomfort in changing rooms, hospitals etc....
0 -
Sally- bid went in friday with the company I am teaming with, and my understanding is we will hear on the award right around July 1st! They need time to review them, ask questions, etc. I have been on both sides of this before (submitting and reviewing) and know it could even go longer, but it sounds like they want to get going in August so hopefully we will hear in a few more weeks and be on our way. Will let you know how it all turns out!
And yes, only a few more weeks and few days on the contract before I go. I will be working all this coming week, next Monday 6/16 before we leave town for Aspen, then back on the 23rd to finish up by the 30th. Two weeks and two days and then I am on to better things!
Lily- your response to your brother was spot on. No one can understand how we feel about our bodies, or anything else that goes with this. Breast cancer can be a very visible disease (especially when going through chemo), but so much of the time, it is not. I am pretty tough when it comes to people's responses to things in general, but not so much with their commentary about my bc, post recovery, etc. I don't talk about it with very many people these days, I talk about it here mostly. You guys get it, they don't.
0 -
I know even my so called best friend (who did confuse herself with the dates) has not asked how I am feeling or anything else.....yet I have told her how I feel, .its like they see it as vanity........I am becoming more and more reclusive and quite short with people.....one day I shall snap at them, have you had a visible part of your body amputated and been left so that everyone can see how different you are?
0 -
0 -
If any of my friends have surgery or even hospital appointments I always ask how they are or if they need anything, its a bloody funny way of caring to me to not say anything
0 -
Lily- I wish people were more empathetic, I really do. People view life through their own filter and if they have not had the experience, they often don't understand. Not an excuse, just what I have learned going through a lot of hard times in the past. That is why this is a good place, you have fellow compatriots here who do understand.
I have had to learn to tell people what I needed from them since this all started for me. I have never been good at that honestly, as I did not come from a family where sharing your needs was ever encouraged. Even now, in my 50's, it is still a challenge. But I feel better about it as I go along with just letting people know where things are at for me, what I am willing to do or not, what I need and what does not work for me. I have to remind myself no one knows how I am feeling, so it is up to me to let them know and hope they can respond to it in a loving way.
Blessings sister. I hope you continue to feel better every day from your recent surgery.
0 -
Teka - I normally talk abpout pretty much anything except BC - I am far from obsessed with it thats for sure but its the lack of interest and care that gets to me.....it just does not compute in my little brain that anyone can care and not ask how I am feeling after surgery............or a hospital visit................
Jazzy - I hear you...............
0 -
Hermits- been in the closet putting winter things away, finishing putting summer things in handy places. Later than usual because it was cold well into May.
Made some reservations for hot springs in Colorado before we hit the music in Aspen. Soaking, pool time, pedi and body treatment. Good way to decompress after leaving town and before the jazz festival begins. Friend going with me works in the same difficult work environment (but she is full time thus no departure for her like there is for me soon). We leave 6/17, almost a week away now....
Taking a break to run errands and hit the pool. Hard to believe the weekend almost over. Hoping everyone is doing okay with recovery and rest this weekend.
0 -
Hi Ladies, been MIA lately because the weather has been beautiful and I have been outside with my little darlings all day long. Haven't been checking my phone much while I am out with them.
Had to deal with all the in-laws today, lucky me. The day before chemo begins, I was subjected to my brother in law and his wife. Went better than usual because my husband ran interference all day long, my SIL and I are not allowed to be left alone because I am so mean to her and unsympathetic to her needs, or so I've been told. We all laugh about it, but my poor BIL has to deal with it when he gets home, so its easier if we aren't left alone to talk. She truly amazes me, absolute strangers, people in dance class w my girls are like, call me anytime you need, I can take care of the girls for you, take them to the park or something, but here my SIL didn't even fake the , call me if you need anything crap.
Anyway, happy thoughts, 1 of 4 AC's tomorrow. And then the girls dance recital in the evening…hope I can stay awake for it
0 -
Lily.........I agree with you........good friends don't run or look in the other direction when you need them.........a card, some flowers, bring lunch, ask if there is something you would like to do.......or just say.........."look I'm here for you, we don't need to talk unless you want to, but I'm here right next to you if you do".....................
We remind them of what could happen to them..........plain and simple...........have you ever gotten the 3rd degree from someone who hears you have BC or any type of cancer.they want all the gory details, then once they hear them, their gone..................its a "wow, that could be me thing"........a friend, is a friend, is a friend........nothing changes that.
0 -
Hey Teka & hermits, I am home, in a lot of pain but would not have missed this weekend for the world. So much getting loved on and prayed for, another BC survivor there who I've never met who's been praying for me and was very encouraging, about a dozen friends I've known for 6-8 years but only online, getting to put faces with names, spend time talking and sharing and just hugging, and miracle of miracles, all the spouses enjoyed each other too. And DH had a great time, enjoyed the other guys, even said we could do it again. Hopefully next year I won't be in so much pain. But it was awesome.
Thanks for thinking of me. As a hermit I'm always surprised by that. Go figure.
0 -
Mag- glad you are back and had a good time. You sound tired and hope you can get some rest and be ready for the port tomorrow. Let us know how that goes for you. You are a trouper.
Basia- oh I have a SIL just like the one you are talking about! She is my brothers widow and since he has been gone a long time now (over 20 years) and she remarried awhile back, we are not really in touch much. I chose not to tell her about my BC (she had it a year or so before I did) and never will. My experience with her six months before at my mothers funeral reminded me it was, is and will always be all about her! My other SIL is not much better. I don't live around any of them though, thus I did not have to even think about asking them for any sort of direct help. SIL's can be very difficult during these times. Siblings can be very worried about us, but sometimes their spouses don't like the attention going away from them regardless of why. I am glad you are doing okay, all things and people considered....
Ducky is right, true friends don't run away or keep their distance when you get diagnosed. I have had a few folks really disappoint me, and one person I thought was a loyal lifelong friend but not so much. But in the end, the friendship has run it's course. I am grateful for all the people that did show up, were not afraid and are still not afraid to be around me. If those people ever need my help, I will be there for them too. Showing up is so important in life. This whole journey teaches you who really cares. Embrace them.
Blondie- are you doing okay girlfriend?
Cami- are you staying out of trouble?
Teka- I check out that jazz fest and many of the artists who were in town here in April and May were up there to your festival Did you see any of it? I saw Regina Carter was there, saw her in May when she performed here. I am going to see Diana Krall at the Aspen jazz fest, one of my all time favorite vocalists!
Wishing Lily, Mags, Basia a comfortable week ahead with all they are going through. Hoping others here have a good week too.
0 -
Good morning everyone. Teka is starting my day off beautifully. I hope each of us has something wonderful happen this week that is unexpected.
0 -
deleted0
