The Hermit Club
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Good news love when that happens.jazzy u always make me smile
Am ok chemo forgoing the neulasta shot, hopefully the tracker trailer will stay off my chest. Treasure uu all
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Blondie and Dwill- good to hear from you today!
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Bed was not the best choice apparently. My arthritis is so bad that I have to change positions frequently or my joints just scream at me. In the recliner I have support on the sides. I have these poufs under both arms the size of a lemon, and I can't lie on either side because they hurt. I've never been a back sleeper. I think I'm just going to have to be unconscious to get to sleep, once I do I can sleep ok but still just so uncomfortable. I take a muscle relaxer which helps, I may just increase the dose (I only take half the allowed dosage now). I had to take half a pain pill this morning just to not cry. And my hair looks awful. Oh well, it'll be gone soon enough.
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She is an awesome role model! I saw somewhere else that recliner is recommended for 6 weeks post op but no one told me that. My nurse friend said I should be ok to but I might just reassess that.
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mags thinking of you...how is everybody doing...me had chemo yesterday, today steroid day but got lots of fluids yesterday so am doing ok.
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Hi hermits- well I did a good thing for myself today and found some new things happening as a result. As you know, I have been working on this REALLY HARD project for awhile now and am coming to the end of it. My client had asked me to stay on PT in July and since I agreed to that, I started realizing that it was probably not in my best interest to do so. So nothing has been signed contractually yet, and we talked today and I told her I felt it was really better for me to wrap up and go since my work for what I agreed to do will be done in June. She agreed and knows I need to move on. So that is that and basically I have a month to go now (three weeks of actual work as I go to Aspen for a week soon). This place is no longer good for my physical or emotional well being.
No sooner did I do that than a really neat work opportunity has come my way that may be a good fit at the right time and is local (meaning no big consulting travel). It came via some colleagues from a FT job I had here once and of course, we are all in other places now doing other things. I sent in my resume tonight and hope to talk to him tomorrow or by early next week. I felt today like by letting go of the thing I don't want, something I do want is moving in. Will see where this goes.
Blondie- I am glad you are doing okay with this round of chemo. I think of you often.
Mag- sleeping after any surgery is so difficult. I don't have a recliner but many here have used them to be able to feel okay during times of rest.
Speaking of Cami, where is that gal?
Teka- I am going to have a nice photo of my new yellow prickly pear that is starting to bloom for you by this weekend. What is blooming in your garden?
Hoping everyone else is doing okay. I have been really tired this week and have been waking up to early with the VERY CHIRPY birds at 4:30 a.m. I need to get back into my exercise routines this weekend.
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OH I'm so far behind tht Mag got her drains out--yyyeeaaa it's a good feeling t feel freed up and even if u stand in the shower for a couple of minutes u feel better, I think--I had my drains in for 3 months and surprisingly I smelled OK I washed like crazy every day Oh still I couldn't wait to shower. But I think my BS just wanted to see me twice a week--yea right.
Basia u sound good and I'm glad too.
I've been so so busy with the phones I can't even get on the board and then the phone rings, Busy times. I'm on the computer so much and I get such goofy headaches but my pain meds don't take away headaches--why??? I hope everyone has a good nite's sleep tonite and yes I still don't have a bed in my room--I'm so goofy but I started sleeping in a chair when I got my hysterectomy years ago it just got more comfortable.
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I'm back----
Lily that neighbor HIT you OMG--I'd be freaking out, what a horrible person he is all the way around. How can people be so mean? I'm so sorry.
Jazzy u seem to be doing good about the job thing I pray it all works good for u, u deserve to be at a job u enjoy a lot.
Hey Teka
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Cami- good to her from you! I figured you were busy with work. You sound like you are doing okay!
Guess what? I sent in my resume tonight and the managing director contacted me in less than an hour and we have a phone meeting set up tomorrow morning. Really feeling excited. Will let you know how it goes! Whoot whoot!
Hoping everyone has good sleep tonight, especially those recovering from surgery or heading in. You have friends here who care.
Good night!
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Jazzy that sounds so exciting. Yea
Teka what pretty flowers.
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Jazzy great news!
As for my neighbour, he crossed the line, he is a pensioner, lives alone with his dog and i just found out that when we were away at Easter he was deliberately tormenting my dogs and my dog sitter. Now anyone who causes stress or harm to any animal pushes my buttons, and so I am taking legal action against him, for assault amongst other things. Dog sitter has now written a statement and in a few weeks he will discover he is the subject of a criminal action. I have employed a specialist solicitor who is passionate about animal welfare and charges very low fees, and she will do statement to police for me. No one messes with my animals without consequences.
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Good for u Lily anyone wh bothers animals is sick, I mean really sick--I hope he gets nmaximum results. And hope u get some rest form this maniac. He should not ive amount people.
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Oh I know I repeat but today I'm going to make my app't for my urologist to take a camera and look up my peehole, it all just amazes me all that can be done, how small can that camera be.
I feel like I'm always in a James Bond movie without the hunkiness of a James Bond figure.Oh Teka sounds like George Clooney is really getting married in France maybe or Italy, why don't these big celebrities get married in the US and give work to people here.
Jazzy what's going on????
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Lilly- by pensioner, I believe that means he is retired? He sounds absolutely horrible. It is incredible how mean people can be. People who hurt children, the elderly, and the animals are the worst. Take care of yourself through all this please!
Cami- waking up feeling rested and heading to work today. A little light rain this morning of the sprinkle variety. We are supposed to get rain through tomorrow. Lots of spring rain which is unusual for here, but we will take it. We are all hoping for a cooler and wetter summer. The last few years have been super hot and filled with bad wild fires.
Teka- nice blooms! Your gardens must be beautiful!
TGIF my hermit peeps. Into June we go.......
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Jazzy I am so excited for you, karma does have a way of working...have a nice weeekend everyone, chemo bad time is kicking in so not sure how much I will be on, but grandson has a bb game tomorrow and the twins have one on sunday and I am supposed to go to the phillies game, curtosity of the Good Guys/Bringing Hope Home which is an agency who gave me a grant and counts me in everytime they have something to share with survivors, which you all know how much I hate that word, not a survivor I am living with cancer....anyway not sure if I am going, have to take the wheelchair and need an adult to push it...we willl seee...have a wonderful weekend and sorry didn't comment on others that have shared...bbl
sandy aka blondie
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blondie, hope you are able to get to all those baseball games. Don't forget to take sunblock and a big shady hat.
Jazzy, glad to hear that your work environment looks to be shaping up to be calmer with the new opportunity.
Lily, you are doing your neighborhood a favor by taking action against the nasty neighbor. Keep us posted. Hopefully, the situation will be handled quickly and well.
Cami, will you be able to get an appointment quickly or will you have to wait a long time ... hopefully quickly. You deserve a quick appointment!
Teka, your yard must be beautiful ... what a variety.
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Oh chit I forgot to make an app't today, see how I am---I am a nitemare for a patient. I'll call Monday and it really doesn't make any difference to me when I make it--I do this all the time--that's why when I started all this crap my primary made all my app't he has known me for years. Now since I moved this new one is not happy with me cuz I wait to long for her. but I do forget. And I don't follow the path of being concerned. Oh well.
Teka what gets me is these young uns LOVE someone and in no time these young stars are really gone to hell and they don't understand they have a responsibility for young people at all. Then another one takes over anyway.
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Hi hermits- I had a good day today! Talked to the consulting firm I may sub through on this new work. The opportunity is so cool and I am so excited. I have some work to do this weekend to prepare some more things for them and fingers crossed here. Thanks for the good wishes and will keep you posted!
Blondie- I hope you can get to the games. Living with cancer and you amaze me with your strength and perseverance. Have fun and then rest!
Cami- so I wanted to ask you if you have problems with the urethra? My gyn told me lack of estrogen with the drugs many of us take can result in problems with that area. She has me using a drop of estrace creme locally to keep the area healthier. Just thought I would mention it if you are having those types of problems.
I ended my day with a nice massage tonight. My body was really stiff and achy and it is much better tonight.
Hope you all have sweet dreams!
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Good morning hermits. Hugs to everyone out there. Wishing you a good weekend!
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Oh how cute u two.
Jazzy this really sounds good for u. Fingers crossed. BTW I'm not sure what the Uretha is except Ureatha Franklin. U know I don't know these things. I just always have UTS's with blood and some kind of proteins not supposed to be there??? So they have to rule out cancer before they keep treating it that's all.
Hope everyone's day if a Funday.
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Well finally I have some movement in my chest tissue from using the BRAVA hand pump, the electric pump literally gave up the ghost, probably thought me too much like hard work......hoping its going to help prevent complications for my next procedure this Wednesday......and my neighbour is definitely behaving differently the last two days so lets hope he has got the message........
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Lily- good to hear. We will be with you here as you head into surgery Wed and come out the other side into recovery. You have friends here.
Teka- this is for you, my latest cactus bloom. I picked this from a wild area a number of years ago when I first planted the gardens, and it has now grown to be a patch of prickly pear 6 feet long.
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No, but my scottish broom that is also blooming is very fragrant!
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Not good news on the roof folks. The latest hail damage is going to result in another roof replacement, unless the insurance company wants to do second opinion since it was just replaced last year due to the same reasons. I may need to do a tile upgrade for the next go around n the roof, as the shingles are just note going to make it with the severe storms and more hail we get these days. It is going to be more to deal with at the house and also expensive to do the tile. Sigh......
On a brighter note, I got a nice loaner from the dealer today to drive thru tomorrow while my convertible is getting fixed. A Jaguar XF. I be stylin'!
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Teka- the insurance company paid last year to replace what I had (shingle roof) so when I do this again, they will pay for that type of replacement and I will pay the difference to upgrade. Tile is better for the SW as with the heat, metal is only a good option up in the mountains. When I built the house, the realtor was trying to get me to do the $5K upgrade with the tile but several people I know talked me out of it. Live and learn. I will get through this.
Yikes, the VP on the project where I worked got walked out the door Friday. Everyone unsettled. I am finishing the contract end of the month and had hoped to talk to him about being a reference on the new work I am hoping to get. Got a substitute, as now is not the time to ask for that. Another peice of unwelcomed news today.
On a brighter note, I get to keep the loaner jag through tomorrow as they fix the repair on my convertible!
What is else going on for everyone on this Monday of many things?
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I start chemo July 1. DH asked how I feel. Trapped, like I'm on a rollercoaster and can't get off. Not a rollercoaster person at all.
Chances of "cure" with chemo, rads, & hormone therapy: 59%
I know, I'm not a statistic.
There were cells in the muscle tissue, so they had to take some to get clear margins.
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Magdalene - s - - t................I too lost some muscle in my modified radical mastectomy..........its horrible to feel so trapped....but you are right you are not a statistic, and their frames of reference don´t take into account all the things I am doing for myself, exercise, de stressing, vitamins, supplements etc etc......and the same applies for you, their numbers are just standardised references, you can and will beat this, I was Stage IIIA Grade 2 too. The stats given to me were a lot worse than yours but I don´t believe them.....please just forget them and focus on health.........I am two years on now and never thought I would feel as well as I do now when I was diagnosed.......I am not always so hot emotionally but physically loads better than i anticipated.
H U G s to you......
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Mag- this is a real roller coaster, no two ways about it. The way I got through things was to take one day at a time. It is good to know your treatment plan so you know the course of care and timelines that go with it, but then park that and focus on what you have to do each day. Get to the infusion center, go for a daily rad treatment, take a hormone pill, going in to see the doctor.
Along the way, if you are up to it, try to go do something you enjoy that it not too taxing. Have someone take you for a ride to look at summer gardens, to get a cup of coffee or an ice creme cone, have someone paint your toenails. It may sound surprising but these little things will give you a small feeling of normalcy during the treatment period which will make everything seem so out of control. Having those little breaks from all the emotions that go with this is really important.
Hugs today Mag. We are here with you.
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Jazzy, it sounds like the recent work situation was a surprise. I hope the VP replacement brings some fun and calm.
I have finally had all my slides, well the keepers, transferred to disk. Now I can finish putting them into files on my computer. Then I can make flash drives for each of my sons and myself in case the computer crashes. The next project will be organizing/dealing with the many hard copy photos. I am enjoying the computer organization piece of this project.
Mags, (((hugs))). I did not have chemo, but your roller coaster analogy fits my state of mind at the moment even though I am farther out from dx than you. Jazzy mentions taking little breaks from emotions. At the moment short early morning walks are helping me. I hope you can find little break activities that work for you.
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