The Hermit Club
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A scene at Starbucks--OM what a motley crew u'r living thru.--So sorry. Please just go to u'r room and say u'r having a bad day--I bet they'll find rheir food to eat.
Jane u feelin better,? I hope.
I've been in my nighty all day and in my room, rotten lousey cold that's going around and I'm already on an antibiotic so stupidly I thought I had a better chance of not catching it. Oh well, I' just glad I felt OK for the holiday.--I'm going back to bein a hermit again--it bodes me well.
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Camillegal-hi there! The reason I am being sent out of state is that this type of internal radiation recommended for me (for bilateral) is called interstitial brachytherapy and not something that is here in the smaller city where I live. I did check with the local cancer center in my city and they are not doing this here yet, only the external beam radiation which most women have. External beam is not recommended for me due to too much rad hitting the chest wall and surrounding organs. This type of procedure is been in clinical trials and moving more mainstream. You may be hearing a lot more about it in the future, less side effects to women, faster treatment. So I am going to a city with more cancer treatment centers to get this done. Just one state away, but will have to go 2X for 10 days each. I have struggled through this decision but am now ready to go.
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Jazzy I'm glad it something new and better, then it worth it. I just don't keep up with all the new technology, hell I didn't keep up with my stuff. I'm glad u'r doing this and let us know exactly how t is for u too.
Is everone still recuping from Christmas, I am with a beautiful head cold that everyone seems to have around here. Wow it's spreading like wildfire in these parts. ick, but it gives me a super reason to stay bundled up and not do anything--which is my type of day. LOL
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I'm still feeling a little hungover from Christmas-not alcohol, just life. Sorry to those dealing with crappy people.
I don't have to go back to the oncologist for 3months!
Camille I hope you are feeling better soon!0 -
Markat isn't that great when u don't have to see u'r onc. for 3 months--it sounds like a vacation, auch a nice feeling--no test, or scan or any hospital things. ood thing u'r going to start working or u'd reall stay in more. LOL Like me.
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Cami- feel better from that cold!
Markat- congrats on the break from the doctor world for three months!
Going back into my hermit world next week ladies, but will let you know how the internal rad goes!
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Jazz u'd better let us know---sounds different to me and I want to know.
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markat--yay! happy news not to have to visit drworld for a while. Like a minivacation.
LL--you are far more patient than I. It takes a lot to sit back and let the majority roar. I hope some day they realize how hard you worked, even while you were feeling yucky. As one of my little guys would say, "You is good peoples."
cami--nasty cold better soon, I hope, at least so you feel well for welcoming 2013. Hard to believe. 12 went by awfully quickly. Did gs have a happy Christmas?
Jazzy--best of luck with rads. Hope it goes quickly and well, so you can feel great again, and at peace that all c is zapped and gone. Will someone be with you for support?
Well, the forecasters were right. We actually had a blizzard. No electricity for days, and ten inches still on the ground. DH and a friend are out now with chainsaws, clearing some of the more major mess so we can at least get down the driveway in an emergency. Hundreds of limbs are down. Huge magnolia right by the house took a major hit, and weeping willow may not make it... Counted 32 cardinals at the bird feeder, and four enormous squirrels. (For Canada girls and up-north neighbors, this may be the norm for winter, but for here, it's like an alien invasion!)
I love snow, but not the consequences. "Wintery mix" is tonight's forecast... The fun continues. But really it has been fun... hermiting is expected when ice and snow keep everyone house-bound. And, once the power came back on, cranking out quarts of hot chocolate and mounds of cinnamon rolls for ice crews has been fun. I love a steamy, sweet-smelling kitchen. Happy relaxing, if you can. I really should clean up the Christmas wrapping. Hate to ruin the cat playground...
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Skittle my GS said this was the best Christmas ever??? So te's good enought for me.
Wow u really got hit hard wit snow and no doubt winds to--NO ELECTRICITY--that would make me the saddest. At least winter gives u a better reason to be a hermit and I enjoy that.
I caleed the Dr. again, I swear I never in my life called Drs. the way I have in the last 6 months--and they always find somethinf, but I feel like a hypochondriac, I think they're tired of me for sure. OH well
It's chilly out today and all i'veeaten are cookies the last coupe of days--I'm so sick of them hahaha.
Oh my Dr.just called amd I know se doesn't like to give any meds unless she sees me, but since I have diarrhea and I've had this before she'll cal in a med. for me--one I've never had tho?? Bit she's fas at gettim back to u. at leasr. So we'll get the meds ASAP==I'll be fine in a couple of days.
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Camille, hope you got your meds and are feeling better!
Skittle, we got hit by the snow too...and again tonight!
I'm feeling blue...just found out my husband's cousin and his wife are getting divorced. She has been like a sister to me
It's messy and sad and dragging other people down. No one wanted to tell me to keep me from getting upset.
Can't sleep but hopefully today is better!0 -
Skittle- yes, I have a friend flying in from another state who is coming to be there with me most of the time. Will be there the last few days on my own. When I go back the second time, most likely sometime in Feb, I will likely be doing that one on my own, but think after going through this with a friend the first time, I will know what to expect. I feel ready to get to this next step on the path to wellness. I don't have as long and detailed a treatment as some here, but mine is a just bit more complicated with stuff on both sides.
Will let you all know how it goes. Process begins next week with consults on wed, catheter insertion on thursday, some days off to do remote work and enjoy the location I will be in with my friend (we found a few things in the area we want to do on the weekend). Then treatment begins on Monday 1/7. My feeling is the time will go fast.
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Jazzy I'm so glad u have someone to go with this time--u'r comfort level will be so much different havin someone with u. Do as much as u can do and enjoy as much as u can.
Markat I'm so sorry to hear that especially because u 2 were so close. That stinks. Things change then I know but u can still stay in touch, I've done that with members in my family cuz I truly felt like they were family and learned to love them. One of them said to me--OK he wants a divorce I can live with that--but he's taking away my family and that pisses me off. So u wonder how much she cares for u too.Divorce is hard on more han just rhe couple and especially their kds, but more too. Both of the men got married and I really don't feel anythin for their new wives---I miss the old ones.
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Hi all - I just found this site, and it's so "me". I was happy to come across it. My husband calls me his little hermit crab. He's a hairdresser (who I guess I won't have to go to for a while for color), and is sooo social. He loves going out all the time, and most of the time I stay home. It got worse three years ago when my 20 year old son died of an accidential overdose. I had good friends that dragged me out once a week, and I'm so thankful to them. We still meet. Just when I was getting my life together again, got another job, lost weight and reluctantly went out (although I do like certain people in small groups), this diagnosis happened. I'm a positive person and swear by the book "A new earth" by Eckhart Tolle, I do like to stay home. I've been on a cocktail of celexa and wellbutrin since Josh died, and I hope that will not hinder when I start treatment in January. I may need to up the dose - LOL. . . I also have been declining calls and wrote a generic text and sent it to everyone. I'm so tired of explaining. I understand how they feel, because even when I was diagnosed I wasn't concerned, and thought, oh well. I'll get treatment, reconstruction, etc., and I'll be fine. Now I find I'm triple negative and need to get tested for BRCA and having a pet scan to see if it's metastasized (which my gut says it has). My path showed lymphovascular invasion. Oy . . . oh well, we all have to stay positive and stay good and true to ourselves. Hope to hear from you . . . I'm going to make this group a favorite. Lauren
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Lauren--welcome to the little nest of hermits! Sorry you find yourself on this site at all, but this is the warmest group I've found... all of us in the same leaky boat. You'll be loved and supported here, laughed with, cried with, consoled and held up. I cannot imagine your grief, losing your son. Your drs can certainly guide you on what cocktails for sanity/help you can best take with whatever your future holds, with new drugs and procedures in the mix. I wish you well, hope for the best, and look forward to getting to know you as the days progress.
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Thanks Skittle - you can't imagine how much that means. Actually, you probably can imagine. Being that we are all hermits, I find it hard not to be lazy and just grab things from the fridge etc. -- Are there any particular types of food that are recommended and what one should stay away from?
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Hi Lauren15- welcome to this group. It is a very nice group of women in all stages of treatment, going through various things- the ups, the downs, the good news and the bad, the expectations of others in their lives, and all endless explaining. You have been through so much and now more with your diagnosis, and will say I am sorry to hear this. But we are a resource for you. This group is a place I can share when I feel I cannot or don't want to share things with family and friends who may not understand or are just tired of hearing about my process.
Getting dragged through all the tests is exhausting. And then waiting for all the results is very stressful too. But they tend to do this as you are getting started to be sure they understand your baseline condition. I had the BRACA test also, lots of other tests too and there always seem to be more with time. Information is power, and will help you know to know what the best thing is to do for your particular bc.
One of the things I decided early was to limit who I told within my family or friendship circles. I did this to keep my medical care out of my professional network and also so I did not have to keep a large group of folks in the know about how I am doing. Everyone is different about this though, some need to share it broadly, others just let a few key people know what is going on. I think limiting your communication to simple texts or e-mails to say you will let folks know how you are doing as you can is a way to save your energy and sanity. It will take your energy and focus to be sure you do all you need to do to get well.
Regarding food, the only thing I will share is that during two surgeries I had this fall (one related to the bc, the other around something else), my visiting nurse and doctors all said "high protein for healing." Especially after surgery. I have been doing a higher protein diet for awhile now (along with eating good fruits and veggies) and it has helped me to heal well from the two surgeries I had this fall. I am sure others will have things to share on this too.
Take care!
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Welcome Lauren--and I am so sorry for u'r loss and that u have to find u'r self here.
But as was said this is a great group, we all understand this feeling we have of just kinda let me alone unless I feel like doing something. Where so often people feel like the more we get out the better we feel. Well I don't feel that way. On my bad days I don't want to see people at all- I'd rather just be alone. I know there are a lot of tests to have and it's stressful, but they have to do them--and when it's done the real planning starts for u'r healing.
And Jazzy said about protein I think she's right--I don't know much of anything--I' a follower not a leader--just do what I'm told, but alot of these gals know alot and share anything u want to know and we all share our feelings. Those I understand LOL
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Thanks for a warm welcome. I think I need to go to sleep now and rest. Although I'm cool, calm, and collected on the outside, my subconscious is getting the best of me. Every ache, pain, etc. makes me think it has taken over my body. Until I get the PET scans, I'm imagining the worst. I need to put my brain to sleep. Good night all, and I look forward to getting to know all of you.
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Lauren... Nutrition will be key and your onc will guide you on what you need to do, if anything at all. Sometimes, keeping it all as "normal" as possible is best since your body and brain are having to cope with input overload already. (I have to take 1800 calcium, 3000 D3, 250 magnesium, for example...) I'm told to avoid all alcohol (not a problem since I've never liked it...) and am to keep my weight down. I'm vegetarian so fruits/veggies are no problem. I've been told to help with bone health to increase daily consumption of prunes, oatmeal, and 1-2 oz of dark chocolate. Who knows if it'll help or not, but those are guidelines given to me. Best of luck on your unfolding journey.
markat--how are you? sorry for your sad situation. Protect your heart.
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Skittle u said it all, stop stealing my words. LOL
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Things have been crazy around my house and travelled to see DD#2. Looking forward to some quiet in the new year. Feeling post Christmas hermitude coming on. Will catch up soon. Wishing you all healtha and happiness in 2013.
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amen. safe flights, gentle landings
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Hi all! HAPPY NEW YEAR!!! Wishing you health and happiness in 2013!!
Lauren, welcome. Like the others have said sorry you have joined the bc world. Not a club any of us want to be a part of. This is a great group of ladies...hmmm do I hear an echo?
Markat sorry about your bummer news. Any reason that your relationship with her has to change?
Skittle, I love lady bugs! They are supposed to be good luck!
*waves* and ((hugs)) to all!
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Happy New Year, Hermits!
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Oh Boy is this where I belong now but---HAPPY NEW YEAR TO ALL and MUCH LOVE AND MUCH HEALTH THIS YEAR.
I can't get rid of this cold it really has me down--everybody in the family has it now. YUK--this is really a bad one. Oh well I'll just stay in my room AGAIN. LOL
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After all my appointments yesterday, I finally picked "my team". I will hopefully get my remaining tests this week, and start chemo as soon as they can get the port in. Surgery will come after. So far I've rec'd no guidance on nutrition, but I did receive some info from a trainer friend of mine on a healthy detox and ways of eating more natural/organic/holistic, which I will look into. My whole family needs to detox. I truly believe that's where the cancer came from -- the environment, since there is absolutely no history in my family, and I've always been healthy. Hope everyone has a wonderful 2013. I'm still a bit hung over. I think I liked the champagne I was drinking last night a little too much :-)
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@Lauren15
My family moved from the East Bay to a brand new house in San Jose in the late 1960's. The house was built in what had previously been an orchard. I'm now the third out of my four siblings who has gotten some kind of cancer under age 60 (and my brother and sister were under age 50 at DX), and I have to wonder, what was Farmer Brown spraying on those trees all that time? Was there a pesticide spill or the pesticide storage shed in what was later to become our back yard? Of course we will never know now, but I have to wonder, especially since the one sibling who hasn't gotten cancer is the oldest of us four. He was in his mid-teens by the time we moved--had he already outgrown the vulnerable growth stage for whatever environmental factor got the rest of us? Again, there's no way to know. I listened to the book Anti-Cancer on CD last year and the doctor who wrote that hypothesizes that the huge increase in cancers is due, at least in part, to the enormous number of new, inadequately tested chemicals we're exposed to in our food, homes and just every-day life in general. I can't help but think he may be on to something there.But Happy New Year anyway. At least nowadays there are treatments we can use to increase our chances of recovering from cancer and living out a long life despite it. I've done quite a lot of genealogical research on my family, and if I'd been born in an earlier generation, I quite likely wouldn't even have lived long enough to get cancer, and a good chance my sister wouldn't have either. Before antibiotics, I probably would have died of the abcess/lymphatic infection I had when I was 37, and she might well have been killed by peritonitis from her appendix when she was still in grade school. So here's to 2013, and may a cure be found soon!
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Where did you get the Fla-Vor-Ice? I never heard of it.
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Great - I have a costco card - maybe they have it there too.
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Hi everyone--Lauren I' glad u;r thinking ahead,--hope it all helps.
And curveball this all makes u wonder cuz I'm the youngestof 4 and we were brought up on ostly garden veggies and fruits and homemade breads--we hardy at mests of any kind. Wedid drink milk when they used to deliver it. So we actually were brought up pretty healthy and 3 out of 4 of us have cancer. I honestly think everything they use is doing awfult things to our bodies--but cancer is a beast that stands alone, jusr like all the chemo, rads, operations and then to get mets, I think no one should get mets with all these meds but again the beast stands alone and does whatever the hell it wants,
Now that started the New Year Happy hahahaha-Teka I'm sorry u felt sad, but NY's to me is kind of sad rime goes by and this year has not been one of u'r best. And I love the warm feeling I et from decorations and lhts outside--and when they leave the whole neighborhood looks dismal in winter. Boy I'm really glood and doom gals--I don't feel that way, except I still have this awful cold, now my kids have strep throat and I did all I could to keep aways from them with my Lysol. LOL
My sister left today for a 3 day vacation with all of her kids and grandchildren- 20 in all--going to Galena, IL so she was really looking for forward ro that and most of her grandchiledren are teenagers so they are alot of fun. I'm so happy for her. They've never done that before, It's not super far from here but when u'r there u feel like u've left ILL. it so very pretty and homey-like old fashiony.
Luaren I'm glad u'r geting started oh--use plasric utensils when u start chemo, somerimes that helps. And tell us every single thing--the irls will no doubt have tips to help u along.
I should make a resolution to learn how to type. Altho I had it in school for 2 yrs. and used it most of my life so I really figure this is the best it wil get. Sorry. LOL
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